Peyronies Society Forums

Peyronies Disease TREATMENT Discussion Boards => Ultrasound and Extracorporeal Shockwave Therapy (ESWT) => Topic started by: alec on July 06, 2020, 08:52:33 AM

Title: I've done 8 sessions ESWT
Post by: alec on July 06, 2020, 08:52:33 AM
I've done 8 sessions of ESWT for Peyronie's and my penis did not change in shape (curve or indention or lenght or girth). I am disappointed. The pain with the erection is still there. The urologist told me to wait for weeks or months to see results....... i feel like this is just to keep me away, to shut me up  :'(

Did anyone see results after ending treatment?

Thanks for sharing!
Title: Re: I've done 8 sessions ESWT
Post by: blackdiamond on July 06, 2020, 11:58:59 AM
I've done 8 and nothing. Seemed like a waste of time and money for me.
Title: Re: I've done 8 sessions ESWT
Post by: alec on July 06, 2020, 12:08:02 PM
for the first time i looked up the "surgery" board on the forum and it seems like many have great results with surgery. I might consider doing that instead. i am just tired of trying trying trying... nothing is working.

has anyone every reported a change in shape of the penis with ESWT? i wonder where all the people are that are in those studies....
Title: Re: I've done 8 sessions ESWT
Post by: Bachelek on July 06, 2020, 02:03:22 PM
I did the same for Dupuytren in my left hand.
12 sessions, not working! Waste of money.
For Dupuytren is a operation available where the string will removed.
But in some cases it will come back, so a second operation will be needed.
Title: Re: I've done 8 sessions ESWT
Post by: projectpd on July 06, 2020, 05:30:18 PM
@Alexander if you still have pain you may be extremely lucky, it means you might still be in an acute phase. (inflammatory). I wish I was still in that phase. the best thing you might need to do is apply any inflammatory agents by any means necessary. Serrapeptase systemically helped with pain for me but maybe not the most efficient.. Then possibly also antifibrotic agents. Easily available antiinflammatories are dexamthasone, hydrocortinsone, diclofenac. methods used for these are iontophoresis but DMSO should work, and diclofenac gel spray is known to act on synovial fluids in the knee joint for example. Ultrasound, massage, heat and hydration could easily influence absorption.
Title: Re: I've done 8 sessions ESWT
Post by: melting on July 06, 2020, 08:15:47 PM
Try to combine several treatments at once. Rarely is it heard that some applications of 1 thing did help.
Maybe aides traction in combo?

ESWT alone... I mean.. what's the theory that it alone works 5-15 treatments? improbable.. Also the plaques probably need to be completely calcified, hard to break soft tissue with ESWT.

Title: Re: I've done 8 sessions ESWT
Post by: alec on July 07, 2020, 04:33:43 PM
I have tried Xiapex, Pentox, Cialis, Iontophoresis, ESWT, VED with SomaCorrect, traction with RestoreX and Phallosan Forte and of course Vitamins, acupuncture and chinese herbs... and of course waiting...... only xiapex did something... but made it worse  :'(
Title: Re: I've done 8 sessions ESWT
Post by: melting on July 08, 2020, 07:36:57 AM
That's very unfortunate. Xiapex has the problem that the injection itself can cause more problems and inflammation.
I think more needs to be done to immediately mitigate any side effects from it. But it's mostly discontinued in the EU as I understand anyway..

My point was that doing different things from different "angles" at the same time (day/week) seems to help.(at least for me it did).
I often see people jumping from single treatment to treatment not having success.

Traction for example needs to be done for a lot of time daily and continuously for months.. During such a spell something like ESWT might help along with it to influence and "crack" the plaque which then can be stretched further, and then ending the day with some pumping and having cialis overnight to get good bloodflow and expansion into the tissue.
All while ensuring with medication, food etc. to stop new inflammation.
Title: Re: I've done 8 sessions ESWT
Post by: AlterEgo on July 10, 2020, 04:47:19 AM
Quote from: Alexander88 on July 06, 2020, 08:52:33 AM
I've done 8 sessions of ESWT for Peyronie's and my penis did not change in shape (curve or indention or lenght or girth). I am disappointed. The pain with the erection is still there. The urologist told me to wait for weeks or months to see results....... i feel like this is just to keep me away, to shut me up  :'(

Did anyone see results after ending treatment?

Thanks for sharing!

Which ESWT device was used? (I hope not gainswave) Also, the proper protocol is to do ESWT while penis is erect with injection because of acoustic impedance.  I have some good information on ESWT if you would like me to share with you.    Watch this video over 1/2 way in this video the doctor is stating that the new protocol is to do shockwave with erect penis  https://www.youtube.com/watch?v=JLI6CY_NxAo&feature=emb_logo 
Title: Re: I've done 8 sessions ESWT
Post by: RandyPE on July 10, 2020, 03:01:55 PM
Quote from: AlterEgo on July 10, 2020, 04:47:19 AM
  Watch this video over 1/2 way in this video the doctor is stating that the new protocol is to do shockwave with erect penis  https://www.youtube.com/watch?v=JLI6CY_NxAo&feature=emb_logo

Thanks for the video, AlterEgo.  I started to watch, but 51 minutes is a big commitment, lol.  Can you break down "1/2 way i the video" a little more specific? Like starting at 25:30, for example?  And I'd love the info you have to share if you want to PM me.

Thanks!
Title: Re: I've done 8 sessions ESWT
Post by: projectpd on July 10, 2020, 07:25:35 PM
https://pubmed.ncbi.nlm.nih.gov/19021616/
Preliminary Findings From a New Animal Model for Peyronie's Disease Involving Extracorporeal Shock Waves
Objective: To develop an experimental model in rabbits to analyse the efficiency of extracorporeal shock wave therapy (ESWT) for Peyronie's disease.

...Results: The results showed clearly that the model was efficient, creating a similar situation to that when applying ESWT in the human penis. ...
All of the rabbits in groups 2 and 3 had haematomas and diffuse petechiae after ESWT, and only four had urethral and penile bleeding... in group 3 there was an increase in interstitial fibrous tissue in the cavernous septum, with deposition of collagen fibres and thickening of the tunica albuginea.

Conclusion: The present model was efficient in producing tissue injury in the normal penis when treated with ESWT, suggesting that this promising model should be considered for use future studies of Peyronie's disease.

sounds reassuring!
Title: Re: I've done 8 sessions ESWT
Post by: AlterEgo on July 12, 2020, 07:34:52 AM
Quote from: RandyPE on July 10, 2020, 03:01:55 PM
Thanks for the video, AlterEgo.  I started to watch, but 51 minutes is a big commitment, lol.  Can you break down "1/2 way i the video" a little more specific? Like starting at 25:30, for example?  And I'd love the info you have to share if you want to PM me.

Thanks!

Np 51 minutes when we are talking about our most valuable body part is too long? Start around the 20 minute mark
Title: Re: I've done 8 sessions ESWT
Post by: RandyPE on July 13, 2020, 12:04:36 PM
Quote from: AlterEgo on July 12, 2020, 07:34:52 AM
Np 51 minutes when we are talking about our most valuable body part is too long? Start around the 20 minute mark

Thanks.  It certainly isn't too long, and I appreciate your helping me be more efficient!
Title: Re: I've done 8 sessions ESWT
Post by: alec on August 31, 2020, 09:46:15 AM
i developed a new plaque only days/weeks after ESWT  :'(

what can i say? the plaque hurts and my hopes are down......
Title: Re: I've done 8 sessions ESWT
Post by: AlterEgo on September 04, 2020, 01:43:02 AM
Quote from: Alexander88 on August 31, 2020, 09:46:15 AM
i developed a new plaque only days/weeks after ESWT  :'(

what can i say? the plaque hurts and my hopes are down......

what device was used?  Was teh shockwave done in erect or flaccid state, was it once per week or?
Title: Re: I've done 8 sessions ESWT
Post by: alec on September 04, 2020, 02:39:49 AM
Different devices, once a Week, 15-20min Session, flaccid

