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Other Peyronies Disease Discussion Boards => Progression of Peyronies Disease => Topic started by: Jimmi85 on March 19, 2021, 06:16:56 PM

Title: jimmi's journey so far - WARNING PICS.
Post by: Jimmi85 on March 19, 2021, 06:16:56 PM
Hi all,

i thought I'd document my journey so far, i find writing things down and sharing my experience's, if only to myself is good for the mind, and hopefully both i can learn from others and others can learn from me.

As a type 1 Diabetic, i was always told by the doctors to look after myself -  as a badly controlled diabetic will encounter all kinds of health issues as he or she grows older. As it transpires, even a diabetic who looks after his body can be in the unfortunate position to suffer these same issues and no matter how well you control diabetes you can be one of the unfortunate ones to suffer.

I first noticed my Penis change shape about four years ago. if truth be told, I might have always had a slight congenital curve, i never worried about it and genuinely did not think anything of it. Penis's come in all shapes and sizes right? Plus, the slight curve to the left hit places within a female anatomy which a straight penis couldn't, so it certainly had its benefits.

At this point i was around 7.5 inches in length and had no issues with any kind of erectile disfunction aside from Retrograde ejaculation which appeared around 10 years prior. This of course had its benefits, no mess, and no possibility of having an unwanted or unplanned pregnancy. i also realised that i could carry on with sex even after i dry ejaculated and remain just as hard. I'm not sure if this is still the case as i haven't had intercourse now since January 2019.

The first picture was taken in November 2017, two months into my last serious relationship, where the sex was rough and often 4 or 5 hours long.

When the relationship ended in January 2019, i was still comfortably able to have intercourse and don't recall or being told that anything within my anatomy had changed.

It was during Lockdown last year, March to May, that i really noticed something was changing quite drastically. I don't remember how quickly but it could have been a matter of weeks. With more 'alone time', almost excessively, i noticed the curve had progressed and i noticed a slight reduction in length and girth. I didn't have any pain and have never experienced any kind of pain before or since, either flaccid or erect. I guess i am one of the 'lucky ones'.

Over the next couple of months things changed quite rapidly, i had never heard of Peyronies and i naively thought things would go back to normal in time. In the midst of a global pandemic, with hospitals and GP surgeries full of sick people i didn't want to be a burden. looking back, i should have tackled the issue much much sooner but its difficult to seek help, even if you want to, if you don't know what help to seek.

At this point it was beginning to effect my confidence, not that i was ever a 'player' but with my new weirdly shaped and much shorter penis i didn't know how to use it and what a partner might think. I was still single at this point, and the two sexual encounters i had during the summer and late autumn of last year i didn't go as far as intercourse for fear of being rejected.

It was wasn't until mid February this year where i decided to tackle the issue head on, after the breakdown of a short relationship where i had two failed attempts at intercourse. Unlike the previous encounters last year, i genuinely liked this girl but i knew due to my peyronies a sexual relationship would be challenging at best.

The second picture was taken on February 21st this year, i would guess the bend is at 60 degrees. i had difficulties in rigidness above the plaque so the top of the penis and glands were 'floppy' and made sex impossible. I also realised at this point that i couldn't remember the last time i had a morning erection. I suspect it would have been well over a year, possibly considerably longer. Little did i know that a lack of NTE was actually damaging me even more.

From this day i tackled Peyronies head on, i ordered daily tadalafil along with a shed load of supplements to include L-Arginine, L-Carnitine, COQ10, Vitamin E, Citrulline and multi vitamins. I started using the PMP and I also booked an appointment with a Urologist, being based in the UK we don't have the expertise like those over the pond so i did some research and went private. He didn't really tell me anything i didn't already know, and actually wasn't much help, although he did confirm the diagnoses.

