Quote from: aqueem on November 19, 2023, 08:20:10 PMI have one for sale used but like new with instruction book. Leave a reply.
Ships from US.

Hi aqueem, is your restorex still for sale?

Thanks for sharing your story—it's really insightful!! I've also been dealing with Peyronie's, and I can relate to the frustration of trying various treatments with mixed results. I've noticed some changes in my own condition, and I'm curious if anyone else has had similar experiences with vitamins or medications affecting the pain or symptoms. Do you think the improvement with Centrum Silver was related to the combination of vitamins, or could it have been something else?

Thank you for sharing, are there any other discoveries since you've made this post?

I have noticed what you have written as true, once my depression was under control my condition improved substantially.

Wow that really sucks. You were basically promised PEG surgery, seems like that is what you had agreed upon however during the operation you were also plicated on without consent, am I understanding this correctly? I understand how that makes you feel so dissappointed and rightfully so. Well based on what you are saying it seems you are very straight now but suffer from narrowing..

I do not know how much of a difference traction would do when you are already straight and I doubt traction does very much for narrowing, I would only recommend sticking to the VED but you do whatever feels best for you.

You already mentioned it but extra tunical grafting is always there as an option, however... Just remember, the more surgeries you have downstairs it will only cause more issues and potential problems.

cont. So upon seeing this massive hourglass shape of my penis my natural and core response was..."What the F???" I had shown up with half an hour glass, and now had a full one. In addition to that, my penis was about an inch shorter. Was I straight? Yes. Was I able to get hard? Yes. But my shape was unacceptable and naturally I completely freaked out. My freak out was not abated at all by Levine's office either because nobody really explained to me what in the heck procedure was done to me, and nobody had any of the operative notes. Additionally to make matters worse, I had an allergic reaction to the antiinfection ointment they wanted me to put on incision site and I had full blown dermatitis on my penis and genitals for a week which was miserable.

Again, that all could've been pre-empted but it wasn't. It had to get so bad that they were like, "huh maybe you should stop taking the bacitracin" and in my mind I was like "watch they're gonna say take benadryl" and sure enough they were like, "you should probably take benadryl" lol!

About 6 weeks in, I finally got so overwhelmingly horny that I just had to masterbate. I honestly couldn't take it anymore. This was two weeks ago and the orgasm was an 11/10 and absolutely I'm super straight and hard but my shape is non-uniform and hourglassed which I was 100% not prepared to see or experience. I was prepared to lose some length but I had no idea girth loss and new deformity of this nature was a possibility to this extreme.

In week 6 as well, which was approximately two weeks ago, I started doing about 2-4 hours per day of traction in addtion to bringing myself to erection for 5 minutes a time about 3-4 times daily. I have to get used to the new hardware of course.

So today, I finally saw Levine and he stated they had to remove a 5 centimeter piece of plaque that was causing my hinge and deformity. He ultimately had to plicate the healthy side of my dick for additional "caliber" (whatever that means) but to basically make sure I'm ultra straight. To address my hourglass deformity, Levine thinks I should start using a Vaccuum Erection Device 3 times a day. This should help fill out my shaft and help bring me to uniform circumfrence in addition to doing the traction daily.

I'm going to stick with this plan and....we'll see. I have no true answers right now and I'd be lying if that wasn't frustrating to deal with, still being in the dark on all this and how it's ultimately gonna go. I have a follow up in 6 months to see where I'm at and at that point I'll appropriately update this thread. I'll do the same thing again a year from now, and then a year and a half from now. Quite honestly, I don't care about my length loss. I should get some of it back with traction, no big deal.

My main and only gripe is just the narrowing and hourglass shaping of my penis post surgery. If the girth that I have in the top portion of my penis is somehow able to become uniform throughout, I could possibly have an even better penis than I had pre-peyronie's. However it's gonna be a long haul.

My greatest fear at this point is that my shape will never fill out and that in a year to a year and a half, I'm going to need an extra tunical graft to shape out my penis finally and I'll once and for all be done dealing with this miserable nightmare. I am indeed still deep in the process and am nowhere near out of the woods even 2 months post surgery. I'm prepared to do traction and VED daily for the next year to year and a half. The last thing I want is ANOTHER surgery (the surgery and subsequent weeks after are absolutely brutal) but I am willing to do one more pass under the knife if it will mean I have final uniformity and stability in my penis.

