Peyronies Society Forums

I have a video interview set up with Dr Trost.

If anyone has experience with being treated with Xiaflex by Dr Trost, can you please let me know what your initial curvature was and the results?

Thanks!

This user went from a curve of 110 degrees to 10 degrees, after on series of Xiaflex from Trost. https://www.peyroniesforum.net/index.php/topic,17739.0.html

Those are a great results. I think he does more Xiaflex injections than anyone else in the world.

That is very rare, most people are lucky to see 30 degrees of improvement.

I doubt the truthiness of this report to be honest.
https://www.peyroniesforum.net/index.php/topic,17739.0.html
I believe this is an advertisement post - Take as my opinion.

On another note, I did Xiaflex injections, 6 cycles and it did nothing. Nothing. Just pain, time and money waste.

Any with Dr Trost? From what I know he has a different protocol than most.

So, I had the 110 degree ventral curvature correction.   It actually happened.

This is an anonymous forum.  There is absolutely no way for you to verify any results - positive or negative.  It's simply meant to point you in a direction and offer encouragement.

What you can do is ask your doctor.

When you have your consult with Dr Trost, why don't you ask him about what kinds of ventral corrections he's seen?  Share this thread with him.  Ask him yourself - Is it believable?   

My results were extra ordinary.  I'm grateful.  Which is why I posted.  I wish you the best on your journey.  Hang in there. 

I had my consultation with Dr. Trost.

He is extremely good and is getting great results. He is in this to help people and I believe what he said.

He is very adamant that of the correct protocol isn't followed by an experienced Dr., the results will not be as good as what he is seeing.

I am very hopeful and will be scheduling injections with him.

Sorry guys, where Dr Trost is exactly located again? Thanks in advance.

Quote from: Jack1909 on January 17, 2023, 08:38:38 AM
Sorry guys, where Dr Trost is exactly located again? Thanks in advance.

A simple google search will help you with that.

Quote from: Bak on January 07, 2023, 05:17:08 PM
I doubt the truthiness of this report to be honest.
https://www.peyroniesforum.net/index.php/topic,17739.0.html
I believe this is an advertisement post - Take as my opinion.

On another note, I did Xiaflex injections, 6 cycles and it did nothing. Nothing. Just pain, time and money waste.

There are plenty of reports of users not being responsive to the medication. It really depends on the person, unfortunately. Although the doctor's experience is a key factor in a better outcome.

I don't think that Dr. Trost needs to do shady advertisement. His results and work ethic speak for themselves. Restorex for example, just to name one thing.

His results seem pretty good - of course everyone is different.

There also may be a bit of an issue where if someone is now happy with their treatment they may not be on the forums and vice versa.

Xiaflex hasn't been around that long, and the recommended protocols most doctors follow are too conservative. These protocols were designed to avoid fractures, but they probably are too cautious. Trost has been pushing the envelope and came up with these new "aggressive" protocols that cause xiaflex to work faster and work better. He's avoiding fractures and other injuries by keeping the penis wrapped while it heals for the first 2-3 days.

Correct. Did you have Xiaflex done by Dr. Trost?

If so what were the results?

Not yet. Considering traveling there this spring to see him.

I will let you know how things go. I sent my insurance info in to the office and am just waiting on a scheduled appointment.

He seemed very optimistic of results even though he did give me a disclaimer.

Thanks. How severe is your curve? Have you tried anything else yet?

90 degrees straight up

Quote from: 36chambers on December 30, 2022, 12:42:46 PMI have a video interview set up with Dr Trost.

If anyone has experience with being treated with Xiaflex by Dr Trost, can you please let me know what your initial curvature was and the results?

Thanks!

I had injections with him two weeks ago. I still have some pain, but it's getting better. So far, I went from 50+ degrees to I'd say 20 degrees. That's just a guess. But, it looks a "LOT" straighter than before my trip to Utah.
I posted some history here...
https://www.peyroniesforum.net/index.php/topic,6362.50.html

Quote from: Jack1909 on January 17, 2023, 08:38:38 AMSorry guys, where Dr Trost is exactly located again? Thanks in advance.

