Peyronies Society Forums

Peyronies Disease TREATMENT Discussion Boards => Oral Treatments for Peyronie's Disease => Topic started by: sonnyjim on August 11, 2018, 07:09:06 AM

Title: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 11, 2018, 07:09:06 AM
Is pentox still effective after 18 months.

I mean, in shrinking plaques etc. Or is it basically hopeless after that amount of time?

Title: Re: Pentox effectiveness after 18 months ?
Post by: JS1991 on August 11, 2018, 06:33:34 PM
A lot of members have have used Pentox in the chronic phase (which you are in), so I'd assume it won't be an issue.
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 11, 2018, 07:16:26 PM
Just wondered because if I knew all of this crap I would of started taking it straight away and might not now have ed and all of these other problems.

Feeling like I missed my chance to beat this...
Title: Re: Pentox effectiveness after 18 months ?
Post by: Silverado30 on August 14, 2018, 11:09:13 PM
I am in the Acute phase. I was told to stay on it for a year by Urologist. 400mg 3 times a day. I am not hearing alot of good results from Pentox so I'm worried I'm wasting my time
Title: Re: Pentox effectiveness after 18 months ?
Post by: cheeznips on August 15, 2018, 12:29:06 AM
Cialis+time imo
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 15, 2018, 06:42:21 AM
I am taking Cialis but it does nothing.
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 16, 2018, 08:35:22 AM
What could I have damaged to make my dick like this is what I don't get.

This is like insanity.
Title: Re: Pentox effectiveness after 18 months ?
Post by: cheeznips on August 16, 2018, 01:56:54 PM
I'm wondering that myself, so far it's been about a year and a month for me. I think we both had penile fracture and tore the corpus spongiosum. I'm trying to find a uro in atlanta georgia who will do a doppler ultra sound erect
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 16, 2018, 02:14:42 PM
You said your first injury healed though.

Ive been dealing with this crap for about 19+ months now and not had any improvements only worsening (ed).

Probably end up with an implant if I'm lucky.
Title: Re: Pentox effectiveness after 18 months ?
Post by: cheeznips on August 17, 2018, 06:14:33 PM
my first injury did heal, but it took an extremely long time. i think maybe 2-3 years. i'm having a tough time too. Im working full time 40 hours a week. doing IT work for a company and a lot of time im sitting on a chair which makes it worse and i have to wear pants. and my penis is constant making some tingling feeling. my penis is always hard flaccid now and its always uncomfortable. Often time i'm worrying if my co workers think i'm weird because im constantly fidgeting. iv changed my chair 3 times. i've brought a seat cushion to work. the first day i've been unbuckling the top button of my pants everytime i sit... its very stressful.

can you not hold erections at all when masturbating? can you orgasm and cum? just keep taking your cialis.. i quit pentox. also do you get tingling feeling too? because i remember that you mentioned that
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 18, 2018, 07:11:32 AM
It's not a tingly feeling anymore but there's a weird sensation but literally 99 percent of the time I feel nothing just occasional pain usually when I'm sitting.

What were your symptoms when your first injury happened? I mean my ED is that bad now that I literally feel no pleasure at all it honestly feels unfixable.

I can get an erection but they are very weak and only happen if I'm watching porn and manually stimulating myself otherwise nothing. No spontaneous erections no morning wood not even if I wake up and I need a piss. Basically, dead and turtled (much smaller) dick.

I cannot ejaculate either because I'm guessing the scar tissue is stopping that from happening.

Honestly don't know what to do now.
Title: Re: Pentox effectiveness after 18 months ?
Post by: cheeznips on August 19, 2018, 01:31:04 AM
Yikes it must of been pushed down pretty hard or something. Guess the only thing we can do is wait and take cialis. Over time itl heal, maybe it's a good idea to never have sex with that girl again and never have sex drunkagain.
Title: Re: Pentox effectiveness after 18 months ?
Post by: Gabriel on August 19, 2018, 08:46:14 AM
Hey Sonnyjim,

Have you tried going nofap ? I'm not kidding: just before my Peyronies Disease started, I had totally lost my night/morning erections, not speaking about the spontaneous day ones, and I could only achieve incomplete and unstable erections with porn/masturbation, which I had been doing on a daily basis for 15 years without being AT ALL preocuppied by it.

I went nofap, not in an ideological but just an experimental perspective, and after three very, very, very (very...) hard months, night erections started reappearing, even without cialis. Last months, I even had the pleasure to have a 80% erection without cialis (had not taken it for 3 or 4 days) with a girl, which had not been the case for much time...

So, I can only recommend you to try it mate!!
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 19, 2018, 06:52:20 PM
I've tried everything man, you have to remember I have been dealing with this for almost two years. The ED has been this severe for about a year now.

