Peyronies Society Forums

4 Days Pre-op.

Hi Everyone,

I was a bit of a latecomer to this forum, having first found it in January 2021 and had already endured over 2 years of severe deformation to my penis, to the point that i would actually avoid sex if i ever put myself in that position. Like a typical man, i just buried my head under the carpet and hoped everything would go back to normal. Clearly this was never going to happen, and I started to research and finally found this amazing forum 13 months ago, and i effectively self diagnosed myself with Peyronies.

Firstly, without this forum, i don't know where I'd be. i certainly wouldn't be as upbeat, optimistic or knowledgeable as i am today. I truly believe that participating in this forum, and reading other peoples stories has given me more insight and knowledge than any urologist could give me, as it it real experiences rather than the easiest option for the urologist, in most instances anyway.

I first noticed a change during the first lockdown, in March 2020. Being at home on my own all day for 8 weeks, lets just say i had the opportunity to have more 'alone time' than normal. I noticed a curve, probably around 30 degrees at this point, and any erection i had wouldn't stand to attention like they used to. Over the next few months the change became more severe but I ignored it, whether it was due to embarrassment or because i thought there were more important things for our NHS to deal with who knows. It then occurred to me that i couldn't remember the last time i got night time erections. Subconsciously maybe i thought that was just something that only happened when you were young, looking back now i realised how naïve that was.

After a couple of failed attempts at sex, i began to struggle psychologically. To begin with it was the size i lost, about 3 inches at its worse. Then it was the realisation that intercourse would be very difficult and as i later found out nearly impossible. My latest relationship ended towards the end of last year, we both got to a point where we would avoid sex and I felt very emasculated not being able to satisfy her. It was exasperated even more so because i knew what i used to be like, and i was a shadow of myself, in and out of the bedroom. 

In February 2021, i saw urologist number 1. He was fairly local to me, about a 30 minute drive away. I walked into his office, he smiled and told me to take a seat. I explained to him my issue, showed him a photo and he said ' what would you like me to do? ' . At this point i wasn't knowledgeable, Had only just found this forum and i was ultimately paying a specialist to tell ME what my options were. He examined me, with no doppler , flaccid and after 30 seconds suggested we keep a close eye on things and he would perform a Nesbit in three months. I didn't like his attitude, and regardless if that was the right option for me or not ( it wasn't) i didn't feel comfortable with him being my surgeon. I was already using the Penimaster Pro, Tadalafil daily and the Somacorrect so i continued this regime. I was probably at my most deformed at this point, roughly 65 degree dorsal curve, and no more than 5 inches with a substantial hinge. I had been in a short relationship just before and she ended it as she didn't want to take on the responsibility of how it was going to effect the relationship.

Over the next two months i took a concoction of pills and supplements. Of course none worked, except the 5g daily tadalafil. Every morning i would wake up with a raging hard on and that felt great. However, this posed a different issue. Peeing. Peeing with a hard on is difficult enough, combining it with a curve that nearly hit the belly button is much trickier. All too often it would go on me and not in the toilet bowel, so i resorted to standing up by the sink and forcing it down, gently, or would do some squats until it became more malleable and pee in the sink. 

I saw urologist number 2 in July 2021, he suggested an excision and graft. I knew this wasn't right for me, sure I could get an erection, but they were definitely becoming softer and with my diabetes i knew this was a risk i didn't want to take.

In between uro's 1 and 2 i began dating someone else. Things got serious quickly, i was honest with her from the beginning and for the most part she gave me the support i needed although i don't think she fully understood how it effected me and how it made me feel like a failure all too often. It was very much a catch 22, if i got hard enough, the bend would be more severe, making intercourse that much more difficult. If i wanted to lessen the bend, i could, but i wouldn't be solid enough for intercourse. Ultimately the Peyronies broke the relationship after 8 months but it made me more determined than ever put it to bed.

Uro 3 suggested shockwave therapy, which was an instant thanks  but no thanks and then i found Uro 4, Mike Fraser who listened to me, was empathetic and agreed wholeheartedly that an implant was the way to go. In fact, with a now 70 degree bend, it was the only way to go. He was 500 miles away from me but that didn't matter, i knew he was the man that would hopefully change my life. This was at the end of November and the following week i had my surgery date - February 14th - What an ironic date for my new toy!

Having used the traction for roughly 35 hours a week for the last 9 months and the VED intermittently, i have definitely regained a bit of my lost size back.  i tried measuring with a tape measure last week, apparently my long side is 7 inches and my shorter side is 4 inches. I think i must have mis measured but as a guestimate i'd say I'm around 6 currently.  I'm happy with my size now, I've learnt to love what i've got ( minus the curve ) and if the operation goes well, infection free,  I'd be ecstatic if I ended up with a rock hard 6' for the next 10 years until i need a revision.

So, here i am, after a 7 hour drive i arrived at my air B n B this afternoon. i have my Covid test tomorrow, and assuming it's negative three days of isolation until the big day on Monday. I feel more excited right now than nervous but i know full well as Monday draws closer i will be a bag of nerves.

One thing i think has really helped me, especially over the last 6 months is sharing this experience with my close family and friends.  I don't feel embarrassed about it any more, i am embracing it and the support they have given me has been invaluable. I would have been worried how a new partner might have reacted to a bionic penis, but having spoken in depth about it to a couple of my close female friends, i am anything but nervous now and can't wait to show the world what my new tool can do!

I will try and update this as often as possible, i am expecting my recovery to be a little harder than most due to my diabetes but i guess its in the lap of the gods and it's out of my hands from now on in.

Over and out.

  Good luck, i'm having mine tomorrow in london. Lets share our recovery stories as we'll be at the same stages together. I'm really nervous tbh and i've managed to aggravate a plaque overdoing traction and VED trying to maximise size. My surgeon told me to stop last week when i told him, but it's still a bit sore. I'm hoping it doesn't effect the surgery.

Good luck!

And yes, happy to share progress!

Fantastic start to what will hopefully be your own personal implant journal, Jimmi. Good to get an understanding of how you got to where you are now. From reading your post, your excitement and anticipation is palpable. Yes, from the photos I can appreciate how difficult intercourse must have become and you have no doubt made the correct decision. You know I am an avid supporter of Dr Mike Fraser - the man quite literally changed my life. Good luck on Monday and keep us all up to date with your progress throughout. As you've said already, this forum can be a wonderful support so it's important not to go through what you are about to go through on your own.

Philtered - good luck to you too and mind and keep us informed of how it goes.

Roddy

Kudos for having the courage to take the the bull by the horns and do what will undoubtedly give you a better, happier life.

I applaud you and look forward to hearing of your progress.

Best Regards,
nemo

Good luck with your surgery! You have been through a lot and dealing with diabetes also. If you read some of the other implant journals you can see the format that has been used.  Mikel7 :)

2 days until pre op

I didn't hear back from the hospital yesterday following the covid test, apparently that's good news so it looks like a green light for Monday.

One thing that occurred to me last night, I have quite a small scrotam, and Mike mentioned that as well on our initial consult. How is a small sack likely to effect both the ability to conceal and the comfortableness? Can a scrotam be too small to actually put the pump in?

Hi Jimmi85, good luck for your op on Monday, i'm sure all will go well, fingers all crossed for you

Great to hear you recovered some of your length through traction and VED.
It should be something that everyone should do for atleast a few months prior to surgery. I think it helps the surgeon put the right size implant in. 

All the best with your surgery.

Goodluck jimmy we are all rooting for you. Keep us posted I'm sure youll be hppy about the outcome. first step is relax and rest

Thanks for all the well wishes guys.

Will leave for the hospital in about 15 minutes, I expect surgery to be around 10am (uk time )

I am definitely more excited right now than I am nervous which is surprising, of course it will always be in the back of mind that something might go wrong, infection being the biggest worry but I am definitely going into this with a positive attitude and know full well if it goes to plan, and there is no reason why it won't, I will be in a much much better position than I am in now.

That said , I was a little sad that I woke up this morning with what is very likely to be my last ever natural erection and made the most of it given that will be off the cards for a few weeks! That will be my biggest struggle I think!

Good luck! Curious how much you think you gained back using pmp?

2 hours post op

In recovery now, woke up in a fair bit of pain so asked for me morphine which they duly gave me!

Have a had a brief chat with my surgeon who said all went to plan and I have a nice straight penis which is music to my ears.

I have an 18cm Titan with no RTE's- optimistically I was hoping for 21cm but I knew that was unlikely. He said he was surprised at how much length I had lost - obviously he could during the surgery. I am still hoping to be between 5.5 and 6 inches once healed and after 6 months of cycling but to be honest as long as it is straight and works and can get diamond hard I don't think I'll complain either way.

Xavier - I don't really know what I gained solely with the PMP. I have no doubt that the daily tadalafill which brought back my nightly erections played a part although that was probably likely more so with stopping me losing any further size rather than gaining back lost size. The PMP certainly didn't help with the curvature; if anything I think it made it worse but I used It in conjunction with the VED which undoubtedly helped.

I have learnt to appreciate what I have now rather than what god gave me and I will learn to embrace what ever tool I have between my legs and make the most of it. IMO most Girls would rather a rock hard 5.5 incher that can go for hours rather than a slightly floppy and bendy 7/8 incher that is only good for 10 minutes.

  Glad it went well jimmi and that's brilliant you have a straight penis. I'm left with some residual curve which is nothing considering i was 80 going on 90 degrees and my surgeon thinks the titan can straighten it out some more.

Relax and take it easy man. Did you get left inflated?

I actually wouldn't mind a 10 degree residual dorsal curve to hit the G SPOT 😂 I'm also aware that it might have been just a figure of speech and he could have meant straight compared to what I did have.

Yes, I'm Around 60% right now and will be for the next 2-3 weeks. Most of the uncomfortableness is in the shaft where I expected it to be in the balls but I see that as a good sign as it is obviously being stretched with it being inflated.

I have no idea why they have to give me such an attractive nurse, FFS I've just had a prosthetic penis and am 60% erect 😂

Also; for anyone in the UK, I am so glad I went private. The attention I am receiving is second to none and I feel so much more comfortable knowing that I am their number one priority

Congratulations to the both of you!!!

Jimmi, your positivity through all of this is to be commended! I can already tell you are going to have a great outcome through all of this! 👏🏻

Good job dude! Glad it sounds things are going well I second that your positivity is very inspiring

1 day post op.

I didn't sleep well at all although I never do in hospitals. The pain was a 7 at it's worst and a 2 at best. A quick buzz to the nurses and I was given some morphine type drugs to help relive the pain.

The biggest area of pain is from my right scrotum where I have the drain in. It's just really uncomfortable. I am hoping this will be taken out today at some point.

I actually got woken up by what I am sure was a morning erection. Right on cue at around 5am as always. If I'm honest it's difficult to 100% confirm as I'm 60% pumped, wrapped up and sore as hell but it was definitely the same sensation as I usually get with morning wood, and this was without Tadalafil last night. I have always told myself the hardest part would not be the size lost but the inability to get some form of natural erection. Maybe I'm being overly optimistic and jumping the gun but given I had decent erections pre surgery and given what I felt this morning it's looking good.

I had a bit of a feel down below last night. I am still very curved but I was expecting this and in time the curve should lessen, especially when I start to cycle. Length wise it's difficult to tell but I look and feel a lot girthier. Granted I am wrapped up in dressing but I'm not even close to being able to wrap my hand around my new bionic penis. I never actually measured my girth pre surgery, but I am certain I am a good half an inch wider now.

Doctor should be seeing me later this morning. He might discharge me but I get the feeling I will be in for another night, which I am fine with. They seem very focused on my diabetes Abbas my blood sugars and I'm certainly not going to complain in free hot meals and drugs on demand for another night.

Over and out

  I've still got some curve but like you i think cycling will sort it out. My main worry is  i have a dog ear in my titan right where the curve is which is fine when i stand but laying down it hinges in that spot. I'm hoping 2 weeks deflated while it's healing won't effect the final outcome too much.

I remember the deflation (no pun intended) of still having a curve post surgery. I thought I'd gone through everything for nothing. Man was I wrong - twice daily cycling to the max for 30 mins to an hour and within weeks I was super straight. Patience and cycling required.

Philtered, have you been deflated since the operation on Friday?

I would t worry about any dog ears so soon after the operation much like the curve but I am surprised you aren't at least 50% inflated.

i was pretty much fully inflated for 24hrs and deflated since. it seems every surgeon has a different protocol.  To be honest i wouldn't want to be sticking out at 3 oclock much more than i am now.

30 hours post op

Had the catheter and drain removed this afternoon. OMG both hurt like a bitch but so glad the drain is out. All unbandaged as well and pleasantly surprised with the lack of swelling and bruising. I was told to eat lots of pineapple a few weeks pre surgery because of the bromine and this has possibly contributed to how good looking it looks 😂 Mike came in and saw me and said all looks good and hastily deflated me to 50%. crap that hurt. For 50-% erect I am pretty damn hard so looking forward to cycling and increasing the size and hardness. I am staying in for one more night as I feel very weak and wobbly on my feet.

Am on a 3-4 on the pain scale, scrotum is tender but doesn't cripple me with pain when I touch it but the shaft is very tender.