Jack: The US State of Utah.

Quick question-

I have w family trip planned on March 9 and am getting my shots on Feb 20 and 21. Do you think the pain will be unbearable to ski and drive 6 hours in early march or do you think 2 weeks should be enough for me to actually enjoy that vacation trip?

On my recent experience, I'd say you should be able to enjoy your trip. At the beginning of week three, my pain was much more tolerable. To almost, but not quite normal. Erections still a little sore, but getting better everyday. Had injections Jan. 30-31.

Thanks. Driving there tomorrow for Monday and Tuesday appointments. Kinda nervous but know Dr. Trost is probably the leading expert and from you have all mentioned, it seems like a pretty decent experience overall.

Any words of wisdom, pro tips, or suggestions based on your experience?

Thanks!

No pro tips. Maybe take the laughing gas. Haha.  I did not and had no issues. You'll do fine. The clinic is really nice. Like nicest I've ever been in. And Dr. Trost is great and undoubtably has a wealth of knowledge/experience on peyronie's. And it shows.

My first round of shots with Dr. Trost is booked for mid March. While the concept is unpleasant, your comment does provide a level of comfort/assurance.

I have my appointments today and tomorrow. Will try and take good notes and post after the procedure.

I'm nervous to say the least.

In retrospect, I am just glad I am going to Dr Trost vs someone else.

Actually in office now. Numbing shots are not bad. I had laughing gas which helped relax me for sure.

Waiting for Dr Trost to come in and administer Xiaflex...

Just finished shots. Not that bad. He's an amazing Dr.

Keeping wrapped is most important thing.

Quote from: 36chambers on February 20, 2023, 06:02:21 PMJust finished shots. Not that bad. He's an amazing Dr.

Keeping wrapped is most important thing.

Congrats! Keep us up to date.

As far wrapping, how often do you need to replace the wrap? Do you leave the wrap on while peeing and doing traction?

Since I am only done with one round (round two is tomorrow) you are not to take the wrap off no matter what. As an FYI he measured me at 70 degrees with 10-20 degree corkscrew side curve. I have some hourglassing at fulcrum, which he said may get worse as it heals.

Keep on while urinating and I just figured I wouldn't shower as I don't want to take the chance of messing with it.

Also he mentioned that I was not calcified, and that because of my girth and size I probably will need a second round at some point but that we will assess as time goes on.

Upon leaving they give you Dr. Trost's cell phone number and tell you to call them if anything comes up. This is probably the best medical experience I have had in my life.

Pain right now isn't bad. Can definitely drive right after. Numbing  agents are wearing off right now but we will see as the night goes on. I asked them if I could take pictures of the documentation they give you and they said yes, so I will post when I have good lighting.

So how is it going 36chambers? How was the second shot?

Yeah, I went through three rounds of Xiaflex with another doctor. I saw some improvement, but the curve is still unacceptable to me. My doctor, well known in the field and who I like (good guy), is not as thorough as Trost. For example, he'd just ask me to bring an erection picture into the office, he'd look at it for two seconds and say "looks about 30 degrees". He does not induce an erection in the office.  I only saw improvement after the first round.I believed him, but then I saw other pics on this forum and elsewhere of 30 degree curves, and I knew my curve was more severe.  especially when I take Cialis and am sexually aroused (taking pics for my urologist doesn't turn me on all the way!).

This doctor is very cautious and conservative. I read about Trost's more aggressive protocols, and want to give that a try.

So I contacted Trost. I sent him an erection picture, and he actually measured it and said it's 55 degrees. We then did a zoom call.

He's doing a study, funded by Endo, to try his aggressive protocols on men who did not get enough improvement following the standard protocols most doctors follow now. Perhaps Endo will recommend Trost's protocols based on this study?

Trost says I qualify for the study. I need to wait six months from my last round which was October. So I am going there in April.