I've taken every pill that people here are taking and seen no improvements at all but yet I'm told there is no problem when I had an ultrasound. Why do I feel a rock solid lump then? :S

Can pentox still shrink the plaque after this length of time or will they just soften them? I've been taking it for three months and nothing has happened yet.

Maybe it is calcified already. Bit confused as to why that wouldn't show up on an ultrasound either as people here say that it lights up like a Christmas tree on an ultrasound.

For me it hasn't.
Title: Re: Pentox effectiveness after 18 months ?
Post by: Gabriel on August 20, 2018, 01:28:00 AM
Hey Sonnyjim,

I hear and understand your distress. We will work and find a solution, whatever it takes! Regarding the fact that your uro can't find your plaque, I suppose you already went to several including the best ones (I tell you that because it took me actually 3 Peyronie's specialist to finally see my plaque located and diagnosed properly).

Regarding the eventual calcification, however, I can bring you a little hope: there are big chances that my plaques were partially calcified according to my firsts ultrasounds, which coincided with my own daily palpation of a rock solid lump at the center of my shaft and right under the glans. But after ~7 months of my routine (usual oral pills, traction, VED, essential oils ointment and exercise), I feel my plaque are very soft now, and my competent uro cannot find any calcification on her fancy ultrasound machine.

And about ED, what about the Angion Method which seems to be encouraged by some reliable folks here? Did you go to several ED recognized specialists (like Dr Virag in Paris, which is obviously a little far for you, but you see the idea)?

All the best man!
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 20, 2018, 01:57:31 AM
Thanks for your replies.

I guess I will keep taking these pills then.

How long did it take for your plaques to calcify from when you first noticed symptoms? I think my scar tissue must be in the spongy tissue and that is why I have such severe ED.
Title: Re: Pentox effectiveness after 18 months ?
Post by: kusher on August 20, 2018, 03:19:56 AM
.
Title: Re: Pentox effectiveness after 18 months ?
Post by: Gabriel on August 20, 2018, 07:44:03 AM
Hey Sonny,

Actually I don't know how much time it took for my plaques to calcify, because the first MRI I had, 2 months after the first symptoms, concluded that my plaque was already partially calcified... Which concorded with my palpation, as I could feel an already very strong nodule at the center of my shaft. So, actually, I don't know; but I can strongly tell you that I'm positively convinced that my plaques did soften... And who says soften plaques (even in corpus spongiosum) says more possibility to re-shape them! I'm not saying it's going to be easy or immediate, I'm saying there surely are things that can be done, and that you should keep hope and pursue your researches.

Stay strong!
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 20, 2018, 01:49:32 PM
So mine definitely must be calcified in one year 8 months then ://

I thought (and hoped) that it took longer than that, like 5 years. But nevermind.

Guess this isn't getting better any time soon then.
Title: Re: Pentox effectiveness after 18 months ?
Post by: cheeznips on August 20, 2018, 06:57:41 PM
it gets better after it hardens. the cialis and blood flow and hard erections end up breaking the plaque.
Title: Re: Pentox effectiveness after 18 months ?
Post by: Gabriel on August 21, 2018, 01:59:58 AM
@Sonnyjim: it's not sure at all bro, because when I had my first MRI, 2 months after the symptoms, the doctor concluded that this partially calcified plaque "actually seemed to be there long time"... Which was obviously strange (how could I had not noticed it before then?), but still very possible, like everything is possible when it comes to Peyronies Disease. Anyway, we do have some cases of de-calcification, so add vit. K2 to your daily medications if you haven't already done so, and keep hope :)
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 22, 2018, 01:01:20 PM
So an MRI also shows calcified plaque ?

I am basically hoping to regain the flaccid size I had before I got this crap people have said they took pentox and have done that after pentox shrunk the plaques but I'm not so hopeful right now with the severe ED that I have.

It's just psychologically F^@$!ng me up walking around with a flaccid size that is half that of before this. Like a 12 year old.

I can't even get a hard erection because I guess the scar tissue is stopping my penis from expanding fully so it's basically weak where I'm able to bend it even with Viagra and Cialis.

Give me some hope somebody please because I feel like I'm close to giving up with this life of misery and hopelessness.
Title: Re: Pentox effectiveness after 18 months ?
Post by: cheeznips on August 22, 2018, 01:47:04 PM
Don't give up dude. I'm not giving up so you can't either. We all have challenges in life to get through. You gotta do it no matter what. Things will get better in the future. Your plaques will get softer and you will get better blood flow
Title: Re: Pentox effectiveness after 18 months ?
Post by: Gabriel on August 22, 2018, 03:23:35 PM
Hey Sonny,

Fortunately you mentioned something for what I can give you hope: 1) Yes, although less acutely than ultrasound, MRI does show calcified plaques; which means I'm the living exemple that calcifications can be reversed (today I'm close to absolutely 0 calcification, and my plaques keep on softening). 2) About flaccid length: that was never a real concerned of me, but I always had a small flaccid. Well, a few months of traction, did not so thoroughly, added at least 2-3cm to my flaccid...

