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Help100

I've read here that you should keep track of things with measurements, but what happens when the doctors -- including top specialists referenced on this board -- dismiss those measurements?

I've read here that you should compress the injection site after Trimix for minutes, but what happens when a top specialist's fellow says not to, that you should leave it alone following an ultrasound injection?

If there was no visible bruising, but I feel something at the injection site, and I keep losing overall girth flaccid and erect, could scar tissue develop over just a few days if I didn't compress?

I've now had two top specialists in a row say that they don't see any evidence of Peyronie's on ultrasound or MRI, but things keep getting thinner as evidenced by measurements. And that's months after I saw a different specialist, who said he did see a few different plaques on ultrasound, but that I was supposedly otherwise fine despite major ED, including weak nighttime/morning erections.

I've lost more than an inch of circumference, and doctors who have never seen it before flat-out say, "No you haven't, it's all in your head." ... And when I point to objective measurements (including flaccid ones taken by a pelvic floor physical therapist), they just deflect.

I've seen people here say that if you're not getting normal erections for a while and you're losing size, to just go ahead and get an implant. But shouldn't a proper diagnosis come before such a life-changing surgery?

I don't know, I'm just really confused.
43
Single
2007 initially, new symptoms 2022

ED, severe loss of girth, 20 degree curvature up, hypersensitivity, corporal fibrosis, Peyronie's, PE

Shockwave therapy, PRP, VED, Cialis, Pentox, Vit E, L-arginine, L-citrulline

LWillisjr

Quote from: Help100 on November 19, 2024, 03:12:50 PMIf there was no visible bruising, but I feel something at the injection site, and I keep losing overall girth flaccid and erect, could scar tissue develop over just a few days if I didn't compress?

I've seen people here say that if you're not getting normal erections for a while and you're losing size, to just go ahead and get an implant. But shouldn't a proper diagnosis come before such a life-changing surgery?


First, compressing is to keep bruising from happening. Should have nothing to do with scar tissue forming.

Second, I read most of the posts on this forum and I don't recall anyone saying if your are "losing size, go get an implant". I would have immediately responded to this. An implant is a last resort and only after being properly diagnosed. IF any surgeon told me I could get an implant just to increase size, I would run away..... fast.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Hawk

I find myself in the rare position of somewhat disagreeing with what Lwillis said on the issue of pressure after injection.  I also do not make it a habit of disagreeing with doctors, but blood spilling out of blood vessels into tissue CAN cause scarring.  That is a cause of adhesions after surgery.  Pressure after penile injection is a STANDARD recommendation, and I believe it should always be followed, especially if a man is prone to penile scarring.  Having said that, certainly, all bruising or internal spills of whole blood into tissue do not cause scarring, just like all cuts do not result in keloids.  Genetic and other factors come into play.

I echo LWillisJr that there is one good reason to get an implant.  That reason is that ED does not readily respond to oral meds on a man who is unwilling to use a VED or injections (which I recommend against in most cases).  A 2nd less common reason is to straighten a severe bend in certain men.  Loss of size is not a reason unless it is accompanied by a bend or ED that prevents satisfactory intercourse.

If you see a doctor for the first time and he tells you you have not lost size I would ask him how he could possibly know that.  There is only one answer I know of that he could base that on and even that is a weak answer.  If a doctor injects you and does not apply pressure, there is not a lot you can do except say, "I would feel better applying pressure".  Unless a doctor gave me some cutting-edge new research that shows pressure can be detrimental, I would ALWAYS apply pressure IF I ever injected.  There is no need to work the medication around.  That could only be to hurry the process.  I have probably taken close to 50 injections (likely caused my Peyronies Disease), and they give even erections 100% of the time. I would also avoid injections to kill an erection.  Sudafed tablets do the trick fast, and if in doubt, hang out in the Dr. Office waiting room just in case.
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums