Last year I had very low levels of vitamin D (13ng/ml) and I took like 18,000 IUs every few days, sometimes even daily (really inconsistent). Anyway, I ended up with a kidney stone after around 2 months because of my vitamin D supplementation. I was hospitalized in February 2018 because of this kidney stone. In April 2018 I got a new girlfriend and we started having sex in May/June.
Now I know that vitamin D is fat soluble and stays in your body for a very long time. So when I started having sex with my new girlfriend, I had some erection problems at first and I was penetrating without a firm erection sometimes. This lead to me crushing my penis sometimes and this is where my Peyronies started to emerge. I think the excess vitamin D lead to more fibrosis in my penis during the repair process.
https://onlinelibrary.wiley.com/doi/abs/10.1111/and.13368
This recent study supports my theory that excess vitamin D leads to excess fibrosis in the penis. Really shocking finding to me. I really regret my decisions in life at this point but what can I do...
What do you guys think? I'm really stressing out over the possibility that I may have caused this by myself. But I also read a study where the vitamin D levels of peyronies patients were lower than healthy control subjects. I don't know what to think about this contradicting research... but the thought that this whole problem is my own fault really F~@ks with my mind..
This is just my personal opinion, so take it for it's worth.....nobody knows what causes peyronie's. At all. Not the smartest people on Earth. People on here say that it is caused by masturbating in a seated position. That it is caused by high cholesterol, smoking, beta blockers, etc., etc., etc.
And they may very well contribute. But here is a fact: I know a guy that is 95 that smokes 2 packs a day that I just saw mowing his lawn. Not sure he has peyronie's, but I'm guessing he doesn't. Peyronie's is a genetic disease or it is caused by a directly attributable injury. Either micro or macro trauma in other words. I think mine developed for years without me knowing it and then bang! Curve, etc.
The rest is a guessing game. In my case, did cocaine do it? Did that cheeseburger? They certainly didn't help. But in my opinion even if I took care of myself like I do now since childhood, I would have gotten it anyway.
Hi G, I agree w S they you'll never know if vit D caused it, but we do know having sexual intercourse without a sufficient erection can cause trauma to the penis which can result in Peyronies, AND also exacerbate it-so don't do that any more. Now get started w medical care and treatment ASAP, start here w the survival guide: https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057
I saw this new study as well. I always had low vitamin D, so I can't say supplementation really made it worse or better. But I would not be surprised if excess supplementation did indeed contribute to worsening.. In general you won't be able to know but this is a very interesting study for sure.
Quote from: NeoV on September 23, 2019, 12:18:39 AM
I saw this new study as well. I always had low vitamin D, so I can't say supplementation really made it worse or better. But I would not be surprised if excess supplementation did indeed contribute to worsening.. In general you won't be able to know but this is a very interesting study for sure.
What I don't understand is how in another study, lower vitamin D levels were seen as a cause for peyronies
Yes it did show that, but the thing is that it isn't just Peyronie's, but many diseases are associated with an imbalance of vitamin D. You really want it in a sweet spot, and how to do that is somewhat up in the air. It would require testing to really figure out what you need (or if you need supplementation at all).
I also think that vitamin D may be low or high for other underlying reasons, so it isn't really the vitamin D but something else underneath.
Quote from: NeoV on September 23, 2019, 04:00:04 AM
Yes it did show that, but the thing is that it isn't just Peyronie's, but many diseases are associated with an imbalance of vitamin D. You really want it in a sweet spot, and how to do that is somewhat up in the air. It would require testing to really figure out what you need (or if you need supplementation at all).
I also think that vitamin D may be low or high for other underlying reasons, so it isn't really the vitamin D but something else underneath.
Im really freaking out over the possibility that this has happened by my own fault. This study is such a shocking finding to me. I only wanted to correct my deficiency. Vitamin supplementation is such a dangerous game...
when I was hospitalized with a kidney stone, they didn't notice abnormal calcium levels and my vitamin D levels were at 56 ng/ml which is considered optimal. To be honest, kidney stones are extremely common in my family so the vitamin D only may have sped up what was supposed to happen anyway. I really hope that my vitamin D supplementation didn't cause my peyronies though but I sense nothing good. My flaccid hurts when I move it up and down, it's such a mess. I just hope that this vitamin d didn't cause these problems
Im back from another urologist. I told him that I took high doses of vitamin D because of my deficiency and that I read that this could lead to calcification in soft tissue. Then he told me that this calcification occurs in the kidney and not in the penis. Kind of reassuring but i'm Still worrying about this study... he prescribed me Neomycin-fluocinolonacetonide cream for the pain and told me to come back in 7 days
Quote from: Graggaxy on September 23, 2019, 03:40:06 AM
What I don't understand is how in another study, lower vitamin D levels were seen as a cause for peyronies
Because it is a cause for Peyronie's. Low vitamin D causes low VDR activation which is proven to induce more TGF-B, maybe we need a sweet spot as NeoV said
Quote from: Hontas on September 24, 2019, 09:29:13 PM
Because it is a cause for Peyronie's. Low vitamin D causes low VDR activation which is proven to induce more TGF-B, maybe we need a sweet spot as NeoV said
But in the recent study, vitamin D levels in peyronies group were only like 10ng/ml higher than control but both groups were still deficient by definition (peyronies group just not as deficient as control group)
https://www.jsm.jsexmed.org/article/S1743-6095(16)00534-8/fulltext
And here Peyronie's group has deficiency. Its a complex mechanism with a few different pathways. But i know VDR pathway is needed to stop fibrosis.
low vitamin D will likely contribute to peyronie.
However, vitamin D also contributes to moving calcium around your body.
So i would say it is also likely vitamin D OVERDOSE will likely contribute to peyronie.
Normally we would get vitamin D from the Sun, through the skin. The body is extremely fine tuned to NOT overdose on vitamin D even with prolonged UVB exposure. So your body will take exactly the right amount of vitamin D it can HANDLE.
Oral supplementation however has a different route and you CAN overdose on it because the mechanism is different.
If you also took calcium supplements/drank milk etc with vit D, that most likely made the problem worse. Sadly many vit D supplements come with calcium because they are marketed towards post menopausal women (for osteoporosis)
Quote from: peyroniesurprise on September 27, 2019, 03:44:14 AM
low vitamin D will likely contribute to peyronie.
However, vitamin D also contributes to moving calcium around your body.
So i would say it is also likely vitamin D OVERDOSE will likely contribute to peyronie.
Normally we would get vitamin D from the Sun, through the skin. The body is extremely fine tuned to NOT overdose on vitamin D even with prolonged UVB exposure. So your body will take exactly the right amount of vitamin D it can HANDLE.
Oral supplementation however has a different route and you CAN overdose on it because the mechanism is different.
If you also took calcium supplements/drank milk etc with vit D, that most likely made the problem worse. Sadly many vit D supplements come with calcium because they are marketed towards post menopausal women (for osteoporosis)
How is this excess calcium gonna get to the penis though? When there's excess calcium, the body forms a kidney stone and that's it. Calcification occurs in the kidneys and not in the penis
See also this;- There is a relationship between Peyronie's disease and high serum vitamin D levels
https://www.ncbi.nlm.nih.gov/pubmed/31482615
Paul.
