If I plead wake forest university to include me in their clinical trials and or give them 1 million dollars as donation, will they include me ? I hate to believe that technology exists but we are close to 15 to 20 years away to see it being fda approved.
What's trials is this you are tying to get into?
Wake forest are going to start phase 1 clinical trial next month to replace tunica and corpora tissue engineered constructs in lab for 10 patients. If phase 1 is successful, and the patients show good response upto 2 years, the study will end in may 2023. Then who knows when they will start phase 2, probably another 10 years. I want to go to the team if phase 1 is successful, hand them 1 million dollars to replace my fibrosed tunica with my tissue engineered version. Why the F~@< does fda want to stop me ? I want a solution now, not willing to wait out my entire youth. I'm a virgin at 26, how much longer can I take this crap.
@Gaussrifle: do you really have 1 million dollars?
No, but my parents do and they will readily spend it if they see me happy. I am only fighting this disease because of the love I recieve from my parents. Without their support I would be 6 feet under.
I would wait until they are done with the clinical trials and see what their outcomes are. You would not want to be a statistic with a bad response and end up with no penis at all.
get a consultation with the doctor supervisioning the trial, he also does clinics. Then ask him. I'm a 31 years old virgin so I understand more than most of the people here.
Jack1909 may I ask you why you haven't gone for a penile implant all these years. I can't imagine staying like this all these years.
Probably because of all the other collateral issues I have been dealing with, as lingering pain. And also for the replacement need over time.
Anyway the guy is terlecki if I recall right and you can book an appointment straight from the wake forest clinics site.
Thanks Jack 1909 for the information.
I was wondering that the issue with current grafting techniques is mostly graft failiure and/or chance of ED or worsened erections. I was reading that cell seeded autologous tissue engineered tunica should solve most of the issues due to having native tissue properties and better vascularity. I wonder why no one researched this imdependently... that way it could have led to faster clinical trials.
Yeah grafting leads to ED mostly like flipping a coin, let's be honest.
a scientist friend found this for me,
1) https://www.sciencedirect.com/science/article/abs/pii/S2405456921001188?casa_token=a8Yw09-ROBEAAAAA:9QQpHxf47w_-lTkvjCfk8UAMKG-Vei7mN-UMzREHlqgjE7SIzla-UMzREHlqgje7sizla
2) https://www.mdpi.com/1999-4923/13/4/499
3) https://www.mdpi.com/1999-4923/13/4/499/htm
it seems that there are several studying peyronie, it gives me hope.
Mayo Clinic also did some trials.
and fibroses are studied for different pathologies, I just hope that something appears in time.
If all the patients with fibrosis were to join together, perhaps we would advance the investigations even more
I was aware of the first study not the other two, seems interesting considering if they can direct the collegenase more effectively.
im sure you would wait mikel, you are 60 years old, its a different world
Quote from: porterrobinson on July 05, 2021, 01:04:52 PM
im sure you would wait mikel, you are 60 years old, its a different world
I was in a Clinical trial once for Accutane therapy in 1980 - I would never get involved with any tests involving my penis.