However , I have just encountered my first issue:

As previously mentioned, peeing in the early hours has always been a challenge, having a severe upward curve and very good morning erections. I have just been for my first wee and it went everywhere, on me, the walls and I swear a little bit hit the ceiling. Using the toilet is impossible so I attempted to stand by the sink and hold a bowel in front of it to catch it. Needless to say it did t work. I can't decrease the erection like I normally would and neither can I bend it gently due to how stiff and sore it currently is.

How the hell am I supposed to pee for the next three weeks without having a golden shower at the same time?

I'll leave that one to others who had the same problem - of which there are a few that I recall, just that I don't remember which ones. I was straight out so can't help
You on that one, sorry.

   i piss in a jug and pour it down the toilet at the moment. The worst one for me was my first dump post op, i couldn't aim my dick down the pan like normal and ended up pissing everywhere. Serious clean up sesh afterwards. It's at times like that i wonder what i've done tbh.

Pleased all s gone well so far, have you taken any photos?

Thanks everyone.

Dr Fraser deflated me a little more and told me to just bend it down the toilet pan. There's no way I can do that, it feels too rigid and is too tender to force it in any direction so I've resorted to standing by the sink and aiming in a bowl to catch the wee and then pour it down the sink.

Pain wise I'm feeling ok today although my abdomen is sore, I feel very bloated and blocked up so I've asked for some more bowel movement medication. Hoping that will make me feel better.

I don't look particularly bruised, and by scrotum although clearly swollen isn't black and blue and looks pretty good. I might take some photos later today if I can pluck up the courage.

I had a WTF have I done moment this morning but I'm feeling a bit better now, I am expecting the next two weeks to be difficult, more so due to my diabetes but things should get easier:

Am about to get changed to leave the hospital, although my dick isn't really sore, more achey with being pumped up 50%, the glands are very sensitive so I can't say I'm relishing getting changed!

One more quick question if I may:

I have water proof and dissolving stitches. I am fine to shower from today and bath ( which I can't wait for ) from Saturday.

I assume I am ok to wash gently around the Wound area with my antibac soap and Hibiscus scrub?

Same comment to both Philtered and Jimmi as you are both fresh out of surgery and questioning whether you have done the right thing.

Yes, rest assured you have done the correct thing. You have both sought the advice of the top urology surgeons in the UK and both surgeons thought the said course of action was the correct one for you. You are having doubts within the first week of post surgery psychological trauma. I remember it very well indeed. I was sitting on the edge of my bed at home asking myself and my wife WTF I had done to myself. I was at a very low point. The pain was intense - constant, and starting to cycle made the pain unbearable at times. If you read the early part of my journal again you will see what I mean.

However, the guys on here kept me going. I took advice, I took strong painkillers and I stayed ahead of the pain. You need to do the same when that time comes.

Your pissing issue will not be an issue when you are not erect. After all, who does a piss with a hard on. Just now is a massive physical but also psychological adjustment for you.

Stay strong - I know I repeat myself with this, but you are 3 weeks away from having unimaginable sexual pleasure without the worry of PE, inability to gain an erection or how to get your bent dick into positions to have meaningful sex. It's all in the past for you both now.

You'll see. Have faith. All will be good.

Roddy

Jimmi85  if you can get a Urinal. Probably from a drug store. I had 3 at my bedside, one in the car and one in the bathroom. I couldn't bend mine down for 2 weeks. I stopped at a store on the way back from follow up visit and forgot my urinal and the bathroom just had toilet and here I was bending over and twisting to aim it to pee at 45 degree angle. I didn't forget it anymore!

Glad surgery went well and yes always thankful for the forum!

Day 4 post op

A urinal sounds like a good idea, thanks waveboy. Presently I'm standing by the sink on tip toes and peeing into a measuring jug. It's 50/50 whether it's a mess free wee.

Last night was bad, I was in a lot of pain, mainly around the right scrotum where the pump is. I actually had a little cry in bed, it hurt that much. Immediately I panicked and assumed I must have an infection but I calmed myself down and slept naked.  Much better. It must have been my newly shaven and swollen balls rubbing against my underwear. I bought David archly and separatec but I'm definitely more comfortable commando.

I am trying some ice packs today for the first time. Although I have little to no bruising I am very swollen around the balls. I think the sooner this goes down the easier it will be.

My other big issue at the moment is constipation. This is actually giving me as much pain as anything else. Laxatives don't seem to be working so I'll try some more today but have less painkillers as they are the source. It's annoying as even for a poo I need to pre plan in the sense that I have to have a wee in the jug first and then sit on the toilet. So far though, to no avail.

So today, Ice and poo.

Over and out

DAY 5 POST OP

Yesterday was a good day. Very little to no pain when i was lying down, but very uncomfortable when i moved about although i'm trying to be as immobile as possible. i iced for the first time last night and woke up this morning with very little swelling and i can now actually feel the pump. Very exciting. Whether this is a direct result of the icing or purly coincidence i don't know but i'm looking forward to having my first hot bath on Sunday and having a good feel. I actually think i might be able to tentatively start cycling in the next 5 or 6 days, i am surprised by how quickly i've improved over the last 48 hours although the constipation is actually the wirst part right now.

I slept well last night, although peeing every hour or so is a pain in the ass. I tried to sleep on my side for a bit last night, as that's my normal sleeping position, with a pillow between my legs and although i'm not quite there yet i am hopeful that within the next few days i cn revert back to this modified normal sleeping position.

I've plucked up the courage of posting some pics today. I am pleased with the lack of bruising and swelling although i have to keep reminding myself i am only 50% pumped right now and have 6 months of cycling to regain as much size back as possible. TBH whether I'm sub 5 inches or over 7 inches, i couldn't really care less, i just want it to work as it should and remain infection free. I certainly haven't been this straight in over three years!

Looks pretty "normal" already. Have a good recovery!

Everything looks like you are healing normally! Great recovery!

Thanks everyone, it makes me feel better knowing that I look normal  :)

Pain wise, it really comes and goes, I can go for hours with little to no pain but then be in agony for the next couple of hours. I can clearly feel the pump so have sidelined Monday evening for my first hot bath and a good feel about. The pump is very right due to my small sack and feels like it is rubbing against the scrotum so I will see if I can manipulate it a little on Monday.

I've bought a wheat bag today so will try that tonight along with some baby socks to put over the head as I am still very sensitive.

I couldn't sleep last night so curiosity got the better of me and I briefly watched some porn to see what happened. It's still too early to touch myself 'properly' but I definitely felt tingly and both my glands and shaft engorged a little which I was pleased about.

I just need to go for a Damn poo now and then I'd be a very happy bionic brother !

 i bought some dulcoease for the poo and take a couple a day. I've been daily since day 3 now and i'm still taking a 3 co codamol tablets a day so they must be helping.

Day 6 post op

I slept like a baby last night, certainly my best nights sleep since the operation. I thinks that's because I WENT FOR A POO!! feel so much better for it and strangely enough I am walking much better since as well.

I ordered some sexy looking jockstraps from Amazon last night, they should be arriving tomorrow. The pump is way heavier than I expected so I definitely need extra support down there.

The wheatbag is helping lots as well and I am now off the stronger pain meds and using only ibroprofen and paracetamol.

As far as I can tell most of not all the swelling has gone and looking forward to my first hot bath tomorrow . I feel as though I will be ready to start cycling next week but I will follow doctors orders and won't play with it until our zoom appointment week after next.

I am a little worried I might have been undersized but I guess only time will tell. I've gone from 8' in length to probably 6' or just under pre surgery and only have a 18cm. I am seeing guys on here and FT who were the same size or smaller ore surgery with a bigger implant so unless I have an incredibly shallow crus I can't work out how I only have an 18cm?!

Currently on route home now , a 500 mile drive. Luckily I'm not driving but coping ok at the moment.

  Glad to hear you're making good progress. i'm jealous to be honest i'm still black n blue and in incredible pain around the pump and left testicle when i move around. I tried to feel and move the pump around a bit in the night because it pushes down on my left nut, but i wish i hadn't touched it. burning pain and now i'm dreading going for cycling practice on thursday, i can't imagine what the pain will be like to actually squeeze the pump.

@philtered

I'm sorry you're still in a bit of pain - just stay positive.

One thing I would recommend, and it might be too late now, is to eat lots of pineapple. I gorged on it three weeks per surgery because of the anti inflammatory properties it has ( bromeline) and even after surgery eating pineapple alleviates pain.

Also, a wheatbag helps a lot as well. As a fellow Uk brother, order one for Argos for £10. I only got mine yesterday but OMG it helps.

Feel free to PM me if you want to chat further.

 Thanks. I've been using a heated wheatbag alternating with ice. It brings temporary relief but pain always seem to return especially in the morning and for some reason when i stand still. The pain seems to centre around the pump and tubing from pump to the base of the shaft. I'm still very bruised and swollen so hope once that goes down i'll make quicker progress.

QuotePhilitered, just remember everyone heals differently. Keep in touch with your surgical team and send them over any photos to put your mind at rest. You are lucky you have that support; I have no idea who is contact if I had an issue, the communication from my surgeon and the Nuffield hasn't been great,

Day 8 post op

Yesterday was a good day, for the most part. I was more mobile and drove for a short distance. It wasn't comfortable but at least I know I can do it.

My jockstraps arrived yesterday! However, I under estimated the size and did not take into account I am 50% inflated. The balls fit nice and snug but the actual penis does not fit. The glands are still sensitive so I can't wear them currently with glands poking out. Pretty gutted about this as my scrotum is begging for support.

I skipped the hot bath yesterday as I was told in a passing comment infection Is more likely especially if the wound isn't fully healed. So I will wait until the weekend. Like Philtered, due to my diabetes infection is my biggest concern so it's just not worth the risk.

I was in quite a bit of pain last night, and it's still here this morning. Not agonising but a strong dull ache. More so on the shaft. I didn't sleep well at all and spent a fair bit of time 'playing' and feeling about. I can clearly feel the pump but haven't yet worked out which way round it is. I am waiting for the keychain from my surgeon and I'm sure it Will then become clearer. There is definitely an oval shape currently and I can clearly feel the tubing. Towards the bottom of the shaft I can actually see the tubing but I'm hoping it will become less obvious both over time and when I inflate more fully?

Size wise, I am scared to measure if I'm being honest. I keep telling myself size isn't everything and it will 'grow' over time. I was expecting to be shorter immediately post surgery but was hoping I wouldn't lose any more girth but I have. But I can't change anything so I'm grateful either way.

One last thing, for the single guys out there. In my boredom I've been back on the dating sites. I'm not ready for another relationship yet, but I want to prepare for how girls my age (30-40 ) view the implant. My friends, who are mostly female think it's great but I wasn't sure if they were just being nice. Turns out an implant is pretty cool! I tell them almost instantly and once they ask a few questions they have all said it doesn't put them off at all. This makes me feel good although like said this is more an experiment as opposed to looking for love .

I'm going to take today easy and monitor the pain/uncomfortableness. Even now lying in bed it feels different and the normal pain free experience of lying down certainly is not there.

  Have you got an email address for your surgeon, ralph answers mine pretty much straight away and rang me. One of his team rang me yesterday as well. Email or ring them with any concerns i'm sure they'll get back to you.

   I've resigned myself to a slow recovery tbh and i'm making i tiny bit of progress each day. Well done on going for a drive, i haven't even left the house ha ha. Maybe that's why you're a bit sore overnight.

Hang in there brother and i've given up on underwear at the moment, i've used bamboo boxers with my dick sticking straight out of the hole 3 oclock. it's so uncomfortable bent upwards

Jimmi, you WILL grow again and regain lost size by cycling twice daily when allowed. Don't concern yourself with that - honestly, I regained an inch and a quarter by the time I'd had enough of daily cycling after 6 months.

Have you not got an email address for Mike? What about phoning his secretary? Do messages not get passed on?

Hey Roddy,

Yes I have mikes email address but he hasn't always been that quick to reply. I hear stories of peoples surgeons calling them after a week checking up on them yet I have heard nothing and Mike Even forgot to bring the keychain with him when he caught up with me a few days after the op.

I trust him but it's so early to tell if it has all gone to plan.

Day 9 post op

Days abs nights keep getting easier! Woohoo!!

I slept through the night last night, except waking up at 3am with low glucose levels so I ate some biscuits and then fell asleep again until 9am.

Everything is becoming a little easier but I am still remembering to walk or even crawl before I run.

I had new underwear arrive today, that's been my highlight of the day. I bought some jockstraps earlier in the week but due to my seninerect state and the tenderness at the glands they didn't fit properly. So I've had a mixture of briefs and boxers arrive today, David archey and separatec to find out what works for me. I am positive finding the right underwear is the key to me being able to be more mobile with less pain.

I am beginning to get a little bit concious that I can very prominently feel tubing at the base of my penis. I am not sure if this is because I am 50% erect or if it's a combination of this and the fact that the tubing will soften up over time? Tbh if it works I'm not overly concerned but it would be nice to know either way.

My only other real concern is that the pump seems to be hanging very low. From what I've read it seems preferable for it to be low rather than high but sitting on a chair seems a long way off right now.

