Need Help/Blood Clots

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BobsBoobers

Guys, this forum has been very helpful for me as I battle my Peyronie's disease. Right now I feel almost hopeless though. About 6 months ago I had to have surgery on my cremaster muscles (all while battling Peyronie's disease) which are basically muscles connected to your testicles. A few weeks after the surgery after a night of masturbation, I woke up to hard nodules on my penis on the opposite side of my Peyronie's plaque. I did some research and came to the conclusion of Mondor's disease/blood clotting. The nodules went down, but I still have itchy small bumps where the nodules used to be and can not get rid of them.

I tried the Hirudoid cream treatment that someone else had recommended, but it started burning my penis. I then decided to see a doctor, of which only Dr. Levine in Chicago seemed to be able to see me about it. I spent several hundred dollars to travel to him, only for him to completely discount everything I would say. He saw the bumps and said that it was nothing, and seemed to imply that the discomfort was merely in my head. He also was very rough with my penis when I asked him to be careful and caused me to have pain where the surgery occurred for days afterward (still having a little now). I know so many of you have had a great experience with him, which is why it was so disheartening to see that if I have no hope with one of the top Urologistists in this speciality taking me seriously; what hope do I have.

I left feeling like my only option was to drive my car into the nearest cinder wall and end the suffering... I ordered some varicose vein cream and plan on using it today, but I am afraid it may burn my penis just like the last cream I tried. Does anyone have any hope/help they can give to get rid of blood clotting in the penis?
10o curve to the left. Have lost both girth and rigidity on the left side. Blood clots on right side of penis. Currently doing light manual traction as helps with pain but pain is persistent to one degree or another & never seem to leave acute phase

BobsBoobers

Also, I have improved my curvature a lot with traction but want to regain my girth through a pump. Will that make blood clotting worse? I have been waiting to use it because of the clotting issue.
10o curve to the left. Have lost both girth and rigidity on the left side. Blood clots on right side of penis. Currently doing light manual traction as helps with pain but pain is persistent to one degree or another & never seem to leave acute phase

Ballasto

"I tried the Hirudoid cream treatment that someone else had recommended, but it started burning my penis."

Dude you dodged a bullet. This cream ruined my dick and several other men. I'm guessing you didn't put it in your glans which would have probably destroyed you.

WHY DOES THIS FORUM CONTINUE TO ALLOW THESE POSTS ABOUT A CREAM THAT HAS CAUSED SO MUCH DESTRUCTION?

It burns penises, reduces sensation and a whole slew of worse symptoms but yet people still F~
NO MORE HIRUDOID!

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BobsBoobers

You're correct, I only used a small amount on the skin and it caused some external scarring. Not noticeable or a problem really, but I stopped that s*^t as quick as I started. I'm really sorry to hear that happened to you. Wish there were more urologists who actually understand mondor's, DVT, and other clotting issues in the penis. We are driven to these drastic measures because no one will help us. Did you end up getting an implant after that? Also, any luck getting rid of the initial issue you were using hirudoid cream for in the first place?
10o curve to the left. Have lost both girth and rigidity on the left side. Blood clots on right side of penis. Currently doing light manual traction as helps with pain but pain is persistent to one degree or another & never seem to leave acute phase

Ballasto

I have not gotten an implant but I may have to. I cash get elections still but they are rubbery. My blood flow was assessed as normal so it's like getting an erection with softer tissue. It's awful.

Thanks Zuckermann, Gabriel and Neo!
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LWillisjr

Bobs,
a 5-10 degree curve is VERY slight, are you sure this is accurate?
Not sure why you would worry at all over 5-10 degrees.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

BobsBoobers

This post is in regards to blood clotting. Yes, at this point my curvature is not terrible. Around 5 degrees actually with the traction I have done. (Though it is probably worse if standing). I have what seems to be blood clots in my vein of the opposite side. If it is not taken care of, sex will always be somewhat uncomfortable in this area.
10o curve to the left. Have lost both girth and rigidity on the left side. Blood clots on right side of penis. Currently doing light manual traction as helps with pain but pain is persistent to one degree or another & never seem to leave acute phase

Ballasto

Do not put any cream other a moisturizer on your dick.

Honestly, I would do nothing but REST. Rest is the first line of treatment for any man. Stop jerking if , stop forcing erections, do something and heal.

Why all of keep pushing things is insane. Learn from my awful experience of trying to fix my condition and making it worse.

If you hurt your elbow would you keep lifting weights?
If you cut your hand would you keep squeezing things?

First step - STOP hurting yourself. Heal your dick.
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BobsBoobers

Then should I just wait another 6 months and just hope it goes away? This will not go away on its' own. Any thought that it will is delusional.
10o curve to the left. Have lost both girth and rigidity on the left side. Blood clots on right side of penis. Currently doing light manual traction as helps with pain but pain is persistent to one degree or another & never seem to leave acute phase

Surtr

I would use BPC 157 after surgery. I'm using it currently for Peyronies Disease. Injection above penis in the fat or near the actual scar under the skin but not into the penis.

You should stop jacking off. It's okay to get an erection but don't screw yourself.. Don't overreact and start therapy on an acute injury. You could overstretch with RestoreX and damage. You could over pump with BathMate and damage. If you must do something, ask a Dr about a prescription for daily Cialis(sorry if this is wrong with your blood clots)(PT 141 may be an alternative). If you can't let a Dr handle your dick, don't try to handle yourself - really your dick needs to be NOT-sensitive before starting a pump or traction regimen. Try to relax and get your mindset right to do this correctly or you will have more damage

If you're good enough to jack off, then you're content with your climax potential and penis? seems like a low point to consider having a climax. once you don't have active pain and think you could let a stranger yank your dick, then you can consider improvement with pump or traction.