A bummer to hear that your first set of injections didn't bring optimal results, but great news about the Dr. Trost/Endo study. After becoming disenchanted with a local urologist I have booked the first series of injections with Dr. Trost for mid-March. His office has already been incredible to work with.....they secured insurance authorization in no time flat. I asked if a Xiaflex prescription would be sent to a local pharmacy for me to pick up. "No" need they said as they keep Xiaflex in stock. Wow! It looks like this is not going to be a walk in the park as he described his regimen as military in nature which I took to mean post-injection modeling. Bodybuilders have a saying, "No pain, no gain" and that might be the case as well for Xiaflex modeling. Hopefully Tylenol and Motrin will take care of it.   

Quote from: Sebtp1973 on February 23, 2023, 01:00:43 PMThis doctor is very cautious and conservative. I read about Trost's more aggressive protocols, and want to give that a try.

Sebtp1973.

I second your post. I had a Urologist I thought was too conservative also.  Seems he just followed the ENDO protocol from the pamphlet. I went in on a Monday, and it was Friday before he did stretching in office. I mean, I was a week or so into the shots before he prescribed daily Cialis. Felt I wasted valuable time. Anyway, One set (two shots) from him and I decided to go the Dr. Trost route. So far it was a good decision. I have gotten great results (IMHO) from one round with Trost. (Jan 30) May not go for more rounds.

Of course like they say in this forum... everyone reacts different with this disease. Whichever method they choose to take.

I'm interesting. Can you say what your curvature was pre Trost and what it is now?

If I recall, Dr. Trost mentioned 45. But, I was not fully erect. The trimix shots didn't work on me, so he pumped me up with a saline solution.
I've been measured at 55+ degrees left with other urologists.
Now, after one round, without using a protractor, I would guess less than 20. I'm about 3.5 weeks out from my second shot.
I'll eventually send a pic to Dr. Trost. He said he'll measure it and give me the correction result.

Keep us posted

Just got back from Utah where I got Xiaflex treatment from Dr Trost. Excellent doctor. Today was day two, and he ripped the plaque during hand modeling. It was weird to feel/hear it. We both recognized it at the same time. Me with wide eyes, him with a congratulations.

More about my experience at a later date...

Sebtp1973:

I can only imagine how the feeling must have been! Curious to see if you felt pain during that manipulation or you had a numbing agent in your penis!

Didn't feel a thing. I was numbed up. He said I'd be in extreme pain if I wasn't numbed up.

It was great when it happened (and he was tugging for awhile and I didn't think it was going to happen). It's great because this usually means vast improvement. My member already looks a lot longer (Trost said people who get the rip usually gain an inch). So, we'll see what it does to the curve. Trost told me my job now is to make sure the tear doesn't heal, by doing traction daily. If it heals, if contracts again. So don't let that happen.

So, I flew into Salt Lake City arriving around noon Monday. Rented a car and drove to Orem, which takes about 40 minutes. My appointment was at three, so had time to kill and checked into hotel. Then drove to the clinic. Nice facilities in a nice setting.

Day one summary:

*Injected numbing agent.
*Took length measurements with ruler. 
*Teaches wrapping and traction methods. Will reiterate on Day 2.
*Always leave wrapping on, except once a day quickly replace it. Said penis can blow up in front of your eyes, so move fast when replacing. Says he'll replace day one wrapping for me tomorrow.
*Says all you have to do tonight is straighten your erection if you get one.
*Says urine leak age will be a problem, advises getting padding. I swallowed my pride and bought incontinence diapers after the appointment.
*Induced an erection with an injection. Measured the curve with a protractor.
*Located the point of maximum curvature. My curve goes up and to the left. Asked me which curve I would like to reduce the most. The upward is sharper and more noticeable, but I said the left one is uncomfortable for my wife. He said yes, the vagina does not expand as much left and right as it does up. Anyway, both curves will be addressed.
*injected the Xiaflex.
*Day one appointment lasted 45 minutes.

After I went to the store to get diapers. The erection medicine really kicked in by then. I was able to pull my shirt out in front to cover my "circus tent".