This tiny study asked the quest "Is vitamin D levels a new risk factor"? It did not answer the question and establish that they are.
Administrator
Quote from: Graggaxy on September 27, 2019, 04:04:41 AM
How is this excess calcium gonna get to the penis though? When there's excess calcium, the body forms a kidney stone and that's it. Calcification occurs in the kidneys and not in the penis
https://www.ncbi.nlm.nih.gov/pubmed/7057504
https://www.niddk.nih.gov/health-information/urologic-diseases/penile-curvature-peyronies-disease
excess calcium is much more than kidney stones. kidney stones are the canary in the coal mine
Quote from: peyroniesurprise on September 27, 2019, 04:09:20 AM
https://www.ncbi.nlm.nih.gov/pubmed/7057504
https://www.niddk.nih.gov/health-information/urologic-diseases/penile-curvature-peyronies-disease
excess calcium is much more than kidney stones. kidney stones are the canary in the coal mine
I actually developed a kidney stone and Peyronies Disease when I Supplemented with vitamin D back in early 2018. when I had strong kidney pain, my blood levels were normal though (no excess calcium). Kidney stones are extremely common in my family so I may have sped up the formation process a bit. So you're telling me my vitamin D supplementation could have caused my peyronies? This is so brutal, depression inducing
I developed kidney stones and Peyronies Disease when I had very low vitamin. Did low vitamin D cause both of these? Because you happen to be eating something, or doing something when a health change happens does not mean that thing caused it. We deal in fact here, not superstitions. - Administrator
Quote from: Graggaxy on September 27, 2019, 04:18:34 AM
So you're telling me my vitamin D supplementation could have caused my peyronies? This is so brutal, depression inducing
Nobody truly knows, please don't trouble yourself with these thoughts, it will only spiral you downwards.
Note:- D-limonene is
very effective at treating, and preventing Kidney stones :)
Quote from: Paolo on September 27, 2019, 04:29:03 AM
Nobody truly knows, please don't trouble yourself with these thoughts, it will only spiral you downwards.
Note:- D-limonene is very effective at treating, and preventing Kidney stones :)
Sorry but I can't think of anything else for what caused this. I'm only 22 years old. I should be living my life and not post on forums with men who are 30 years older than me (please don't take this offensive in any way, I hope you get what I mean). It's killing me that I did this to myself. I'm in hell
Quote from: Graggaxy on September 27, 2019, 04:18:34 AM
I actually developed a kidney stone when I Supplemented with vitamin D back in early 2018. when I had strong kidney pain, my blood levels were normal though (no excess calcium). Kidney stones are extremely common in my family so I may have sped up the formation process a bit. So you're telling me my vitamin D supplementation could have caused my peyronies? This is so brutal, depression inducing
I'm saying an OVERDOSE of ORAL vitamin D (18k IUs, sometimes daily) MIGHT have CONTRIBUTED to Peyronies, but peyronies has a complex cause, not just vit D. And it can be treated.
Vitamin D on it's own is necessary, it's just that the dosage should be much lower and ideally you should get sun exposure for it.
Vitamin D is a very important vitamin/hormone and you do need it.
Quote from: peyroniesurprise on September 27, 2019, 10:10:11 AM
I'm saying an OVERDOSE of ORAL vitamin D (18k IUs, sometimes daily) MIGHT have CONTRIBUTED to Peyronies, but peyronies has a complex cause, not just vit D. And it can be treated.
Vitamin D on it's own is necessary, it's just that the dosage should be much lower and ideally you should get sun exposure for it.
Vitamin D is a very important vitamin/hormone and you do need it.
I don't think I overdosed it because my blood test came back fine.. I naturally tend to develop kidney stones. As I said I was very deficient before supplementing (13ng/ml), that might have contributed to it as well? Also, I developed peyronies symptoms one year after my last vitamin D intake. Is one year too long to show any relation?
Hi Graggaxy,
When I first realised I had Peyronie's I immediately stopped supplementing Vitamin D. I had been taking a strong Vitamin D tablet long term. It was not prescription strength, but still pretty strong. I had been taking it very long term too, like 2 years or more easy.
I'm so pissed at the doctor who directed me to do this now. But I guess the reality is, he was trying to cure my diagnosed vitam in D deficiency. I had spent an awful long time indoors due to poor mobility after an injury.
When I read your post here I got so upset, because I felt the pain of regret at possibly doing this to myself. But at the end of the day, we were just doing wqhat we thought was best for our bodies. We were trying to do the right thing in earnest. This is not "our fault" as you put it bro.
I can completely understand all your thoughts on these matters. I totally relate. I'm probably an old man to you at 38, but believe me, I've already missed out on many potential relationships and fun times with women due to other health problems, so I can realte to that feeling of loss.
For you, you never know, you might be able to sustain an erection enough to sustain an adequate sex life in the future. I think that is the way to think.
Yes my flaccid hurts too a lot. I've now got a second sore spot in the other corpus cavernosa at the base, so I am beyond gutted.
Whether the Vitamin D did it or not, I'm not sure we'll ever know. I did ask the surgeon/urologist this earlier this year and I can't remember what he said, I guess it was just "I don't know".
I hate that this fking vitamin D caused it! I mean I never took too much in total. When I developed the stone I had a serum vit d level of 54.3 ng/ml. Very adequate levels actually.... I developed a "sharp" scar tissue and it hurts. This can't be real
I don't believe Peyronie is caused by vitamin "D." In my conception it is caused by heat that alters something we have in the blood (example: enzyme of a bacterium).
There is not one shred of evidence to support this. It is one guy talking about something with no basis in fact. Administrator
Some time ago I started taking vitamin D3 + K2, and I'm getting a decrease in fibrosis, and I'm also using vitamin A, E and D ointment.
And I also take cocoa powder every morning (rich in copper). And that's why I don't know which one is doing this effect.
My copper test went down: 86.6 mcg/dL. Reference values: 85.0 to 170 mcg/dL
The vitamin D test I'm going to do as soon as i pass the pandemic.
It's getting worse and I honestly can't stop thinking that I caused this myself by supplementing vitamin D. what a sick joke... I learned that I was deficient in Vitamin D and wanted to do something good for my body and now I am left with a painful, curved dick... I'm only 22 yrs old. How will I live a fulfilling sexual life?
The one study referenced only indicates in the sole studied the patients w Peyronie's had on average higher Vit D levels. This is association not causation. It could simply be those w Peyronie's were under the care of a doc who did blood tests and recommended Vit D supplementation for a deficiency when the non Peyronie's patients were not. Greg, having sex without a firm erection was probably the culprit. As you said your dick was being crushed and this can cause micro traumas trying to heal but w plaque instead of healthy tissue. How bad is your curve and what treatments are you undertaking, above all only use your dick when it is at least 90% erect.
Quote from: Graggaxy on September 08, 2019, 10:59:21 AM
I think the excess vitamin D lead to more fibrosis in my penis during the repair process.
https://onlinelibrary.wiley.com/doi/abs/10.1111/and.13368
This recent study supports my theory that excess vitamin D leads to excess fibrosis in the penis. Really shocking finding to me. I really regret my decisions in life at this point but what can I do...
