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Peyronies Disease TREATMENT Discussion Boards => Surgery for Peyronie's Disease => Topic started by: 2Oldfords on December 20, 2018, 07:54:10 AM

Title: Fresh out of excision/grafting surgery
Post by: 2Oldfords on December 20, 2018, 07:54:10 AM
   Hey all, had my surgery 12/18/18. Glad to report all is well with no pain. I cannot say how much I appreciate the surgical skills and bedside manner of Dr. Knoll. All the staff at Tristar Cenntinial Hospital in Nashville were professional and friendly.
    Dr. said the plaque was bigger than he expected so the graft is big. I was told to leave the bandage on as is until Saturday. This is to keep slight pressure on the tissues to help promote healing. Pretty much kept ice on it from the time I got to my hospital room until I got home and went to bed last night. I will continue to keep ice on it off and on to avoid any more swelling than
there already is, which is not much.
    I have to take an antibiotic for a week. No instructions on activity levels so I'm going to let pain be my guide for what I can and can't do.
    Pictures show it is straight, of course the real question is will it work. Unless something unexpected pops up I will have to wait 8 weeks to find out......
    I can keep this forum updated on progress if people are interested.
Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on December 20, 2018, 08:15:15 AM
Congrats 2OldFords and best wishes for a speedy recovery! Yes please keep us posted on your healing/recovery process.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on December 21, 2018, 09:24:41 AM
   Just a quick update

    There is bruising now of the scrotum and above. No pain or real discomfort at this time.
I am still applying a cold compress for maybe 10-15 min every hr. or so. I don't have any swelling issues so that's working.  I'm going to continue to do this until I can remove the bandage tomorrow.
Title: Re: Fresh out of excision/grafting surgery
Post by: Hawk on December 21, 2018, 08:23:20 PM
Congratulations and best wishes for a great recovery.  Please make regular updates.  Far more read this forum than posts so you are helping thousands.

Hawk
Title: Re: Fresh out of excision/grafting surgery
Post by: MarkDS on December 22, 2018, 09:08:09 AM
Hope you recover well. 

I will be reading updates with interest, as I have booked in for my operation in March next year.  I could have gone for January, but don't feel stron eneoigh mentally at the moment.  So though I would delay a little to prepare myself.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on December 23, 2018, 12:08:39 PM
   An update,
   Today is day 5, yesterday I was able to remove the bandage from surgery "carefully" then took a hot shower. I'm a pretty active guy so I lightly dressed the sutures and below so there would be no snagging and a little protection for the grafted area.
   Still no real pain just the end is a little sore. I haven't tried getting an erection so that kind of pain/discomfort has not been experienced. I have no doubt it will work when the time comes so no hurry. I have not tried to wear blue jeans yet but I will be soon.
   This report may be boring to some but I am trying to describe my real life experience so someone on this forum can make better informed decisions on treatment for themselves.
Title: Re: Fresh out of excision/grafting surgery
Post by: TonySa on December 23, 2018, 12:27:35 PM
20, updates are much appreciated. Any chance you could add in your signature line some history such as cogenital vs peyronies and extent of curve for those just starting to read your posts?
Title: Re: Fresh out of excision/grafting surgery
Post by: swiss on December 24, 2018, 08:02:40 PM
Thank you so much for posting. I am considering this surgery next year.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on December 26, 2018, 05:19:14 AM
   Just an update:
Yesterday was Christmas, 1 week after surgery. My grandson and I went to SMKW then to Bass Pro. on Christmas eve.  I drove about 2 hrs and walked around for 2 hrs. (first time wearing blue-jeans post surgery)
Worked in the garage with grandson riveting the sides back on my truck box. I would say moderate activity level with some straining. This started being uncomfortable and sure enough it was swollen.
Cold compresses a couple of times and things were about the same as the start of the day.
   Christmas, worked by myself in the garage on the truck box, cold compress again while waiting for all family to show up. Merry Christmas.......... Done with antibiotics. Bruising is fading away.
   I plan on welding up the front of the truck box today. By the way Willie had a light bandage around the stiches this whole time and probably will until the stiches are gone.


Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on December 27, 2018, 08:09:03 AM
Sounds like good progress. Please continue with your updates. Very helpful.
Title: Re: Fresh out of excision/grafting surgery
Post by: swiss on December 28, 2018, 01:23:45 AM
What did they use to patch you up?
Title: Re: Fresh out of excision/grafting surgery
Post by: Bubba dawg on December 28, 2018, 06:06:44 AM
What did the doctors advise you to do? I dont think I would rush the recovery period. You're getting swelling from doing too much it seems. I would take it easy for a month at least
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on December 30, 2018, 09:03:10 AM
   Just an Update: Day 12 from surgery
   Let me try to answer the question of what graft material did they use? Not 100% positive but this Dr. used SIS for years, even wrote a paper about it. Initial apt when we talked this came up and he said XES?
   Bubbadawg thanks for your concern and advice. I know my activity is pushing "recovery" My wife basically told me the same thing. She said you always overdo it and there is some truth to that. My Dr. didn't give me any do's or don'ts except I have to it keep it in the head down position to keep the graft stretched. and no sex for 8 wks. He said I could go back to work in a couple of days.
   I haven't slowed down on activity and might even have stepped it up a notch. I haven't needed an ice pack for days and am going back to work tomorrow. I am still putting a light bandage around the suture line of stitches because without hair it is more comfortable.
   I wish I had more to report. I go back to the Dr. for a follow up on the 24th. I think he will prescribe Viagra and VED. Start the Viagra then and wait 8 wks from surgery to start VED. At least I think that is the plan.
  Have a Happy New Year!

Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on January 09, 2019, 07:01:33 PM
   Its been like 10 days since I updated.
Not a lot to report except willie is uncomfortable and very sore on the end. Stitches are still hanging in there. I did get a little relief soaking in a tub of hot water. I think it is being irritated walking etc at work. Just the friction from being in shorts head down make the tip very sensitive.
    I know its all a pain right now but it will get a lot better soon I'm sure. What real choice do you have but bear with it. I am looking forward to being able to perform again. Barring any complications it will be 8 months from can't to can.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on January 19, 2019, 08:21:49 AM
   It has been about 10 days since I updated last so here goes:
    I am still very sore especially around the head, the stitches from de-gloving have been driving me nuts so as fast as I could remove them I have. I think they are all out now. Here is a suggestion for Doctors. " Use suture that has some color!" I had a really hard time just seeing the stitches to remove them. They are supposed to dissolve but after about a month if they are still there
they need help to come out. I have been using info gained from crookedjohn's post surgery diary. The hot water soaks he mentioned help with the soreness and to soften the suture material.
    My follow-up with Dr. Knoll is next Thursday the 24th. I hope this is my last trip to Nashville.
Title: Re: Fresh out of excision/grafting surgery
Post by: TonySa on January 19, 2019, 03:49:55 PM
8 months or 8 weeks?  Thxs for the update!
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on January 20, 2019, 09:55:32 AM
   Tonysa, The 24th will be 5 weeks after surgery. Hopefully in 3 more weeks I can try it out!
Title: Re: Fresh out of excision/grafting surgery
Post by: Juice on February 02, 2019, 02:29:47 PM
Hello 2Oldfords, I am looking at the surgery more seriously now because all other treatments failed can you please update me as much as possible, I'm sure you can relate to the fear I have.  I was told by Dr Valenzuela of NYC that the plaque is hardened and needs to be excised he (from what I read) is an amazing Peyronies surgeon but he did say there is no  guarantees  I am 54 years old and would love to get at least 10 more years of being natural before thinking about any prosthetic (which was also a choice). Please please keep me updated.
Thank you
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on April 01, 2019, 09:01:33 PM
   Sorry I haven't kept up with this forum for awhile. Kind of disappointed with my surgical outcome at this time and didn't really want to post negative stuff. I will keep it honest.
    My surgery was Dec 18 2018, The surgery went well and wasn't that painful. Recovery from surgery has not been ideal. I still have some tenderness from the de-gloving cut and at the same time some loss of feeling. I am still not able to perform intercourse....Viagra doesn't help as it just gives me a headache. It was supposed to make it rock hard. Fact is the end of my penis past the graft will not get hard enough to have intercourse. I have been using the VED.
   Thankfully my wife is pretty understanding and tries to keep me from being too depressed about the lack of function. She just says be patient its only been 3 months since surgery and others have said it has taken almost a year to be 95%. It is very hard to accept. Between the loss of length and function I have a hard time not regretting my decision to have the surgery.
    I wish I could report everything is great, I really wanted to be able to do that. I will report how recovery is going when more time has passed.
Title: Re: Fresh out of excision/grafting surgery
Post by: Pfract on April 02, 2019, 02:47:38 AM
Hey man. You are at the right place to get help with your ed. Have you tried other pills?

You can try Cialis daily 2/5mg, avanafil, and also use the ved in combination with a cock ring to help you get and stay hard. The Cialis is very well tolerated. Do you think you can get a prescription on that?
Title: Re: Fresh out of excision/grafting surgery
Post by: TonySa on April 04, 2019, 02:42:53 PM
I'd consider trying all the PDE5i, at full dose if necessary.  Even the low dose 50mg trazadone hawk recommends.  If no luck, maybe s phone consult w Dr Eid to see how long after surgery he recommends waiting until an implant is needed.
Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on April 11, 2019, 09:57:21 AM
2OldFords - what does Dr. Knoll say about your results thus far?
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on April 26, 2019, 09:21:55 PM
   First time I've been able to log in for awhile, password just stopped working.