I went back to the hotel, and really needed to pee. After I was done and put my penis back in my pants, well...I wet my pants really good. It looked like I peed my pants. I brought some gym shorts, put a diaper on then the shorts, and washed my jeans in the laundry room at the hotel. Learned my lesson, I wear the diaper all the time as long as I am wrapped. The compression from the wrapping makes it feels like you are done, but there is still pee in your uretha that comes out when you put your penis away.

No discomfort or pain that night. Had some boners that I straightened out.

Day two.

*My appointment is at 12:20.
*Trosts assistant gives me laughing gas and numbs my penis.
*No erection on day 2. Trost comes in, takes the wrapping off, and finds the location using a ruler and measurements he took day one.
*He injects the Xiaflex.
*He grabs the head of the penis and pulls HARD (grabs it with the sheet so it doesn't slip out of his gloved hands). He pulls straight out and up and to the right. This is going on for awhile. We are talking, although he is pulling so hard at some points he is not talking and almost grunting like someone lifting weights at the gym. Then suddenly, "riiiipp". The plaque is torn apart.
*Both me and Trost are very happy. He says something like "you might be a one series guy". He says it's like how glass is cut, you score it first then break it. The Xiaflex at the point of maximum curvature is weakened there, then when he pulls, that's were it rips. His techniques are making more sense to me now.
*He said if I wasn't numbed up, that rip would have caused excruciating pain. I felt nothing, other than the sensation of it tearing.
*He said my job now is to make sure the tear doesn't heal. If it heals, it will contract. You disturb the healing process by using using a Restorex and hand modeling once a day.
*I need to keep it fully wrapped for three days (quickly changing the wrap once a day). Then for three nights after that, wrap at night while sleeping and in the morning while doing traction.

Best wishes for a "one and done" injection series. This is my experience and that of others will differ, however, early and aggressive use of Restorex seemed to be a major factor in success.

Quote from: Sebtp1973 on April 19, 2023, 01:59:15 PM*He grabs the head of the penis and pulls HARD (grabs it with the sheet so it doesn't slip out of his gloved hands). He pulls straight out and up and to the right. This is going on for awhile. We are talking, although he is pulling so hard at some points he is not talking and almost grunting like someone lifting weights at the gym. Then suddenly, "riiiipp". The plaque is torn apart.

This sounded so funny!!  ;D  ;D

Seems like in general you had a very good experience, wish you the best of luck, Dr Trost is awesome.

Quote from: richestorags on April 20, 2023, 06:38:32 AMBest wishes for a "one and done" injection series. This is my experience and that of others will differ, however, early and aggressive use of Restorex seemed to be a major factor in success.

Trost wants me to use Restorex just once a day and just straight,  no counterbending.

I think this is because we got the rip in the office. Without the in office rip, I believe the objective of Restorex would be to try to pull apart the plaque. But since that has been achieved in the office, the objective now is to not let the "wound" heal with a contraction.

Good deal. Yes I am Captain Obvious with this, however, compliance with what Dr. Trost says is recommended as he is a quintessential expert. Not to belabor the point, I am now one month post injections and am able to reach RestoreX length and counterbending gains that were inconceivable pre-injection. Every person is different and results will vary. Best of luck on your healing journey.

Thanks. Yeah, he said something like once a day so the wound doesn't contract, but not too often because it needs to clot.

For me, everything is under wraps and bruised and on the mend, so I can't make any assessment yet. Other than, it does look longer, but maybe the wrapping is making it look that way?

I can take off the wrapping tomorrow around midday, then only have it on at night for three additional days. He said have my supplies handy at all times, in case it starts to swell. But if all goes well, starting tomorrow, it's off until around 9pm. I put it on then and do hand stretching and Restorex. Then sleep with it wrapped. Then shower with it wrapped (the heat and steam can cause swelling), then take it off the rest of the day after showering. By Monday, I shouldn't have to wrap anymore (if everything goes right) and I can get rid of these sexy diapers.

Man, if I ever had to do this I don't know how.  Just reading it makes me a bit queasy, I will always read it though.  No offense!  Wish you the best, keep us updated.   