Hey, I lived with Peyronies Disease for a decade and chose to jack off constantly and do everything wrong; guess I was content with my climax potential and penis by screwing myself into less and less of a man with more of a problem and less time to fix it.. Until I just wasn't content with this life.. Take the time to measure your quality of life and know you're so early on this journey, quit stressing that makes it so much worse..  
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Ballasto

Yes you should take it easy for six months - or more. It's a marathon.

Or try so the bad ideas on this forum and hurt your most delicate organ and be worse for life. I'm giving you advice from my experience of doing it wrong.

Deal with it. Peyronies shouldn't cause ED.  
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LWillisjr

Quote from: Ballasto on October 20, 2022, 09:04:34 PM

Or try so the bad ideas on this forum and hurt your most delicate organ and be worse for life. I'm giving you advice from my experience of doing it wrong.


What bad ideas is "this forum" promoting??
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Ballasto

Willis I am not saying YOU and the other admins promote bad ideas but you allow others to post bad ideas. I'm speaking with 2 other men that had their dicks ruined by heparin creams. That is an idea that was allowed to be spread on this forum,

Why don't you guys screen original posts?

Guys that come on here - myself included - are often greatly panicked and experiencing major anxiety. My dick hurt so bad and I had such a high libido that I was going through mental hell and just wanted some relief so I made a terrible decision to try Hirudoid because some freak here encouraged it. I am convinced 100% this person knew this would cause harm.

And that happened here.

You guys have to take into account that there are many guys desperately seeking relief. I couldn't care less about my curve, it was never that bad, but the pain was excruciating and the thought that my erections were going to get worse caused me great mental anguish.


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LWillisjr

Quote from: Ballasto on October 25, 2022, 07:38:02 PM

Why don't you guys screen original posts?

Because we believe in free speech. There was a similar Peyronies Forum that started around the same time our forum started. Their members started to become upset because the admins were deleting and altering posts if the posts didn't agree with what the admins wanted. We want people to feel they can be open here and to post their personal experiences both good and bad.

If we start to screen posts, where do we draw the line? Then we can delete about 40% of the content of this site in regard to alternative treatments (Laser, shockwave, DMSO, PRP, etc. etc.) We would simply point everyone to investigate traction, VED therapy, Xiaflex, and and/or surgery. But even then, there are risks associated with each of these. I think most people want to know the good and the bad, to be able to contact and exchange information with others, and then decide for themselves. The risk even with this thinking is that people try to diagnose and treat themselves without first consulting a doctor.


Quote from: Ballasto on October 25, 2022, 07:38:02 PM

You guys have to take into account that there are many guys desperately seeking relief. I couldn't care less about my curve, it was never that bad, but the pain was excruciating and the thought that my erections were going to get worse caused me great mental anguish.

We constantly say we are not doctors and we are not medical experts. Our goal is to create a forum of information sharing. I hate it that you and others had a bad reaction to something that others claim helped them. We are well aware that people come here in desperation looking for a quick cure to fix their penile issues. They are still responsible to assess the risks for themselves. If someone was to ask me about using Hirudoid cream my response would be:
I don't know of ANY topical creams that actually help with Peyronies. Creams or DMSO products won't penetrate deep enough to get to Peyronies plaque or scarring. A few men have claimed some relief while others have claimed the creams caused more damage. Without a medical study to affirm or deny, I would caution them to talk to members like yourself before trying something like Hirudoid.


Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Ballasto

Quote from: LWillisjr on October 26, 2022, 10:13:08 AM
Because we believe in free speech. .....We want people to feel they can be open here and to post their personal experiences both good and bad.

Yet Hawk banned me because he didn't like what I had to say and other men have been harmed as a result.

I think you should have the right to ban people that you think are promoting sketchy ideas. Hawk even said he thought Zuckermann was a prankster. So if you are going to ban me because I had a REAL bad reaction why would you support a poster that you believed, in your words, was pranking  desperate men?

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LWillisjr

Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Ballasto

You banned him or he just stopped posting? Because there is a huge difference  
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Ballasto

And why not ban Hirudoid? There were posts from me saying it's was bad and yet still other people are trying it now!

And there is a difference between the free expression of ideas and malicious intent to harm which is what happened. Whoever Zuckermann is (most likely the weirdo Gabriel if you compare writing styles ) that person knew exactly what this'd team would do if it got into the bloodstream. It is clear s as day to me now.

This site should protect against men harming themselves if it is able to. There are men that fine here who are not thinking clearly and panicked because they are losing their manhood.

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Mr man

Quote from: BobsBoobers on October 17, 2022, 07:26:54 PM
. Does anyone have any hope/help they can give to get rid of blood clotting in the penis?

Yes... Use a hot water bottle. Place it in the part of your penis where the new lumps are. It will warm up and thin the blood. Helping it to dissipate. Use as much heat as you can bear but be careful not to burn yourself.

Try not to fret. Youve only just had an operation. It will take time to heal. Be patient. Give it a good 2 months before you asses damage/improvement.

Please don't drive into a wall.

Get well
Latest routine. Started l-lysine 3mg daily, l-proline 5mg daily. Increased vit c intake. Accompanied with almost daily vacuum therapy. Pumping to 100% Exercise caution! Made good progress. L arginine supplements and prescribed potaba are helping.