   Things are better I think, I am able to get harder past the graft. My wife and I think the graft stopped blood flow to some degree. The graft is about 80% dissolved and I will try to perform soon. My wife has been down in her back for a couple of weeks so I haven't even attempted to have sex.
    I appreciate the suggestions you all have given. I really don't want to take anymore Viagra etc. I just want to be able to perform again natural. I don't think I would even consider more surgery for an implant at this time. Might change my mind if after a year I cannot perform. I haven't been in touch with Dr. Knoll since my follow up. At this point what can he do for me? I just need more time to heal.
    This forum is a life safer. I am so glad I joined. I hope others can use my experience to their advantage. I know I have received much help and support from the good people here. Keep it up until they find a cure........
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on May 01, 2019, 07:47:59 PM
Well I tried and no success. I could at least penetrate with some lub but the lack of feeling and not really hard just doesn't get it. Its been 4 months since surgery, I'm not a patient man and this is not what I was lead to believe was going to happen. I know I don't heal as fast as I used to and my wife says be patient its not been that long. I get that but it still sucks........
Title: Re: Fresh out of excision/grafting surgery
Post by: this_day on May 01, 2019, 10:58:41 PM
The key is to be patient!  You may feel numb for a few months after surgery.  When is your follow up appt? 
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on May 02, 2019, 09:03:56 PM
    My follow up was 1/24/19. I'm just a little frustrated that I was under the impression I could resume sex 8 weeks after surgery. Not. I wish they would have just said it could take 6 months to a year. Maybe I would feel normal instead of like I'm screwed.
Title: Re: Fresh out of excision/grafting surgery
Post by: TonySa on May 02, 2019, 10:25:32 PM
Just my opinion, but 6-8 mos does not seem reasonable unless it's just time for the sensation/sensitivity to return.
Title: Re: Fresh out of excision/grafting surgery
Post by: TDix on May 03, 2019, 01:15:57 AM
I feel for you.  It's only been close to 6 weeks for me and I'm missing intimacy greatly.  Hopefully I get the green light next week.  I too am numb still, but I look at it like it should help with my PE issues.  I wish you luck man
Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on May 05, 2019, 06:32:36 AM
2OldFords - Regardless of your initial follow up, I still think it would be helpful to get Dr. Knoll's input at this point. Just a brief office visit to review the current situation may be helpful. He has been working on this affliction for a long time - I'm sure he has seen similar cases.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on May 12, 2019, 10:44:31 AM
   I would like to thank all who have given replies, your compassion and caring is a great help.
I think it's time to make that appointment with Dr. Knoll and see if he can help in some way. Maybe its time to take a look at blood flow during chemically induced erection. As suggested possibly a change to Cialis from Viagra.
   I can still feel some of the graft material which may be limiting blood flow, at least I hope that is what is happening as time will dissolve that and maybe I can return to "normal". It makes me worry some that what I feel may be scar tissue given the nature of this disease. I would have to think long and hard before I would submit to more surgery.
   Like I said before thanks for you support.
Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on May 16, 2019, 12:31:50 PM
Sounds good 2OldFords. Let us know what Dr. Knoll says at the appointment.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on May 21, 2019, 06:17:12 PM
    A little update, I have an appointment with Dr. Knoll on 6/24 and they are going to do the chemical injection for an erection with whatever they call the ultrasound on 6/4. I'm not looking forward to a chemically induced erection but if that is what it takes so be it. What would be nice is if the erection was so strong it broke loose whatever is keeping the end from getting stiff enough for sex! That would be amazing and would eliminate my fear of having to undergo more surgery.
    How many men have the excision/grafting without ED then after surgery develop just that and then have to have an implant? 2 out of 10? that's kind of what I understand. It would be cool to have a tally from this forum.
   
Title: Re: Fresh out of excision/grafting surgery
Post by: MarkDS on May 26, 2019, 02:33:06 PM
Keep us all posted.  I'm 2 1/2 weeks post surgery and still have a ring around the base of my penis, which seems to hinder blood flow.

I appreciate that I'm still in early stage of recovery, but I see similarities, so have been following you posts with interest.

Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 04, 2019, 06:32:16 PM
   Well I had my appointment with Dr. Knoll today.
To say I'm disappointed would be an understatement. I am still trying to gather my thoughts after a 3 hour ride home. I thought about ending it. I thought about manning up and Just be happy because life could be much worse.
   Thank you Old Man for the advice: Keep a stiff upper lip.....I promise I will even with tears coming down. I'm pretty devastated.

   I may have to start a new thread? This one will be "just had implant surgery". Maybe, not sure if I want to keep up the good fight. Not sure I want this to have kicked my ass either.

   So, after the incision and grafting surgery and recovery I was wondering why I was starting to hourglass and the circumferential scar still bothered me along with the knots I could feel. Well it seems Peyronie's wasn't done with me. I've got all new plaque/scars whatever you want to call it. Dr. said he has seen this maybe 1%. Only option left is an implant.

    Not the end of the world but hard to take 6 months out of surgery. Right now some soul searching is needed. I feel like saying a few choice words but instead I'm going to go work in my garden.

   
   
   




Title: Re: Fresh out of excision/grafting surgery
Post by: TDix on June 05, 2019, 12:52:52 AM
So sorry to hear.  This is my biggest fear 10 weeks post op.  Stay strong man.  If this happens to me I would seriously consider the implant, but that is your decision and yours alone.  That feeling of devastation is not fun.  I felt it when I ruptured from Xiaflex and went to surgery.  Maybe get another opinion?  I did that and led me to Dr Yafi.  Keep us updated man and never give up
Title: Re: Fresh out of excision/grafting surgery
Post by: MarkDS on June 05, 2019, 07:59:58 AM
So sorry to hear the news. 

3 1/2 weeks after my surgery and I still have the ring around the base of my penis, and like you this seems to hinder blood flow.  My semi erection looks more like twisted hazel than the old fella I remember.

I don't have my follow up appointment for a couple of weeks, but I with all the lump and bumps I was only thinking this morning, what if it is more plaque forming.

I hope you keep posting, or keep in touch.
Title: Re: Fresh out of excision/grafting surgery
Post by: Pfract on June 05, 2019, 09:59:51 AM
2Oldfords: it is without a shadow of doubt Very sad to read this. One can only imagine the dark place you must be in now. Please stay strong. Or try to. Take some time off the board.. Cry and mourn this if you will. But remember you are not alone on this. We understand your pain. And also...  the implant may not be as bad as it seems. But that conversation is not for now.