I am hoping I can begin cycling at some Point next week, once I have my keychain and get the all clear from Mr Fraser. I feel as though I could probably do it this weekend but I'm not going to risk anything and will gladly wait and be patient.

I have set aside Sunday for my first hot bath. I'm looking forward to this and hopefully any remaining wounds would have healed to limit infection whilst in the bath.

Lastly, and I feel naive for asking this but I assume sex and self gratification are one of the same thing? What I mean by this is I assume if one hasn't been cleared for sex then the same goes for masturbation? It's been 10 days now and as much as I am Getting a little restless I am also keen to look at glands engorgement or even to confirm if anything below happens whilst stimulated.

Funnily enough, I got chatting to a girl online a few days ago and told her about the implant. I'm not embarrassed about it and I believe in being open and honest. She loved that I told her and said she could only see positives with it. Interestingly, she has a friend who had an IPP a few years ago so already knows all about it!

Overall, I would say I'm doing better right now than I had expected. Any pain, whether it be from an implant, cut or bruise is always worse when you don't know the reasons or cause. As soon as you are reassured said pain is normal it suddenly becomes very tolerable.

Hi Jimmi

What a fantastically positive post from you about your progress. You appear to be making great progress and seem to be mentally in a very good place. Delighted you slept well last night and this is the start of real steps forward in your healing.

To answer some of your questions that you asked of me privately and in your post above, your balls etc will simply get used to the newcomers in time - extremely painful right now but will definitely calm down to ZERO pain in time. Probably 8-12 weeks tbh.

As soon as you see the keychain you'll know exactly what the deflate button should  feel like and will help you when you are feeling around - particularly in a hot bath where everything just becomes easier to navigate. The best way to describe it would be like a block of Lego- a cuboid with a round raised dimple on top in the centre of the surface. The dimple is what you press to deflate. Google an image of a piece of Lego and imagine only one dimple in the centre of the top surface.

When my ball sack is compacted - most of the time - I can't really feel much tubing. I'd need to press my finger into my sack to feel it. However, on the rare times that my sack hangs loose I can clearly feel the tubing. As I look down from above, I can see a piece of tubing on the left side of my balls, at the top, below my shaft. It isn't something I have ever really had to worry about as my wife and I went into the whole process with our eyes wide open, and ANY result that allowed me to have sex again was a bonus. As it turned out, the result was far from just something that allowed me to have sex again - it's was life changing and I could not just have sex but mind-blowing sex. For as long as I wanted. If the tubing being able to be felt with a soft hanging sack is a negative then I'll take that negative. The overall result is outrageously positive. You sound as tho you kind of feel the same way already.

I get that this is easy for me to say as I was/am in a long-standing relationship but could be a difficult concept as a young single man. I love your philosophy on that one and how you have already sought out opinions from ladies. Very brave and reassuring and will only lead to a positive psychological outcome for you. I don't know that I would have had your strength of character to do that.

I definitely would not start cycling without Mike giving you the go-ahead. He's the expert. Why would you second guess him and risk everything? You are in this for the long haul and need to be patient. An extra 2 weeks is no time at all in the grand scheme of things and I'm glad to hear you will await further instructions.

Finally, I would most definitely also rest as much as possible. Your body will tell you when things are moving in the right direction so just take it easy and try and get a mixture of rest and gentle exercise.

Hope this all helps? Great post from you - well done!

Roddy

The pictures give this such a perspective on how dramatic the improvement already has been. Best of luck on the recovery. You seem to be healing well and that's so encouraging.

Thank you for posting your updates!

DAY 11 POST OP

I had my first bath this morning! My word, what an absolute delight! This will be a regular daily activity for me now, before before I start cycling. I put some hibicleans in to ensure it was as sterile environment as possible along with a shed load of bubble bath: after a 30 minute soak I was a. Relaxed as anything and was actually able to stand/walk for about 10 minutes after until the pain set in. I was hoping by scrotum would relax a little so I could have a proper feel around but it was still all very tight.

I can clearly tell where the inflate bit of the pump is but I can't figure out the where the deflate but is. I'm hoping to receive the keychain in the post over the next few days which should make things much clearer.

I have noticed a clear correlation between daily activity - sleep - pain next day. If I exert my self too much I don't sleep very well at all and am in a lot more pain the next day until early afternoon . I'd i spend all day on the sofa I sleep like a baby and wake up pretty much pain free. Not looking forward to going back to work on Monday on that basis!

The last few days I've woken up with my shaft really aching. Not hurting but very uncomfortable. It reminds me of when I woke up pre implant with a raging erection and after a period of time it would begin to really ache. I'm hoping this is a sign that I might have at least some residual erections?!

I'm not really concerned about much at the moment: I was expecting pain in the first month, being 50% pumped is a pain in the ass but I'm Hoping I can start cycling in the next week or so.

I have noticed however I'm currently pointing at 1-1:30 which would make some positions quite difficult. Is this because I'm not fully pumped up or will it find its own place in time? Obviously 3 o clock is the optimum and I don't know if I'm Just being impatient?

Quick update -

I've just had my first walk. I was very apprehensive but had no food in the house for lunch so I walked to the local shop and back. Was. Little under half mile there and back and was walking in XXL trackies holding my crotch through the pocket!

Surprisingly it was easier than I thought although I am pretty exhausted now. I am chuffed to bits and see it as a big step in my recovery.

Another mile stone for you today then. Well done.

The hot bath is a wonderful way to keep the pain at bay as you cycle and will let you have a good feel around.

Do you know what exact model your implant is? If you do, a simple google search could maybe show you the constituent parts and help you feel your way around for the deflate switch?

Keep up the good recovery.

Hi Roddy,

I don't unfortunately , only that it's an 18cm Titan.

I emailed Mike yesterday with a few questions but haven't had a response back yet, when I speak to him I'll ask.

Day 12 post op

I think this might be my last update for a week or so, until i start cycling, as time goes on there is obviously less to report each day.

i got into bed last night and my curiosity and hornyness got the better of me so i watched a bit of porn. Aside from feeling horny with a 12 day erection, i wanted to test blood flow and sensation.

Glands engorged and my shaft went from an oval shape to much more round. i got to the point of orgasm pretty quickly but i was scared to orgasm as i didn't want to set myself back and hurt myself so i turned off and went to sleep. I was extremely gentle and was barely touching myself so i can't imagine oi did myself any harm.

My biggest issue right now is being pumped up constantly. it is just a pain in the ass and is now where most of the pain/uncomfortableness comes from. i can't wait to deflate and start Cycling.

Hey Jimmi.

The difference is astounding... I do think why the Dr. would not have you deflate earlier? Dr. Eid tells his patients to start inflating/deflating for the most part as earlier as possible to prevent scar tissue from forming around an empty-ish reservoir so the implant doesn't auto-inflate.  I hope that it is not the case for you.

I don't know if you posted it somewhere upper on the thread but did he tell you when you could start cycling?

Hi pfract,

I don't know why I have to be inflated for three weeks, I really hope I'm
Not going to suffer long term being inflated for so long and as tempted as I am to deflate and start cycling a few days later I have got to trust the doctor.

Optimistically I am hoping I can start cycling next week but it might be the week after which will be three weeks post op.

Day 15 post op

Another milestone today - ish

My erect penis was really beginning to bother me, most of my pain was eminating from the shaft and I was getting jealous of seeing everyone be deflated much sooner than me.

I emailed Mike asking when we could have our zoom call to start cycling and he told me he was very busy and it would t be until next week but he was happy for me to start gentle cycling.

So I immediately ran a hot bath and jumped in.

I deflated as best I could; but I as still semi erect, maybe 20% and unable to move my penis is any direction other than up. I keep trying to deflate a little more but it's not having any of it. I will try again tomorrow.

However, the constant ache/ pain has almost gone and I hope wearing my trackies tomorrow will be that much easier. I didn't want to overdo it tonight so I didn't cycle at all. I attempted very hastily to get one pump in but to be honest I didn't really try very hard. Am I right in thinking that one quick press of the bulb and then pressing the deflate button might help me deflate more?

Weirdly my knob looks much nicer at 20% than it did at 50%. Not too sure why though

Day 18 post op

I still can't work out how to deflate properly, I have followed the instructions both by other forum members, online videos and have also had a teams meeting with me Fraser. I am no longer in pain, yesterday was excruciating but I finally managed to deflate a little without it re-inflating. I have no idea how inflated I am, as I have never intentionally fully inflated nor have I ever been fully deflated. I am hard, easily hard enough for sex, and pointing at 2-2:30. This makes it incredibly uncomfortable when moving about although my glands seem far less sensitive today. I have an appointment with a surgeon connected with me Fraser who is much more local and he will check my healing and teach me how to inflate and deflate properly.

In optimistically hoping the fact that I have been fairly pumped up on and off over the last 48 hours counts as me beginning to cycle?!

I have also noticed that the cylinders do not go anywhere near the glands. Inwas worries this might be the case as I thought 18cm was too short given my size pre op. Howeve, I had good glands engorgement pre surgery and I have 'tested it ' by gently masturbating to some porn this week, without finishing as I haven't been given the all clear yet but my entire shaft seems to get much more round and fuller which I am pleased about.

I am really hoping I can be properly deflated on Monday, if I am then I would say I would be roughly 80% pain free and I can look forward to some aggressive cycling next week.

Things I am looking forward to doing next week;

" finally being able to sleep on my side. I am nearly there and can go for 10 minutes before it gets uncomfortable

*!wearing a suit / loose fitting jeans. I have lived in XXL trackie bottoms now for nearly three weeks and I am getting pretty fed up of them

* going for a wee without having to piss in a cup/bucket. My current angle makes it impossible to piss normally

* FINALLY FINISH MYSELF OFF! going from twice a day to nothing in 3 weeks is taking its toll!

Day 21 post op!

another disaster last night!

I had my second go at cycling, after my disastrous first attempt. I felt confident I could nail it especially with all pain in my scrotum now gone.

I hopped into a hot bath and managed 9 pumps. I don't think they were all full pumps but I got a rock hard erection. A good 2.5-3 inches shorter than my prime but if this is what I end up with then I'll be not pleased but satisfied and content.

I left it for 30 minutes, my glands were achy but my shaft was actually ok. I went to deflate and I couldn't find the damn button. I didn't panic and spent the next 12 hours frantically trying to find it but to no avail. Sleeping was out of the question, every time I began to drift off I would spasm and wake up.

As today dragged on I hurt more especially my glands which were hyper sensitive. As it happens, when this first happened last week I made an appointment to see someone more local to me to teach me how to inflate and deflate so I hung on until 2pm and then jumped into my newly purchased 20 year old MR2 and drove 35 miles to see him With my pants and trousers round my ankles and only cushions hiding my modesty along with a baby sock protecting my glands which said ' I'm too cute '

Anyway, I saw the uro, he recognised me from Last feb when I saw him and his whole demeanour was very different. If he was like he was with me today 13 months ago I might have actually taken things further with him. He was a great help, he deflated me , showed me how to do it and let me try. He said the pump was very low and the release valve was at a weird angle so no wonder I couldn't do it. He said it might move in time or I can have a little operation to make it easier to use.

I am not going to cycle for another week, he actually thought three weeks was very early and said the usual practice is to start at 6 weeks. I will feel about for the RV and wait for my war wounds to fully heal. I have now cycled 4 times including the two times today so he said the capsule shouldn't be escapulated.

I need a bath ASAP as he was quite forceful deflating me but I am still pretty firm and can't really point myself down. I hope to wear a suit to work by the end of this week and I hope to sleep well tonight. I also had to cancel a date tonight which I was very upset about but I hurt too
Much

Hi Jimmi

There's no denying that locating the release button at the start is very tricky. I remember Hawk suggesting I stand and feel for it, then let go, then feel for it again, then let go, then feel for it again. I was to do this on repeat until my muscle memory set in and I just instinctively knew where the button was located within my sack. This was great advice. When you start cycling, you should do the same.

I must say I am confused as to why you are not cycling at 3 weeks in? I'm no urologist, and that's now not only Mike Fraser but also this guy you saw today, who have told you to hang off from cycling now. I wonder why? There must be a specific reason in your case? Mike had me cycling on day 10. So why the difference?

Hi Roddy,

i don't actually know.

Mike always said i would begin cycling at 3 weeks, even pre-op, so it was pre determined. Maybe it has something to do with my Diabetes, i don't know. I am terrified of the same thing happening again so i will do as you suggested and practice, practice and practice. I am concerned about the position of the pump and RV but maybe after a bit of cycling it will find a more natural position. i was very surprised to hear the uro yesterday saying 6 weeks is normal, when i asked him about losing size gains he shrugged his shoulders and said possibly but it is what it is!

I finally caved in last night and finished myself off. I was a bit nervous but i was very gentle. I am very pleased that although i was fully deflated, albeit still fairly stiff, i managed to get rock hard with great glands engorgement. I could easily of had sex and actually my size, with the extra blood flow was ok. And this is without any PDE5's. So i currently have a semi-malleable, adequate blood flow and a 3 piece implant! 