My question to anyone reading this: Have you had a second surgery to fix any new deformity from your first surgery? Does anyone have any experience in receiving an ETG after having a PEG procedure with plication? I am going to keep my options open. I finally got my operative notes back and will shop them to other surgeons over the next year as I'm not sure I will or would want Levine to do the ETG if I need a second surgery. I'm keeping my fingers crossed I won't need a second surgery and hopefully consistent traction and VED will fill me out over the next year. We shall see!

I just got out of my 8 week post operative follow up with Dr. Levine. So far the results are kind of inconclusive. Some good, some bad, ultimately I'm going to have to put in a lot of the work on my own during rehab to get the best outcome and that is going to take another 6 months to a year and a half before I really know how satisfactory my surgery ended up being.

First of all, my condolences and respect to everyone going through this absolutely brutal disease. It's a complete physical and psychological nightmare of which there is really no comparison or preparation for something like this. Stay strong brothers, we'll get through it. 

My Peyronie's Onset:
In September of 2020 an overeager female partner basically grabbed my unhard johnson and shoved it inside her, bending it awkwardly and BOOM that was the Peyronie's kiss of death. I woke up the next morning with the tiniest of lump's in the left side of my shaft (about the size of a pebble) and without morning wood. I knew something was wrong. It was covid though, hard to see a doctor unless it wasn't an emergency. I went to an urgent care and they told me I was fine since there wasn't any noticeable deformity. In retrospect I should've seen a urologist right away but I had no idea what I was doing or what was wrong so a person in a white suit telling me I was ok was good enough for me at the time. I went a full year from that point without any symptoms at all. I had another relationship that lasted about a year, again no symptoms. Once that relationship ended, I took a break from masterbation for about a month and then finally went to masterbate and as I was lying supine, I brought myself to erection and wouldn't you know it but my shaft was now totally bent, falling over to the upper left, like it was completely bisected. I had a hinge defect for sure and slow wasting on the lower left side of my penis.

Treatment:
From this point on and by now it was Spring 2022 and I was desperate to do whatever to fix this. I saw a urologist finally and they all kinda shrugged. They said the plaque was too far down the shaft to do xialaflex (not that I wanted it) and that I should just do traction and take viagra. My issue was not erectile dysfunction however it was structural, so this was a frustrating remedy to an issue that I did not have while at the same time, not addressing the primary issue (hinge, half hour glass wasting on left side, bend).

Despite this they were all just like, "yeah take viagra and do traction and we'll see, Idk". I additionally got a Phoenix gainswave and I got a PRP injection. That in addition to the traction and viagra I was taking, along with using Gua Sha daily, I did this all excessively and religiously for two years but my hinge defect ended up getting slowly worse over time. The curve ended up not being that bad (about 33 degrees) but the hinge and wasting were worsening and this was destabilizing to the entire shaft. I could feel the plaque getting larger and when I moved back to Chicago recently, I looked up Dr. Levine who routinely comes up as the preeminent authority on plaque excision and grafting (which is what I already knew I needed). I had an appointment with Dr. Levine in September of 2024, he said I was a good candidate for the PEG procedure and I was booked on 11/18/24 to get it done.

Surgery and Post Op:
I went in for surgery, got put on the table took two deep breaths of whatever anasthesia they put over my mouth and the next thing I knew I was waking up and getting ready to leave. It was instantaneous. I had a huge dressing on my shaft on what looked to be a full boar erection size and length just not erect. It looked good and girthy and length was the same if not a tad more (I was at 6 3/4"-7" full boar erect prior to injury and it seemed that length post op). Being that I'm single and unmarried, the people that took me to the surgery were my parents and when I asked them what they said about how my surgery went and what they did, my parents could only say "they said it went great" not a ton of detail there. Basically they did the surgery then Levine and his associates dipped out. There was nobody there post-op to tell me what they did or how it went, which was disappointing. I definitely was very eager to know what happened and was not able to learn that.

I eventually removed my dressing after 3 days and I was surprised to see that the right side of my penis, now had a notch in it. Additionally, the area where the plaque was had no graft over it. The graft was above. This was disappointing as well because I was hoping to replace that plaque with graft tissue and now all that was there was skin and tunica. It still had the feeling of bisection but I was ultra disappointed that for some reason now, the righthand side of my penis which was seemingly perfectly healthy, had had some work done on it and this I was not prepared for. Later on that week I moved over slightly and felt such a rush of pain from the right side of my penis that I dared not move abruptly. It definitely seemed like I had been plicated on the right side of my penis and that there were stitches there. All of the above were extremely confusing and disappointing to experience.