Hang in there man!!!! If you feel like reaching out via pm, please do.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 05, 2019, 10:16:48 PM
    I was pretty upset when I posted yesterday. After all the BS you have to go thru to get peyronies damage fixed, the hope that everything will be good after surgery. Then not even get to have normal sex one time before your told it was all in vain and now your worse off than when you started was a little much. Ok, that was then and this is a new day. I originally started this post to be a journal that might help others, it seems like it goes both ways and that's a good thing.
    Yesterday, after my exam they started the paperwork for insurance preapproval for an implant. admin said it may take 30 days maybe sooner since I just went thru something similar. Possibly have implant done in July, I asked how long is the approval good for? She said 30 days maybe 90. I kind of feel rushed and I question if they are in a hurry for my good or for a chance to make more money?
    I just read in this forum "Is your Dr. impartial" Mine made almost 700K in about 3 years? I know he is a high volume surgeon and I thought that is what you want as long as they do good work. If the work is top notch should one even care if they made 10x that amount? Maybe I'm a little skeptical/gun shy after my outcome. It makes me wonder if I had surgery too soon before the peyronie's was stable and that's why it came back with a vengeance. I asked the Dr. about it and was told "I would not have done surgery on you if I didn't think it was stable".
    What would you think?
Title: Re: Fresh out of excision/grafting surgery
Post by: TonySa on June 05, 2019, 11:29:01 PM
What doc are you considering for implant?
Title: Re: Fresh out of excision/grafting surgery
Post by: Pfract on June 06, 2019, 07:27:17 AM
2Oldfords: there is your answer right there.  If you are heading for an implant, it's a whole different story and you have several members here that have been to a top notch doctors so you can read about their outcomes and make an informed decision.

I would definitely think 5 times, bare minimum before having my implant done by the same doctor that did my botched peyronies surgery. When you have an implant put in, it's no laughing matter and it must be done right at first try. Consequences of a botched first implant surgery are not pretty. Floppy head, curvature, possible pain... Oversizing of the device.... What do you think about Dr Kramer/eid/Karpman? Where's your location?
Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on June 06, 2019, 10:43:10 AM
2OldFords - Very sorry to hear of your negative result. I had the same thing happen and the disappointment is severe. I too went to a supposedly "top" surgeon (Franklin Kuehhas - all the way over to Europe) only to have the result go completely sideways. I too am in worse condition now than I was prior to the surgery.

I know Dr. Knoll has a good reputation but not sure about his 1% figure. I've read too many negative grafting surgery results to believe that. It sounds like your peyronies was still in the acute phase when the surgery was done. That is what I think happened with mine as well. Grafting is a more invasive procedure than plication as I understand it - and therefore more prone to triggering additional scarring.

The urologists tend to look at two main items to determine is the acute phase is over. They are 1) are you having pain? and 2) is your curvature changing or is it stable? But those are not precise metrics. Peyronies has a schedule of it's own sometimes that is outside of the urologist schedule. I sometimes think the Doctor's schedule is influenced by their desire to perform as many surgeries as possible. Surgery is where the money is (whether it includes an implant or not) and from what I understand surgeon performance and compensation is determined partially by their consistent surgical volume. That is probably why they seem to be in a hurry for you to have implant surgery.

I'm with Pfract on this one - I'd suggest taking your time and shopping around for your implant surgery options. This forum has excellent and detailed implant information which was spearheaded by Hawk's daily experience posts after his procedure.

Your question is correct - what is the rush? After a disappointing failure like this, it is time to quietly evaluate your options instead of hurrying into another procedure.
Title: Re: Fresh out of excision/grafting surgery
Post by: kusher on June 07, 2019, 01:10:25 AM
I'm not surprised by the awful outcome u had. I did a quick search and it does not seem that ur surgeon is fellowship trained in sexual medicine. I read about his md degree and urology residency but no info regarding his sexual medicine fellowship. Maybe this is the issue. It seems he is a general urologist and that's where the problem comes in. The truth hurts sometimes but this should never happen in a advanced country like USA where incompetent general urologists perform these sensitive microsurgery operations.

If u ask him why would u perform this surgery if u dont have the fellowship, he will probably tell u "I do this surgery On a regular basis" but we all know this does not work in medicine. In medicine there are no shortcuts. If a surgeon does not have the fellowship certificate, he should be forbidden to perform highly sensitive reconstructive penile surgeries to avoid the reduction of patient life quality

Everybody in urology knows this info, nothing is new
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 07, 2019, 08:59:53 AM
   Thanks to all who have replied to my posts. I have been reading a lot in this forum about implants and such last couple of days. I still have questions that I haven't found an answer to.
    At this time I will not say my incision and grafting surgery was botched. My outcome was not as expected to say the least. Peyronies disease did recur after surgery, so soon and quick I never had a clue the disease was the culprit for my lack of recovery. I do think Dr. Knoll did a good job of the surgery, I didn't have any issues of infection etc. Should he be held accountable for peyronies recurring? I would guess that is out of his control.
    Everyone's body reacts different. My body must be very sensitive to the whole underlying cause of this affliction. I have DC, Peyronies Disease and for the last 6 months have been having trouble with pain in the ball of my left foot. Ledderhose? It didn't start hurting until after I had the penile surgery. Go figure?
    I am still considering using Dr. Knoll for the implant if and when I do it. He has done over 7,000 implants. I am going to add his credintials  here.