Jimmi,
Sorry I couldn't find your post.
It looks like you had your implant on February 14.
If that's the case, I am surprised they told you, you could finish yourself off before 30 days. It's close, lol
At not even a month, it may seem like you are expecting the 100 yard dash unread of a marathon.
From what you have written, it appears you are healing faster and the position of your pump changes a lot over time.
When I first received my implant, it appeared to be so tight to my penis, it was difficult to pump, etc. But at about 6 months or even later, hard to remember, but I think that's when my pump dropped some.
Hope this helps and glad you are progressing so quickly.
StepOne

Day 23 post op

Stepone - I must be honest I was not given any instructions from my surgeon what I could or could not do. He has not told me when I could have sex or masturbate. I know I have healed well: following on from an assessment from another well known IPP surgeon more local to me on Monday. I wasn't planning on 'finishing ' , it was more an experiment to check blood flow but one thing led to another. I was very very careful and there was barely any movement of my hand on my shaft. It is also worth noting that I have retrograde ejaculation so I don't actually produce any semen.  I did do some research and it appears most surgeons suggest anywhere from 2 weeks to 4 weeks is a normal timescale and 3 weeks ( Dr Eid ) for sex. 

It is not something I will be participating in everyday until I am fully healed and officially given the all clear for 'extra curricular activity '

Anyhow, I have now officially begun cycling. I do not want to waste another week, so put in a few pumps last night to test I could deflate and I could. I will work up to max over the next few days/week. The bulb seems fairly easy to squeeze although after 4 or 5 pumps my scrotum does begin to get a little sore.

I wore a suit today for the first time, only for an hour as I had a meeting i needed to be smart for, it was not pleasant but hopefully it might become a more regular occurrence over the next couple of weeks.

My flaccid penis still very much looks like an erect penis, standing to attention at around 2:30-3 o clock. I am hoping, and assuming, as the cylinders become softer it will settle into a more natural position and soften up.

I have always been excited about the implant, ever since I found it was an option and although I have had bad days , like everyone, I can honestly now say every day I am feeling better and better. My 80 degree curve has all but disappeared and i am satisfied with the current size . The last bit of the jigsaw is for it to settle in a more natural position so I can wear normal clothes again!

Ok, stick to a plan.
Are you pumping every day?
My doctor told me to try to pump as much as possible to start the stretching. Haha, the feel of stretching gets to be a good thing, as you know you are increasing in size.
No pain, no gain, lol,
My stretch pains continued for almost a year.
Good luck
StepOne

Hey Stepone,

I have temporarily stopped pumping as I had another episode of not being able to deflate on Tuesday. I have decided to wait another week / 10 days until all swelling has gone in the hope that it will then be easier for me to navigate around the deflate valve - I can not have another night where I am pumped and can not deflate.

In terms of size and cycling, i am content with my penis right now. Sure it's much smaller than my pre Peyronie days but at 5,5' I am very much average: straight, and hard as a rock. If I can get over 6' than fantastic but my end goal has never been to have a massive dick like I used to have but to have a very usable penis no matter the size.

Now, I am sure I am saying all this to conform to Myself that it doesn't matter if i don't start cycling proper for another 10 days and it won't make a difference but the reality is I am actually scared of not being able to deflate so I need to be absolutely certain I can before I even think about starting to cycle properly.

Hey Jimmy....

Sorry you are having difficulties deflating. How about having a hot bath to try and see if it helps? that's very well recommended for people that go through with the surgery in the first times you are cycling? Were you given a keychain to help you practice?

Hey Pract,

Yes, i have been having hot baths and you are right, it does 'loosen' things up. However, i am yet to distinguish the deflate button. When i feel around the brick, i feels like i have lots of what i can only describe as small grisly bits which when i press against the brick they move about and get in the way of what i think is the release button. Hopefully it will become easier of the next few days/week.

I do have the keychain but i can't say it makes anything easier for me. If feels very different to what is in my sack but i would assume this may be because i still have some swelling.

I have noticed that although i don't have any constant pain in my scrotum, I do maybe a couple times a day get a very sudden, sharp pain, which only lasts for about 5 seconds but is enough to make me gasp. It seems to be originating from where the pump is. I am not overly concerned about this, but just an observation i have.

Most of my soreness is emanating from my glands. I think this is a combination of it rubbing against me whilst moving about and getting into a routine this week of 'playing with myself ' so i will knock this on the head for a week or two and take the sensible option.

Finally, although I am fully deflated right now, i am still standing to attention at roughly 2 o clock and still feel pretty rigid, but i can easily depress the cylinders so i am confident i am properly deflated. I am assuming this is pretty normal after 3.5 weeks and once I begin to regularly cycle the cylinders will soften and I will adopt a more natural position over the next couple of months?

Jimmy
I did the hot bath, it allows you to feel around. Look at a medical diagram of what's in a ball sac and it will help you distinguish what the internal parts are. You can carefully move stuff around to give you a good solid feel of the pump. The pump is something you really need to figure out. Once you find the little button, you have to firmly grab the other side. I sometimes use two hands to prevent it from moving and then with a free thumb, press with a solid force to push the button and release the valve. You should try this several times until you get it down. Look at my journal and look at what Hawk told me. He helped me a lot. He gives excellent descriptions.
Don't give up, it's important to keep pumping for all the various parts in you, including the reservoir.
StepOne

4 weeks post op

Although my pain is getting less each day i am beginning to get frustrated. I am desperate to start proper cycling but am still concerned that a) i won't be able to deflate again and b) I want my scrotum where I drew blood last week to fully heal so I don't set myself back another week. I have read countless journals and it appears in the US most Docs suggest cycling at between 1-2 weeks, mine said 3-4 weeks and the other doctor who i saw last Monday to carry out an emergency deflation, who is well known to my doctor said 6 weeks is the normal time for cycling. Very confusing. I am hoping the fact that i was 50% inflated for the first two weeks and twice at 80% for 24 hours ( when i Couldn't deflate ) will help somewhat to any delay.

I can feel the bulb, easily, and when i have attempted to pump i have had no issues. I can feel the tubing going up to the 'brick' but can still not find or feel any kind of button. I think i will try just a couple of pumps on Wednesday to test and if i can't deflate i won't be in a great deal of pain. I do not regret choosing Mike at all, i just wished he was closer to me!

I am also worried that even though I am fully deflated, my Penis is still pointing to attention at 2 o clock. I am hoping this is only because the cylinders are not soft yet and they will soften up as I begin to cycle aggressively? I think once I am in a more natural position, and I am comfortable deflating then i can stop worrying.

Thank you for everyone's sound advice so far, i am looking forward to getting back into a hot bath on Wednesday and will have a good feel around.

Hi Jimmi

Can you email Mike Fraser and ask him what the reason is in your case as to why you're not yet cycling when other members of this forum were cycling at 21 days or less? He was my surgeon and had me cycling at 10 days. Specifically ask him why there is a difference in your case?

Hi Roddy,

I actually messaged him last week and emailed him today but haven't heard back yet.

He gave me the all clear after two weeks, but that was only if I felt comfortable enough - don't forget I can't just pop into his office like you could.

As you know I have had real issues with deflating, which has scuppered my confidence. When I went to my local hospital last week to be emergency deflated they drew blood so haven't been able to have a bath or cycle since. I have been very gently feeling around for the deflate button whilst I'm not inflated but I still can't find it - I am perhaps still a little swollen maybe and my incision wounds although not painful , they are uncomfortable still when I press against them trying to find the deflate button.

I have set aside Thursday evening to have another go, and if I still can't do it I might have to flag Glasgow to see Mike.

Being a diabetic, I always knew my war wounds would take longer to heal, so the fact that I am 2 or 3 weeks behind where I should be doesn't overly concern me but the next week is vitally important.

Good work jimmi thanks for keeping us all updated that makes sense that wound healing is a bit slower. You got this dude, I would just call his front desk better be safe than sorry but chances are no fever, no real swelliing, and or puss you should be okay.


Another reason I would call is some doctors don't use email or my chart or whatever and they may not have seen your message. Or they saw it thought it was normal and ignored it until they can get around to it

Ugh
I am so sorry you are having problems.
It's very important for you to find the button. I don't mean to be rude, but you really need to put some energy into finding that button. In all the posts I have read, I don't recall one person saying they couldn't find the button.
If you can't get the doctor, which sounds unacceptable, perhaps
I would try calling colorplast.
They used to have reps that could walk you through the process.
Maybe there is someone local that can help you.
I wish you the best.
Remember you may not have a doctor's degree, you have a doctorate on your body. If something is not right, get some help.
Wait, you went to the hospital to get it deflated? How could they find the button, but you can't?
StepOne

Hey Stephone,

I have made an appointment to speak with my local ( ish ) Coloplast rep this evening - she is hopeful she should be able to talk me through it. Thank you for the heads up.

I feel so stupid at not being able to deflate after 4 weeks, I know it works as I have been deflated by two different doctors, But when i try and find the button all I can feel are what i can only describe as small grisly bits of flesh getting in the way of things.

She is based in London, about 100 miles away from me so if we can't figure things out tonight i will go up and see her in person ASAP.

so, quick update.

I spoke to the rep last night, and it turns out the release button is sitting in an antero-posteriorly position, rather than at the side so i have been trying to deflate 90 degrees out. Problem is, with my slower healing time due to my Diabetes my Scrotal incision is still tender and the button is directly under the most painful part of the incision. I need to somehow get my hand behind the 'brick' rather than the side which i have been wrongly doing. I still feel a bit stupid but also relieved that I at least have an understanding of where the button is now. I need to let the incision heal first for fear of drawing blood again and risking infection and delaying healing.

She told me to spend the next week trying to locate it in hot baths and then mid-next week to put in a few pumps and work myself up. I asked her about the consequence of a delay in cycling and she said in her opinion it would make little difference to my end size, only that it might take a month or two longer to get there. She said it was quite normal to start cycling at weeks 6-8.

I also asked her about my current rigidness and always being in an erect state and she said i still had swelling and it will get better over the coming weeks.

Thank you Stephone for the advice in contacting my local ( ish ) rep, it has really put my mind at ease. 

Thanks for your reply and I am so glad you are getting help. Definitely follow colorplast's suggestions. Be sure to do the warm baths, that is what helped me a lot!!!!!!!!!!!!!
StepOne

Day 37 post op

Wow, I can't believe it's just over 5 weeks now since my operation!

I am currently on route to London to meet my local Coloplast rep. She will check all in going well and help me understand where this damn release button is. I think the plan is for her to spend a couple of hours with me and for me to demonstrate I can do it in my own. I am really exciting although I am guessing the ride home will be less comfortable than the ride there!

She seems lovely over the phone and has assured me I will be leaving today able to confidently cycle on my own.

My healing has excelerated over the last week, and the swelling, IMO, is nearly non existent - I just wish I had a bigger sack so I can manoeuvre the pump a little more.

In terms of pain, it has almost gone. The only residing pain I have is the actual pump, it is sitting so low, every time I sit down I sit on the pump. I am actually concerned it was fall out of my arse it is that low but I don't even know if that's possible...I am side the rep will either put my mind at rest and tell me it's fine or suggest a further operation to better it's position. I hope it's the former.

I am now sleeping on my side finally; which is AMAZING, next up is to make the cylinders softer with cycling so my dick isn't in a permanent erect position. I long for the day it hangs in a more natural flaccid state.

I will report back after my appointment to confirm all is good!

So, appointment done. I am so glad I reached out to the rep and thank you to those who suggested it.

Between us we inflated and deflated about a dozen times to ensure I could deflate. Which I now can. I clearly understand where the release button is and am able to locate and deflate.

Turns out I have never been fully deflated, and this is why I have been so uncomfortable , effectively walking and peeing with a 30% erection. I am looking forward to peeing normally later, and not having to piss into something rather than the toilet bowel.

I have never been fully inflated, until today. Wow! I can not believe how hard I was, and probably an inch more than I was at 30%.  I'm not huge but she kindly said I was a decent size and that combined with the hardness wouldn't put any girl off. I really do think now I can cycle I can reach my goal of 6' by the end of the year, hopefully sooner. She said I was recovering better than expected given I am diabetic and thought I had healed well.

My plan was to go again this evening in the bath when I get home but my god my dick hurts. I'm not going to touch it tonight.

Finally, I can see light at the end of the tunnel.

Over and out.

Must have been a really weird experience. But having Peyronie's we cannot be ashamed of anything I think. Was she pretty?   8)

Jimmi,

I have read your entire journal.  Congratulations and thanks for the great contribution to the forum.  In reading, I was sure you were never fully deflated or inflated.  Force both since they stretch vital areas.  Full deflation will stretch the reservoir capsule before it permanently scars in too small, resulting in auto-inflation.  Obviously, inflating increases penile volume.  The penis will not scar in as quickly, and inflating will stretch the penis for many months.

Thanks Hawk, and welcome back!

I am now going at this full throttle, I changed my mind about not starting to cycle tonight and have had a good play, firstly starting with just a few pumps and deflating, then a Few more and deflating and finally as many as I could before deflating. I got the release button every time and the last go I got in 11 pumps. I didn't want to push myself too much so I only left myself inflated for 5 or 6 minutes,  but enough time to measure myself... just a smidgen (Bone pressed ) under 6' without any glands engorgement. = super happy Jimmi. I am straighter than I have been for over 2 years and am in a great place right now, both physically and mentally.

