Hi, my husband has this, and I am trying to find out how to be more sympathetic to his situation. I know he is embarrassed, and he thinks that he doesn't "do it for me" anymore, which is not true. The good thing about us is, we talk about it. The down side, he has lost his drive and just doesn't want it like you would think newly weds would be....hope I can find out some useful information on this forum
--Wife0712
Thanks for finding the courage to post! I hope your husband realizes the treatment options, primarily Pentox, other oral supplements, and VED, and possibly traction. Lately out members have having a lot of success with the Priapus shot, "PRP shot". There are ways to treat this, but non-specializing urologists almost never know anything about it. Have him see a specialist and stay strong! He will be okay, be patient and love each other hard.
Wife0712
Start from reading the link bellow, it will give some basics regarding Peyronies:
Peyronies Survival Guide - Information for New Members - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,3180.0.html)
Lost drive may be also because of low Testosterone. Your husband should check it out.
And as NeoV has written, you need to find a good Peyronies specialist.
Last, earlier you treat this disease, bigger your chance to stop the progression and even reverse the symptoms.
We have also a ladies only board, send a PM to Christine and/or LWillisjr to have access to it.
James