Will post results. I have hourglassing and a 30 degree curve. Was in stable condition for 2 years, but it has come back in the last two months. Look forward to trying Xiaflex as it is about the only thing left (outside of surgery). Have been on Pentox for four years.
Wish you excellent outcome from the Xiaflex. :)
I suppose in the subject should be Xiaflex, not Viaflex?
James
Quote deleted by moderator - James
Please read the forum rules.
My fault....corrected.
best of luck on your xiaflex treatment. I too was just approved by my insurance and hope to get started late July. I will post my results as well.
My insurance has just approved the Xiaflex treatments. Will start in Oct. with Dr Carson of UNC. Any insight and help I may need to know.... I have a 90 degree going to the left ... Very odd looking . I haven't been in a relationship for 3 yrs now.. hoping this will help . thanks
I just started my first round of Xiaflex. I hope you experience improvement, so that you can resume your sex life. I know from experience that it is the pits to have to hide our deformity from lack of acceptance by others.
Hi Bendedict, I too had a severe curve to the left, mine was 85 degrees. I started xiaflex back in February of 2015. I just finished my 4th cycle in early August. After 3 cycles my curve was at roughly 40 degrees but I now have an upward curve of maybe 10-15 degrees as well. Not sure yet what benefit I have received from the 4th cycle, but unofficially I would say I have improved another 5 - 10 degrees. I started using traction a week after this last cylce for 2 hours a day (quiet inconvenient, but I am about as diligent as possible to try to minimize the impact of this heinous disfiguring condition). Hang in there, because there is hope that you can regain a sex life. After the 3rd round of shots and a little help from Viagra, I was able to have sex again with my wife. We have resume fairly regular sex, but I take it real slow and it feels very different. Best of luck to you.