So YES it's possible, and NO there is NO reason that some of the things that work for other won't work for you. Just accept, cry, then take courage, chin up, and search, try, fail, try again, and finally succeed, whatever the number of endehavours it takes. This condition works like this, and everyone who finally beat it had to get over dozens of failure before reaching happiness. You will!

Stay strong,

G
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 22, 2018, 05:15:29 PM
Even if the ultrasound did show it (which it didn't .. I don't know why) they still wouldn't of really offered me a treatment that would work apart from an implant.

I don't want an implant but if I have to go down that route how much length will I lose (already lost a bit) any more will put me under average which I don't want.

The scar tissue that's causing all of these problems isnt softening at all. How long will pentox take? I've taken everything (coq10, l arginine l citrulline pentox (3 mos)

Title: Re: Pentox effectiveness after 18 months ?
Post by: TonySa on August 22, 2018, 06:11:21 PM
Give it 9-12 months but add VED or traction
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 23, 2018, 02:58:09 AM
I always do manual stretching but that hasn't really given me any length back and I've been doing it for over a year.

Title: Re: Pentox effectiveness after 18 months ?
Post by: TonySa on August 23, 2018, 12:58:55 PM
Add traction for length restoration.
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on August 25, 2018, 04:37:28 PM
What are the side effects of pentox apart from nausea etc?

Does it age you?
Make you look worse?
Etc...

These are things I'm worried about. I don't want to age or look worse than I do.
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on September 02, 2018, 04:54:35 PM
Anyone ever seen a reduction in size of the plaques in the chronic phase? Or only softening ?

I would like to regain my length and girth but it doesn't seem likely as the scar tissue stops me from stretching to my previous size. :(
Title: Re: Pentox effectiveness after 18 months ?
Post by: cheeznips on September 03, 2018, 03:04:25 AM
I'm sure your ed got a little better by now.
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on September 03, 2018, 01:16:27 PM
Nope. No change actually...

Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on September 11, 2018, 07:27:33 AM
Anyone who can speak from experience about taking Pentox after 18 months?

I know others had success at softening the plaques but do they still actually shrink in size ?

The only person I've seen make good comments after 18 months was comebackid and they haven't been active for 6 months on the forum.
Title: Re: Pentox effectiveness after 18 months ?
Post by: cheeznips on September 14, 2018, 10:23:19 PM
is the underside of your penis still numb?
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on September 15, 2018, 06:48:52 AM
Yeah, nothings changed...

Feels like I'm gonna be like this forever.
Title: Pentox treatment length question
Post by: Pressure on October 07, 2018, 01:23:21 AM
Well people, I have now been constantly taking Pentox (3x400mg) daily for 3 years and 4 months now!

Probably won't make a difference if I stopped now, and I still get no side effects.
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on October 07, 2018, 02:28:57 PM
Did you notice any positive changes and how soon after symptoms started did you begin taking it ?
Title: Re: Pentox effectiveness after 18 months ?
Post by: Pressure on October 07, 2018, 04:11:12 PM
Well started taking it 1 to 2 months after symptoms started, and it didn't get worse after starting to take it. It would of stabilised symptoms at that time, over 3 years ago, if there was a positive effect from it.
Title: Re: Pentox effectiveness after 18 months ?
Post by: james1947 on November 11, 2018, 10:30:36 AM
sonnyjim
You have asked:
QuoteWhat are the side effects of pentox apart from nausea etc?
I know my answer is late by a few months.
One of the dangerous Pentox side effects is that it may weaken the immune system. It is stated on the box.
After 18 months I had to stop taking Pentox as I was getting severe flue every 6 weeks or so.
Stopped Pentox, everything back to normal.
I had many benefits from Pentox but sadly had to stop.

James
Title: Re: Pentox effectiveness after 18 months ?
Post by: sonnyjim on November 12, 2018, 09:02:12 AM
Pentox isn't doing anything for me. I guess I have calcified plaque... Why wouldn't it show up on an ultrasound then ?
Title: Re: Pentox effectiveness after 18 months ?
Post by: james1947 on November 12, 2018, 03:42:34 PM
Calcified or not, a plaque will show up in the ultrasound if you have a competitive doctor.
QuotePentox isn't doing anything for me
It may be, or it is just stopping the progress of the Peyronies so it is "like" not doing nothing.

James