Everyone be well.

Quote from: Sebtp1973 on April 19, 2023, 01:59:15 PMThen for three nights after that, wrap at night while sleeping and in the morning while doing traction.

What do you mean by wrapping while doing traction?

Sebtb1973, thank you for your excellent report

Quote from: beaulieu1008 on April 21, 2023, 03:28:31 AMWhat do you mean by wrapping while doing traction?

It is quite feasible to do Restorex tracton while wrap. A thin layer of gauze goes on first and then Coban. Both will stretch and flex during traction. Dr. Trost recommended removing the upper makeup pad to allow for a bit more clearance.

Quote from: beaulieu1008 on April 21, 2023, 03:28:31 AMWhat do you mean by wrapping while doing traction?

It means, I will be wrapped part time starting today, and when I do traction (Restorex and hand pulling) it should be when the wrap is still on.

The injections punch holes in the penis, and will cause swelling and bleeding. The wrap compresses the penis, preventing blood from leaking and swelling. Without the wrap, because Trost does so many injections (and injects while erect), your penis would turn into a purple swollen eggplant. He said hematomas are extremely painful, and I wouldn't be able to do traction if I got one. Trost's wrappings allows him to go aggressive with injections and traction, without causing hematomas and excessive swelling and bruising.

When doing traction, it disturbs and pulls around the injection site, and could cause reignition of swelling and bleeding. So I am supposed to be wrapped when I do traction for the next three days. After that, it should be sufficiently healed where I no longer need wrapping, even while doing traction.

It's been two weeks since my Xiaflex treatment with doctor Trost, and maybe I should wait another two weeks before I give a final assessment, but here is my preliminary assessment.

Before I get there, first some background.

I began Xiaflex treatment with another doctor in summer 2022. This doctor does not induce an erection, he asks his patients to bring in a picture of their erect penis. He looked at my pic for three seconds and said 45 degrees. We got some improvement after the first series, and at the beginning of the second series he estimated the curve was 30 degrees. In total, I did three series with this doctor, with minimal to no improvement after the first series. Then I saw more pics of other people's curves on this forum and elsewhere, and knew my curve was way more than 30 degrees.

I did a free zoom call with Trost in January this year. He said I am eligible to be in a study of peyronies patients who did not get satisfactory results from the old protocols, to see if his protocols would work. He said I'd have to wait six months from my last series. My travel expenses would be covered and they would pay me $150 for my time. I sent Trost an erection pic, and he measured a 55 degree curve.

When I got there in person, he induced an erection and measured my curve with a protractor. This is the most accurate measurement. He said I had a 110 degree composite curve! 75 degrees up, 35 degrees left!

Anyway, what is my curve now, two weeks post Xiaflex treatment with Trost?

Pretty much Zero.

That's right, I'm ramrod straight now.

With a few caveats.

- [ ] There's no precise measuring going on, I'm just looking at it.

- [ ] Trost hasn't seen it yet, so this is my estimate. I see no curve at all.

- [ ] I have some residual swelling, which could be masking a slight curve. But even if that's the case, it would still have to be a very shallow curve. No where near the 75 up, 35 left curve I had pre-Trost.

- [ ] I look ramrod straight when I get erect , stand up, and look in the mirror at both sides, and when I look down.

- [ ] It's possible I'm not 100% erect. It looks like it is, but the residual swelling is giving me a lot of extra girth, making it look fully engorged. Trost says erections sometimes take time to come back fully, as Xiaflex is like "chemical surgery". I think it is fully erect though. I'm hopped up on tadalafil. Even if it is not 100% hard when I look at it, there appears to be a remarkable improvement in the curve.

- [ ] I do have some torque (which I had pre-treatment too), but that's not a big deal.

Other than that, the bruising is finally gone. I have no pain, including at the injection site. Other than some slight swelling, I am feeling fully healed. I'm almost tempted to try intercourse soon, even though I was advised to wait four weeks (two weeks from now).

