Hi, guys. I'm posting another message here in the intro section because my situation keeps changing and I'm very confused. If you look at my profile, you can read my previous messages from 13 years ago when I first had this problem and my most recent posts after the problem returned again.

First, a recap. 13 years ago, I discovered a hardened area on my penis a bit behind the head that seemed to arise from penile trauma. Basically, my partner clamped down on my penis very tightly for a long time which felt good at the time but when I looked at my penis in the mirror in the bathroom afterward, it looked very pale and thin like it had been "crushed" or even partially strangulated. It quickly returned to its normal form but a few days later I noticed the hardened lump on top which extended a bit around the sides as well.

I went to a urologist thinking it might be Peyronie's. I had no curve but it sounded like the closest thing being a hard lump from sexual injury. He said it didn't seem like typical Peyronie's and was concerned it could be some kind of cancer which didn't make any sense. I went through a bunch of tests: a catheter in my urethra to check my bladder, an ultrasound, an MRI and eventually a biopsy which came back negative and also showed "no signs of calcification."

The doctor still wouldn't officially diagnose me with Peyronie's but still gave me a prescription for Pentox which I only took for about a month and then stopped. Then after a period of sexual abstinence, the hardened area started getting softer and eventually went away on its own after about a year of so, which I understand is quite rare for Peyronie's.

12 years later (around March of last year), the problem came back in basically the same form although not quite as extensive. I hoped that it would just go away on its own again however, stupidly, I didn't abstain from sexual activity this time and continued to re-aggravate the area a couple times every month or so with sexual activity. I finally got around to seeing a urologist again back in December and was given a diagnosis (sort of) of Peyronie's basically because I said I thought that's what I had. The doctor could feel the hardened area and I was given a prescription for Pentox again which I started taking.

I really hated the side effects of the medication so I cut the dosage to 2 times a day instead of 3. Then 3 weeks into taking it, something strange happened. I decided to try to have sex again (which I probably shouldn't have) and when I got erect, I noticed an upward curve in my penis for the first time. This was about 9 months after this problem had returned after going away for 12 years. In all those 9 months, I never noticed a curve and it was only after taking Pentox for 3 weeks that this happened. I stopped taking Pentox and have basically been scared to get an erection or try to have sex since. I still get partial erections from time to time and with those there's maybe a slight bit of curvature that I'm not sure is much different then how it had been the previous 12 years. For some reason, the Pentox seemed to make things worse. Maybe the effect it had on my blood caused the blood-flow in my penis to be different and that's what did it? I don't know but it's strange and another reason why I wonder if this is even Peyronie's.

Here are some other reasons. Like maybe 8 years before I had my first episode of this problem, I had thrombosis and sclerosing lymphangitis of the penis. I'm sure this was due to the penis englaregment practice of "jelqing" I had done from time to time. I went to the doctor and was diagnosed with Mondor's Disease and told to abstain from sexual activity which I did. That problem went away on it's own as well. When the problem was bad, one thing I would notice was pain in other areas of my groin, perhaps from the blockage affecting lymph channels and lymph nodes. It felt like things weren't flowing properly or something. That problem went away after the thrombosis and lymphangitis cleared up. My experience with that made me think my first bout with the mysterious hardened area could have been some form of that returning which would kind of make sense since the problem eventually went away on its own as well which is unusual for Peyronie's.

So now I'm wondering again if this current problem I'm having could be the same thing. I'm experiencing the same pain in areas of my groin that I would get with the thrombosis/lymphangitis. And in those intervening 12 years, I had been jelqing again on occasion. And the same thing seemed to precede the appearance of the hardness, my partner (same woman) squeezing my penis tightly and seeing the same temporary pale/thin reaction of my penis afterward which again eventually went away, with the hardness appearing after.

Another reason why I wonder if this might be a lymphatic issue instead of Peyronie's is that from what I've read, one way they treat stubborn lymphoceles that don't resolve is by draining them with a needle. Back when I had that biopsy done almost 13 years ago, they first used a fine needle but couldn't get enough cells so they used a larger needle and had to do it twice to get what they needed. I didn't look at what they were doing but when they used the larger needle, I heard the doctor's assistant ask "What's that?" and the doctor replied with something like "That's just fluid from the -----" and I couldn't make out the rest of what he said. I never asked him about it but I wonder now if he may have inadvertently caused a blockage of lymphatic fluid to start draining. Because it was only after that biopsy that the hardened area began to soften and eventually go away completely after many months.

Does that theory make any sense? Another thing is that the hardened area is a sort of small lump on the top side of my penis more toward the head end on the shaft and extending down and around either side a bit. I can also feel something almost like a hardened cord extending from that lump toward the base of my penis, which seems more like a lymph channel or something?