Hawk , a question for you ( or others if I may )

I have deflated as much as I can. I am Much more flexible and am able to bend myself in ways I couldn't previously. I can feel dog ears and the cylinders feel 'relatively ' flat. However, when I squeeze my penis , I can squeeze the cylinders flat but it still feels there is a little bit of saline gurgling about. If it is imperative it is completely gone, how do I do this? I have read you wrapped something around you to squeeze every last drop out, but I don't know what it is ( Conan wrap) here in the UK.

Jimmi,

The "Coban" wrap is this bandage that sticks to itself but not skin or hair. --> https://www.exmed.net/3m-coban-4-self-adherent-wrap?p=17381&msclkid=71a23ef7134b1bc3e0d65cccd570ae1f
It was first called vet wrap because veterinarians used it.

The Coban is not for getting deflated as much as it was for staying deflated and preventing auto-inflation and stretching the reservoir capsule.  I totally deflated by laying flat (probably not critical) and squeezing my glans or just below between the balls of my thumbs.  I then rolled the heels of my hands progressively squeezing fluid out of the length of the shaft.  I would pinch off the drained section and get another roll to the base, pinch that off and even squeeze behind the scrotum with my thumb and index fingers.  Then I would wrap snug for the night.   I only had to do this a couple of nights but I think I did it by week 3 post-op

The problem that Jimmi went through and some others, including myself, is that Patients are not receiving enough, if any, trying on operating their implants.
It's sad. It's bad healthcare.
It seems to me that if it wasn't for this website, there would be so much more needless suffering.
I don't know how to fix this. But I can't imagine all the people that don't use this site and get an implant and are "lost".
StepOne

That's a really interesting Point Stepone.

Although i am pleased with my current outcome ( albeit possibly undersized ) of all the healthcare professional i have seen so far, excluding the amazing rep, they all seem too busy to properly educate me, or give me the reassurance I needed. If it wasn't for forums like these, a) i would have had no idea how to tackle Peyronies and b) I would never have known about the implant as it just isn't talked about by medical professionals that much in the UK. 

Interestingly, the rep asked me what forums I regularly use, so I told her and she noted them down in front of me. She said she would recommend both to her clients and she often gets asked.

I cant actually stress how different how I feel between yesterday and today. Its like I have a new toy - Even when I go for a wee I pump up a bit and deflate just to get used to it!

I would also like to stress, and this is from my own experience, there is a difference between bad healthcare and bad patient education. I think in my case, my surgeon was taken aback by how well informed I was going into the implant route, having extensively researches for over a year for multiple hours a day. I was asking him questions which he said he had never been asked before so i assume he assumed i was ok to be left to my own devices more so than the average implantee.

I would also like to stress there is, in my opinion, a difference between bad healthcare and bad education post surgery. I for one, felt my care whilst in hospital for two nights was exceptional and was faultless. I also am glad i chose Mr Fraser although I would have liked to have had more interaction with him or other local connected specialists post surgery and i think if this were the case i would have been better equipped to begin cycling a few weeks earlier.

I've just logged in for the first time in 3 days and love reading about your positive progress over these past 2 days, Jimmi. Terrific that you've healed so well and are now properly cycling. Only good times ahead now.

Couldn't agree more with your observations about nonexistent peyronies education and healthcare and that this forum has been a life saver to us.

Thanks Roddy,

So, second day cycling and finding the release button is a piece of cake!

However.... It does hurt at max inflation. Quite a bit...which I expected and I know that is. Sign of me stretching.

If an hour a day is the recommended time, does it matter if you do one 1 hour session or say 6 10 minute sessions? Does it accomplish the same thing or is it like doing one set of 100kg squats at the gym compared to 5 sets of 20kg ....

Given that the life expectancy of your implant can be aligned to the number of times the pump mechanism is deployed over its lifetime, and that the more you pump up the more you eat into that  finite number of pump ups (no clue what the actual mean average pumps before failure would be) then I always believed 30 mins in the morning and 30 mins at night were enough for me. The length of time inflated would not matter to the longevity of the engineering, I believe, but the total number of uses would. So, in effect, I stopped using daily when I reached a size gain I was happy with. In your case, 6 x 10 mins is a waste of 'finite pumps' I guess. Know what I mean?

Btw, the pain you feel on full inflation is the device stretching your tissue straight out. In a strange kind of way, it became a pleasurable pain because I knew it was doing what it was supposed to do. In time, that pain completely stopped.

I asked dr eid if I could do a 1-hour session rather than two 30 minute sessions.  He said that was fine.  My logic was that it saved me some time running a tub of water and drying off from another soak.  It also saved my pump from one pump cycle, theoretically extending implant life.

I think I would shoot for two torturous sessions for as long as you can possibly endure it.  Be prepared to soak in HOT water, keeping most of your body lower than your implant components to reduce swelling.  Take ice water during, ice-cold compress to put on your head, and your favorite music to listen to.  Think of how awesome this will be in just a few more weeks.  The sooner you can endure 30 - 60 minutes, the sooner you can engage in intercourse.

Quick update:

I have now been cycling for 2 and a half days  :)

Pumping up is a piece of cake, I was worried reading journals that the bulb was very tough to press but I haven't had any issues. Deflating is just as easy, I just wish I had been given the guidance on this 2 or 3 weeks ago. That said, I wasn't fully healed so I am just running with the fact that it was meant to be...

My first ( failed attempt ) at cycling about three weeks ago, produced about 9 pumps, this morning i managed 15 + 4 half pumps. I can definitely feel a good stretch, and most of my pain/uncomfortableness is coming from my glans which i don't really understand as the tips do not go anywhere near them. Even when I am pumped to the max, I can feel the end of the cylinders and beyond them my glans kinda droop down at an angle. This isn't an issue as with stimulation they engorge and I am pretty much straight.

As i continue to cycle, is there a possibility the cylinders might stretch into the glans? They have a long way to go, maybe a good inch so even if it was possible in some cases i don't know if it would be in mine.

i am currently doing 2 x 20 minute sessions and will build up to longer sessions over the next week or so. I have been cleared for sex from Monday, although i think I will wait another couple of weeks - I can't imagine having sex at 100% inflation right now, but 80% is very comfortable and more than hard enough.

Any momentary WTF have i done thoughts have now completely disappeared, and i am already beginning to feel like the old me. It's amazing what a useable and functioning dick does to ones confidence!

Jimmie,
It's amazing what knowledge does. Glad things are better.
Although this is a new implant to you, there is no reason your implant will do what it's not supposed to do. In other words, I have not read about any problems with the cylinders stretching into the glans.
Pain may continue for months, it's part of the process. I still have a stabbing pain sometimes, but it becomes less and less as time goes on.
I know you said you have read journals on this site, but if you read them start to finish, you will see, that what you are experiencing is quite normal. I know it's a lot of reading, but it is beneficial.
Hope you continue to progress and it will get better and better every week.
StepOne

Jimmi,

Great news about your success cycling.

If you can definitely feel the tips of the cylinder in the shaft and not at least 1/3 of the way into the glans, you were clearly undersized.  The good news is that as I understand it, your primary reason for an implant was to correct a shaft deformity and you get good erection results.  This means that you will not experience the typical droopy glans - (Concord syndrome named after the supersonic passenger jet).

You should have a functional straight penis as long as you maintain erections.  If you ever get a revision, then be sure to get an aggressively sized implant.

Did the subject of implant size come up while talking to the Coloplast Rep?

Hi Hawk,

Yes I can clearly feel the tips of the cylinders and they are well below by glands. You are correct in that my primary reason for an implant was to correct a severe dorsal curvature and not importance and I can get decent glans and even shaft engorgement currently so I am not overly concerned, if anything it is more the embarrassment of having an ' only 18cm ' Titan but I am perfectly content with my current size and in my head I really have a 21 or 22 haha 

Fortunately, they do not tattoo the implant size on your penis so no one knows and we do care.  ;)

We are just happy you are back in the game or soon will be.  Keep us posted.

Hawk,

Briefly going back to your oversized/undersize statement:

I have the 'Concorde' effect when not aroused, which I understand is typical of cylinders being undersized. I do however get very good glans and shaft engorgement when I am aroused. With this in mind, do I have any other reasons to be concerned about being undersized?

If I wanted to correct this, i understand it is possible to mobilize the glans with a subcoronal incision. When the cylinder tip becomes visible, nonabsorbable sutures can be used to hitch the glans and anchor it to the tunica albuginea, in order to completely cover the head of the tips. Am I right in assuming this is only really necessary for those who don't get glans engorgement and it won't make me any bigger as the cylinders are not replaced and are still the same size?

Jimmi, since you get good erections and the implant straightened your penis, you are in great shape for intercourse which is the primary goal.  If you did not get good erections your surgery would be considered a failure due to the surgeon's error.

The only concern is that the implant cannot exert a lengthening stretch on the penis so you will sacrifice some gains in length.  Even if you are content with finally having a fully functional penis,  I would make it clear to the doctor that he undersized you and that the surgery would be a total failure with any Erectile Dysfunction issues.  If satisfied I would use it and make sure that you don't experience the same outcome with a revision when the implant fails

I would personally never consider trying the patch-fix of stitching the head.  Either you are content with your fully functional penis or you are not.  If you are then use it inflated and erect.  If you are not, then insist on revision surgery with aggressively sized cylinders at the surgeon's expense. 

Philtered, firstly, i apologise for hi-jacking your thread..

Hawk, ( and others )

I have attached a couple of photos taken this morning whilst cycling. it is clear to see that a) the tip of the penis narrows significantly where the cylinders end and b) the flexibility obtained after the cylinders end ( without arousal )

Am I correct in thinking that for a man who was sized correctly, cycling stretches the tissues and thus you gain length. However, in my case, as the cylinders do not reach the end of the tissues then i will have much less length gains when cycling but the same girth gains? Does this mean that I will reach my maximum length more quickly, ie 4 weeks as opposed to 4 months say, or is it more of a case that i will get little to no benefit in cycling and it is more so to stop encapsulation?

I must point out that overall I am very happy with my surgery so far. Although I don't have anyone to have sex with at the moment, I have no doubts at all that it is perfectly functional and will be far far far better than it was pre surgery.  I guess I am just wanting to manage my expectations. I have already lost an inch in length post surgery as I mis-read the ruler measurement so I don't want any more surprises!

Jimmi,

We do not have a lot of data to conclude what you can expect in length gains cycling with undersized cylinders.  While some members might not have been aggressively sized, only one other person on the forum was clearly undersized, and he went to another surgeon to correct it within months of his first surgery.

Logic, however, suggests that all the force is being exerted on girth and little to none on length.  Therefore, I would at least consider using a VED while moderately inflated or even traction, especially since there would be no clamping on the cylinders.  The caution is not to put force on the tubing near the base of the implant.  A tubing failure means a non-functional implant and a revision.

Has Dr. Fraser acknowledged that he undersized you?  I would insist on that.  I also might consider making him tentatively schedule a revision, THEN tell him you want to see if you can regain some length with VED/Traction and get his approval to try it and postpone a revision until you see the results and decide.  Then if you inadvertently damaged the implant (unlikely), it is not on you.

This is just what I would do.  It is my personality and my perspective on the situation.  Yours might decide on a different course and it still be a reasonable approach. 

I actually asked Mr Fraser about VED use a week ago and this was his response:

Risk with VED after implant is disruption by traction on suture line. Just don't do it

I am very much in two minds. If it aint broke don't fix it, but, if it could be better and bigger then is a further surgery worth the risk of infection/time off work/another 4 weeks of recovery.

Anyway, i have emailed my surgeon and my lovely Coloplast rep to get their views. 

Maybe I am best to let it be for 6 months, see what growth I get and then re-assess the situation whilst possibly looking onto VED and traction.

Quote from: Jimmi85 on April 01, 2022, 12:20:44 PM

Risk with VED after implant is disruption by traction on suture line. Just don't do it

I am not sure I understand that sentence.  If he is saying either the VED or Traction is disruptive to the suture line....what suture line is that?   There are studies of using VEDs after implant.  Dr. Eid gave me permission although I really was not that interested in doing it.

I'm not too sure either tbh, but the sensible in me says I must listen to my surgeon, the curious side of me says just do it but be careful...

Anyway, this was his response to my query about being undersized:

"Re sizing: it is 100% correct. Cylinder tips sit under the glans, not in it
Ultimately the size loss as a result of your Peyronie's determines size and all I ask is you leave is inflated for an hour once (or maybe twice per day). You will be at your final position at about a year and size changes are, as we discussed, not guaranteed nor are they in any way as important as function. Go out and use and enjoy it "

And this was my reps response to the same question, note, both were sent the same photos as I attached on my previous post:

"
Good afternoon James,

Thanks for your email. I know it will often feel like you have been undersized but remember the cylinders do not go into the head of the penis.  The cylinders just go into the erectile tubes called the corpus cavernosum. The glans is made up of different tissue called the corpus spongiosum. Depending on male anatomy, sometimes the tips will feel short, but they will be correctly positioned. It's good you get glans engorgement.