I had no issues getting erections basically immediately which was a great sign but my major issue upon seeing my erections was the MASSIVE HOURGLASS

Thank you for sharing this thoughtful and detailed guide—it's a valuable resource for those of us dealing with ED post-treatment. As someone personally navigating this challenge, I can relate deeply to the importance of proactive steps like these. I'll definitely look into your recommendations, especially the use of low-dose Cialis and a good vacuum device. Your insight about preserving blood flow and tissue health resonates strongly. Appreciate your work on this—keep it up! 

This is a long-winded question but it's been bothering me for over a year now on nearly a daily basis so please bare with me and if anyone could provide some well thought out and articulate answers it'd be greatly appreciated.

Is cialis capable of halting the progession of Peyronies Disease? If so how effective is it, and how early does it need to be started to do this? I've read a ton on this and not been able to find exactly what I'm looking for. I missed my initial doctor appointments (plural, back to back, and still have immense guilt over it) to ask for cialis and it took 20 days from then to get the cialis. So factoring in how long insurance may have taken that's around 20-15 days or so longer. I'd like to say 15 but that's to be generous, it's hard to say. I know it's very easily to quickly write that off as being no time at all and not having a massive effect however here's some stuff to take into consideration: the first few months are the most pivotal time in the forming of the scarring and deformity and this was in mid November that I missed my appointments after an injury at the end of September. It's also been said Peyronies Disease can rapidly progress in a matter of weeks, idk if this is rare or common or if that even matters...I often think what an incredibly long time 20 days is to pass for such a thing. When I hear how long things are now, I've for a long time compared them to that 20 days and thought of what a long amount of time to wait that is (such as it only being 14 days since New Years right now, and it feels so long to wait to treat my Peyronies Disease.) I never meant to miss the apts obviously but I f'~c<+d up, and such an easy thing as driving across my little town. I was late the first day from hitting snooze on my alarm (they'd made me wait over an hour two last apts, and I barely slept at all that night) and then slept thru my alarm or maybe didn't set one the second day, I'm unsure. So you can probably see where the self blame comes from.

I saw a study that said cialis can halt the progession up to the beginning of the scar "chemicals" or whatever the medical term is being released, it's late at night so I'm highly paraphrasing - but I couldn't find a timeline of when this typically happens though it seems very fast after injury. That was just to stop the initial onset and ability to heal it I believe though and not so much prevention moving forward, though I'd have to check again. Then I saw this post: https://www.reddit.com/r/PeyroniesSupport/comments/1hsttvi/its_been_over_a_year_am_i_in_the_clear/ which is something I've been looking for for over a year now - it seems to be someone who started cialis early and got out in front of the disease and prevented it. I left a comment on the post and you can read further about my thoughts if you like.

I am torn though, as some docs don't even recommend cialis unless you have ED and see it as pointless, however I think MANY docs, including all the ones I've seen just blindly follow what their rigid medical doctrines tell them and don't actually think for themselves thus will never find actual fixes as they never try other solutions. I saw a urologist who outright told me I can't get better from this, and that was F^@$!ng crushing. My condition is on the mild side I'd say but I do have deformity, size loss, and medium ED. So while some studies say cialis can prevent Peyronies Disease from forming if you get on it early enough and even possibly reverse it over time (though the study I read said it doesn't but nonetheless), many docs don't even recommend it, such as the ones I saw even as a preventative. I don't even F^@$!ng understand that. Idk if that's a fundamental misunderstanding on the urologists part or what. The ones I've seen didn't trust any studies though, which are the only things giving me hope.

I had talked to ChatGPT about this a lot but he shifts his answer constantly based on what I say and which side I lean toward, but "he" did mention that once you start cialis the deformity becomes more apparent for many people due to better bloodflow which may have been the case for me. My deformity also pretty much hasn't changed since the cialis in any noticable way which also makes me think the cialis halted progession which also makes me think I could've stopped it sooner, though it could've possibly also already run its course by that time, but it seems more likely to me that the cialis did stop it and could've possibly stopped it sooner too, but I also must admit that I do not know the truth for certain.