Title: Re: I've done 8 sessions ESWT
Post by: AlterEgo on September 15, 2020, 06:45:11 AM
Quote from: Alexander88 on September 04, 2020, 02:39:49 AM
Different devices, once a Week, 15-20min Session, flaccid
Different devices were used by the same doctor? This seems a very odd protocol.  Do you have the name of the devices?  Flaccid shockwave is useless must get erection injection then do the shockwave
Title: Re: I've done 8 sessions ESWT
Post by: bodziu on October 25, 2020, 05:36:23 PM
Quote from: Alexander88 on July 06, 2020, 08:52:33 AM
I've done 8 sessions of ESWT for Peyronie's and my penis did not change in shape (curve or indention or lenght or girth). I am disappointed. The pain with the erection is still there. The urologist told me to wait for weeks or months to see results....... i feel like this is just to keep me away, to shut me up  :'(

Did anyone see results after ending treatment?

Thanks for sharing!
Hi,
sorry to hear your experience, maybe they have a wrong machine and/or wrong setting, mine was spectacular, after 1-2 sessions curvature 50% gone, pain 80% sort of. You know you can buy your own for 500 at aliexpress? I did and I'm v.happy for it. I use it not only for my little guy, implications are limitless. Just read what SWT could do to other parts of your body. It is not any cure but helps to work out other problems as well.
cheers
Bodziu
Title: Re: I've done 8 sessions ESWT
Post by: projectpd on October 26, 2020, 04:57:31 PM
It seems to have potential but it's hit and miss. No one knows how it works or what the safe machines/ protocols are. Stakes are high if the study was not unsound where curvature increased.
Title: Re: I've done 8 sessions ESWT
Post by: AlterEgo on October 28, 2020, 09:25:03 PM
Quote from: bodziu on October 25, 2020, 05:36:23 PM
Hi,
sorry to hear your experience, maybe they have a wrong machine and/or wrong setting, mine was spectacular, after 1-2 sessions curvature 50% gone, pain 80% sort of. You know you can buy your own for 500 at aliexpress? I did and I'm v.happy for it. I use it not only for my little guy, implications are limitless. Just read what SWT could do to other parts of your body. It is not any cure but helps to work out other problems as well.
cheers
Bodziu
What machine/settings were used on you?  What brand and power size did you buy from aliexpress? Is it true shockwave or only acoustic wave like gainswave
Title: Re: I've done 8 sessions ESWT
Post by: saxman17 on April 17, 2021, 11:04:25 AM
I have had Peyronies for a year, 1st visit to urologist he said shockwave does not work....local ed clinic want 6999.00 cdn $ for shockwave treatment, I will pass after all I have read..
Title: Re: I've done 8 sessions ESWT
Post by: Pete10 on February 11, 2022, 12:31:14 AM
I´ve done 10 sessions of ESWT, once a week, driving every week 350 km for the treatment.  No change at all.
Somebody says that it may help with pain. I don´t know because I don´t have pain. I´ve also heard arguments that it will improve erection. No change for me. The curvature and plaque size remained unchanged.
Title: Re: I've done 8 sessions ESWT
Post by: thx1138 on March 29, 2022, 04:10:25 PM
Alec,

Did you notice any loss of sensation ?

Thanks
Title: Re: I've done 8 sessions ESWT
Post by: Peyrat79 on October 23, 2022, 05:44:24 AM
Quote from: RandyPE on July 10, 2020, 03:01:55 PM
Thanks for the video, AlterEgo.  I started to watch, but 51 minutes is a big commitment, lol.  Can you break down "1/2 way i the video" a little more specific? Like starting at 25:30, for example?  And I'd love the info you have to share if you want to PM me.

Thanks!

I agree - for me as a non-native speaker the presentation is hard to follow, also due to the background noise. Basically, the point about the impedance may make sense. However, having an injection in every session for me seems quite risky, as it is known (see leaflet) that these PGE1 injections can produce additional scarring (whether resulting from the needle or the substance not being stated).