Happy to call you Monday and talk this through,"

I am calling "non-sense and cover-up" or "Bull $h!/" on those statements.  It makes me angry because it is one thing to short cylinder a man but far worse not to own it. Only one other man on this forum had cylinders that did not extend into the glans and he had it corrected by Dr. Eid.

If you are so inclined to spend $ 300 for an unbiased 2nd professional opinion you could set up a video conference with Dr. Eid. 

Another gauge is to ask - if you did not get erections, would a partner notice anything unusual about your penis and could you have regular satisfying intercourse?  Most of us with a properly functioning implant feel like we have the penis of a healthy 20 year old man and would be a star at an orgy even with zero natural erection.  Most men who get implants in the world have ED. 

You are very fortunate to have a fully functional penis BECAUSE you get natural erections.

I'm the unlucky man Hawk refers to who was shorted on my first surgery. My surgeon also insisted that everything was alright and that he could fix things by stitching my glans to lift it up and correct the drooping. At that point I decided to video consult with Dr Eid and after just one look on the video call he immediately said I was undersized and would need to have a revision to correct it. I also got a 2nd opinion from Dr Kramer who also said I would need a revision.

I decided to have Dr Eid do the revision and I'm very very thankful I did. He did a great job replacing my original 15cm CX with a 20 cm Titan. Now the tips are in the glans where they belong and there is no more drooping. The end result is that I now nave a straight hard penis when inflated and my wife and I are very happy!

Jimmi85 good luck going forward.

Tshug, how much size did that extra 5cm add?

I assume your end goal and reason for the revision was to eliminate the droopy glans more so than adding extra length?

I see you waited 10 months for your revision - was this due to the business of Dr Eid or did you feel as though you should wait it out as long as possible?

Was your recovery any easier?

Thanks

Jimmi85, I've regained 1" with the Titan. I was 5" holding the droopy head up before they revision and 6" now. I don't expect much more gain, but the droopy head was the reason for having the revision done and I'm happy with the results.

The 10 month wait for the revision was my decision not Dr Eid's. I didn't want to be going through a recovery during the summer.

The recovery from the revision was also much easier there was a lot less pain. I was cycling by day 7 and the swelling and bruising cleared up much quicker this time. I had to use Tylenol for only a couple of days after getting home from the hospital.

I am so glad everyone is speaking up.
I remember another Englander that kept saying he was pumping every day, nothing was happening, and the doctor said it was ok. Then when we all forced the issue, the doctor examined the implant, found it to be defective, but tried to blame it on the patient.
I say, don't listen to him and find another surgeon and identify the problem. It's not the doctor's cock, he doesn't care! It's your cock? Your body, your sex life and your right to insist on perfection, not a "good enough" surgery.
StepOne

Thanks for all the support everyone.

However, the uk system is very different to the US, we don't have private medical insurance , well we do but it doesn't cover ED. We either pay out of pocket ( privately ) or go through the NHS where the waiting list is 12-18 months and you don't get the privilege of choosing your surgeon.

I am going to wait 3-4 months and see what kind of change I get. If there is no change in size then I can use that along with being able to feel the end of the cylinder tips as proof that I am undersized.

You got this Jimmi! Just a suggestion for you jimmi. I know you would like this to be over and done with already, but I think you should start the search for a solution sooner rather than waiting 4 months. In  My experience with  medicine(or anything requiring skilled labor or parts for that matter) it always takes longer than you estimate it too. So if you wait 4 months and you are not satisfied with the result then you will have to wait for the medical community to reply etc.

If you start now it still may take months to get the answer you are looking for and if things work out on their own then you can always cancel appointments. Just a suggestion. Keep us posted your posts have been great so far and it's really nice how informed you are keeping everyone. I'm sure you benefit a bit too from posts, but you are really helping others too

So its almost 8 weeks since I was implanted and right now i am very happy and content as how things a have turned out.

Since I met with the colon last rep two week ago, I have been cycling daily and today I managed a whole hour session, rather than the normal 30-40 minutes twice a day. I am a little concerned still that I'm not actually in a huge amount of pain when I'm cycling and am aware that this may or may not be because i might have been undersized.

To follow up on previous posts about the undersizimg, it is something I have thought about for a while now. I have my diabetes to consider and the increased risk of infection with any surgery,
I also get very good glans and shaft engorgement so I do not suffer with floppy glans. If this changes over the coming years then I might have a different perspective on it but right now I can't justify the risk of another surgery over very small gains.

Size wise, I am happy where I am, and have calculated the risks and inconvenience of further surgery against a size gain of maybe half an inch. It's just not worth it. Ima, still hopeful that with aggressive cycling I can get to my magic 6 inches.

It is also worth noting that I paid for this out of pocket and any subsequent surgery is going to cost me. If I was US based and it was an insurance jobby then I may be swayed more In the opposite direction.

One thing that I don't like is because the tips don't go into the glans, when I am not aroused, they obviously droop and it isn't aesthetically pleasing. Even when I am aroused they are still at a slight angle but they are hard and engorged so I am sure sex won't be an issue.

I can now sit all day in my suit and can pee properly! I can sleep normally on my side, wear tight ish jeans and have even started light weigh training and running again. Life is nearly back to normal.

I am desperate to use my new toy and am hoping it won't be long until I lose my bionic virginity.

I think you have thought this through very well, and you certainly came to a reasonable conclusion about your situation.  I might well do the same in your case.  I am concerned for those with total ED who might meet a similar fate because they would have a completely different set of facts to work with.

It is amazing how size seems to matter less than at any time in your life when you regain a working penis.  It is an easy choice between a 10 " penis that does not work and a 4.5" penis that is 100% reliable.

I liked your "bionic virginity" comment ;D

Good points I agree with that outlook jimmi and hawk good luck my dude thanks for keeping us all up to date etc. glad you're having a good outcome!

Hi guys,

I think I have a toe/nail infection, either where I've cut my nail too short or picked at it.

Pain started last night and it is excruciating right now. Toe is swollen, hot to touch and seems a little p~$$%. Being diabetic I am more prone to infections and will seek medical advice tomorrow but how likely is this to affect the implant? Logically speaking the toe is probably the furthest body part from the implant but I'm not sure if it works that way?

Has anyone had an infection outside of the implant itself ?

I can't post a photo from my phone but there is a clear difference between my toe big toes and I'm in as much if not more pain now than at any point immediately after my surgery.

Jimmy,

I think there is ZERO chance it can affect your implant.  Relax, take care of your toenail and be careful with your feet.

Thanks Hawk but on this occasion I don't believe you.

I've been to a and e, they confirmed it was an infection and prescribed antibiotics. I got home about 8 hours ago and my foot is now turning black and is numb to the touch. The pain is like nothing I've ever experienced. I'm taking myself back down to the hospital Soon. My grandfather has his foot amputated due to similar complications so I'm not taking any risks .

You are exactly correct. I never suggest your foot was not at risk.   I think there is a real risk to your foot. 

I do NOT however think your foot is a risk to your penis however.  I am pretty sure the only time a foot infection could affect your penis is if you became septic with a systemic blood infection.  Ask your surgeon and let us know if he thinks otherwise.

Curious to see how many pumps you all get from your implant?

I can only get 15-18 out of my titan ( 3 months post op ) and i have never really had any pain when i am fully pumped whilst cycling. I am pretty sure i am undersized but I do get Oak Tree hard.

When i get to my 15-18 pumps, I am rock solid and the noise/sensation of the saline going from the reservoir to the cylinders goes, indicating the reservoir is empty. The pumps gets a little harder but i can still squeeze it. Should i be pumping until I can no longer squeeze the bulb flat or is the lack of fluid being transferred an indication that i am fully pumped?

Jimmy,  All posts about your implant  should be in your implant journal.  That is the only way people can follow your progress, victories, challenges, and setbacks.
Put how many weeks post-op at the beginning of each post.
I will move these posts to your journal.



Since everyone with a Titan gets the same pump, the number of pumps will vary depending on the size of the cylinders and whether you are collapsing the pump fully (wall to wall) with each pump.

If your pump does not stay flat on your last squeeze, you have not transferred all fluid from your reservoir.

When you say you "can only get 15-18 pumps", what does that mean.  Can you squeeze it again with great effort, with two hands?

PS: I think it has already been established that you were undersized.  You report that the cylinder tips do NOT extend into the glans and that if you are not aroused that the end of your penis droops down (like a Concord aircraft).  That is the classic indication of and undersized implant.

I thought I'd give a quick update on how things are going since my implant 14 weeks ago.

First and foremost, i am very happy with it and have no regrets. My Penis is much more usable now than at any other point during the last three years and although i am some way off sizewise  what I was pre Peyronies Disease i really care all that much.

I have zero pain, and tbh most of the time i forget i have an implant. It hasn't stopped me from going about my normal everyday life and i am not in the least bit embaressed or shy about it -all of my close family know, along with circle of friends and it is actually usually brought up quite early on when matching on tinder etc.

However, i am struggling with being undersized.

Its not that fact that i could be another half an inch bigger, but the fact that when i am pumped up, because the tips don't go into the glans, i am arrow straight until the last 1/4 and the the glans kind of droop / bend. This is only an issue when i am not aroused as i get good engorgement but it is a constant reminder that i should have been sized a little bigger.

I also wonder whether there is any point in me cycling, so much so that i actually have given up and rarely cycle any more - for the first 6-8 weeks after I was cleared for cycling i cycled aggressively, but aside from maybe the first week I have never felt any kind of pain/stretching. I haven't measured myself for a month now but certainly at week 10 I was no bigger than a day post op. Can I still grow even if I am undersized or am I right in thinking that if the cylinders don't go to the end of the tissue then they have nothing to stretch?

Jimmy, first I am sorry you have to go through this.
What is your surgeon saying? Has he seen you to discuss the undersizing issue?
One of the biggest gains was girth.
Have you increased in girth?
Have you felt any stretching in girth?
I would not stop cycling completely as shrinkage may occur.
I would continue cycling to maintain and meet with your physician to discuss the problem he created.
Best wishes for you and stay strong.
StepOne

Jimmi,

I agree with your thinking.  If you made any girth gains after surgery there might be some point in cycling but likely you made all of those gains.  My girth gains were over by the end of a couple of months.  (long before my length gains).  The titan cylinders are stiff enough that you are not likely to lose length.  Even flaccid, you are probably longer than you were when you were flaccid before surgery.  This means the Titan is always exerting some tension.

Your one advantage is that you likely have no dogear bends when deflated or are very mild.

I do empathize with you.  I know the dilemma you wrestle with.  It is not that you are not happy with what you have.  If that was all that was possible and you were the only guy lucky enough to get an implant you would be ecstatic.  It is a little like the 2nd place syndrome.  studies show that silver medal winners are less happy than either gold or bronze medal winners.  The third-place person thinks " I am a medal winner!  I was close to being shut out like all of those behind me but I made it."  The 2nd place person thinks, "I was so close to being first and winning it all but I fell short."

So you see, it is largely a psychological issue.  If you can learn to think "what if I could not have gotten an implant like so many others?  I am so fortunate." 
as opposed to, "I could have had more."
Then you will be better off.  You either compare it to what you had or you compare it to what you imagine you could have." 

Thanks Hawk, Stepone,

I am not unhappy at all, but it is the frustration of knowing that it could have been better.

In terms of my surgeon, I have had zero contact with him since early April, when i had issues deflating, and that was only because i contacted him. Unfortunately, i am convinced if i had not have made contact with him i would not have heard from him since i left the hospital two days after the operation in Mid Feb. Actually, I tell a lie, i emailed him about my concern re under sizing in early April and this was his response:

Re sizing: it is 100% correct. Cylinder tips sit under the glans, not in it
Ultimately the size loss as a result of your Peyronie's determines size and all I ask is you leave is inflated for an hour once (or maybe twice per day). You will be at your final position at about a year and size changes are, as we discussed, not guaranteed nor are they in any way as important as function. Go out and use and enjoy it

I don't really have dog ears, a very small one on one side but it is barely noticeable.

I didn't even think about the girth gains whilst cycling, i always forget the girth and concentrate on length. Although , I would say i'm a little girthier than pre Peyronies Disease but similar to immediately post op.

Although i see little point in cycling, i think i will start again for two months at least to see where I end up, it can't do any harm.

My recent toe infection has made me realise how susceptible i am to infection as a Diabetic having had Diabetes for 33 years now, I still have a hole in my toe and was very close to losing it so like I said a revision isn't on the agenda until my current Titan fails.

I hear a lot of talk of people using a VED - Mr Fraser has told me absolutely not to use it, what is the general consensus?