Dr. Knoll received his medical degree from the University of Health Sciences, Chicago Medical School, North Chicago, Illinois. He completed an internship in general surgery and a residency in urology at the Mayo Clinic in Rochester, Minnesota.

A frequent contributor to the medical press, Dr. Knoll has published over 100 peer-reviewed articles, abstracts and book chapters. He has delivered numerous lectures and operated both nationally and internationally.

Dr. Knoll has been a principle investigator in over 110 basic science and clinical trials of new devices and pharmacotherapies for various urological diseases including new devices and pharmocotherapies for the diagnosis and treatment of male erectile dysfunction, male and female urinary incontinence and benign prostatic hypertrophy.

Dr. Knoll is a fellow of the American College of Surgeons and a diplomat of the American Board of Urology. He is also a member of numerous international and national medical organizations, including the American Urological Association, the International Society of Impotence Research, and the Sexual Medicine of North America.
   
   Is there anything lacking? Also should I start a new thread? Possibly in implant section?
Title: Re: Fresh out of excision/grafting surgery
Post by: Pfract on June 07, 2019, 09:56:23 AM
@2Oldfords

He may have done all those implants, but what about the results from his surgeries? have you talked to his patients? have you been following his work for an extensive period of time? Do you have an idea of his bedside manner and if he stands by his patients shall complicaions arise, such as an infection on the implant?

also, do you know if he cares as much as the quality of the erection you will be getting with the implant like other doctors? There are extremely important factors to consider here. Not saying your doctor is like Perito, but i do have to say that Dr. Paul Perito in Miami FL has been implanting volumes as well, and i wouldn't be near his operating table even if you payed me to. Just google his name.... I also add that i respect your opinion in what concerns, considering Dr Knoll to operate on you; it's something that is above all else your decision, if it comes to that. But i won't refrain from saying certain things that i think you should know.

have you been to Dr. Eid's website? check out Penile Implant Specialist - Dr. J. F. Eid, top New York Urologist (http://www.urologicalcare.com)

Has amazing information there on all things implant a future patient should know. Please take some time to read there as well.

Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 07, 2019, 10:13:58 AM
   Pfract, thanks for the reply. I appreciate you being frank/honest.
   I will go to Dr Eids website and research the implant thing. If it makes a difference Dr. knoll has you stay overnight in the hospital. He could just send you home. I am going to contact his care team and ask a few questions there also.
   I have a lot of study to do on this before I subject myself to this. I thought I had done my homework before grafting to and I know how that worked out.
    Thanks again, this forum has helped me so much. I hope I can in some way pay it back.
Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on June 07, 2019, 01:35:46 PM
2OldFords - You've already contributed to the forum with this honest account of your experience with the grafting. Everyone who has spent time in this forum is fully aware that Peyronies surgical procedures do not always go according to plan. Whether the surgical result is positive or negative the content is always valuable and helps the other forum members.

Pfact did make one critical point to keep in mind. Just as grafting does not always get the desired result, neither does an implant (just read Alibaba's excellent account - he is on his second implant.) Also, be sure to read Hawk's "Considerations in Choosing an Implant Surgeon" under the highlights of the penile implant board. Helpful decision making information.

That said, I still think Dr. Knoll is a good surgeon and would probably perform a fine implant. It just makes sense to look around when making such an important decision. You may still choose Knoll but at least you'll know what other options are available. Please keep us posted.

Pfact - I would not go within a mile of Perito either. Talk about buyer beware. He seems to be in it strictly for the money. Patient welfare be damned.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 07, 2019, 02:59:18 PM
   Frank55, Thanks for the input. I have been to Dr. Kramer and Eid websites the big difference I see at this time is it looks like they prefer coloplast Titan IPP over AMS 700 LGX which is what Dr. Knoll seems to use. I have tried to contact his care team person and see if he will use a coloplast Titan as it seems by the literature it is better for one that has Peyronies not just ED.
    I think I have read everything on this forum about implants but I will continue to see if I can glean some more info.
   I will continue to post my experience bad or good if that is ok. Men who come to this site like me are looking for info. Like me I hope what they read is honest and unbiased and I try to do the same.
    My big question now is if peyronies makes you have the hourglass that constricts blood flow what needs to happen in surgery to overcome this? One Dr. not well liked on this forum says a scratch procedure? What happens if peyronies is activated by the implant surgery like it was for me with the grafting? Is the implant not affected?
Title: Re: Fresh out of excision/grafting surgery
Post by: kusher on June 07, 2019, 03:49:03 PM
I have nothing against dr.knoll. but based on my personal experience and after reading multiple stories on this forum, complications usually arise from surgeons whose practice is broad that includes multiple organs apart from the penis. U should be super careful my friend. My peyronie started after botched congenital curvature repair operation by a general urologist. I then went to kuehhas and he was able to make my penis straight. I'm almost 2 year post operation nd my penis is fully straight like an arrow. But the initial surgery is still hunting me. Severe narrowing and thinning on upper left side of the penis. So I have peyronie related to girth discrepancy. Hence the penis is straight but blood filling and draining is uneven. Non curvature peyronie deformity such as size loss and and  thinning r very hard to treat. Constant VED and cialis therapy is required to maintain a good sexual life.

