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#1
Introduce Yourself / Re: Photos Of Hard Bands on sh...
Last post by Ukguy1234 - Yesterday at 10:04:47 PM
Thanks for the reply. Has taken me a while to get used to the website.

Oh I have been educating myself quite thoroughly. Having since become much more aware of Finasteride's downsides, I have stopped using completely. (I think hairloss companies and dermatologists really downplay the risks, which is misleading)

With the injury I mentioned, I had no pain and no snapping sensation. I've a had a few mis-thrusts / slipouts over the years, as i suspect many men have but I never recall pain, during or after.

The urologist I saw was a peyronies specialist and said the ultrasounds, particularly when flaccid are not reliable.

I showed him pictures of my penis erect, pointing out both the elevated bands and areas of indentations but because it is mostly straight, he more or less shut the conversation down.

It might be a bit cynical to suggest this but I am not currently a case that would warrant surgery or implants, which is an area he specialises in, he probably lost interest, knowing he wouldn't make any money from me.

His stance overall was that supplements were useless and that even if I did have peyronies beginning to form, given the way my penis looks/feels at the moment, the way he would approach treatment would be exactly the same.

He did show me the Restorex device, which is $1,400 where I am located but again said that in my case, it wouldn't provide much benefit, given the lack of an excessive curve.

So I'm taking 5mg of Tadalafil and being much more cautious during sex/masturbation for the time being. I have a follow up appointment with him in 3 months, where I intend to be a bit more persistent with my questioning.

One thing I am not clear on is the difference between fibrosis and peyronies. I've read in multiple sources that circumflex veins, like any vein, can experience microtears and become thickened or more fibrotic once healed. If this  is true, it would make sense that this could be what I have, given the location of the bands.

Will look into VED therapy, though I was under the impression that was more for ED.

Anyway, apologies for the slight ramble and thank you for reply. Much appreciated.

Cheers
#2
Introduce Yourself / Re: Photos Of Hard Bands on sh...
Last post by Mikel7 - Yesterday at 07:45:55 PM
Welcome UKguy1234 to the forum and thank you for filling out your signature line. You can also Survival Guidedownload our survival guide here -->.

My first comcer is you taking Finasteride as it can cause horrible hormone lowering problems in a lot of men. Yes there is even a forum totally devoted to the drug and men seek out recovery from it. Some men have to go on testosterone replacement. Hopefully your is not the case.

The injury that you describe, was there pain? Was there any sharp noise like a snap? Your Dr says that he can't feel any bands but that the ultrasound reveals peyronies.

Your photos do show some king of an elevated band outwards but not inwards. Usually banding with peyronies is a narrowing. You need to look into traction therapy possibly or VED therapy. You just don't want to make things worse. Usually peyronies starts and causes deformities, this is called the acute stage. You need to educate yourself about peyronies because sad to say most Dr's are not experienced with it nor do they treat it correctly. Are you happy with your DR?

As we have all been down this road you need to keep the mindset that this is a marathon and not a sprint. Educate yourself by reading the survival guide and the fourm.  :)

Mikel7



#3
Introduce Yourself / Photos Of Hard Bands on shaft ...
Last post by Ukguy1234 - Yesterday at 06:02:03 PM
I wanted to know if anyone else had something similar to the below photos:

https://ibb.co/3Y5vkhrV
https://ibb.co/SX0CSVj7
https://ibb.co/jk4LxV5F
https://ibb.co/d4knxQ3T
https://ibb.co/zHQ7cbzK
https://ibb.co/bgm9tZXX

Ultrasound reported "Peyronies Banding" but Urologist said he couldn't feel any plaque and brushed off the photos as just veins.

However, these veins do not look or feel right and appeared after a mis-thrust during sex.

They feel firm under the skin, when both erect and flaccid.




#4
Is there such a thing as a prescription VED?
#5
Update:
I was able to get a prescription for trazodone through a website by downloading my ID, answering some questions, and doing a 15 min zoom call with a nurse. Their website says they prescribe it for sleeping problems, therefore, since I've had sleeping problems anyway, I didn't lie to get the prescription even though the main reason was to get NTE's.

I received 50 mg pills and the nurse said to cut them in half because 50 mg is the lowest dosage available. I've been taking the pills for 4 days and not a single NTE since then, however, I've slept the best I've ever have...knocks me out within 15 min, and I wake up less to go to the bathroom and go right back to sleep...sleeping like a baby, and I feel fantastic during the day, so kind of a blessing in disguise. Some research I did on this...

"In patients less than 60 years of age, with no known risk factors for erectile dysfunction, 21 of 27 (78%) showed significant improvement in erectile ability. Smokers and patients older than 60 years with a history of significant peripheral vascular disease responded poorly to trazodone therapy. The duration of erectile dysfunction was inversely related to a response to trazodone. Of patients with a duration of impotence less than 12 months, 48% reported a positive response. Only 16% of patients with duration of erectile dysfunction greater than 60 months reported improvement in erections and sexual function."