I sent doctor Trost an email saying I look straight. He said congratulations! But keep doing traction as the body could rescar and sometimes people go 2 steps forward 1 step back.

I do have an indent on the left side, which looks no better or worse than pre treatment (let's see if I feel the same after all the swelling subsides). I'm also around 3/4 inch longer (bone pressed stretched). It looks visibly bigger now, both erect and not erect.

So, preliminarily, I am confident to say I got remarkable improvement from Doctor Trost's aggressive protocols.

My preliminary assessment is that I no longer have any curve, or if I do (see caveats above) it would have to be no more than 10-15 degrees.

I'll provide another update as time goes by, and provide Trost's assessment when I get it. He said I can send a pic in a few weeks or come back for evaluation. I might be in Utah for a business trip this summer, and may stop in his clinic for an in person final assessment.  His in person measurements are more accurate than picture measurements.

Looks like I'm a "one series" guy.

I would say several factors went into my successful outcome, but a major one, something I read was part of his protocol  but I didn't fully grasp the significance of until he did it, is inducing an erection and injecting at the point of maximum curvature. Because of that, he was able to precisely break the plaque apart exactly where it was causing my curve when he pulled on it right after the second injection (with about 20 pounds of force!).

He said guys in this study (guys with unsatisfactory results from other doctors using the standard protocols) are doing really well so far. He thinks the other doctor's treatments softened up the plaque a lot. Then he requires six months from the last shot before he does his treatment, and he thinks that healing time helps out a lot. So when he gets a patient like me, the plaque is already softer and loosened up, and responds well to his protocols.

His office is mailing me a check reimbursing my travel expenses plus $150 for my time. Not a bad deal.

That's awesome man, congrats. I sound like a broken record, however, RestoreX use seemed to be a critical factor in my treatment outcome. I still use it 30 minutes a day and what little curve was left after Xiaflex actually seems to be decreasing. This may be a poor analogy, however, as a kid I had braces for two years to correct an underbite and gap teeth. After the braces came off, the orthodontist was adamant about use of a retainer to preserve the correction, otherwise he was concerned that the problems would recur. That's how I'm looking at RestoreX with this situation....continue to use it and no going back to a bent d!ck. Rock on.

Doctor Trost responded to my email, and says I should continue doing traction for at least one month after I am completely healed to prevent recontracture. As I feel healed except for some swelling, I suspect I can stop in June, but might keep going to July.

I'm doing 30 minutes a day, straight traction. I graduated to the extension rods (thank you very much) and as documented on here, it is very hard to counterbend with the extension rods, because they get in the way. Further, I don't have a bend (thank you again) to counter. So I will stick with straight traction at least for now.

It's been over four weeks since my Xiaflex treatment by Dr Trost. I remain ramrod straight. From 75 degrees upward curve (plus 35 left curve) to a virtually zero curve. From that perspective, a huge success.

Now that the swelling is gone, I see a big dent on the left, and small dent on the right. Dr Trost told me the dents would become more prominent after straightening, and he was right. There's a narrowing I wasn't expecting. Girth is fine coming out of my body to about halfway down my shaft, then there's like a ring around the shaft, then it is narrower. Not sure anything can be done about that. I guess there remains some circumferential plaque. 

Big success, but I wish I had my pre-peyronies penis back.

I had intercourse, and it works. I was getting diamond cutter erections thinking about having sex with my wife when I had to wait the four weeks, but when the actual time came it took a little time to get hard. It's probably mental, worrying about my performance and if everything will work and if she'll like it and all that. I was always a guy that got a boner even before the clothes came off in anticipation of sex. But it did get hard, and intercourse worked, and both me and my wife got our Os. I take daily tadalafil and I get Diamond cutter morning wood, so I guess physically everything works.

Part of me has anxiety about the narrowing, and if that will be a problem over time. I will ask Dr Trost whenever he contacts me about follow up (I'm in a study , so he will need pics or an in-person visit to close the loop). Also, part of me is worried I'll get new plaques from intercourse if I'm not sporting a diamond cutter at all times. Probably all in my head.

Maybe I will post pics here some day.

