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 1 
 on: Today at 10:08:19 AM 
Started by Event_Horizon - Last post by pfract
Hey Event. I don't remember hearing your story, but you say that you are a week out from your appointment with Dr. Levine. It is very good that you are working towards addressing your problem.

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Once the erectile dysfunction started, it was like my body and my mind officially went to war. My body hates my mind for giving it an injury to heal, and my mind hates my body for its dysfunction. This is an internal struggle that I can't see resolving. Neither side wants to give a millimeter. Every erection I attain is simply to check to see if anything has gotten better or worse. The pleasure is gone. It's all just a test, and I can't pass.
So that's it. I am officially broken. Everything from here is rebuilding from ashes. There's no foundation. There's no drive. Can a man rebuild a life from this? Can I become the happy man I once was? I'm 24 and I'm not ready for this to be my life. But I'm losing the strength to fight.

This was the part that made me think the most about your post.  I had some very similar feelings to you back when i fractured my penis in August 2014... I was for weeks lying in bed all dark in my room just crying.... only having energy to go to work and then repeating... i was self loathing so much i did not even wanted to shower.... but i slowly with the help of my family climbed out of the hole somewhat and decided to start taking steps to address my problem. It was very hard throughout the years with a lot of ups and downs but it is paying off. I understand your feelings. I really do. There's so many feelings and emotions that are shared when suffering with Erectile Dysfunction no matter the root cause...... This board has helped me immensely... i hope it can do the same for you too. There are solutions for Erectile Dysfunction that make it very manageable and most important thing is to not ignore it and pretend it's not affecting you deeply....



Recently somebody recommended this website to me: https://www.betterhelp.com/
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BetterHelp is the largest online counseling platform worldwide. We change the way people get help with facing life's challenges by providing convenient, discreet and affordable access to a licensed therapist. BetterHelp makes professional counseling available anytime, anywhere, through a computer, tablet or smartphone. 

I plan to try it out soon. I hope you find some help there.

 2 
 on: Today at 09:43:12 AM 
Started by JohnVermont - Last post by pfract
Hey John. Thanks for sharing this with us.  I'm also going to be using the device in a while again to try to get the hang of it.

In the most straight way possible, is there any chance that you could share some pictures with us of the way you are using the device right now?

 3 
 on: Today at 09:22:16 AM 
Started by Hawk - Last post by Hawk
BenRayCamp,  I fully understand that Dr. Trost would say that he thinks there is no evidence that any supplement works.  I do NOT believe he would tell men they should not take CoQ10 of vitamin E or a multi-vitamin.  In the same vein, he probably does not think stopping smoking helps Peyronies Disease but he would never advise against stopping tobacco use.  There is a clear difference between thinking something has no strong evidence of helping Peyronies Disease and saying doing that "is not worth it".  Hopefully, you see the difference between those two statements.

An ineffective drug is often "not worth it" because they usually have a cost in terms of side-effects.  That cost makes them "not worth it".  Supplements have no such cost.  To the contrary, most have side benefits.


 4 
 on: Today at 09:17:57 AM 
Started by Curvekiller94 - Last post by Willyspu
I think what the OP is suggesting would be similar to wearing braces on your teeth. 

Except instead of a flexible fleshlight maybe it would work better with the VED pump gradually using a more narrow cylinder as you pump to slowly straighten the curve.

 5 
 on: Today at 07:05:39 AM 
Started by Curvekiller94 - Last post by mikel7
No , nada, nein, ochi, non,  nej,  nee, nahin,   literally don't do it.

 6 
 on: Today at 07:00:59 AM 
Started by Event_Horizon - Last post by mikel7
You are going to make it !!  SLAP SLAP ACCROSS YOUR FACE!!  I'm trying to tell you that all of us guys in the onset of this terrible disease/plague have been right where you are!  Slow down - calm down. You will pull thorugh this. You have a protocol now work it. I read where you do enjoy exercising/weightlifting etc... Push your self to a regular weekly/daily schedule and stick to it. Get your mind off of your dilema and sorrow and despair.  This will take you down the wrong road brother. You are 24 and have a lot of living ahead of you and you will find a girl and get married etc...  Life does not stop.  Now if you feel that you need counseling then find a good counselor and/or possibly meds.

 I will tell you that I have been to hell and back several times in my 60 years on planet earth - but I didn't stay there.  The worst thing I have had to deal with was when I turned 43 and I started having no erections and no libido and lost a lot of my muscle mass.  Long story short and thousands of tests my testicles stopped making testosterone and no doctor could answer why?  I went through about 7 different physicians over the course of 2 1/2 years before I found a top notched hormone specialist who got me on the correct medication to at least make me feel normal again. Now normal for me is taking injections every day.   I know what suffering physically/mentally is.  Yet I am still alive and kicking. 