Anyhow given the complexity of ur situation, u want someone that operates on the penis every single day to maximize ur result. Ur in the USA. And u can find these ppl. For example irvine medical center in orange county is one of the best urological facilities on the planet. They literally have a surgeon for every organ. So one that only operates on the kidney and one only on the prostate etc... I hope u get the idea. They do this in order to maximize patient result and decrease complications. Think about it. If ur for 10-20 years just operating on one organ, u will eventually fully understand the anatomy, structure, how to eliminate complications etc....

If I were u I would think twice before proceeding, nd by the way this facility is where faysal yafi and joel gelman work. Top surgeons according to some stories I read

All the best
Title: Re: Fresh out of excision/grafting surgery
Post by: TDix on June 07, 2019, 03:58:35 PM
Yes I highly recommend Dr Yafi.  Every office visit I've had with him he has had surgeons from other countries with him.  One from Canada, one from Brazil....showing them what I'm dealing with.  He definitely knows his stuff and nothing I've experienced has surprised him.  He has an answer for every question I've asked, which puts me at ease.  Not only that, he comforts me when I get worried about something.  "Relax and let things heal"
Title: Re: Fresh out of excision/grafting surgery
Post by: TDix on June 07, 2019, 04:06:58 PM
It took me going to two other urologists, and while one of the two was very personable, Dr Wachs, it was obvious his expertise was the prostate.  He had seen peyronie's and treated it but all of his accolades were on the prostate.  He was who recommended dr Yafi, saying he was who I needed to see.  I appreciated that honesty, and if I can steer someone directly to Dr Yafi so they don't have to trial and error their way through this condition I feel I can help someone
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 07, 2019, 04:48:42 PM
    Thanks again for the additional info. Can't be too well informed.

I'm in no hurry to get an implant but maybe I shouldn't dally around either. I'm a little afraid the newly activated peyronies will cost me more length than I have lost up to now if I wait too long. I do use VED daily or close hopefully that will help with loss.
    I have been researching this subject all day and I'm over it for now. Thanks again to all who have contributed. In particular Alibabba's writing should be itched in stone. Thanks for turning me on to what wisdom he shares.
    Later
Title: Re: Fresh out of excision/grafting surgery
Post by: Pfract on June 08, 2019, 08:35:08 AM
Quotewould not go within a mile of Perito either. Talk about buyer beware. He seems to be in it strictly for the money. Patient welfare be damned.
@frank55: not only he has several malpractice lawsuits, he is clearly solely focused on the business perspective of this procedure, traveling around the world teaching others (20$  on how it's for the money involved?) and bragging about installing implants under 15min. On top of this he only does infrapubic approach. An approach that while we know has it's case use, it is easier and less time consuming for the doctor, yet worse for the patient in many cases leaving the person with a less desireable outcome. Not to mention the risk of less sensivity, due to the way the implant is inserted above the penis. He also operated on a patient on ended up losing his penis, because he did not due the proper follow up and it got infected and subsequentely gangrenated requiring amputation.

https://www.huffpost.com/entry/man-sues-over-penis-amput_n_1183437

https://www.miaminewtimes.com/news/dude-wheres-my-penis-miami-man-loses-his-manhood-and-fights-back-in-court-6553394

https://www.dailymail.co.uk/news/article-2083173/Dr-Paul-Perito-blamed-amputation-patients-penises-botched-operations.html

Quote
Frank55, Thanks for the input. I have been to Dr. Kramer and Eid websites the big difference I see at this time is it looks like they prefer coloplast Titan IPP over AMS 700 LGX which is what Dr. Knoll seems to use. I have tried to contact his care team person and see if he will use a coloplast Titan as it seems by the literature it is better for one that has Peyronies not just Erectile Dysfunction.
    I think I have read everything on this forum about implants but I will continue to see if I can glean some more info.
   I will continue to post my experience bad or good if that is ok. Men who come to this site like me are looking for info. Like me I hope what they read is honest and unbiased and I try to do the same.
    My big question now is if peyronies makes you have the hourglass that constricts blood flow what needs to happen in surgery to overcome this? One Dr. not well liked on this forum says a scratch procedure? What happens if peyronies is activated by the implant surgery like it was for me with the grafting? Is the implant not affected

@20ldfords:

I am glad you mention that part in particular. Implant selection is of great importance for patients with severe peyronies disease. As you can see in curved's case, Dr. Eid implanted a titan and the result was dramatic. Curved's Impant Journal - Peyronies Society Forums [Page 2] (https://www.peyroniesforum.net/index.php/topic,11395.msg110625.html#new)

He details in his diary how his dr was able to insert the rods even though the penis was filled with fibrotic tissue and several very hard plques. Both of the doctors you mentioned implant the device that better fits the patient. But as one can see on that post pertaining the bias of doctors, Dr. Kramer clearly has a preference for AMS and Dr. Eid for Coloplast. I presume that those brands are there go to choice, unless the patient demonstrates a prefrence or the situation requires a particular model/device. (These are my thoughts on the matter; )

My advice to you is to let things cool down, and do your best to stay informed and make a choice that you are truly confortable with. Here are some suggestions, for steps that you can take that cost nothing, and will empower you greatly:

-read all the implant diaries on this very board. Many members where kind to share pictures which helps a lot.
-see dr. kramer/eid website extensively and make sure you clear all your doubts and fears
-create a diary. It helps to stay focused and get that extra bit of support and sometimes guidance.
-If you have your mind set on am implant for good, then follow a daily regimen of traction and VED. At the very least the VED. There are medical papers, that i think were shared here, on the importance of VED pre op.
-Take measurements. From now on. It will give you an idea of how the condition is progressing and if you should give that extra push for the implant or keep searching for information in a more relaxed manner.

