Looks like someone has started one up or restarted one - https://www.reddit.com/r/peyroniesdisease/
Pretty huge site traffic wise so if that sub got more popular it'd probably build a good bit of awareness for the condition.
r/peyroniesdisease has been banned from Reddit
This subreddit was banned due to being unmoderated.
(Not sure about pomphan's post - think he must have meant to post that on a totally different site)
Yea I tried to revive it but was unsuccessful :(
We do have another subreddit (https://www.reddit.com/r/peyronies/) which isn't as popular but I do get messages from people and direct them here as needed.
Discord group could be very dinamic although a bit of a mess too.
Discord is good, although being honest, I can't find any way to fight disease, people don't want to organize something in common for further investigation, my life is waiting for some miracle of science unfortunately
For a forum to be successful there has to be a combination of 1: Organization. 2: Moderators . 3 Documented info. 4 Members. 5: A Lot of Luck.
I wish there were more members and activity in the subreddit. It's pretty dead every day.
Even this forum with almost 20k members doesn't have as much activity as I would like, probably just feels that way cause I'm new and depressed/frustrated. I suppose most people here have had it for a while and are just moving on with their lives
We have 50 posts a day. How would it help you if we had more?
turns out this is the message you get when you try to open the subreddit:
Quote
r/peyroniesdisease has been banned from Reddit
This subreddit was banned due to being unmoderated. "
It was a surprise to me...
Needless to say, We have no connection or control over Reddit and we do not promote their site. We promote our own because there is nothing comparable.
This site is great Hawk, thanks for all you the work you do. I'm just spoiled by instant gratification of this generation and thought I'd get more responses to some of my threads, that's all.
I moderate a relatively low active peyronies subreddit here - https://www.reddit.com/r/peyronies/
Subreddits like these are a good landing page for people to be redirected to a site like this, which is why I try to keep that active and answer questions there.