  When my peyronies started I was devastated too. I experienced all of the emotions that you are experiencing.  I saw several Dr's and started treatment and then things got a hell of a lot worse.  I had sudden hearing loss in both of my ears with severe tinnitus and hyperacusis.  Which means I couldn't listen to normal sounds because it literally hurt my ears.  This was accompanied with the most terrible migraine symptoms and neck pain with a ringing sound louder than my voice.  ENT's were worthless and so I had to find a brain/ear surgeon to treat me.  I have been on a medical leave sice August of 2020 and don't ever know if I can ever live a normal life.  I am trying the best I know to live a somewhat normal life and not focusing on the future. I don't worry about tomorrow becaus I just take it one day ata time.

   Listen to me.  Get back to doing the thiings you used to enjoy and force yourself to do it! Don't obsess over medical journals. Educate yourself on your condition and tell yourself you are going to make it!!  Today is a new day  - fresh with no mistakes in it.   :)  Mike

 7 
 on: Today at 01:03:23 AM 
Started by Event_Horizon - Last post by Event_Horizon
I'm less than a week out from my appointment with Dr. Levine. The Cialis is fully out of my system and getting an erection, maintaining an erection, and just feeling happy in general is a struggle. Every problem in life feels like the end of the world. I had my first intense panic attack today, complete with hyperventilating, crying so much my eyes hurt, shivering, and curling up into the fetal position just to make it stop.

If I think about the strong, happy, confident man I was before this pandemic, it gives me some degree of comfort. I can almost deflect the blame and convince myself "without a pandemic, this would have never happened." I'm not even wrong. The injury happened at my parents' house, in the summer, on the couch, late at night. I would have never been in that position at that time if not for the pandemic. Still, this has been too much to bear.

I feel my life has been shattered. I don't want to date. My friends still love me (although I almost can't understand why), my family still loves me even though all I do is call them to express how sad and frightened I am, I have lost significant muscle mass, gained some weight, and the only thing I see in the mirror is the sullen stare of a man who had everything and lost it all.

I might never have even had Peyronie's. What if it's just a wound? It's been almost 10 months with this wound though, and I feel that I may carry this scar with me for the rest of my life. I don't understand how healing could possibly continue this late into the game. I feel sunk.

Once the erectile dysfunction started, it was like my body and my mind officially went to war. My body hates my mind for giving it an injury to heal, and my mind hates my body for its dysfunction. This is an internal struggle that I can't see resolving. Neither side wants to give a millimeter. Every erection I attain is simply to check to see if anything has gotten better or worse. The pleasure is gone. It's all just a test, and I can't pass.

So that's it. I am officially broken. Everything from here is rebuilding from ashes. There's no foundation. There's no drive. Can a man rebuild a life from this? Can I become the happy man I once was? I'm 24 and I'm not ready for this to be my life. But I'm losing the strength to fight.

A prayer a liked growing up was the Prayer for Generosity: "God, teach me to be generous. Teach me to serve You as You deserve, to give and not to count the costs, to fight and not the heed the wounds, to toil and not to seek for rest, to labor and not to ask for reward, save that of knowing that I do Your will." I struggle with this prayer. I can't stop heeding my wounds, counting my costs, and just screaming for rest.

If anyone rebuilt their life from the ash heap, I would love to hear from you. I want nothing more than to be a story that can be told on this forum of "a man who overcame this wretched condition." If that can happen, I will never forget the lessons learned from this trauma, and I hope it will make me a kinder, more loving, and more compassionate man in life. Thank you for listening.

 8 
 on: Today at 12:04:39 AM 
Started by hope794 - Last post by Hawk
I all due respect, when a guy with no medical background, no research background, who has never conducted one study, comes up with his idea of many kinds of Peyronies Disease, that is not a theory.

We refer to that as wild baseless speculation.

 9 
 on: Yesterday at 11:45:22 PM 
Started by JohnVermont - Last post by JohnVermont
I have started a more comfortable approach. I place gauze around the base between my skin and the blue ring. I've also started instead of going to position 4 right away I do 5 minutes at 3 and then go to position 4 for 15 minutes. It makes it much easier.

I think the tape you use matters. I use either signature brand tender tape or band aids no hurt tape. putting a lot of it helps with comfort and I'm guessing the tape aids in holding the head secure in the clamp.

I'm getting great traction now. 12 weeks ago I was using the smaller extension rods. now I'm using the larger and I'm at 6 clicks and doing position 4.

I am looking forward to the next 12 weeks of this maximum traction. I'm sure I will see more results.

 10 
 on: Yesterday at 11:38:34 PM 
Started by JohnVermont - Last post by JohnVermont
No.

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