Jimmi,
I understand where you are now, thanks for the detailed explanation.
I was told my surgeon, no VED devices after implant.
Unlike others I seemed to gain both girth and length well into my second year.
My wife loves my increased girth, she said she actually enjoys my penis more with it being about 1" shorter and more girth. But of course every body is different in what flicks their Bic, lol.
I did not have much contact with my surgeon afterwards, my follow ups were with his assistant and secretary.
Unlike Dr Eid which is an outstanding surgeon and excellent in being available for questions and concerns, my doctor was simply an excellent. But I am very happy with the outcome.
So I guess it's up to you, but with other medical issues, it's just one of those things, ugh!
I am not in your shoes, but I did have to accept that I made an error in listening to the doctor that did the Nesbit surgery that reduced my length. But of course, we can't change the past, but move forward.
My prayers are for your happiness and acceptance for whatever you decide.
StepOne

I would see little point in the VED.  It can help regain size after implant assuming the implant fills the penis.  Your penis is actually bigger than the implant so....

Without going into detail about your doctor's name ask Dr. Eid his opinion on "whether the cylinders should be felt partway into the glans."

As time goes on, i am getting more and more concerned about my cylinders not going anywhere near my glans - you can see from the pics , how I can move my glans 90 degrees even when fully pumped - Surely this can't be right?

I am not stimulated in the pic, and when i am, my glans do engorge but they are still a little floppy. I am sure A pde5 will help but to be honest I didn't pay £15,000 to still have to take Viagra every time I want to be fully engorged.

I probably will take your advice Hawk and arrange a tele call with Doctor Eid, although its not like i can pop out of the office to meet with him or afford his $30,000 fee for a revision...

Am i over worrying or do i have a cause to be concerned?

Thanks as always

Hey Jimmi, that does look like a cause for concern. It does seem you are pretty undersized and the implant doesn't reach all the way up. I have seen a few others in a similar situation on FT and they had to get revisions.

I will attached the link to another persons story , and as you can see in his first post his pictures you similar to yours and he was undersized. He ended up getting a revision.

https://www.FT/phpBB3/viewtopic.php?f=6&t=12039

The link is not working but he's the picture

So, I have reached out to Professor Ralph, who is highly respected here in the UK.

i have emailed him a photo and expressed my concerns and within three minutes of sending the email he replied saying i have been undersized and will need a revision. yay.

I can either see him privately or via the NHS ( UK ) - Although I am not in the London borough i had to be put on their NHS list when i saw the Coloplast rep at the UCLH, so although i might have a bit of a wait, it shouldn't cost me anything.

I messaged on FT, and it was called a 'horror show' , botched' and I was even told to sue the surgeon so this has really made me push forward about exploring a revision.

I appreciate the surgeon will explain all the ins and outs but i am assuming:

* if say i go from 18cm to 21cm, then i will need a bigger reservoir? TBH i have never been told what size i have anyway.
* obviously cylinders will be replaced.
* Pump should be able to remain in situ? Although if its a scrotal approach again I guess it doesn't really matter either way.
* can i expect a similar or easier recovery?

You will note from my journal I have never really been that bothered by the sizing but over the last few weeks it has really gotten to me and if I like Dr Ralph and I can be covered under the NHS then I see no reason why I should put up with an implant that isn't the right size.

if you buy a pair of shoes and they are too small, you take them back and ask for a bigger size right??

Also, given i had this done privately, what are the chances i can get some of my costs back if i / my new surgeon can prove i was undersized?

Hey Gimmi,

Congrats on coming to a conclusion. I did see your post on FT and saw the horror show and botched comments as well. I hope everything works out In the end. I am not too sure about the costs question at the end especially since it is in the UK and not the US so things may be different. Keep us updated.

Jimmi, I am so sorry you have to go through this!
I would assume nothing and get all the facts up front.
You assumed you would get good care and how did that go for you?
We must be our own advocates.
We are the customers.
All I can say is it's a good thing you weren't  getting a heart valve implant and they put in the wrong size. UGH!
I am not familiar with English medicine system, but I would certainly ask more recourse questions....or do you have patient advocates?
Best of wishes are with you my friend,
StepOne

Thanks Stepone, and everyone else for your comments.

I thought I could get through this and carry on as I am but the more I look at it, and the more I feel it when I am pumped the more I think this isn't right. And if I think it's not right then what the hell is any girl going to think?!

I am going to have an appointment with Dr Ralph and take his advice. I am
Most concerned obviously about infection with a revision and my diabetes but the more comments I hear both here And on FT the more I am swaying towards a revision.  I was hoping for 21cm minimum and was surprised when I was told I had an 18cm but I trusted me Fraser and trusted he fitted the correct sized cylinders.

The English medical system is not like the US, where you can sue for absolutely anything but there are roads I could go down. On one hand suing my surgeon or the Nuffield is out of the question as I'm just not that sort of person but on the other hand I wouldn't want other people to be incorrectly operated on etc.

I've mentioned in previous posts that my last relationship broke down due to my Peyronies and I am trying to get closer with my ex now I ( thought ) I was fixed so this is just another blow.

I'll keep everyone posted and once again thank you to everyone who has taken the time to reply as always.

I have to agree with almost everyone else that you were badly undersized and need a revision. The only good part is that most likely, only the cylinders should need replacing. Maybe you'll only need some RTEs, but that will be up to a real doc.

In the UK, do you get surgical notes that should show the measurements the surgeon takes on the operating table?
I'd guess not in your case, and I can guarantee that with the revision, you'll be a new man.

Quote from: Jimmi85 on June 13, 2022, 12:53:00 PM
So, I have reached out to Professor Ralph, who is highly respected here in the UK.

i have emailed him a photo and expressed my concerns and within three minutes of sending the email he replied saying i have been undersized and will need a revision. yay.

I can either see him privately or via the NHS ( UK ) - Although I am not in the London borough i had to be put on their NHS list when i saw the Coloplast rep at the UCLH, so although i might have a bit of a wait, it shouldn't cost me anything.

You are in good hands. Everytime i've emailed ralph with any concerns since surgery, he's replied pronto, even within minutes like you say, he's rung me as well when i was concerned about infection early doors and he always says pop up to see him if you want. I once said to him, thanks for your prompt replies to any questions and he just said "you're my patient,it's normal"

  I was private messaging with a guy on FT who had the opp with proff ralph on the NHS just after me and he didn't have to wait long and was offered early dates with cancellations. He is very pleased with his outcome. Good luck mate.

Thanks Philtered.

I have had 0 contact from Mr Fraser since my op, other than me contacting him a few times about cycling and more recently questioning the size of the implant. I hear guys say they are in regular contact with their surgeon and here i am effectively alone, aside from the forums.

This was his latest response to me questioning the size:

Re sizing: it is 100% correct. Cylinder tips sit under the glans, not in it
Ultimately the size loss as a result of your Peyronie's determines size and all I ask is you leave is inflated for an hour once (or maybe twice per day). You will be at your final position at about a year and size changes are, as we discussed, not guaranteed nor are they in any way as important as function. Go out and use and enjoy it

Quick update:

I have contacted Professor Ralph who has confirmed I am quite undersized. I am seeing him in a few weeks time and he will do an MRI to see exactly where it ends but he has said a revision with a longer implant is an almost certainty.

So sorry you are going through this.
I feel fortunate as I got a bigger penis with my implant. I don't have the feeling I did when I was younger, but who is to say, it was surgery or just a part of aging.
I can say this, I have great mind blowing sex!

I wish you the best in getting a new implant.
Be sure to give me heads up for your surgery and I will get my prayer group to pray for a successful surgery.
Hugs and prayers
StepOne

Just thought I'd post a quick update and ask a quick question at the same time.

I have my appointment with prof Ralph a week today - I am both intrigued and excited to hear what he has to say. I have decided if he believes a revision is necessary then that's what I will do.

I have started to cycle again and can finally feel a bit of a stretch. Hopefully I can stretch myself as much as possible before any revision surgery. However, the more I cycle/pump the more noticeable it is that I'm short. Sending dick pics to chicks is out of the question right now!

For those that have had one or more revisions, what was your recovery like compared to the first? I understand a revision is harder for the surgeon but easier on the patient. I was off work for a little over two weeks for my initial surgery and couldn't sit on a chair until week 6 post op. Assuming it will only be the cyclinders that get removed, can I expect things to be much easier this time around?

Jimmi, I had my revision done 11 months after the first implant. I was shorted on the first one which left glans flopping down since the cylinders did not reach into the glans.  I went from a 15cm+1rte CX to a 20cm+1 rte Titan.

The recovery for the second one was much easier. I didn't have nearly as much swelling or bruising. Most of the discomfort had eased by week. I'm lucky I had Dr Eid not my first surgeon do my second implant. I've regained both size and girth and no longer have a floppy head when inflated.

Good luck with your second implant and hopefully you have great results.

Tshug, wow, 5cm is a lot!

Do you have any pics you can post, or send to me, before your revision so i can compare?

Good to know your revision was easier, i thought it would be. I am tempted to have the revision over xmas time, where i can use the holiday period to recover and between now and then i might start using a VED to maximise size, although size is not my number one priority.

Thanks

Sorry Jimmi, but there are no pictures from my first implant. Being shorted that much it was embarrassing to look at and I certainly didn't want any pictures of it either! Just picture the old Concorde jet and that was me with the head drooping down.

I have just had my initial consultation with professor Ralph. I didn't initially see him as I had heard stories of him not being very personal but I found him to be very attentive and he listened to me. I wish I had gone to him initially.

His conclusion was that, although my penis is functional the implant isn't great. He said the tubing was in the wrong place and this gives the impression of me being smaller and in fact actually making me a little shorter. The tubing is far too high up and is very noticeable to the touch.

He concluded the implant is short and I will have an MRI in a few weeks time to assertion where we go from here. I have decided any future surgery will be with him.

I have two options - one is a full removal and insertion of a longer implant whilst at the same time correcting the tubing.

The second is a glans opcony ( I think?! ) whereby an incision is made just under the glans and the cylinders are effectively stitched to the glans to reinforce them- please correct me if I have the wrong terminology here!

The former carried a much higher risk of infection as the capsule is broken whilst the second although still an infection risk is minimal. The latter is also a much simpler procedure and recovery is short.

The MRI will dictate which is the best route for me but my initial thoughts are : I can live with the tubing and do not want to put myself at risk of infection anymore than I have to. I guess if the cylinders are so short a glans opcony can not be done then I won't really have a choice, apart from not doing anything.

I am 20 degrees dorsal but the glans are a little over 40 degrees so it is far from ideal.

But as they say on love island it is what it is!

Ouch,
I would go with option 1 with larger size implant.
There is always a risk of infection.
I think he is trying to do the easiest procedure.
I seriously don't trust him.
I am speaking my thoughts and understand it's your decision.
Please don't settle for a lousy surgery, you are worth much more than that.
I understand doctors are treasured, but you have a doctorate in your body. You deserve the best, don't settle.
Please excuse my frankness, but I have seen too many people harmed by bad surgeons.
And please keep us informed.
StepOne

Hi All,

It's been a few weeks since i last posted and since i saw my (possible) new surgeon.

Stephone, I realise I did not reply to your previous post, apologies.

To be honest, having seen Professor Ralph earlier this week, it has magnified all my concerns, concerns which previously didn't bother me or i did not notice but now are always on my mind.

I have four main concerns at present.

You will note from the photo my dorsal curvature seems to be returning. My glands are now pointing up at roughly 60 degrees i would say and i have noticed my shaft is beginning to take an upwards turn. Granted it is not as bad as it was pre-surgery but it is definitely not what i was expecting or hoping for. For a reference, the tips finish roughly at the bottom part of the ridge of the foreskin just below the Glans where the dorsal angle increases dramatically.

My Glands are incredibly floppy, almost like they are not actually attached to my dick. They have full mobility and lean to the left when left in their natural position. This, aside with penetration issues, also means my pee come out at a weird angle so I either have to sit on the toilet to pee or manoeuvre my dick to ensure i don't piss everywhere.

My tubing seems to be becoming more prominent. There is no way i could have sex with a girl and for her not to realise i was 'a little different'. It can actually be uncomfortable as it sits so high up and is literally just beneath my skin towards the bottom of the shaft.

My last concern, and the one I am actually most concerned about is where the cylinder tips do not go anywhere near the glans, and because the glans are at an angle to the penile shaft, the tips are poking the underside of my skin at the top of the shaft. I only noticed this after i had seen Prof Ralph and i am concerned that they could actually pierce the skin which would be a catastrophe. I emailed Prof Ralph about this and he came back pretty quickly and said i should be fine until the revision.

I have not yet had the MRI, but both myself and Prof Ralph feel the only way forward is a revision with a larger implant. He will also move the tubing so it is not so palpable to the touch. I don't think this will be until Feb/March next year due to NHS waiting times but I feel this is the only real option, otherwise I will never be happy.

I am still cycling, not daily but perhaps 3-4 days a week for at least an hour. I am unsure as to whether cycling has any benefit due to the amount i am undersized and also if it might be doing more harm as i am stretching the tissues and making the implant even more undersized? I am currently a tad over 5.5' , a far cry from my healthy 8' but i am not really overly concerned about the size, for me, it is all about the functionality.