The last four weeks have seen a huge change, the curve has reduced, although it seems to differ slightly on a daily basis and my erections are back to where they were 10 years ago. My night time erections have also come back with vengeance, often waking me up and forcing a pee out of me in order for them to subside. I feel confident right now that i would be able to have intercourse, maybe a little bit unconventionally as the curve is still very much there.

I still have issues with maintaining a solid erection without constant stimulation, i am sure this is venous leakage which is common with diabetics but i hope this can be managed with constriction rings etc. I have ordered the SOMA correct via prescription which i should get next week and plan to use rigorously along with continuation of traction and supplements.

I would estimate my curve is now 30-35 degrees, roughly a 50% decrease from 4 weeks ago. I am sceptical whether any of the supplements have had much if any benefit to either the deformity or erections, and would suggest the implementation of NTE along with traction is probably the more likely cause for the improvement. Nether the less, i will continue with the supplements as they are unlikely to be doing me much harm.

I am too scared to measure my penis right now, its probably not much smaller than a slightly smaller than average penis but the decrease in size is noticeable. i used to walk around loud and proud but right now i am a little embarrassed by it. I hope with continuation of traction and the introduction of VED i can regain some size back although i realise i will never have my old penis back. 

I am much happier right now than i was 2,3,4 months ago, although i also realise that as a diabetic even if i can better my ED with drugs short term, long term it will remain unstable and i am resigned to the fact that i will need an implant at some point if i want my old sex life back. Weirdly this doesn't scare me and i am actually looking forward to the possibility of having a bionic penis!

i will try and keep this thread updated, for my benefit as much as other forum members but feel free to ask any questions.


James

Title: Re: jimmi's journey so far - WARNING PICS.
Post by: Godisreal on March 19, 2021, 08:41:19 PM
Great that you're taking actions bro.
Traction, VED, Pentox and Cialis combined = Best chance at recovery
Your pre-Peyronie's dick is a solid f*cking dick man, lool
But everyone with reason understands that the size of a penis is almost totally irrelevant when it comes to sex.
It sucks, this disease. Weird f*cking thing, honestly.
You're taking actions tho, that's the most important thing.
Keep going and keep us updated.
Title: Re: jimmi's journey so far - WARNING PICS.
Post by: matty1998 on March 19, 2021, 11:06:32 PM
Disturbed imposter banned under multiple ID's for the sole intent of disrupting a men's health forum.

All his posts are deleted.
Title: Re: jimmi's journey so far - WARNING PICS.
Post by: matty1998 on March 19, 2021, 11:07:42 PM
Disturbed imposter banned under multiple ID's for the sole intent of disrupting a men's health forum.

All his posts are deleted.
Title: Re: jimmi's journey so far - WARNING PICS.
Post by: Mikel7 on March 20, 2021, 05:25:10 AM
I was also about 7.5 inches erect , but lost about 1.5 inches from peyronies.  The traction with PMP has given me back about 3/4 th of an inch and I am hopeful that it will continue more.  I still take the supplements as they help me with inflammation.
Title: Re: jimmi's journey so far - WARNING PICS.
Post by: Jimmi85 on March 20, 2021, 05:26:24 AM
Matty,

I honestly can't remember if it was always like the first pic, tbh I never took much notice of it, it never caused me any issues and I never had any complaints. I actually only have that pic as I was in a long distance relationship at the time so we would send pics to keep things spicy.

I'm not using Pentox, the urologist ( Andrologist in the uk ) told me not to bother. He also said the supplements were a waste of time but I have a two months supply so might as well stick with them for the time being.

I still have the hinge effect just below the glands and if I'm honest I'm more concerned about the venous leakage right now which I understand can't really be fixed.

Plan is to give it another 6 months to try and increase size as much as possible and then look at implant surgery. I'm not convinced about having it done in the uk so may go to New York to see Dr Eid. He seems highly recommended here.

Looking forward to starting VED.
Title: Re: jimmi's journey so far - WARNING PICS.
Post by: Kobegianna on April 27, 2021, 05:24:49 PM
How's your progress going?