What levels of Vit D are considered too high? that abstract says 25 OHd, but what is the conversion into International Units (IU)? For example, I take 6,000 IU daily. Is that considered too high by the articles standpoint?
interesting , it may be extremely high dose vit D such as 18000 shouldn't be done without considering any other vits that may need to be in balance e.g. vit A?
and is the supplement fully natural., vit A and E studies have been prone to the effect of supplementing synthetic forms that bear little relation to the natural vitamin .
since Vit D is commonly taken at 5000 IU, it doesnt sound like that dosage is considered high compared to 18000. As far as Vit D goes it is D3 gels as cholecalciferol.. Not sure if that is considered synthetic or natural, but I take natural Vit E as Alpha-tocopheral. Not dl-tocopherol acetate which is synthetic
I didn't take 18,000 daily. More like every third day or so. I also took vitamin K complex together with it and my vitamin D levels were 54.3 ng/ml when I developed the kidney stone. My kidney looks fine today in ultrasound pictures. I can't say for sure if vitamin D caused it
I'm stressing out so much over this. Quite suicide inducing thought that I messed it up myself. My levels were 54 ng/ml when I developed the kidney stone. My Peyronies only developed ~3-4 months after I developed the stone. Can this be??
In the psychology section in here, you may find relief from stress. Remember, we are more than just a penis. Life can still happen and will. We can still have and hold relationships. Our worth is more than a bodily appendage.
My gf of 2 years just left me for someone else. I took her for granted during our relationship and sometimes treated her bad. I feel like crap now. I feel like I could have had her forever if I treated her right. Additionally I'm losing hair and I don't think I can take finasteride. Life is a sick joke for me right now. I'll turn 23 in two weeks
Hi Graggaxy,
was it any particular form of D, out of interest ? eg D3
In addition, treatment with vitamin D3 decreased α‑SMA expression, collagen deposition and goblet cell hyperplasia, and inhibited TGF‑β :D/Smad signaling in the asthmatic airway. The upregulated levels of malondialdehyde, and the reduced activities of superoxide dismutase and glutathione in OVA‑challenged mice were also markedly restored following vitamin D3 treatment. Furthermore, treatment with vitamin D3 enhanced activation of the Nrf2/HO‑1 pathway in the airways of asthmatic mice. In conclusion, these findings suggest that vitamin D3 may protect airways from asthmatic damage via the suppression of TGF‑β/Smad signaling and activation of the Nrf2/HO‑1 pathway.. https://www.spandidos-publications.com/mmr/14/3/2389
effects of vit D deficiency are also pretty terrifying, https://www.nature.com/articles/srep30217
you very young btw, I was nearly 30 before had a gf.
Is this good or bad?? I took vitamin D3.
all of that should be good , and the opposite of the scary study. the equivalent dose might have been different though.
Vit D is not harmful, just don't over dose.
Can one say I overdosed when my vit D Levels were 54 ng/ml three months before I developed my Peyronies? I calculated it and I must have averaged at about 8,000 IU daily. Vit D toxicity begins at 150 ng/ml no?
Quote from: Graggaxy on July 04, 2020, 06:29:39 AM
Can one say I overdosed when my vit D Levels were 54 ng/ml three months before I developed my Peyronies? I calculated it and I must have averaged at about 8,000 IU daily. Vit D toxicity begins at 150 ng/ml no?
Doubtful at 8k IU. It would be hard to OD on Vit D. there are people who take more than 8k IU daily. But every individuals body is different. But highly doubt the Vit D caused it.
Try not to hyper focus whether you OD or not. no one knows the cause of Peyronies Disease. People get it without taking Vit D. I would focus on other things like mineral dificiency or any other blood test. Check with a Naturopath in this area of expertise.
Quote from: Holistic on July 04, 2020, 10:47:32 AM
Doubtful at 8k IU. It would be hard to OD on Vit D. there are people who take more than 8k IU daily. But every individuals body is different. But highly doubt the Vit D caused it.
Try not to hyper focus whether you OD or not. no one knows the cause of Peyronies Disease. People get it without taking Vit D. I would focus on other things like mineral dificiency or any other blood test. Check with a Naturopath in this area of expertise.
I don't know the exact dose but my vit D and calcium levels were in range when I developed the stone. I stopped vitamin D after this incident. And 3-4 months later when I got a new gf and we had sex for the first times I was penetrating semi erect and crushed my penis lightly sometimes. Do you think there isn't any connection to vitamin D because I stopped taking vitamin D when I developed the stone and when my levels were in range? I think they couldn't have worsened because I stopped taking it
Highly doubtful vit D was the cause.
Also wouldn't there be some calcium deposits in my kidneys as well? I think the kidney is more likely to calcified? Wouldn't it be strange if I had calcium deposits in my dick but not in my kidneys?
So is it really not too realistic that my vitamin D overconsumption caused this? I mean I had levels of 13 ng/ml which is very low and in the course of 3 months I upped my levels to 54 ng/ml with supplementation. I developed a small kidney stone (3x3mm) but I didnt seem to have toxicity or hypercalcemia. My blood/urine levels were very good when I was hospitalized with a kidney stone. So 3-4 months after this incident I had sex for the first times with a new girl and I penetrated a few times without a good erection. Actually it was SOFT when I was in here and slipped out sometimes. Yeah I had ED but I think it was due to nervousness.. Anyway, I noticed a small lump a few weeks after having sex with her for the first times.
So all in all, could there be a correlation? If vit D really caused this misery, I would feel utterly devastated. I only wanted to do something for my body by supplementing vit D...
Sorry for asking all this again, I have OCD issues and I can't seem to find peace with this. I just want to live a normal life, with dating women and being carefree.. I'm only 23. What do you guys honestly think?
I think you will never be 100% certain, I doubt very much you can pin it to D3. Guess you are still taking it, if so take K2 with it.
I would change the Vitamin E to dry E Succinate, I just feel better on it, ensure it is pure without additives, powder therefore is better, as with most unadulterated supplements.
By the way most Vit D is produced in the gut.
So put the doubt behind you and move on :)
Paul.
I'm gonna be honest it would break my heart if I did this to myself. Knowing that I had control over this woudl mess with my head big time.. I'm only taking K2 and getting my Vit D3 from the sun. Anyway Ive searched the entire internet for any correlation between vitamin D and peyronies and this thread plus the one study I linked in this thread are the only two things I found.. Many people take vitamin D and many people have levels at around 54 ng/ml or higher.. Wouldnt there be much more talk about it if there truly was any causation?
Hi Gragg
if you did that to yourself, that would, of course, be your best case scenario. I wonder if subconsciously, that is what you were hoping you would be told? You could then simply avoid doing it again! Unfortunately, for you, it's very unlikely considering half lives for vitamin D. Therefore your cause is unknown and/or out of your control, possibly genetic. if it's genetic, it's just bad luck, but, at least, then, to be positive, you would know you need to take extra care.
