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Other Peyronies Disease Discussion Boards => Open Questions or General Comments (that won't fit under any other topics) => Topic started by: Keith Walts on January 26, 2019, 02:38:45 PM

Title: Best Diagnostic?
Post by: Keith Walts on January 26, 2019, 02:38:45 PM
So on the 11th I'm going to see a specialist who apparently sees a lot of cases of Peyronie's. I was feeling optimistic that an ultrasound could give me a 100% correct diagnosis and the case could be closed, one way or the other. However, after further reading I'm seeing now that it's possible for the ultrasound to miss abnormalities, especially if one is earlier on in the disease process. Furthermore, the idea of having an injection into my penis for an erection is something that I definitely DO NOT want to have happen right now considering some of the horror stories I've read. From some of what I've seen, the doppler ultrasound tends to require an erection, though other sources say that it is done flaccid?

So if anybody has any input on what they feel are the best diagnostics for Peyronie's, I'd really appreciate it. I'm hoping that the doctor knows what he is doing, but it can't hurt to have names of other diagnostics just to bounce those off of him and see what he thinks. Lastly, do all diagnostics require the artificial erection? Because that honestly is very concerning to me.
Title: Re: Best Diagnostic?
Post by: tonyode on January 27, 2019, 05:03:13 PM
The diagnostics for peyronies is really a physical exam. Many but not all doctors also do ultra sound as well,to,see if any calcification has set in. Xiaflex doesn't work on calcification. I am honestly not aware of any other diagnostics other than the above and I have done a tremendous amount of research....but certainly no expert. The shot to give u an erection for the ultrasound was honestly no big deal nor was the one to get rid of the erection. I have been through round one(2 shots) of xiaflex thus far and was not near as bad as I anticipated. Second shot was actually a breeze. I feel I had minor improvements from round 1. Trust the uro if u feel he is knowledgeable with experience. Mine has been great so far. But he is my second one as the first one basically did nothing , offers nothing and told me to return in 6 months. Good luck!
Title: Re: Best Diagnostic?
Post by: Alibaba on January 28, 2019, 09:27:58 PM
Am I missing the simplicity of it?  Isn't a simple definition of Peyronies a bent dick? Any diagnostics would be to find the cause or define treatment. I think Peyronies can be diagnosed from a photo and palpating the penis can tell as much as some imaging. I don't think 1 injection will cause you any major harm and might give some insight into blood flow. It is doubtful a doctor will sit around while you look at porn and play with yourself to get it erect to examine that state. 
Title: Re: Best Diagnostic?
Post by: Bubba dawg on January 29, 2019, 05:53:03 AM
Bent or deformed in some other way that you were born with. Several types of Peyrones. Hour glass, dents, bends, kinks. Mine was preceded by pain before it curved, thinned and shortened. The pain went away. The results stayed
Title: Re: Best Diagnostic?
Post by: Christopher1 on January 31, 2019, 09:12:13 PM
5 or 6 Trimix injections caused my Peyronies Disease.

My urologist did not warn me.
Title: Re: Best Diagnostic?
Post by: Keith Walts on February 01, 2019, 11:23:03 AM
Thanks for the heads up Chris, yeah I'm gonna see if I can try and get it done flaccid

I'm really sorry to hear what happened man : ' (
Title: Re: Best Diagnostic?
Post by: TonySa on February 01, 2019, 07:57:45 PM
I understand flaccid is fine for visualizing the plaque or calcium, but the erection is induced to assess venous leakage if you have Erectile Dysfunction.
Title: Re: Best Diagnostic?
Post by: Christopher1 on February 02, 2019, 04:35:43 PM
No problem man. I am doing much better with the modalities I have written about on the forum.

And Tony is right. I advise against it, but the reality is that no urologist can diagnose you if you refuse the Trimix. This is how they can see a venous leak in a standardized manner.