News:

Welcome to the Peyronies Forum



Recent posts

#1
Hello and welcome.

There's tons of questions about Peyronies Disease, none are stupid.  Ask away! 

I haven't used pumps so I don't know.  On Cialis, I compared a pic of my erection from the month of my diagnosis and current on Cialis.  The most current pic looks a tad bit more straight to me or maybe it's because there's more blood flow it's looking more full?  Also important to note I didn't get any curving with my Peyronies Disease, just my congenital curve remains.
#2
Thanks all.

Yes maybe I should just look into getting it sorted in the UK or New Zealand as I have dual nationality. Ideally this would then be free.

I'm not sure what dr's can do it there though at the level we want.
#3
In light of my evening yesterday and peyronies I thought I'd make a post.

So one of my previous posts were about being worried/scared about sex with new partners etc due to my peyronies.

Last night things were progressing with this girl, then I had to tell her I fractured my pp (peyronies) etc and I can attempt to have sex but not sure how it will go, she was cool about it all and we had a good time BUT when it came to actual PIV I couldn't really do it. It was a shame to me and a let down in a way as I used to be able to have great sex. Looks like it isn't the case anymore.

I had cialis and stuff, my penis was somewhat hard and was able to do other things but actual PIV wasn't possible.

I guess it kind of pushes me further towards the implant route now.

I don't even know who to speak to about all this and get examined as I'm travelling right now, do I stop travelling and go back to the United Kingdom and put a pause on my living my last year in my twenties due to my penis not working? Doesn't sound good to me.

Anyways, rant over, this is like a diary journal here so I can come back to one day when hopefully things are better and document how it got better.

I still had a good night and want to keep meeting great women and having fun but I got to figure something out.
#4
Hey Flamingo:

Plenty of questions here: is your doctor familiar with Xiaflex? How much experience does he have? This is what Dr. Trost compiled on his webisite in terms of what are the most up to date treatments. https://malefertilityandpeyroniesclinic.com/peyronies/treatments/

Is your curvature really that bad or you are in great distress about it and it's more of a mental thing even though you can actually have sex with it? Avoiding intimacy is never good, despite the great pressure it put's on a man.

1-using a pump especially consistently whilst following a protocol has been shown to decrease curvature. Have a look at this user and his progress with the VED: https://www.peyroniesforum.net/index.php?action=profile;u=18633

2-taking PDI5's to give you a better erection is never a bad thing. The more rigid your erection, the better. What you are probably experiencing is a more fuller erection that makes the same bend you already have be more pronounced. (In my opinion)

If you have the opportunity, please give Dr. Landon Trost's office a call and schedule a visit to is office in person. I know it's an out of state Dr. for you, but it's worth every penny in the long run.




#5
 ohnoohno:

You have to take into consideration where you are, where you want to do your procedure and the financing router you want to go. You first should decide to which doctors you want to go. Then call their office and find out pricing for out of pocket. After that, estimate how your other expenses will be. Flights, accommodations, food and medication for recovery, etc.

Then you can either ask the bank for the entirety of the loan with or without some savings on your end or you can get a credit card that is tailored for medical expenses/surgery. Dr Eid had this on his website, last time i checked.

https://www.urologicalcare.com/financing-options/

Be mindful of the shortcomings of flying out of country for such a surgery when you have some decent surgeons in your are.
#6
Yes, in 2013 I developed two lumps or nodules that were easily palpable.Some indentations then became evident in the weeks thereafter. I started taking Pentox twice a day or perhaps three times, I can't recall. After about a year, or perhaps a little longer, I noticed the lumps shrank and pretty much disappeared. If I were to really dig for them, perhaps I could feel traces, but I don't like to do that. They were palpably gone.

I must add, more than a year into the Pentox, a third lump materialized. So I discount Pentox as having done anything to cure these nodules - if I arew a new one while on the drug, I don't see how it was effective. It must have simply been the natural course of my personal "kind" of Peyronies.

Over the ensuing months, after the nodules went away, my indentations did indeed fill out again. So I consider that particular bout of Peyronies Disease to have resolved successfully - took about 2+ years in total.

Unfortunately, a new bout started in 2021, so clearly this is something I'll deal with for life.

But yes, nodules/lumps can go away. My guess is that these are not classic "calcifications" of Peyronies Disease - these are local tissue inflammations that can and do shrink. Calcifications would be the more classic Peyronies scarring.

Best,
nemo
#8

I can say that the 3 lumps that I  had disappeared after 2 years. I still do daily traction and VED occasionally .
#9
What I've seen here is a significant number of men saying that they thought the acute phase was over only to find it started up again (myself included) even when being very careful. My opinion: no one knows if masturbation will affect Peyronies Disease adversely. 

So I'm not going to deny myself pleasure because it might be detrimental. For all we know nocturnal erections cause damage and plaque. Can we stop that? (BTW that's how I first noticed it, woke up many nights from intense pain with NTEs) The debate over how it starts hasn't born results IMO. I do what I can to get my penis bigger and stronger, but I'm sure not giving up sex. That's so ironic! 
#10
Penile Implants / Re: Trapper implant journey 33...
Last post by Waveboy - Yesterday at 10:35:50 PM
Hey Trapper,

I just read your story and all the comments. I love Dr. Hakky, He was a angel in my eyes from where Tampa Fl F@@@Erectile Dysfunction me up and made me worse than with peroynies. Yes he made same comment to  me of this would be the smallest I would ever be again. Yes I am a bit older than you. So my recover was a bit longer than 12 weeks. I am here to say I am thankful that I am straight and can have sex again! Yes you will go through the I want it sooner than later because we are human and we are men. I am almost back to my length before peroynies even after my 1st hack job in Tampa that took 2 inches away from me and just about made it where I couldn't have sex even with IPP and just left me with statement " use what you have and be thankful". So I just wanted a functioning straight Dick. Now I am half and inch shorter than pre peroynies and my girth is wider yes wider! A lot of crap will go through your mind. Yes I tried VED after surgery but it started putting painful pressure on tubes in my sac going to cylinders and Dr. Hakky said stop so I didn't damage IPP and have to go back in. I realized I was being greedy and rushing things. So I just gave it time because yes I was smaller and thinner then. Just gave it time. The pump is in my sac and it took awhile before my nuts liked their new roommate. I hope things continue to immprove for you. Dr. Hakky is the MAN! this forum is awesome for support!

waveboy out!