I checked the Coloplast site and a Dr I saw 4 years ago at the onset of my symptoms is on their list.  He's in Denver, trained at the Mayo Clinic and the Cleveland Clinic.  I'm going to contact his office to see what his experience is in terms of how many he does in a year.  If it sounds promising, that would be good.  That's an hour and a half drive.  Also,  I've started to look at Dr Lentz.

Quote from: PleaseFindACure on November 28, 2025, 09:52:22 AMI had the same LLM give exactly the opposite advice on one Supplement in two chats. I think it is nice for inspiration, but I am always checking with my doctor.

Indeed it's not to follow blindly.
The good advice for me was about NSAIDs and not to constantly check and  test. Also food advice to calm inflammation is usable.

In my initial episode doctors adviced on having sex during the peak of the active phase. That was terrible advice. If then someone (or something) would have clearly explained what is physically happening and to let it rest for weeks and try to calm the inflammation, this would have been useful. Hate to say that in general LLMs are better at peyronie than a general urologist.

You're lucky you have a good doctor.

I had the same LLM give exactly the opposite advice on one Supplement in two chats. I think it is nice for inspiration, but I am always checking with my doctor.

You can contact both penile implant device manufacturers and ask them for surgeons in your area that are on the "center of excellence" list.

I found out that Dr Trost doesn't do implants.  I was assuming he did only because it was mentioned in the different treatments for Peyronies Disease.

Yea it's this one right here, claims that it heals peyronies and ED through shockwave therapy (which i am already very skeptical that it even does anything). But some people rly do see potential in shockwave, so I am open to hearing your opinions

https://myoro.co/products/neuman%E2%84%A2-alpha-drive?srsltid=AfmBOooeWwhVUAvjVhsAr0mIchkKG0K2Tm1y8C8_F-4M47qAwqhE4CSf

I have been reading a lot about peptides and there is one called BPC-157 that makes a lot of sense theoretically that it could work for Peyronies.

Mechanistic fit: Peyronie's is abnormal fibrosis of the tunica albuginea (collagen deposition, inflammation). BPC-157 in animal studies promotes angiogenesis, reduces inflammation, speeds tendon/ligament healing and modulates fibroblast activity — all mechanisms that could, in theory, influence plaque formation/remodeling.

Preclinical precedent: Multiple rodent studies show BPC-157 accelerates tendon/soft-tissue healing and reduces fibrosis in various models. That makes it a reasonable candidate for translational research in fibrotic penile disease.

Sadly all the evidence is preclinical which means it will probably never be studied for Peyronies anytime soon, but it is available to purchase in some jurisdictions and some people are already using it for other things. There is a lot of anecdotal evidence from its use from athletes and bodybuilders to aid with recovery and bounce back from tendon and ligament injuries (soft tissue just like peyronies). If anyone lives in a jurisdiction where you can get your hands on it and give it a try please let us all know if it works.

Just booked an appointment today with a Urologist in SoCal, high volume penile implant surgeon and he specializes in Peyronies Disease. Hopefully can come to a conclusion soon 🙏🏼

Dr. Faysal Yafi.

I'm on a flare up of and old peyronie plaque. The NTE's with tadalafil should be healthy for recovery. It's for now the only erection that remains. Im consindering adding pentox in the coming days. Hope this doesn't harm more than help :/

I wondered similar, after upping my TRT to 0.7 mL I had the hardest NTEs of my life. Finally waking up 4 nights is a row with pain. The pain was later found to be the beginning of Peyronies Disease. There could be a limit to what the tunica albuginea or corpora cavernosa can take internally before damage occurs and, later, plaque starts.