Quote from: projectpd on July 23, 2020, 05:14:43 PM
Hi Gragg
if you did that to yourself, that would, of course, be your best case scenario. I wonder if subconsciously, that is what you were hoping you would be told? You could then simply avoid doing it again! Unfortunately, for you, it's very unlikely considering half lives for vitamin D. Therefore your cause is unknown and/or out of your control, possibly genetic. if it's genetic, it's just bad luck, but, at least, then, to be positive, you would know you need to take extra care.
Well, for me it would be worse if it was caused by vitamin D because I had 100% control over it. I have no control over my genes so naturally it wouldn't be as worse as something I had control over...
Have you considered the possibility you may be obsessing over it too much to the point it is affecting your mental fortitude? Unless you have a medical condition, I doubt youd need to take such high Vt D in general terms anyway. Peyronies is also an umbrella term for the fibrotic disorganization of tissue during healing. If you go into the theories section youll find a bunch of stuff. people get peyronies for a multitude of reasons. If it is in your control than it is better than out of your control. because if it is in your control you can take the steps to reverse or manage. regardless if your percieved control caused the issue, that is no longer beneficial to ruminate over. the damage is done. Excessive worry wont make it disappear. But you can control your energy and efforts to continue forward, research, and treat. A lot of organic conditions are more in our control than we think. We just dont all know how to manage. But the best place to start is fixing your diet and lifestyle.
Quote from: Holistic on July 26, 2020, 03:02:53 PM
Have you considered the possibility you may be obsessing over it too much to the point it is affecting your mental fortitude? Unless you have a medical condition, I doubt youd need to take such high Vt D in general terms anyway. Peyronies is also an umbrella term for the fibrotic disorganization of tissue during healing. If you go into the theories section youll find a bunch of stuff. people get peyronies for a multitude of reasons. If it is in your control than it is better than out of your control. because if it is in your control you can take the steps to reverse or manage. regardless if your percieved control caused the issue, that is no longer beneficial to ruminate over. the damage is done. Excessive worry wont make it disappear. But you can control your energy and efforts to continue forward, research, and treat. A lot of organic conditions are more in our control than we think. We just dont all know how to manage. But the best place to start is fixing your diet and lifestyle.
Well, my medical condition was vitamin D deficiency and upon researching it I discovered that it possibly leads to a bunch of problems so I tried to fix it. I really can't say for sure why I took such high doses. I think I must have read somewhere that megadosing is the way to go to correct a deficiency and that doses like 4,000 IU are more appropriate for maintaining instead of deficiency correction.
I know the damage is done but for my peace of my mind I would just LOVE to know if this was caused by vitamin D or not. If I had control over it or not. Of course deep down I hope and I pray to god that this wasn't caused by vitamin D and that's just what I want to hear but I know I won't ever know for sure, so I'm obsessing over it until I find an adequate answer, if there is any.
I asked an urologist about calcification from vitamin D overdose and he said ,,yeah it can happen in the kidneys, but not in the penis"
I am so done with this BS. I am only 23 years old. My Wonderful girlfriend left me because I was treating Her badly. I never realized I was treating her badly. I was so consumed by my depression and my health worries that I totally neglected her.
On top of that, I am balding. Ok so this is m downfall. This is seriously my downfall. I don't know how I could ever recover from this. I know for sure I won't ever find a cute, beautiful, caring and loving girl like her again. I messed it up by myself and my entire life is a mess. I feel so low, my brain is hurting from all these depressive thoughts. WHY IS THIS LIFE SO UNFAIR ? Did god give me peyronies because I was treating her badly? This isn't fair... I hate everything about my situation. I don't know what to do. I just want to get out of this hell. I want a normal life. I want to live life like all my other friends, who don't suffer from peyronies, who don't have to worry about this and can go out and date women etc.
What did I do to deserve this? I am suffering so much, life was never fair to me
Grag, all these posts about Vit D and I don't see that you've ever even described any Peyronie's symptoms. What makes you think you have it, other then having an injury? Why not focus on your actual situation and what can be done about it? This rumination on Vit D seems to be taking you down the depression hole. Please share your condition and put it in your signature line. Have you read the survival guide? This way we can help you focus on improving your condition.
Quote from: TonySa on August 01, 2020, 02:12:23 PM
Grag, all these posts about Vit D and I don't see that you've ever even described any Peyronie's symptoms. What makes you think you have it, other then having an injury? Why not focus on your actual situation and what can be done about it? This rumination on Vit D seems to be taking you down the depression hole. Please share your condition and put it in your signature line. Have you read the survival guide? This way we can help you focus on improving your condition.
I can feel a sharp vertical scar on the left side of my penis, which pulls my penis to the left. In erect state it bends slightly left, the left side of my penis is completely straight but the right side is rounded during erection, which suggests that the left side is shortened/or less stretchable due to the scar. I experience pain during and after an erection. My penis constantly feels hardened and when I pull it to the right during semi-erect, I can feel the scar giving me pain. It's textbook peyronies and it isn't fair. Not in a depressed 23 year old. Should I start injecting testosterone or something?
As you describe, it's early Peyronies or a very mild case. If you're concerned it is peyronie's just start basic treatment such as low dose nightly generic cialis (2.5-5mg) and hand traction or VED. If you can't do that and are still catastrophising - it's def your emotional state that needs to be addressed. IMO
Hi Gragg, you had no known injury or genetic factor and as you say only 23, and depressed. vit D seems unlikely. There is a link between low testosterone and depression, and it's been suspected with Peyronies (even if just on generalistic arguments). is there something made you suggest that? by the way someone I know well who should know (used a lot of it), said testosterone makes your dick grow, which i guess makes sense.
have you seen Monty's history /photos ?
I don't know I'm just suspecting low T because I'm such a depressed whiny bit** lol, I had levels of 760 ng/ml when I was 17 years old. They must have dropped by then..
Ok there are two things that could caused my peyronies:
- I took accutane at age 16 and 19
- I megadosed vitamin D and developed a small kidney stone but there was no toxicity when I developed the stone, so I tend to think it was partly genetic (my cousin had a kidney stone as well at my age)
What do you think, what out of these two caused my peyronies?
I just want to be normal again.. I don't feel like a man anymore. This is hell on earth.
this one could be a must read for you :
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3120050/
"Recent genetic studies, however, have shown that vascular calcification can be prevented by reducing serum phosphate levels, even in the presence of extremely high serum 1,25-dihydroxyvitamin D and calcium levels. "
bear in mind, vit D deficiency is also a risk considering studies on its relation with tgf beta.. https://www.fertstert.org/article/S0015-0282(15)00826-2/fulltext (just a random indication, not meant to be the most relevant one)
i guess in general, in the body, nothing should be extremely supplemented in isolation, as everything works together.
as you took accutane, if that was for inflamed acne?, if so possibly you may have been prone to some general inflammation? and it might have contributed in some way?
wildly guessing as well, I wonder if did you abruptly withdraw from extreme vit D supplementation ?
Yes I withdrew vitamin D abruptly..why?
I took accutane for teenage acne.. haven't had any acne since
Guys please why do I have to deal with this disease?
