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Quote from: Ethan on June 29, 2022, 05:12:28 PM29 JUNE 2022 ::I appreciate that this is an old thread, but I post this in the hope that someone might be able to jump on here.I experienced Peyronies about 10 months ago. Now I am faced with looking for treatment in the UK, ideally on the NHS.I have been referred to Prof David Ralph (UCHL), and I have already spoken with some people who work for him, and they have informed me that all the Xiaflex / Xiapex is out of stock in the UK, and there are supplies stuck over in the USA. And that they only have Verapamil in the UK atm.If this type of treatment (Xiapex) is the best (or v good) for peyronies ... does anyone here know how or where I could get my hands on some please?
Quote from: lukewill on July 03, 2022, 11:35:06 AMHi Ethan Do your research incredibly carefully, however I would personally advise you to steer clear of Dr Ralph. He has caused further damage to many many patients. I believe he is a charlatan. Xiapex works in a small number of cases but for many has little effect and to some cause increased damage due to injecting with a needle into tissue which is already damaged. (You would not poke any other serious wound with a needle would you?) Many patients have written about how Dr Ralph simply through the initial inspection, causes irreparable further damage. He knows he is doing it too. He does it to further the damage that Peyronie does so that he can then push patients towards penile implant surgery, which is his speciality field, and which is where, surprise surprise, he makes most of his money. Honestly i know this sounds harsh or whatever, but don't say you were not warned. Good luck
Quote from: FlatteningTheCurve on July 03, 2022, 12:27:56 PMHi Ethan,I am undergoing Verapamil now at London Andrology as it seems to be the best option available in the UK atm although not through the NHS, only through private healthcare. I am definitely seeing improvements through this but it is a very different substance compared to Xiflex. Other than that, there is PRP but there is less research on how durable the results are and reviews seem to be mixed so far so I cannot say much about that.I heard a few weeks ago that Xiaflex IS available in the UK again but it is really expensive. It is also a complex process where the docs can only order one injection at the time and given the financial status of the company manufacturing the substance, there is a lot of uncertainty about accessing enough for injections over all. Please see this thread for more details: https://www.peyroniesforum.net/index.php/topic,17910.0.htmlHope that helps!
Quote from: FlatteningTheCurve on September 22, 2022, 03:29:08 PMHey,I have not tried both. Xiaflex is too expensive in the UK at the moment (roughy £7,000 per session, at least 2-3 sessions is recommended).Verapamil is a calcium channel blocker. It has been around for around 40 years and is used for different kinds of treatment. Xiaflex is an enzyme that dissolves collagen and has been around for just over 10 years. My doc, who has treated patients with both Xiaflex and Verapamil, describes Xiaflex as more aggressive of the two while Verapamil is weaker. Thus, in his experience (just relaying what he told me) Xiaflex tends to render better results in terms of curvature reduction but Verapamil is also easier to control. Another difference is that for Xiaflex you also receive fewer rounds of injection and fewer injections each round. For Verapamil, I got injected 13 times each session and had 12 sessions in total. This leads to quite a bit of swelling and bruising, which I am sure is the case for Xiaflex as well, just saying that the treatment and the effects might differ. I think I saw Dr Trost saying that he believes Verapamil is more risky since each injection constitutes a risk. Then again, my doc likely recommends Verapamil because that is what is available, and Dr Trost is likely to recommend Xiaflex because that is his preferred form of treatment... Anyway, hope that answers your question.
Quote from: lukewill on July 03, 2022, 11:35:06 AM... I would personally advise you to steer clear of Dr Ralph ...
Quote from: FlatteningTheCurve on October 30, 2022, 12:18:18 PM... At London Andrology I first consulted Suks Minhas and then Dr Tet Yap. If I was you and you are interested in only injections I would request Dr Yap to assess your condition straight away, that would mena you only pay for one initial consultation. ...