How the above pertains to me: I am 63 years old. I was diagnosed with heart disease 15 years ago after having an MRI. My Peyronies Disease started in 2012 and the subsequent ED. I had a CT scan of my heart recently and waiting on evaluation from my cardiologist as to how much the CAD as progressed, therefore, idk if it is significant or not.

Then I researched studies on other options than trazodone alone:

1) "In most patients with good sleep efficiency and who have erectile dysfunction, sildenafil, rather than a placebo, taken at bedtime produces a significantly improved nocturnal erectile activity."

2) "A combination of trazodone with sildenafil has been used to overcome both organic as well as psychogenic components, thus improving the results of medical management.

Trazodone has been studied as a single oral agent for treatment of ED with variable results. In addition to the peripheral action on penile blood flow, trazodone is also known to enhance the libido through its effect on brain. However, the dose at which trazodone alone has been shown to be useful is rather high, more than 200 mg per day, with drowsiness as a major side effect that limits its routine use in cases of ED. The dose of trazodone used in this study is significantly lower than the standard recommendation for use as a single agent in cases of ED in order to reduce the side effects while utilizing its antidepressant property."

As powerful as taking 25 mg of trazodone has been for me, I will not try 200 mg to see if I get NTE's.

My options are either to try viagra before bed or a combination of viagra (maybe 25 mg) and 25 mg of trazodone. I am reluctant to ask the nurse who prescribed the trazodone her opinion on dosage of this combination because she prescribed it only to improve sleep quality, and I'm not able to ask my primary care doctor because she refused to prescribe trazodone (said I wanted it to improve NTE's).

Suggestions?
#6
Surgery for Peyronie's Disease / Re: Plication
Last post by memnoch - Yesterday at 05:31:10 AM
I'm hoping that I at least get scans. I would think that information would be used to determine if I would be a candidate for this surgery. And if not, the scans might help with a different course?

Just not sure what to expect.

I have always felt that if you visit a surgeon, the answer will be surgery. If you see a shot Dr, the answer will be a shot. It's too bad there isn't an expert that doesn't do any of the solutions, but can reccomend the best one for the individual and refer to that Dr.
#7
Don't know where else to put this. Pads are a must comfort item. I learned that putting a dab of sex lube on the frame where your penis hits as you bend it over relieves skin pulling problems. Much more comfort.

Due to my thicknes I can't bend a lot. I found that a 1" roll of gauze put between the penis and frame that is supported by another roll of gauze under it provides much more comfortable stretching.
#8
Quote from: BentKnob on March 23, 2025, 09:52:05 AMHave you got peyronies or are you just worried about it?

I'm also from the UK in England.

I developed peyronies disease after a year of vigorous sex.

I use to take high doses of Tadalafil & Sildenafil and attend sex parties where I would have sex for hours on end with multiple women with a prolonged erection.

Since then I take lower doses of ED medications and don't push myself for too long or too hard.

I call it a night a lot earlier.

Unless you have peyronies disease I wouldn't worry about developing it unless you are pushing yourself hard in the way that I did.

Hope that's been useful.

I don't think I have Peyronies but I have congenital curvature, my penis curves to the left, but it has done that since I was a teen. I wandered why my penis curves and I googled it and stumbled across Peyronies and I have been worried ever since.

I have bad health anxiety and just been worried about losing the function of my penis.

Anyways I sleep without my boxers in my bottoms however my girlfriend sometimes puts her leg on me and sometimes im erect during the night and I'm worried she has or will injure my penis so unsure how to sleep. I believe once your penis is bent it's more likely of getting Peyronies as it can bend in the direction of the curve. So yeah I'm just really worried about getting this disease
#9
Xiaflex Injections / Re: xiaflex with Dr. Trost wit...
Last post by Lookin Up - March 23, 2025, 05:55:47 PM
1. Call Dr Trost and ask him if he has different wrapping protocols
2. The additional chaffing and ulcers that can form due to direct coban tape contact don't help healing time. The swelling in the foreskin is tricky to manage (4 full weeks for me on my third round). It's assumed the Xiaflex itself behaves the same in cut and uncut applications.

Obviously the counterfactual is hard to run, and each patient/doctor pair will have a different process (e.g. at Dr Trost, the injection on day 2 is done wrapped).

YMMV
#10
Xiaflex Injections / Re: Xiaflex - Recommended Dr.
Last post by BentKnob - March 23, 2025, 03:05:29 PM
This is all very helpful.

I'll be having treatment with Dr Amr Raheem for collagenase injections. So I'm not entirely sure what his protocol is.

I'm aware of Dr Landon Trost being the leading doctor in peyronies disease and the creator of RestoreX.

I have a consultation this Tuesday with Dr Amr Raheem so will ask him about the aftercare after collagenase injections and report back here.

I will keep everyone updated and hopefully those in the UK will have an insight into treatment here regarding injections.