Could vitamin D really be the cause? Millions of people on this planet supplement with vitamin D and millions have artificially high vitamin D levels. If vitamin D could really cause peyronies, wouldn't there be much more reports? I mean I couldn't find anything about a connection between vit d and Peyronie's on google. Only the one Turkish study... my thread on this forum is the only thread on the Internet about vit d and peyronies connection. This is crazy
I understand the need to attribute a cause. I think everyone who is a victim of poor health, whatever the disease, wants to have a clear answer to the question "Why me? What did I do to deserve this?" That is perfectly natural.
Still, I think you are hyperfocusing on the wrong thing. More than likely Vitamin D did not do this. As you said, there is very little within the medical community that suggests it did. Still, all sorts of people respond to things differently, so maybe it did.
But what would that change for you if you could prove excess vitamin D did this? It might give a certain sense of causality and a clear event that you could blame but it wouldn't change anything. The result is the same. You have some form of fibrosis.
You should try and focus on giving your penis everything it needs to try to heal: following recommended treatments, consulting with medical experts who are familiar with this disease, and giving your body time.
Dude I am only 23.... this can't be real. Like I said, my girlfriend of 2 yrs recently left me and now I'm struggling heavily! My hair is thinning, my penis is losing length... I start to feel like all of this is a nightmare and someday I will wake up. I AM ONLY 23. I took vitamin D because I wanted to improve my health. This isn't fair. None of this is fair
I understand the sentiment. There are people on this forum that are even younger than you and regardless of age, we are all suffering from the mental turmoil of this disease.
Still, health does not work based upon what is fair or not. People don't get diseases because they deserve it. You need to stop thinking about what is fair and think about ways to get better.
You said your girlfriend left you not because of your penis and not because of your thinning hair but because you were treating her badly. You were treating her badly and you did not even realize, which suggests that your hyperfixation and depression is what actually drove her away.
Your problem is not vitamin D. Even if it was, you are just looking for a cause and not a solution. You really aught to look into seeing a good therapist and maybe medication like Wellbutrin as an antidepressant.
Still, I see that others have already suggested this. I don't think you are looking for advice as much as you are venting here. That is fine. Everyone needs a place to vent. But I don't think there is anything I can do to help with your situation if that is the case.
Look into getting help with your mental health.
yes she left me because of my depression. She left me because I couldn't focus on my love to her. Because I thought obsessively worrying about my health will lead anywhere good, instead of giving her more attention. She left me because she found a guy who didn't have mental problems. An active, outgoing, funny guy. It's such a downward spiral. This only makes me more depressed. I'm really done taking any meds. The only meds/drugs I ever took were accutane and vitamin D and I only got problems from both
There are no ways to get better. I feel the hardening in my penis. I did everything. Daily cialis, vitamin E, L-arginine, QoC 10, vitamin K2, magnesium, Acetyl L carnitine, topical DMSO+acv+castor oil etc.
This disease is permanent. It can only be cured by surgery which leaves you with a small dick. I am 23, I should be having the time of my life. This life isn't for me
Thinning hair? Hair transplants and some procedures might work. Or you can shave your head and muscle up and look manly that way. A lot of guys lose their hair and early 20's is a common age for it to start. It sucks to see the process of aging but there are ways to make it look good.
Peyronie's is getting worse? Keep trying new things. Look at the case of NeoV. His onset was young and, after struggling throughout his 20's, he describes himself as essentially cured but it took years and lots of effort. So there is always hope. Yes, there are surgeries. Some implants won't even cost you that much in terms of size.
Also, it is a poor lover that relies only on his penis. Getting good at using your hands and giving oral goes a long way with a lot of women. The clitoris is on the upper part of of the vulva and the g-spot is on the top of the vaginal canal and is usually only a couple of inches in. Stimulate those parts and put the woman in the right mental state and the size of your penis doesn't matter as much.
Ultimately, women date the person. Yes, an above average penis does help but the most important factors are what you say, what you can contribute to their life, what kind of vibes and emotions you give them. There are some really average guys who are very successful with women because they pay attention to the woman and respond with confidence and social intelligence.
I don't mean to downplay your emotions. I think everyone who has Peyronie's can relate to its psychological destructive effects. We are all in or have been in very dark places because of this disease. I am sorry to hear of your situation. I just mean to highlight ways to can try and find a better frame of mind. The only real path forward for any of us on this forum is to try to find the best most positive approach and see what the future holds. I understand depression, I truly do. But you need to try and find a way to get out of your negative and obsessive spiral. More than anything else, your depression is what is really destroying you.
Anyway, this is probably the last I will respond to this thread because I don't get the impression you are here to do anything other than vent. That is okay. Vent away. I hope it provides some solace. Good luck, man. I hope you find a way to address your mental health.
Thank you, man... i was losing my mind when I wrote that comment. It's such an up and down with my emotions and when I truly think about it, I am beyond fcked, but you're right it's not smart to stress over it.
Do you think I could start using finasteride for my hair loss?
We are all f'~c<+d, man. This is a forum full of people either gripped by fear and despair or are doing everything they can to fight against it. But we are not without hope. We have to have hope. Even if just to recognize that the stress of worrying can only make our body worse.
I would suggest caution with finasteride. Male pattern baldness is the product of testosterone and genetics. Because of this biological fact, anti-hair loss medications have effects on testosterone levels and that can lead to problems with your penis. It might not be a good idea for someone dealing with Peyronie's and could potentially make it worse.
Still, I appreciate that hair loss is worrying. Much like an injured penis, hair loss hits at your feeling of manliness and virility. Think about what kind of risks you are willing to take and whether you are more worried about penile health or hair loss. There are other options for hair loss but many others are more expensive or not as effective.
Quote from: Graggaxy on August 17, 2020, 07:34:31 AM
Thank you, man... i was losing my mind when I wrote that comment. It's such an up and down with my emotions and when I truly think about it, I am beyond fcked, but you're right it's not smart to stress over it.
Do you think I could start using finasteride for my hair loss?
For the hair: just shave it off. I had such a hard time for the 3-4 years when I was struggling with hair loss. Then I just shaved it all off, and after that it was done. Now I'm just a dude with a shaved head. It's just a look.
The lesson: It was all in my head.
For the dick: If you have slight curvature, your dick works. It's only really a problem if the curve is so sharp that it bends a lot.
I see people here losing their minds over a shortening of their penis to a length that is still longer than my original length. And I've never gotten any complaints. This all started happening in my late 30s, and before that, I'd learned all kinds of tricks to turn girls on more in bed.
#1 of course is being present.
So all your problems are, and I am quite sure of this, in your head.
These are very very good news. Because this means that it's all within your means to fix.
I have accepted the fact that if this will completely wreck my dick, I can always get one of those pumps, and I'm good again. The worst case scenario then is that I'll have to make robocop jokes in bed. I've gotten over tons of stuff in my life. The key is to own it. Just accept crap on a deep level and then start making fun of it.
So you just need someone to talk to.
And just forget the vitamin D thing. Get one of those sun lamps or something.
Even if that was the cause, you didn't cause it. It was an accident. And it's unlikely to be the cause, at best. I'd taken D many times during my life. It did now mess up my penis at once. Vitamin D doesn't cause this en masse, if it did, they wouldn't sell it.
