I am 47 years old and live in Arkansas, U.S. My husband is 56 years old and diagnosed almost 2 years ago. My husband was devastated by the diagnosis and even worse, the urologist that he has seen hasn't helped in giving him any hope of a cure. I hate seeing my husband so depressed over this and even though he knows that I love him and support him, I know he feels like "less than a man." I adore my husband. I found your forum while doing my own supportive research for him. I am hopeful that I can gain more ways to support my husband through this forum and possibly new treatments to try. Thank you for doing this!! Truly!
Welcome, Betts! I'm an Arkie, too, though haven't lived there for more than 10 years now.
There is a wealth of information here, and shoulders to lean on. I would suggest first reading up on the most popular first-line treatment options: Pentox, Daily Low Dose Cialis, CoQ10, VED therapy, as well others. Then the next step up from that in terms of "seriousness" is the new FDA approved treatment, Xiaflex injections. And of course, the ultimate "nuclear option" should it ever progress to the point such drastic measure is needed is the inflatable penile implant, which most men who get them rave about and wonder why they didn't do it sooner.
So there are treatments and things to do to improve the situation. It's not a lost cause or an unstoppable downhill slide. While your husband will in all likelihood never "cure" his Peyronie's, there is plenty of success stories of guys either halting progression or actually improving their situation. Most are able to continue their sex lives.
So again, welcome. We're sorry you needed to come here, but welcome you to the "club."
Best,
Nemo
This horrible affliction hits a man every bit as hard mentally, as physically. No man wants to feel that he can't perform sexually.
He will need your help and support. It also sounds like his doctor ( do you mean Urologist? ) is not helping either. If you can afford to, I'd suggest you find another one who is more proactive. There is a list of well regarded Urologists on the site.
A few things to read to get better background and help:
Peyronies Survival Guide - Information for New Members - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,3180.0.html)
https://www.peyroniesforum.net/index.php/topic,4063.0.html
https://www.peyroniesforum.net/index.php/board,37.0.html
The most important thing is to start treatment. You may be surprised how many people got around this problem in different ways and continue they life. It is a devastating disease as it hits the most important thing for a man, but have solutions as Nemo have stated.
Your husband must see a Peyronies specialist, not a GP or a regular Urologist.
James