Ultimately I'm just wondering your alls opinion on this, if cialis could've prevented this or not for me. In that period of time when I missed my apts - about a day or two before the apt would've been I noticed a thinning at a level I'd never seen before like it was struggling for oxygen, this seemed to have maybe been hypoxia which would say that was very possibly a critical time for scarring. I was also experiencing a lot of pain at that time. I can't remember for certain but it seemed like it was greater than before during that time, though maybe I just felt it more due to regret also. I did read in my journal from the time that the pain stopped during that time for a bit eventually which sort of contributed to me not reaching out to my doc again, but it was mostly out of fear that if I asked online he'd say no and I'd hurt my chances since he's very by the books and I worried he'd be upset I'd missed two apts, in hindsight foolish anxiety, but I've beat myself up over that enough so nonetheless. It feels terrible that these two days of small mistakes could haunt me and greatly effect me the entire rest of my life.

**So here's my few other questions:**

2. I, about a year or so later than I found out about it and should have, have finally bought the penile heating pad from TotalManShop. I've been optimistic about heat therapy and it's findings but I was skeptical about the product and being ridiculously tight with my money and wasting it all on drowning my sorrows every weekend at the bar for months instead (like a moron). Anyway, I now have it and it is VERY hot on the side by the power button and wire and not nearly as much anywhere else. Like so hot that it's unbearable after a few seconds if it's wrapped very tightly and it makes it hard to find an appropriate way to wrap it on where it's on well to get enough heat but also not burn me. The thing is made pretty cheapy so I feel it's just a flaw of how it's made but has anyone else who bought it had problems like this with it and what have you done?

3. I've heard VEDs help restore girth. I was told by that same urologist about a specific medical brand called Augusta Medical Systems. He told me it was the best and that if I got any I should go with the best/most trusted/etc. The manual is $200 and the premium version is $300. I imagine they're partnered with the Hospital and get some kind of kickback or something. I don't trust crap about the medical system tbh. I don't wanna get scammed spending too much but I also don't wanna get some cheap junk one and not get all the benefits I could or injure myself. I see plenty of people here say they use cheap ones from sex stores...not sure I'd do that. But if anyone has a real sense of the difference or what works or doesn't pros and cons please let me know.

4. I haven't done traction outside of some hand traction (no I've never hurt myself) but I am considering getting the RestoreX hearing how much it's helped some people. It is really damn expensive tho. Anyone got it second hand and had it work out? I know the penimaster is cheaper but I want something for quick use. I hate to spend that kinda money cuz I'm not working and been struggling all this time to save to move to a nicer part of the world and start my life over, but I might have to shell out for the RestoreX. I wish I'd started all these treatments a long time ago tbh. All this crap has just been incredibly hard on me. I've essentially lost 15 months of my mid 20s to all this. I'm ready to finally move the F~@< on from this now, but blaming myself for "letting this all happen" over the missed apts for cialis has been incredibly hard so I'd like to have some kind of closure on what the real reality of that is.

5. I take cialis and pentox daily now but they absolutely burn up my inside so much now that I have to take Tums like they're candy throughout the day. I was at one point taking a massive concotion of antioxidants. I had bought around 30 or 40 at one point while being really hesitant about physical treatments and just hoping to "heal" the scar from "medicine" I guess was my thinking. Now I don't take any of them, i quit many months ago but just the cialis and pentox alone burn me up terribly, so much that I only take one pentox a day as opposed to 3. Anyone have any solutions or thoughts about this? Thanks.

If there's any treatments or anything that's helped you or anyone you know of who's recovered PLEASE LET ME KNOW. I love hearing stories of hope and copying what they've tried! I know I just need to move on and accept what is now and move forward, TRUST ME, I KNOW. So you don't need to be mean and comment that in some mean backhanded way. It's F^@$!ng difficult. I am trying.

THANK YOU IF YOU'VE READ ALL THIS, YOUR THOUGHTS ARE MUCH APPRECIATED.

I remember those days of using restorex. In the beginning it felt like it was going to tear my glans off lol. But after a while you adjust. I mean something is literally squeezing the tip of your dick for traction so some discomfort is expected. Not pain, but mild discomfort. Keep in mind you can actually damage your dick more by not doing traction properly so take your time.

Just to close this out for anyone reading...this situation was hell and took a year to resolve. Ultimately, I had my employer get involved to get anything to happen. Without them, I don't think they would have listened. They denied all appeals and took zero responsibility for telling me multiple times it was covered on a recorded line. Fortunately, insurance had dropped the ball and I had documentation of the false info provided, and it was recorded by them. This was truly not a covered procedure under my plan, but ended up being covered since insurance messed up and provide false info.

Moral of the story....Always get your pre approval in writing and make sure you triple check. Lesson learned here for me to avoid ever going through all of that again.