Worsening symptoms 1,5 year straight - Need HELP to STOP it

[Marteus]

Hello

I've been following this forum for a while, but this is my first post because I've gotten into a situation where I don't know how to proceed, and I'm starting to feel like my mental health is getting worse. So I'll try to address my case to people who have been suffering from this disease longer than me.

I found a small lump on my penis, right under the glans, around March 2024. I made an appointment with a doctor and then had an ultrasound. I was referred to a urologist, and after 2 months, when I was finally able to go for an examination, the lump had doubled in size and formed another one 3cm lower. The female doctor told me at the time that it was Peyronies disease, only by palpation and that there were possibilities that the lumps would absorb themselves or require surgery, which scared me. When the lump near the glans kept growing, after half a year, I went to the doctor again; this time, there was someone different. Again, according to palpation only, the same diagnosis and the possibility of injections of Verapamil (which I did not go for based on experience here) or surgery + recommendation to use Restorex. I hesitated for some time and looked for information about treatment options, and because of the price of Restorex.
Now I have been using Restorex for 3 weeks (I should probably start way earlier), the lump near the glans transformed into an hourglass, the lump below has grown about 3 times, and another one is forming on the sides of the penis and slowly connecting to the hourglass section.
I do not remember any situation where I would hurt my penis, so no idea how it started.
So far, I have no problem with erection (morning erection almost daily), although it is worse to maintain it, but I attribute that to my psyche. Slight turn to the left, but it is straightening slowly, because new lumps are forming on the opposite side. I have almost no pain, except clamping my glans into Restorex (hourglass is very close)
Sex once a week, masturbation once a week, libido weakens - psyche case.
Shortening of the penis by about 2cm and a reduction at hourglass section by 2.5cm in diameter.
The big problem for me is that I did not have a big penis before the Peyronies, and I felt really bad about it, so you can imagine how it feels to start losing length and girth at the same time.

I am 178cm and about 75kg, 35 years old, so not overweight. I don't eat much sugar, and I try to give it up completely. I am switching to an anti-inflammatory diet. I don't smoke, I work as a Carpenter, so 8 hours on my feet (not a sedentary job), I do sports a few times a week (I could add). I drink beer on the weekends only.
I take - L- arginine 1000mg, Coenzyme Q10 200mg and Acetyl- L- carnitine 750mg almost daily (I should probably double it) for a month and a half.
But I do not see any improvements or even slowing the progress over the year and a half (I should have acted sooner)

I have a few questions:

1. How to stop the progression of the disease? The condition is still worsening.
2. Is it possible that Restorex contributes to the formation of new injuries?
3. Is it good to have an erection after using Restorex?
4. Is it possible to use RestoreX after sex?

5. Is it possible that this disease is connected to something else? I do a lot of camping, even in winter, and I started to have very cold feet and ass, and my left thigh is numb sometimes - I guess bad blood flow? I don't drink much water during the day, which I am trying to change as well, but as soon as I start drinking more, I start going to the bathroom to urinate often. (kidney problem?)

6. I want to make another appointment with a urologist. What should I ask him? I think he doesn't care much.
7. Is there a good doctor in Vancouver I can switch to?

Sorry for the long post, but I tried to mention everything which can help with understanding my condition.

Thanks for any advice.
It is hard to talk about it publicly like that. I hope I did not break any rules here on the forum with this post.
I wish the disease wouldn't get worse, although I don't really believe in it anymore.

M.

[Pfract]

Hey Marteus! Welcome aboard! We are all in this together, for better or for worse... It takes a lot of courage to share something this personal, especially when it's impacting your mental health and self-image. Please know that you haven't broken any rules—this is exactly what these spaces are for.

Peyronie's Disease (Peyronies Disease) is often divided into two stages: the active phase (where plaques are still forming and changing) and the stable phase (where the scarring has calcified and stopped changing). Based on your description of new lumps and changing shape, you appear to still be in the active phase.

.your supplements are on point but I would daily cialis if you can tolerate it well. Recommended by many doctors according to the latest evidence. It doesn't stop the progressing but it helps with it. Being proactive and staying on it, coupled with restorex and the ved gives you the best chances at tackling this.

Restorex is not know to cause any injury. Only thing I have seen was a bump on the skin behind the glans. Also having an erection right after restorex is not a problem. Also not a necessity, I feel after all I read here and on the user manual-documents. I see no issue on using restorex after sex, provided it's not right after and your penis is fully flaccid.

If your urologist doesn't care you have to find a sexual medicine specialist that wants to treat you and deals with this disease. I am also Canadian, but I am in Ontario.