I'd be interested to know if he thinks using RestoreX would help with the indents and narrowing as suggested by some on here and the study.

Since I had intercourse on May 15, I've had some (very mild) discomfort around my penis head. I'm hoping it's just irritation of the skin from the Restorex clamp. But part of me has anxiety that I have inflammation from the intercourse, and a new plaque will form. It's difficult to really pinpoint where the discomfort is coming from. When I touch it, I can not locate the location of the discomfort. Ugh, this blasted disease!

Part of me wants to take a break from Restorex to see if the irritation goes away. But, if you are developing a new plaque, traction is supposed to help mitigate the effects. So I guess I'll keep doing Restorex.

I remember in early 2022, I had some similar irritation, but no new plaque emerged. When I went for xiaflex six months later, the doctor felt only one plaque (which I got in 2019-2020).

When I first developed peyronies in 2019, I felt a dull pain in the ridge head after ejaculating. I remember googling the symptoms and hearing about peyronies for the first time. I thought it's not what I had, because I did not have a curve. Then one day in early 2020, I developed a curve.

There is a theory on this forum that inflammation leads to nee plaques. Is this true? Is there scientific proof for this?

The mental part of this condition can weigh heavily on a person.

I was ecstatic after my Xiaflex treatment from Dr Trost, when I first saw my erection following treatment. From a severe curve, to straight. It was still swollen at that point, so I didn't see the extent of narrowing/hourglassing/dents.

Since the swelling went away, I feel discouraged. The narrowing/hourglass/dent is disconcerting. I don't feel too bad about the aesthetic aspect of it, but worry about function. I did have intercourse since straightening, and it worked. So I think it's mental. And it makes me nervous about future sex, which may affect my erection, and it becomes a self fulfilling prophecy.

Last night, I wanted to test things out by masturbating. I had a semi, and the penis bent easily where the narrowing starts. I thought "oh no, a hinge!" I lost my erection and will to masturbate. I was up late searching "hinge" on this website, and feel exhausted today.

Do I really have a hinge? I don't know. And as I said, intercourse worked since I had my Xiaflex treatment. And the narrowing was probably there pre-treatment too, and intercourse worked then. Trost said the dent and any hourglass becomes more visible post straightening.

Plus, as I state elsewhere, I'm a little freaked out by some minor discomfort in and around my penis head since intercourse.

From ecstatic to anxious. Ugh.

Quote from: Sebtp1973 on June 01, 2023, 02:56:28 PMI was ecstatic after my Xiaflex treatment from Dr Trost, when I first saw my erection following treatment. From a severe curve, to straight. It was still swollen at that point, so I didn't see the extent of narrowing/hourglassing/dents.

Ask Dr Trost wether you might be a candidate for Extra Tunical grafting. Sorry to hear about your current predicament but remember to take Sildenafil or Tadalafil prior to sex now so that you are assured you have the best possible erections during sex. Weaker erections or hinging will defitnitely make matters worse.

If sex worked, great! That is a positive and nothing you should be anxious about. Just make sure you take oral meds to make sure you have the best erection quality to try avoid further damage. Whatever happens you have possibly the best Peyronies specialist available in the world to visit and do follow ups. He will definitely be sure what your next step would be.

I read on here that Trost thinks extra tunical grafting is merely cosmetic and offers no structural support.

I don't think I'm to the point of needing surgery or any another procedure. Like I said, a lot of this is mental.

I have to remind myself that sex worked, so calm down. I also read on here that dents/hourglassing/narrowing gets better over time, albeit at a glacier pace. But that means it usually doesn't get worse. So if my penis works now, and it likely won't get worse, even a little better, maybe there's nothing to worry about.

Yes, this is the right attitude to have. The truth is sometimes it's even out of our control if it gets worse or not some men abstain from any sexual activity but end up worse so when things are working we should always be happy and try to relax. If I am not wrong the xiaflex at least significantly lowered your curve and that is a big plus.

Dr Trost responded to my email, and I feel better. First, he highly doubts I am developing a new plaque, it's fairly rare and when it does occur it usually takes years.