Jimmie,
I am sorry you are going through this and have to wait so long. Isn't there some way to bumped up, since essentially your penis cannot be used.
You seem to be taking this pretty well, I don't think I would be as patient. 
Can you still masturbate with it?
Did you gain any girth?
I understand all your concerns and find them valid. It's sad you have to go through this, because of their mistake.
All I can say is that I hope the surgeon knows what he is doing this time!
StepOne

Hi Stephone,

It is perfectly usable, i have had sex with it and masturbate daily it just isn't perfect and isn't what i paid for. I am enjoying my new hobby of VR porn with it at the moment! haha. At 100% inflated there is more of a bend than at 80%, and it is much more manoeuvrable slightly less inflated but still hard enough for intercourse. 

That said, it is much better than my pre-implant dick, and that is why i am still upbeat. I do sometime worry that the tips will perforate the skin and skin and cause a nasty infection but i don't know if I am worrying about something that is very unlikely to happy.

i am definitely girthier than pre implant. Possibly a little less than pre-peyronies. I haven't measured my girth but i guess i'm around 5'.

It will take as long as it takes unfortunately. The NHS here in the uk is notoriously slow. We don't have medical insurance like you guys across the pond - Although i have private medical healthcare but they don't cover any form of ED. I could go private again and pay another £15k to have it done next week but I'm happy to wait.

Hey guys i thought i'd provide a bit of an update, whilst also after a bit of advice please.

Overall, I am satisfied with the implant. The way i see it is, i am in a far better position now than i was with my Peyronies and it has changed my mental state quite dramatically.

However, the under sizing is beginning to be a real issue, both in terms of the end of the shaft and glans being so unsupported, floppy and the curve returning ( which isn't noticeable in the photo as i am only about 70% inflated but increases as i increase inflation )  and also, and perhaps more worrying, the tips of the cylinders pressing firmly against the skin towards the top of my shaft which concerns me greatly that they could perforate the skin, and lead to an infection. I have asked my new surgeon, Professor Ralph and he has said i will be fine until my revision. 

I have the MRI next Wednesday, so hopefully that will clear things up as to how undersized I am and where i go from here. I will have the revision, i think the benefits of a revision far outweigh the extra risk of infection. He may decide that what i have currently is unusable and i may be fast tracked, who knows.

I have started dating someone, and i have been completely open and honest with her, about everything, but i really don't want to hurt myself and risk an infection until i have the MRI back.

Curious to hear if anyone thinks my fears are well founded or if it is very unlikely that the tips could actually break through the skin?

Thanks

I love your positive attitude.
Here is my take. What you have is not right. You are way to accepting, but yes I agree you need a revision. I am not a physician, but it looks to me that they undersized you by at least 2-4 cm.
I believe that you are right, over time, the cylinders could cause damage to your penis when having intercourse as they are too short.
Of course masturbation should be ok.
Your penis looks great until you get to the head, which is unfortunate. When they did the original implant, I don't know how they could have thought it was right.
I wish you good thoughts for the revision to make you what you should be, complete!
StepOne

Thank you Stepone, for your kind and reassuring comments, as always.

If my new surgeon, after the MRI next week,  feels that intercourse is safe short term until my revision then I will be much happier. If he feels it could cause me damage, then i would hope he could fast track me. if he cant, i may decide to pay out of pocket again, which i really don't want to do, but my health and happiness comes before money ultimately.

FYI, my original surgeon, is still denying all responsibility and says the cylinders are placed correctly, and they should not go into the glans.....

Quote from: Jimmi85 on August 09, 2022, 09:30:42 AM

FYI, my original surgeon, is still denying all responsibility and says the cylinders are placed correctly, and they should not go into the glans.....

      No surgeon will ever acknowledge that they did anything wrong. My wife was injured due to a surgeons error upon delivering our 3rd child. We tried to get a lawyer involved but the Dr's stick together with their story and the hospital backs them up.  You definitely need a revision but don't worry yourself about the erosion.  I think if you are gentle you will be fine. It's not like you are having sex 6 times a day. LOL

Thanks Mikel, that's also very reassuring to hear.

When you say erosion, i assume you mean he tips breaking the skin?

If this were to happen, would it mean an almost certain infection or is it not as serious i am making out?

It's been a few weeks since I last posted and things have moved on a little bit.

I had the MRI a few weeks ago now, I have emailed my surgeon to get his opinion but I haven't heard back , which is disappointing but I guess if he thought I could hurt myself then he would have been in touch. I have a follow up early November via a video call with him so I'm seeing this as a positive.

I have been dating a gorgeous girl for the last four weeks, we wanted to wait until I had the MRI before we had sex as I was genuinely concerned about the tips breaking through the skin. The sex has been amazing, a world away from pre-implant / post Peyronies. I am not at 'full throttle' yet and we need to experiment what positions are possible and what aren't. She knows all about the implant and she loves it, she says she can't tell any difference except that I am super hard and stay super hard! I feel very blessed to have found someone so supportive and understanding.

Interestingly I am waking up regularly in the mornings, almost on a daily basis with a super hard natural erection. I go to sleep fully deflated but when I wake up I am hard enough for sex. This goes away as soon as I am more awake so I still have to pump but I am getting good engorgement.

My glans only seem to want to engorge with morning glory so I have to kind of force them in when having sex but once I'm in it all feels very natural. I hate the way it looks , worth the guns being at a 60 degree angle to the shaft but it doesn't seem to bother her.

I have also now reached my magic 6 inches! I find this a little strange as it seems rather big given I have only 18cm cylinders. There is no doubt I am undersized but I am now questioning if I should challenge my initial surgeon about the cylinder sizes.

Stepone - On one of g mother posts on another thread yiu asked why I don't challenge my surgeon and get some recourse. The Uk is very different to the Us, you can't just sue for anything here and the surgeons and doctors will all stick together. I understand mistakes happen, I would love my surgeon to own his mistake but what's done is done, at least I am able to have good sex again so for that I am very grateful.

Great news about your sex.
I would caution you in telling the physicians you are having great sex. They may think you are getting the procedure for cosmetic purposes.
By the way, can't you at least have a free consultation with an attorney?
Here in the US, doctors stick together too!
That's why we have attorneys.
StepOne

Quick update on where I am at for anyone interested:

I had a tele consult with my new surgeon on Monday and following the MRI he has suggested i am 2cm short. I am on the NHS waiting list for a revision and this should be done in March next year. I am able to have good sex so i am not overly concerned about the timings although because my glans are so floppy i need to force the glans in in order to penetrate which isn't ideal.

My biggest worry has been the tips eroding through the skin as they are not in the glans and rub against the side of my shaft under the glans at a slight angle. He has assured me this will not happen and has said I can use the implant as intended, although i am still a little cautious.

I asked him if i am 2cm short now, and have 18cm cylinders, will that mean i have 20cm total for my revision, or, as I have stretched since the original implant, will i be a little bigger i.e. 21/22cm. He said he will decide when he operates. Does anyone else have any input on this?

Jimmi,
You are such a strong and patient guy.
Thanks for reporting.
It's interesting, but sex for most of us is such an easy thing when we are young and then we have things happen and things change.
I have had friends that never got really hard in their 30's and when they would have penetrative sex, they would have to squeeze it in all the time. I on the other hand always got rock hard and never had that problem, until I broke my penis and everything went downhill for years with no solution in sight. Now I pump it, and I can do it without even touching my penis. I get my spouse all wet and we do it. I would say for 10 years I had problems off and on.
So what I am getting to, is I am trying to understand your patience. What you have may not be ideal, but it's certainly hard.
I think I would stuff it and make it work as you are. You are the man.
I would be firm with the new surgeon and Be sure he has the care to fix this to give you the best outcome. Are you pumping to maximum?
StepOne

I would not want a surgeon to make his mind up on my implant before I was in surgery.  Otherwise, he is fitting you to a preconceived size he estimated.  He should measure you in the OR, have several implants at his disposal and match the implant to you.

Best wishes.

Thanks both for your input.

The aim of the implant was not to get a perfect penis, we all know an implant is never going to be the same as a blood-filled erection but I guess everyone who goes down the implant route expects, or certainly hopes for the best possible outcome, especially when it is paid for out of pocket and not via insurance like you guys over the pond.

The implant works, and it works very well actually. Us Bionic brothers can do things which no one with a natural penis can do and I find that very exciting. For me, my issues are both an aesthetic issue and a practical issue. When fully inflated the top 20-25% of the penis droops and just doesn't look right. I can't send 'sexy pics' to my girlfriend as it just looks a bit weird. Practically, the sex is really good, and I'd choose what I have no over what I had immediately pre-op in a heartbeat. However, because of the floppiness, certain positions, like her on top, are difficult as it is difficult to penetrate. That alone doesn't warrant a revision, but both these combined with the constant fear of erosion and the tips breaking through the skin in my eyes warrant a revision. I'm a perfectionist by nature. but I do also have to consider my diabetes and the fact that I am more prone to an infection.

I have faith in my new surgeon, he has since told me he will measure me on the operating table, which gives me confidence, so currently I am going down the revision route, probably in February/March next year.

I know that any revision is harder for the surgeon but easier for the patient. Why is that? Any ideas of recovery time compared to an initial surgery? I took 6-8 weeks before I felt healed enough to walk properly and start wearing normal clothes. Can I expect/hope for this to be halved if the surgery went well?

Thanks as always

This whole thread has been a great read. Thanks for sharing it all so candidly. I have had Peyronies for 5 years and have managed it through diet (carnivore/keto) and light traction. I was told when diagnosed it was the most impressive case he had seen which was a word I did not want to hear at all at the time!

The way you seem to have handled it in dating is similar to me and to me and it really forces you to not give a crap as much as possible and also learn that it is you making a deal of it and not your partner. Or you letting it affect your confidence, I mean.

I was very surprised to read you got such a good surgeon in the UK. Was it all on the NHS and how long did you have to wait?
I can have sex a few times a night, but not like I used to. I am currently ok with the situation but reading your post has given me a great sense of relief in that if it got worse I could possibly go a similar route to you.

Hey Fairfaxology,

I'm not convinced i did find a 'great surgeon' or certainly i don't think i got a fantastic outcome, but whatever the outcome, i am in a far far far better position now than pre-implant. i self funded and it cost me £13k.

I was set on a revision with David Ralph after a consult with him and an MRI which showed me to be between 1-2cm short. In recent weeks he has backtracked a little and doesn't think I am hugely undersized and has recommended I leave things as they are as it works very well and with the added complication of a revision coupled with my diabetes he doesn't think the gain vs risk is worth it. I have been worried, almost to the point of being obsessed, about erosion and the tips, which I can feel very prominently, breaking through the skin. He has assured me this will not happen so for the moment at least, I am happy as things are.

On a slightly more positive note, I have smashed past the 6' marker! My size has never been my number one priority, but having read a lot of journals and assessing the correlation between implant size and length, my heart sank when i was told I 'only' had an 18cm, especially when I was close to 8' in my prime. I was resigned to being less than 5' but this goes to show that with cycling and the right anatomy implant size and length do not always go hand in hand.

Quote from: philtered on February 10, 2022, 05:11:54 PM
  Good luck, i'm having mine tomorrow in london. Lets share our recovery stories as we'll be at the same stages together. I'm really nervous tbh and i've managed to aggravate a plaque overdoing traction and VED trying to maximise size. My surgeon told me to stop last week when i told him, but it's still a bit sore. I'm hoping it doesn't effect the surgery.

Please can you share your latest recovery stories, and which stage are you in now? how did the surgery go?

Quote from: Jimmi85 on December 13, 2022, 07:58:09 AMHey Fairfaxology,

I'm not convinced i did find a 'great surgeon' or certainly i don't think i got a fantastic outcome, but whatever the outcome, i am in a far far far better position now than pre-implant. i self funded and it cost me £13k.

Hey Jimmi, just gliding through your thread. Your enthusiasm and character shows a bright light and I'm glad you shared your experience.

I was very depressed and not knowing how I would go on to live once finding out I had Peyronies and seeing it get worse (still is), I'm 28 and had quite a fun sex life before which came to a total STOP and haven't since. I'm not the same person I used to be right now but reading up about implants has given me hope.

I see you found a new surgeon, how's the cost on this one? I know you mention 13K on your primary. I would maybe opt for private also although I do not have that cash but could take out a loan I guess, or pay in installments. Not sure. I just want the best possible outcome so I can have a fulfilling sex life again and regain my confidence.

Hey everyone,

It's been a while and for the most part everything is going swimmingly. I am still. Little worrried about the tips eroding the skin at the top of the shaft but I am continuing to have a very fun and active sex sex life so I'm assuming if there were to be any damage done it might have happened by now.

I do have one concern- on two occasions over the last two weeks, when I pump nothing happens for the first 4 or 5 pumps. It's like the bulb is much harder and is transferring very little saline into the cylinders. Then something clicks and it works as normal.should I be concerned about this? As in, could it be the start of something much more sinister? Or is it a fairly common issue which sorts itself out over time?

Ps- oohnoohno - sorry to hear about your struggles, remember we've all been there. My initial surgery cost was £14k but I'm now on UCLH and professor Ralph's NHS list so any revisions will be covered under the NHS.

Thanks Jimmi, glad to hear its going well!

I'm feeling ok right now but not having sex, about to start meeting girls again and just going with the flow, if things happen we'll see lol!

But it's really reassuring now hearing of these stories of implants and how good they work after so if it ever comes down to it I can resort to it.