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Other Peyronies Disease Discussion Boards => Open Questions or General Comments (that won't fit under any other topics) => Topic started by: csm101 on March 09, 2016, 08:16:08 PM

Title: My Story update
Post by: csm101 on March 09, 2016, 08:16:08 PM
Hi all, Just thought I would share an update. When last I left i was waiting for my first Uro appt. Well that was yesterday. Good Dr. I had him when I needed kidney stone surgery. After his examination and U.S results he confirmed PEY. >:(, but at least he was very honest and said the PEY isn't his cup of tea and will refer me to a Dr in the Hamilton Area (Ontario). I now have a appt with this new Dr. on March 23rd. I did a little investigation and this Dr. has a horrible reputation however this Dr. is mentioned on this site as a "expert" I will have a open mind when I see this Dr. and report back.

So far the pain is killing me... to the point I want to cut it off. >:( Doesn't matter what I take nothing helps. My GP gave me Tramadol XL (which makes me a zombie and twitchy) and Ty#3  Anyone else have this issue?
Title: Re: My Story update
Post by: csm101 on April 01, 2016, 04:50:12 PM
More update.... Comments welcome.

Ok, I saw the Uro in Hamilton, Ont and I'm on the PETOX, Cialis 5mg daily low dose and a Med for gout which is also suppose to help but the name slips my mind right now. I'm also starting VED protocols  as well. I getting a T-rone blood test done and see him again in early May. I'm still having very painful spasms at the plaque site anything else I should do? BTW I have the constriction type PEY. Hourglass when erect and I've already lost 1/2 inch in length since Dec.
Title: Re: My Story update
Post by: NeoV on April 01, 2016, 09:26:44 PM
Sorry to hear about this. Are you attempting to have sex it masturbate? That's good your are trying pentox and cialis. Doing anything else such as traction? What does your uro think about the origin of your pain, could it be vascular or is it directly on or near the scar tissue?
Title: Re: My Story update
Post by: Pfract on April 02, 2016, 02:52:27 AM
Did you saw Dr Greenspan by any chance?
Title: Re: My Story update
Post by: csm101 on April 03, 2016, 02:18:56 PM
Yes I'm seeing Dr Greenspan
Title: Re: My Story update
Post by: csm101 on April 03, 2016, 02:21:19 PM
No idea I wasnt to impressed with my Uro so far. I'm fighting pneumonia for about 6 days so im not really keeping up with the PAV stuff. I have a vac device going to work with that tomorrow.
Title: Another Update
Post by: csm101 on November 11, 2016, 07:54:42 PM
Well here's another update with my progression.

I saw Dr. Gerald Brock on Monday and let me say that he's the real deal for guys in the GTA. He spend 20 mins with my wife and I and told me I would be a good candidate for surgery. I forget the type again, its the type with the cross hatching cuts made into the plaque. I go for a colour ultrasound in late Jan 2017. then is all goes well surgery by late spring!!! I'm super happy
Title: Re: Another Update
Post by: james1947 on November 12, 2016, 02:16:56 AM
csm101

I am sure that many forum members are interested to know how is your progress, the problem is that opening each time an other progress topic not helping to understand.

Hope some moderator will merge your topics

James
Title: Re: My Story update
Post by: csm101 on November 12, 2016, 07:22:53 PM
Ya sorry Your right...  I will just update this thread from now on
Title: Re: My Story update
Post by: csm101 on January 15, 2017, 08:27:11 PM
Well tomorrow is the big day for another colour doppler ultrasound. Fingers crossed .... I will update tomorrow.
Title: Re: My Story update
Post by: csm101 on January 18, 2017, 09:46:04 AM
Update..

On Monday I had my Doppler Ultrasound.. test was good. Blood flow on both sides are good. Surgery date booked for June 29th... Yeah!!!