He said rigidity and stability will improve over time as the penis further heals. He did say narrowing is due to lost tissue from Peyronies Disease and that's not coming back. He said if it's bothersome , I could get the extra tunical grafting, which is a minor procedure, but it's mostly cosmetic and doesn't restore lost erectile tissue.

That's ok, as long as my penis is functional, which it has been and sounds like it will continue to improve further. Intercourse with my wife felt damn good for me and for her.

The aesthetic aspect is less of an issue. It doesn't look too bad, and my wife doesn't study my penis, she just wants it in her. I've had girlfriends in the past who were "penis centric" who'd look a lot at my penis and enjoy the aesthetics, but my wife is not that way.

Interesting information....I too was concerned about plaque recurrence and it's a relief that Dr. Trost finds that circumstance rare. Same thing about rigidity....I've got some hourglassing and my unit doesn't get as as hard as it used to. Wonder if it's now safe to being using a VED for rigidity purposes?

I too have some hourglassing after getting straightend.  Not too bad. Hardly notice it. But, it's there. It doesn't interfere with intercourse. I don't feel it's a weak spot either.
I will say one thing. It sure is a LOT better going "straight" in, rather than angling myself to enter her. And I don't have the worry of hinging like I did when I was bent. Much, much better sexwise. Physically and mentally.

Quote from: Sebtp1973 on May 02, 2023, 10:00:18 AMIt's been two weeks since my Xiaflex treatment with doctor Trost, and maybe I should wait another two weeks before I give a final assessment, but here is my preliminary assessment.

Dr Trost asked me to send pics to follow up my case, a pic from each side and from the top.

He replied with his measurements. He said zero degrees from one side, and 10 degrees up from the other side, and he measures 10 degrees left from the top pic. I think that curve is from the dent on my left side where the plaque was.

He called it a vast improvement from his pretreatment when I was 75 degrees up and 35 degrees left, and we are done.

That is indeed a remarkable improvement. Probably one of the most successful stories on xiaflex on this board.

Quote from: Sebtp1973 on April 19, 2023, 01:59:15 PMSo, I flew into Salt Lake City arriving around noon Monday. Rented a car and drove to Orem, which takes about 40 minutes. My appointment was at three, so had time to kill and checked into hotel. Then drove to the clinic. Nice facilities in a nice setting.

I went back to Utah for a one year follow up with Dr Trost. I am participating in a study (I believe funded by Endo, the maker of Xiaflex)so I get free medical care, all my travel expenses reimbursed, and $150 for my time.

In this visit, Dr Trost assistant measured my flaccid penis at 20 cm, and he said last year it was 17.75 cm. So, I think I gained about an inch. Then the assistant gave me a shot to make me erect.

Dr Trost then came in and measured the curve. There was no or minimal curve from some angles. The largest curve he could measure was 17 degrees left, which is well within normal range. I wasn't fully erect, and he said it'd be even straighter if more hard. I always had a left curve , so back to normal.

He said my hourglassing and denting is minimal. He said last year it was moderate. So that improved in the past year. He said he wouldn't recommend extra tunica grafting because the dent is mild.

He said the study is showing that the optimal protocol is what I went through. A couple rounds of Xiaflex with gentle modeling, then wait a year of healing, then do another round with Trost style aggressive modeling. He said the median curve improvement in the study is 99%. So, pretty much full eradication of curves for at least half the men. He said he's getting better results in this study than when he does aggressive protocols in the first round. He thinks the softening up in the first couple rounds and the year of healing, sets you up for a big fix once you resume with aggressive protocols. 

Quote from: Sebtp1973 on April 05, 2024, 06:08:34 PMHe said the median curve improvement in the study is 99%. So, pretty much full eradication of curves for at least half the men.

Those are absurd results. Incredible

Sebtp1973:

Thank you for sharing this with us. Dr Trost goes above and beyond in his craft. And if he sticks with his normal course of action, a study on this when later be published that hopefully other healthcare providers will read and see the value in.