When I made my last urology appointment, I had to cancel and reschedule a few times because things kept coming up which caused me to end up with a different doctor than the one I originally scheduled with. It was a female which I wasn't really happy about but I went to her because I felt I'd waited too long already and just wanted to see someone. I told her about what happened after taking the Pentox and she couldn't make sense of it. I also asked if I could get an ultrasound to see if it picked up any plaque or calcification and to see the extent of the hardened area because the shape of it is confusing. She said because the results wouldn't change her course of treatment she would not give me an ultrasound, calling it an "unnecessary test." Well, I definitely do think it's necessary, especially since I'm not even sure if this is Peyronie's anymore. And regardless, I do want to know if something shows up and if it can give me an idea of the size and shape of what we're dealing with here.

Can anyone give me any advice on how to advocate for getting an ultrasound? Is there a scientific paper that shows it's important to get one for a diagnosis of Peyronie's Disease? I'm being seen at Kaiser so I know they can be a pain sometimes about these things. Although last time I was with Kaiser as well and they had no problem giving me an ultrasound and an MRI (but then they did think it could be cancer at the time).

I definitely want to switch to a different doctor at least. I'd rather see a male, first of all. And secondly, this lady doctor takes a long time to respond to my questions and is now denying my request for an ultrasound.

What I want to determine is if this is indeed Peyronie's or something else like a lymphocele or lymphangitis because the course of treatment would be diametrically opposed depending on what it is. A lymphatic issue would require complete abstinence and "doing nothing" like I basically did last time. But with Peyronie's, people here always say that doing nothing is not recommended and taking action through medications, etc is very important or else it will get worse.

OK, that was quite a long post but I just wanted to include all the details to get your take on everything. Thanks for reading the whole thing if you did. Please let me know your thoughts. Any advice and info would be greatly appreciated!

Hello Fortune,

I suggest you to check out my Restorex logbook here on the forum under the Traction topic: https://www.peyroniesforum.net/index.php/topic,20885.0.html
I posted some pics also. I had a clear length gain from RestoreX use (I don't know exactly but you can judge from the pics), apart from a 34° gain (from 47° to 13°). I think I even can get to 0° back as before. I'm considering doing a 3-4 months session again.
I'm still using VED everyday because of hourglassing.

Best of luck. You can clearly get that disease fixed !! Trust me!

Quote from: Ukguy1234 on January 18, 2026, 06:11:40 PMI am assuming you have lost length? When the tunica shortens, it bunches up in areas where the plaque is, which is why it feels like there is excess skin.

I forgot to say that the second time I went to the urologist, I told him that things were progressing, i.e. there was a loss of volume, distortion and excess skin. He claims that he doesn't see any loss of volume, but otherwise where would this excess skin come from? When I read the forum, however, I see that other people are also complaining about loss of volume, length, thickness, but excess skin is rarely reported/seen in their photos.

I would imagine recovering lost & length girth is different than trying to gain it from scratch. Some claim they recover some lost size with stretching, it would make sense but it seems such a painstaking and longwinded process which requires people to have nothing to do all day!
This is so depressing. I have gone from normal 6 inches to about 4.5 with lost girth. I have looked on these boards for some positives but I don't see any recovery possible. 

The only thing I recall about skin, was regarding a bump near the glans from prolonged restorex usage and not on the scrotum... I agree with that they said on the surgical correction of the webbing. As for the plaque, you lose nothing by trying restorex while the disease is in the chronic phase.

I am assuming you have lost length? When the tunica shortens, it bunches up in areas where the plaque is, which is why it feels like there is excess skin.

Hello,

Last year in May I developed severe neuropathic pain in the penis and testicles. At the time, I attributed it to a penis ring that I occasionally use during sex. After a few months, I started to feel a very hard band on the left side of the penis, starting from the base and extending upward to just below the glans, especially noticeable during erection. Initially there was no curvature, so I visited a urologist, who told me that this was Peyronie's disease — a sclerotic plaque.

The plaque is approximately 3–4 cm long and about 1.5 mm wide. Over the past few months, in addition to curvature and pain, I have noticed a significant amount of excess skin at the base of the penis when flaccid. During erection, the excess skin is less pronounced, but it still appears wrinkled or folded.

I visited a urologist again, and they suggested starting physiotherapy. Regarding the excess skin, they said it could be corrected surgically, while removal of the plaque itself would require waiting until the disease reaches the chronic (stable) phase.

Has anyone else experienced a similar issue, particularly significant excess skin?

Quote from: Contenerne on January 17, 2026, 10:34:59 AMWhenever I need a quick chat break I jump on omegle tv. It lets me meet random folks, swap stories, and pick up new slang without any hassle. I've made a few solid connections there and it's a chill way to practice talking to strangers when I'm bored.

Omegle is a sex chat website. I suggest you remove this comment. Its not welcome here.

none

Whenever I need a quick chat break I jump on omegle tv. It lets me meet random folks, swap stories, and pick up new slang without any hassle. I've made a few solid connections there and it's a chill way to practice talking to strangers when I'm bored.