Something i have to say as well, is that after 4.5 years of following this board and FT on diaries on penile implants, both Dr. Kramer and Dr. Eid have been extremely consistent on their bedside manner, patient care and above all else penile size preservation and erection quality. And don't take my word for it. Ask the members here that went to these doctors.

Keep us posted and stay strong!

Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 08, 2019, 10:00:03 AM
   Pfract, The response by the members of this board has been tremendous. I value each and everyone for the support and understanding that has been given me. The advice given is priceless.

   I'm going to take your advice to cool it, calm down and think.... I am committed to continue VED use until a plan is put together and followed through. I wish I had paid more attention to the measurement side of this as of right now I don't even know what I am size wise. That is going to change.

    Thanks again

Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on June 24, 2019, 08:32:00 AM
2OldFords - One other question. When you were in your pre-surgery discussions with Dr. Knoll, did he clearly describe the risks associated with grafting surgery (including the possible return of curvature and additional scar tissue?)

Franklin Kuehhas did not do that prior to my procedure, with which I have a problem. Admittedly, I should have done more homework on my own but I still think it is the surgeon's responsibility to detail both the positive and negative of what might happen.
Title: Re: Fresh out of excision/grafting surgery
Post by: MarkDS on June 24, 2019, 11:42:45 AM
My surgeon did quickly run through the risks of surgery, and the fact there might be some loss of feeling, residual curve, and some loss of length from pre disease. 

However, the loss of length from pre op, and extent of residual curve was not expected
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 24, 2019, 07:11:31 PM
    I had already read everything I could get my hands on this procedure/outcomes/chances of each.
I knew the risks as far as numbness, loss of length, infection, recurrence long term. I expressed to Dr. Knoll I had researched this subject as much as I could and had what I would call a fair knowledge of what should happen in a normal outcome. I didn't anticipate that peyronies would flare up again and I would not even have time to have a normal recovery. That was probably why I was so devastated when I was told that all my issues I thought was grafting related was indeed new peyronies. Mind you I did not have a return of curvature but new hour-glassing distal from the grafts.
Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on June 25, 2019, 07:11:05 AM
Understood 2OldFords. However, I don't think your statement to him of your pre-study of potential outcomes relieves the Doctor of clearly explaining what might happen (positive and negative.) In my opinion, it is still part of the Doctor's responsibility to tell you the risks in advance - including another potential flare-up of peyronies.

That same thing happened to me. Any candidate for grafting surgery should be made aware by the physician that outcome is possible. And I've read about too many examples of it (return of peyronies after grafting) to believe it is a rare surgical result.

The Doctor could have said "I understand you've studied this on your own, but I still need to be certain you understand all of the potential consequences here. So let me list these out. That way I'll be completely comfortable that you are fully aware of the potential effects of the surgical procedure we are discussing. Then you can make an informed decision about whether you'd like to move forward."

The same conclusion comes to mind again and again. Doctors are quite eager to perform surgery. And I think some are willing to "push the envelope" of what the patient is told in order to move the surgical procedure forward, given that their performance appraisal and income are partially based on consistent surgical volume. Sorry if that sounds cynical but I think it is true.
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on June 25, 2019, 06:36:35 PM
   Frank55, I agree. I have had plenty of outpatient surgery. All the procedures to date went just like they were advertised. All had complications that could happen but didn't. I had a rough time coming out of the last abdominal surgery, I had to go to the ER that evening and get catheter and IV fluids. I eventually become black and blue around my entire gut from one side to the other side. When I showed the surgeon my belly a week later he said "wow". Point is he did what I wanted done.
   That's the thing about a surgeon they want to do surgery. Yes they make money doing it. Yes they probably have other incentive's and yes he could have told me about the chance peyronie's could return. I knew that it could as there is a percentage that comes back after a certain amount of time, and that percentage goes up with time. You are correct in that he could have said I know you think you know but let me tell you anyway.
    Right now I just wish I'd have known my insurance would deny an implant for me if reconstructive surgery failed to correct the problem. If this was a knee or hip replacement etc it would not be a problem.  I'm just hoping the appeal works. I don't want to wait a year or more to have this corrected.
    I'm sorry I have rambled on, in a way I'm just venting a little. You know as you have been thru it too.

Title: Re: Fresh out of excision/grafting surgery
Post by: Frank55 on June 26, 2019, 06:34:50 AM
Sounds like a frustrating situation with the insurance 2OldFords and I don't blame you for venting.

Health insurance companies are ridiculous to deal with. Hope it gets worked out.
Title: Re: Fresh out of excision/grafting surgery
Post by: Beemer790 on July 26, 2019, 08:59:39 AM
2oldfords:

I think I am having almost an identical experience. I had a pitiful hourglass shape which just kept getting worse. Excision and grafting new tissue surgery in 12/2018. Surgery worked as far as shape, and also the volume of the ejaculate is almost 7-8 times prior to surgery, which is great.

But, I still have tip numbness which I (think) is the reason I cannot maintain an erection. It is difficult to orgasm, sometimes takes me over an hour, and 2/3 times I can't even get there!

