Is AI a gamechanger for acute recovery and prevention?

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benneb

After years of stability I have flare up. Just like before, of course the panick started. But then I started carefully posting what I see and feel in an LLM. The responses are absolute gold. It gives exactly whats happening and what to do. It says the flare is most likely a nerve irritation and tells me what to do, not to do and medication to take when. Day 4 of recovery and already a lot better.
I'm sure that without this I would constantly check and overdo on the meds.


I tried it with the symptoms of the original peyronie and it gave advice of which most of it I did the opposite.

Think most (not all) peyronie comes from bad followup, panick, constant testing and touching. I really believe that if AI was available, I wouldnt be in this situation.

Hope this helps any new guys.
Peyronie since 2020. Inflammation started probably after microtrauma. Almost no curvature. Still a weak spot with  scarring. At this point biggest issue is ED and once in a while recurring inflammation.

Pfract

AI is amazing at giving answers and it works really good, until it doesn't. Be careful because it can hallucinate and give you bad advice. There's no replacement for checking multiple sources yourself. Or at least go and ask whatever AI bot you are using for it's sources and see if they are credible or not.

Which took are you using?

benneb

Indeed some caution is necessary. Mostly use chatgpt and grok. Chatgpt is more careful, especially with medications and supplements.

Where it really helps next to supplements is with advice on food do's and dont's and activities like sports.
Peyronie since 2020. Inflammation started probably after microtrauma. Almost no curvature. Still a weak spot with  scarring. At this point biggest issue is ED and once in a while recurring inflammation.

PleaseFindACure

I had the same LLM give exactly the opposite advice on one Supplement in two chats. I think it is nice for inspiration, but I am always checking with my doctor.
Mid 30s. 2021 Diagnosed Peyronies Disease&ED, 2023 Chronic.
Dorsal Plaque behind Glans with Hourglass, 1.5cm
Shortening and 25deg Curve up and left, OCD. Functional with Meds
Since 2023: Daily Manual Traction, heat & 5mg Cialis, L-Arg., CoQ 10, Antioxidants.

benneb

Quote from: PleaseFindACure on November 28, 2025, 09:52:22 AMI had the same LLM give exactly the opposite advice on one Supplement in two chats. I think it is nice for inspiration, but I am always checking with my doctor.

Indeed it's not to follow blindly.
The good advice for me was about NSAIDs and not to constantly check and  test. Also food advice to calm inflammation is usable.

In my initial episode doctors adviced on having sex during the peak of the active phase. That was terrible advice. If then someone (or something) would have clearly explained what is physically happening and to let it rest for weeks and try to calm the inflammation, this would have been useful. Hate to say that in general LLMs are better at peyronie than a general urologist.

You're lucky you have a good doctor.
Peyronie since 2020. Inflammation started probably after microtrauma. Almost no curvature. Still a weak spot with  scarring. At this point biggest issue is ED and once in a while recurring inflammation.

Pfract

Better than a general urologist.... maybe in certain topics which are considered more niche where they might lack the training. On specific issues like peyronies..... i don't think so.

benneb

Peyronie IS a niche where most urologist lack training.
But anyway, this was not the goal of the post :)
Hope to hear any stories from other members using AI.
Peyronie since 2020. Inflammation started probably after microtrauma. Almost no curvature. Still a weak spot with  scarring. At this point biggest issue is ED and once in a while recurring inflammation.