Forgive yourself. You don't have much to forgive, but you still need to do it. You're young, and you've been alone with your fears, and you need to learn to get to grips with them. You can. You will. Seeking professional help will certainly help make that go faster.
This thing, this disease, causes immense loneliness. It's such a meaningful thing. And that constant dull pain can drive me mad. It took me a long time to open up about it, but now I talk to people.
This is something you can live with. That's the general consensus here, from what I've heard. The fear is the worst. That's why we need other people.
How did vit D mess up your penis?
Yeah the vitamin D levels they were talking about in the study were actually average levels for people supplementing vitamin D I think. It would suck so much if vitamin D caused it though..
just got my testosterone test back. It's at 560 ng/dL, so quite average/low for a 23 yr old guy. I don't know.. maybe low T caused my peyronies
Are you starting treatment or just focusing on the cause which you will NEVER know?
Quote from: TonySa on August 17, 2020, 06:30:52 PM
Are you starting treatment or just focusing on the cause which you will NEVER know?
There is no treatment. I will have to get surgery at some point which will leave me with a small dick. Life isn't fair to me, man. I had acne in my youth which I got bullied for, had to take accutane. Eventually got a gf but I started treating her badly at some point because I was depressed. Nonetheless I had the best time of my life with her in hindsight, which I didn't even realize. Then she leaves me, I get peyronies and thinning hair. Now I am getting uglier day by day and have to hope for an understanding woman for my Peyronie's disease.
None of this is fair. I would at least like to know the damn cause of this bullsht.
There are several treatment strategies. Please describe your circumstances in your signature line so folks can advise appropriately. Have you read the survival guide, it has all sorts of treatment options?
Dude, relax.
Why are you so obsessed with vitamin d? I mean, if it really caused your Peyronie, then avoid it. Or use it in small doses (like 1000ui daily) plus vitamin k2 + magnesium. This combo will drag the calcium your body need to your bones and not your organs.
Let me tell something: my symptoms started when I was taking a high quality Cordyceps supplement. In my head, I think it triggered some immune response somehow. It's well known that cordyceps and other fungis can enhance your immune system, but I think it messed with mine somehow. However, I cant prove that. I made an association cause the inflammatory process (painful erections) started when I started to supplement it. But... what now? It makes no sense to obssess over it. What was done is done.
Search for my post history. I was mad like one week ago. I got better, and luckily my pain fade away. But still, I have a 45º to 50º bent penis and can't have sex. What do now? Try to focus on improving. Or getting money to pay the doc. This is what I and you can do. Whinning led me nowhere and will leave you nowhere. It's shi.t, man. But look at this as some game level you need to pass through.
If you are in a bad place mentally, I can recommend you good supplements that can bring your mood up. Agmatine and Polygala Tenuifolia are good ones.
I'm stressing because it seems so obvious that vitamin D caused my problems down there. I feel so dumb for taking such doses. I'm never touching that stuff again
What makes it obvious? Your serum levels of vitamin D were not high. Other people got Peyronies Disease with very low vitamin D serum levels. You have NOTHING to base it on. You have attributed your Peyronies Disease on about 4 things in the last ten days. It is obsessive guessing based on nothing.- Administrator
I will NEVER believe normal vitamin D levels can contribute to Peyronies Disease. Show a study that establishes a direct connection. It does not exist.
I was very low on the edge of actual deficiency in vitamin D when I got Peyronies Disease.
Low vitamin D is established to be a factor in Prostate Cancer ( which I had). Prostate cancer is a huge factor in bot ED and Peyronies Disease.
Low vitamin D is associated with many cancers and one of the most critical vitamins. The population in general is very low in vitamin D levels due to sunscreens and sun avoidance.
Quote from: Graggaxy on August 19, 2020, 08:09:31 AM
Maybe not because of the vitamin D but because of the Hypercalcemia?
Calcification isn't the first thing that happens in Peyronie's disease.
At first your tunica albuginea gets inflammated and a plaque is formed. Later, if the disease progress, you get some calcification.
I got a small calcification more than half year after my initial diagnosis.
So all of this sh*t most likely started because of having sex with a semi erect?
Yes, as you said in your first post "crushing" your dick during sex. Ok, so now you have a likely reason. What are your symptoms and what treatments will you try? Please put these in your signature line and let's get started.
I feel a lump on the left side of my penis, it bends a little bit to the left but not much at all. My penis gets hot after masturbation. It hurts hours after masturbation. It hurts to get an erection. I have lost size (around 2 cm)
Ok, now you are getting on track! Are you going to see a doc and possibly get a diagnostic ultrasound to confirm Peyronies Disease? They can also prescribe pentox and low dose nightly generic cialis (2.5-5 mg). You can add traction or VED. All will help remodel any plaque (causing loss of length) to healthy tissue. Be sure to read the survival guide to get started. It explains how to take accurate measurements to track changes. Often guys think they see changes which aren't even there-or a lot less than it seems. Do you know how to add a signature line?
I have been taking cialis daily + L-citrullin.. yes i was diagnosed via ultrasound. Doctor told me to come back in 6 months and that it's too early to start POTABA or something like that. Life is a sick joke to me right now. Not a single guy in his 20s, 30s,.. deserves this disease. Not a single guy
I feel like my body is slowly falling apart. Just yesterday I was also diagnosed with varicocele and I might have a hernia in my groin. My testosterone level is only at 560 ng/dL at age 23... I'm not trying to dramatize things but this whole crap really gets to me. I just want to live a normal life again
What about adding in VED or traction?
I tried VED but I feel like it made it worse. I don't know but my penis is very hard when flaccid. Moving it up in flaccid state hurts. I can chop that useless shlt right off
Quote from: Graggaxy on August 28, 2020, 08:48:29 PM
My testosterone level is only at 560 ng/dL at age 23
This is a good testosterone level. It could be better, but it's still good nonetheless.
Quote from: Graggaxy on August 29, 2020, 03:13:52 PM
I tried VED but I feel like it made it worse.
Don't do it till your max. It's very easy to get hurt if you over do it.
70%~80% of your max erection is ok.
Your hopelessness is your enemy now. You need to see it. It is caused by an anxiety you can't address. You can't fix the past.
I went through this phase. I'm very glad you are here. I was not. I was alone and terrified and oh so hopeless. I don't know how big your dick was, mine was medium, and after everything its still not tiny.
I was pretty good in bed. So I know that my dick isn't the center of my sexual universe. Currently I'm not sexually active, mostly because I decided to skip it for a while. Because I'm obsessive. Like you. And I needed to relieve this pressure.
Mine is quite bent now. My country doesn't have the injectioms, and I am taking my time figuring these things out.
I am certain you need some help working through this trauma. This is very traumatic. In the trauma, you see things in a magnified way.
No girl in the universe can sense a 2 cm difference. But we sense each others pain.
If you are not taking D vitamin, and you are still feeling the pain, its not the D. If you are still tqking D, stop. If you think you need D, go to a standing solarium, and get a daylight lamp, the big one you sit in front of for 30 minutes a day to recieve enough d. And its still summer in germany, just be outside for an hour a day.