After divorce this past spring, just had my first attempt at sex with a women in over 2 years, and could not perform at all, even with some viagra.

Can ANYONE comment on a similar experience that is post surgery 2 or 3 years and can say it took them like a year for feeling to return to the tip and all is well??
Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on July 26, 2019, 11:12:04 AM
   Beemer790, You must have been having constriction on other parts of your peter as well as the part that gets hard. My ejaculation was never affected other than I couldn't get off in my wife because I couldn't penetrate/stroke due to the curvature. Even now I can jack off and climax with no difference in output. My glans area and the area that was de-gloved are still not back to 100% but closer now than a few months after surgery. Probably 90%.
   I feel for you not being able to perform with your new partner. That must suck. From everything I've read given time your feeling will return so be patient. If you can get the whole shaft hard and stay hard you should be able to succeed.
   I can only get semi-hard now after surgery and the new hourglass shape. Getting off with my wife is another story. I have not been able to climax with her no matter what. We can touch each other to get excited, her give me oral as I finger her off but I can't seem to get enough pleasure feeling to be able to climax. I'm beginning to believe its all in my head. I know its not as hard as it should be and that just turns me off. Knowing I can't have vaginal sex is always in the back of my mind. Taking Viagra for me is a waste of time. It only gives me a headache.
    I think that until I have an implant and can penetrate and stroke it I'm not going to have success with my wife. Maybe I'm not trying hard enough I don't know but maybe just maybe I'll get there under the right circumstance and the mental part will take care of itself.
    Only advice I can give is keep trying. I hope this helps. I normally would not give this much detail of my sex life but I owe it to this forum and it members.
   Wish you luck brother.........

Title: Re: Fresh out of excision/grafting surgery
Post by: Beemer790 on July 29, 2019, 09:48:40 AM
2Oldfords,

Thanks for the words of encouragement. I definitely know how you feel. Although it has to be more upsetting since it is with your wife. I will pray for you.

And thanks for the detail as it helps our healing process. My experience thus far is almost identical to yours.

Peace.
Title: Re: Fresh out of excision/grafting surgery
Post by: TonySa on August 05, 2019, 07:47:43 PM
If 2-3 years post surgery, I'd def check w a high volume implant surgeon...
Title: Re: Fresh out of excision/grafting surgery
Post by: MarkDS on August 09, 2019, 06:33:46 PM
2Oldfords, 3 months post surgery and I still haven't got full sensation back in my tip, but I think it's gradually getting there. 

I have managed to penetrate and climax with my wife, but I do find it hard to maintain an erection, even with tadalafil.  Event when I feel hard, I look down, and see how my penis looks now, and I loose all sense of excitement. 

Tbh, I always suffered with PE, but now I struggle to climax, to the point my wife becomes sore or loses interest.  But over the last week, things have improved a little.  So I'm trying to keep positive that some things are moving in the right direction.

What scares me is the thought of further surgery to correct my residual curve, or painful areas.  I do not want to go through this again, and cannot lose any further length.  I am only just penetrating post surgery.

Title: Re: Fresh out of excision/grafting surgery
Post by: 2Oldfords on August 15, 2019, 10:22:33 AM
   Markds, I'm encouraged by your progress and you should be too. Seems to me the recovery period from what we went through is longer by far from what we are lead to believe or would like to believe. Just the fact that you can have normal sex after such evasive surgery should put a grin on your face.
   The circumcision cut on me is not as sore as it was a month ago so that just goes to show it takes time to heal. I'm almost exactly 8 months post surgery. I guess its possible that I might be able to regain enough to have normal sex given enough time. I certainly hope so.
   I'm happy for you. Thank you for sharing, please keep posting your progress.
Title: Re: Fresh out of excision/grafting surgery
Post by: MarkDS on August 17, 2019, 04:57:45 AM
2Oldfords - thanks for your encouraging words.

I have an appointment next week with another surgeon, so have a second opinion on what could be done to improve my situation, in case things do not improve.

I have also booked an appointment with a pelvic floor therapist, as recommended by Tdix.  So hopefully that will help; at least it is something else that may give me hope, as they were encouraging.

Main issue at the moment is the discomfort from my tip rubbing on my clothes.  It's uncomfortable to walk around. So I need to try and gain some flaccid length, to reduce the direct contact on my tip.

I'll keep you posted
Title: Re: Fresh out of excision/grafting surgery
Post by: Beemer790 on October 18, 2019, 09:15:17 AM
MarkDS,

You should definitely be encouraged that you could climax with your wife.  My surgery was last December, so 10 months in. The top tip is still numb, but I think sensation is slowly returning because a much larger portion of the tip was number the first 6 months of surgery. I (think) the area of numbness is getting smaller.

Just started dating an awesome girl and we're about to get to that point. So I had to tell her about my surgery. She was great about it. We may be getting physical tomorrow evening. A little concerned about it. But I plan to bring some tadalafil with me and keep my expectations low.

Overall my issue is that when my hand touches the tip, or, several months ago when I tried to have sex with the girl I was dating at the time, the sensitivity in the tip kills my erection. I can get fairly hard with foreplay and everything else, even just thinking about sex, but the moment that part touches causes issues.

Given the reduced area of numbness over the last few months, I am encouraged.  My guess is that full normal feeling in surgery like ours probably takes a couple years. 

Best wishes.