The point is clear: vitamin D needs to stop being your focus. And you need to see peyronies realistically.
If you can't sort out these thoughts by yourself, you need help. I'd recommend a shrink, one who deals with trauma.
I PROMISE you this will help you deal with this. My DMs are open if you want to discuss this more.
Thank you for caring.. I think u switched things up a bit. I took vitamin D only for 2 months back then because of a deficiency and I ended up with a level of 54 ng/ml before stopping. I never touched vitamin D again after that. I developed peyronies symptoms around 2-3 months after this incident, so, long after I stopped taking vitamin D. I don't know til this day if vitamin D was the cause but I think vitamin D overdose is just Hypercalcemia and many cancer patients are hypercalcemic for several months so I think if Hypercalcemia lead to peyronies, there would be case reports but I couldn't find any.
I am going on vacation tonight. I have so much baggage i just want to get rid of. I just want to live a carefree life again without any of this BS. Thank you for your help
I don't understand this. The authors in my first post write that vitamin D can lead to Peyronies Disease due to higher TGF-Beta expression but studies like this https://doi.org/10.1016/j.fertnstert.2015.07.324 found that vitamin D decreases TGF-Beta....
Also this study says that vitamin D attenuates the profibrotic effects of TGF-Beta 1 https://doi.org/10.3390/nu9090980 . Very conflicting
Back to Vit D????
Life never really was fair to me, I shouldn't have to deal with this at all. At least make me not go bald. It's hard to see the silver lining for me
If you have Peyronies Disease, get started on treatment it's the only thing that will make you feel better.0
I am on soft treatment. Taking Lcitrulline and Qoc10 and sometimes vitamin E right now plus a few cycles of Tadalafil. I noticed my dorsal vein on my penis is much more prominent since starting 5PDE inhibitors.
I have an appointment with my doctor on Monday I will ask for Pentoxifyllin or Potaba. I read studies where hyperthermia therapy made the plaque in 35% of the patients disappear so this gives me hope. Honestly peyronies should be cured in the next 10 years I think. It doesn't seem impossible to be cured. Much more achievable than curing male pattern baldness
Quote from: Tortão Pra Direita on August 29, 2020, 03:56:57 PM
This is a good testosterone level. It could be better, but it's still good nonetheless.
Don't do it till your max. It's very easy to get hurt if you over do it.
70%~80% of your max erection is ok.
So 560 ng/dL shouldn't cause Peyronie's disease?
Quote from: Graggaxy on September 04, 2020, 01:21:07 PM
So 560 ng/dL shouldn't cause Peyronie's disease?
Low testosterone isn't the unique cause of Peyronie.
The lower the testosterone, the more chances you have to develop Peyronie. This doesn't mean a young guy with high levels won't develop the disease.
560 ng/dL is a good testosterone level. Could be better? Yes. You can increase this level using tamoxifen for a short period of time. But don't worry so much, you're not suffering from a deficiency of testosterone.
My testosterone declined from 680 when I was 19 to 560 now at 23... don't know what that means. I'm worrying that there is something with my androgens going on which also caused my peyronies
My girlfriend left me Because I was depressed from my symptoms. I lost the joy for life etc and she noticed that and left me. We were together for 2.5 yrs. she's already in a new relationship. Now I started balding and my peyronies will get worse in the future. How do I know I will ever find a better girl than her?
I highly doubt it was caused by vitamin D.
That said, you don't deserve to know. You only deserve to take actions, and if you someday learn the truth then that's great. You can get a woman to "love" you again. Balding is clearly fine and some girls (many) like bald dudes. I don't want to be rude here, and I'm sorry if this comes across as rude, but I've talked to so many men who demand to know the precise reason, yet this is largely a selfish fantasy. "Is it MY fault? Was it the vitamin D? The injury? The alcohol I drank or something I did?" Guilt is a fantasy, it's selfish. Take actions, and take actions remembering the girl you loved and "lost." Was it vitamin D? Who cares. You love her too much to even have time to care about that. You're stronger than simply wishing to be forgiven or blamed. Such a subconscious desire is equivalent to spiritual violence against her. I struggled with this for my entire twenties, or most of it. I spent many years reading about guilt, trauma, and a lot of this stuff so I am not just saying something without any basis here. It isn't easy, sometimes you need to cry and that's okay, if not healthy. But move forward man, you can do this. Your Peyronie's was not what made her leave, and you admitted this. This can serve you as the most powerful leverage you'll ever obtain if you allow it. I feel the pain too but if we try, we can feel through it, to the other side.
A woman is a mirror to her man. The idea that you can "find" a better girl is an illusion. You will bring the self to a woman, thereby allowing her to give back to you. Nobody is waiting for you, you have to create the response in her. The man goes first, your penis does not affect your ability to go first.
Beautifully said and shared NeoV!
FOR GRAGGAXY
My 2 year old girlfriend left me for someone else. July 3, 2020. (your quote)
My wonderful girlfriend left me because I was treating her badly. August 1, 2020. (your quote)
Your peyronie appeared after you felt betrayed by the girlfriend mentioned above. You did not endure betrayal, like all other carriers. The peyronie is nothing more than "the betrayal, the repudiation, the rejection caused by a WOMAN". Calm down this is just a trigger (in psychology). The real trauma is a little further away, that's why I already mentioned "congenital". You and others need to analyze the parents' relationship, you can even believe that your father betrayed your mother (for another woman, just like you, your girlfriend abandoned you for another) leaving you very distressed, and you, me, and everyone carriers have inherited this distress.
When you become aware of this, you remove the distress from the unconscious and the peyronie begins to dissolve slowly.
My suggestion, consult a psychologist.
What utter NON_SENSE. This shows that a tiny bit of knowledge can be a dangerous thing" - Administrator
Hey guys I consulted a psychiatrist. I will start behavioral therapy next week. It's very hard for me to live with all of this this. Reading the vitamin D study crushed my world. The possibility that I did this to myself... only because I wanted to correct a deficiency.
What makes me the most depressed is how other girls will see me. Why would they want to reproduce with my crap genes? Why would they want to settle for a guy with a short curved dick?
How can people who suffer from the same condition find happiness at all? I try to be grateful for what I have but still this entire crap remains something I as a 23 year old with a full life ahead of me shouldn't have to deal with
I think I know why you have so small dick, it's because you haven't got enough vitamin d. Who knows how small you get when you try to avoid vitamin d, let us know what happens.
https://www.researchgate.net/publication/322071346_Enhanced_Growth_of_the_Adult_Penis_With_Vitamin_D_3
They took vitamin K in that study so they were safe from calcification (Peyronie's)
So if you think that vitamin d caused your Peyronie's then why not megadose vitamin k2 then? Just 100 mcg of k2 is a tiny dose and k2 does not help if you take insane amounts of d. That's why Dr. Coimbra doesn't give k2 to his patients because he found out that k2 can't protect against huge amounts of d. You took just baby amounts of d and stopped before any beneficial effects could take place.
Yeah my levels were only 54 ng/ml when I had the kidney stone. They must have gotten up to 65 ng/ml Max during these two months of supplementation. So you think vit D didn't have any influence on my Peyronie's development?
I have experimented with vitamin d megadoses years ago. I took 50 000 IU every single day for couple of months, before that 30 000 IU couple of months and 10 000 IU for about a year. I didn't took any supplemental k2 for that whole time and I didn't get any calcification. My vitamin d level was so high that the lab where I tested my D level just said over 150 ng/ml. I haven't got any kidney stones in my life. I'm not expert on kidney stones but I don't think vitamin d has anything to do with them. Even the world leading calcium and vitamin d researcher Dr. Robert Heaney said that vitamin d does not cause kidney stones and vitamin d does not cause hyper absorption of calcium, it just enables your body to regulate calcium absorption.
damn.. yeah my cousin also developed a kidney stone at my age but he never took vitamin D. So I definitely have genetic predisposition. Did you take those megadoses with food, as vit D is fat absorbed?
Yes, I took vitamin d with food, but it actually won't matter much even if you took it on empty stomach.
https://pubmed.ncbi.nlm.nih.gov/23427007/
So your Peyronie's occurred long after your vitamin D intake and you're convinced the vit D didn't affect your Peyronie's development at all? Thank you for your replies so far
Yes, long after. I experimented with large vitamin d doses in 2014-2016 and first time I got Peyronie's problems was 2020.
Ok.. then I have no clue where I got Peyronie's from. Must be my low T levels. I had levels of 560 ng/dL a few weeks ago. Way too low for a 23 year old
Currently I weigh 84 kg on 175 cm which is fat as fck! But honestly I've been going to the gym on and off in the past 6 or so years. I'm fairly muscular but nothing impressive. How much can I expect my testosterone to increase from cutting weight?
T values have not been shown to have anything to do with Peyronie, directly anyway.
The cause is mitochondria and INSULIN. Lose weight immediately. There is a reason why I look like a skeleton in my old videos. Keto works for inflammation and scarring. Will it CURE you 100%? Cannot say, but it does help immensely. We have solid evidence of glucose sick mitochondria in the penis being related to this condition and Dupuytren's and all scarring.
Sure, weight loss may help w T levels-meanwhile seek out TRT from your doc.
Doc won't give me TRT because my T levels aren't low enough but the cut-off for young guys is 400 ng/dL and I'm dangerously close to it. If my levels are 560 ng/dL in the morning, I am low T for the rest of the day because T declines throughout the day.
Can I do low carb or does it have to be keto? I'd like to keep some muscles
I have to give my experience on keto/carnivore. I did keto two years and carnivore couple of months and in that time my cholesterol level went to 280 and I started to have pain in my heart and veins in my head started to bulge. The sickest and scariest thing was that every morning when I woke up my veins in my head were sunken, they looked like a canyon and after couple of ours they would fill up with blood and would bulge like crazy. I have no doubt in my mind that if I would have continued keto I would be dead right now, there is no question about it, none.
All keto/carnivore experts say that diet doesn't affect cholesterol levels, well how can you explain that my cholesterol went from 89 to 280 when I went keto. I smell some bulls*it.
That is completely uneducated on what keto and carnivore does to your body. Yes keto raises cholesterol, but trigs LOWER, and the type of LDL is the large and fluffy ones, not vLDL. What matters is your trig to HDL ration. Keto and carnivore are helping many people with heart issues, read about this. The adaption phase can feel a bit weird. You would not die by doing keto. Plenty of people have shown perfect coronary calcification scores long term on carnivore and keto. Cholesterol does not matter.
Hey NeoV, yes I know all those arguments. Like I said I was keto fanboy for couple of years, I was preaching all those thing just like you. That does not change the fact that I started to look like a freaking monster while on keto. I have the same hair style as you and all my big veins in head started to bulge like crazy, I could hear the pulsing inside my head and like I said every morning all those veins were sunken, drained out of blood and my head looked like there where deep canyons everywhere.
I never had any of those symptoms before keto and they all went away after stopping keto. What good does it do to speak all these theories how good keto is but in reality this is what happened to me and that's a fact that no one can change.
My veins popped out in the first two months I did keto, and you're saying this happened to you two years in? I've been keto three years now and blood work is very good and feel the best I have in my life.
I'm with NeoV on this. I've been keto for a year and I feel amazing. I had adverse side effects early on, mostly the poops until I got fat adapted but beyond that it's been very positive. Im convinced keto has at the very least slowed the progression of this disease in my case.
I encourage anyone to listen to The Natural State podcast (formerly "The Keto Answers" podcast). Dr. Anthony Gustin has incredible dialog with leading doctors on diet, insulin resistance, cholesterol, triglycerides, gut health, healing, etc. I'm in no way affiliated with this podcast, simply passing it along since the content has changed my perspective and life.
I shouldn't suffer from this crap at 23. I even had first symptoms when I turned 22. it's absolutely crazy. That's why I need to find out how this crap happened. I don't know of any wound healing disorders in my family. I don't know of anyone with dupuytren or Peyronie's
I just want to live a normal life. I am very suicidal because I feel like no woman would ever want to reproduce with my crap genetics. On top of that I am balding. Next week I'll probably get cancer or some crap. I look and feel so diseased. I cannot believe I have to endure this. I can't go on dates, I can't have ONS.
My quality of life has dropped to zero. I feel like an Apathic Zombie. You don't have to tell me 23 is very unusual. I already know it. I shouldn't have to suffer this. This isn't fair. I had an entire life ahead of me and now I feel like a penis amputee
Graggaxy,
I was diagnosed in my late 20s and believe me when I say, you will lead a normal life. When I was first diagnosed, I had very dark thoughts because I thought life was over. I started doing all the recommended treatments and have had drastic improvement to the point where my sex life is largely back to normal... for now. I say for now because this disease can come roaring back. I think being young goes to our benefit because we heal more effectively. Decide what you want, write it down and make a therapeutic plan to achieve your goal. Be disciplined and follow your plan. Results will come with time.
Also you mentioned ONS.. with the prevalence of STDs in 2020, you might want to get to know someone before you have sex with them... the last thing you want is a crooked dick with bumps. Just my two cents.
Thank you shafted. I only hope that it won't ever get in my way of getting women or finding someone... what really makes me upset is that I genuinely caused peyronies myself. I'm really messed up in the head and had extreme irrational fears and anxiety about my sexual performance the first times of trying to have sex, so that I had sex with a semi erect multiple times. I rarely had a 100% erection the first months when I started having sex with my gf two years ago. I think this is where all of the "microtrauma" I constantly read about happened. I can't cope with knowing that if I didn't have any of this anxiety or was just a bit more "normal" in my head, I wouldn't have gotten ED and thus Peyronie's
This topic is an embarrassment to the forum. There is no way 2 months of oral supplementation of vitamin D can even drive deficient vitamin D levels up into the normal range, much less cause kidney stones in two months. It is false, fake, junk-science. Furthermore, there are ZERO studies establishing a cause & Effect of vitamin D with Peyronies Disease.
In another post, Graggaxy blames thrusting with a half-erect penis for his Peyronies Disease. (a much more likely trigger)
Finally, Modorno's remarks about psychological effects from your feelings about your parents are utter NON-SENSE.