Hello all-

Officially implanted by Dr. Hakky and in recovery now. Still loopy from the anesthesia when we talked but he said all went well.

It was a Titan XL 26 with no RTE's.

He said due to my low body fat he really had to hide the reservoir. But said you can't see it or the tubing. 

If you have seen my before pic you know I had bad narrowing. I'm still in shock about the vid Hakky sent because it looks like it's almost completely gone. But it's an under view of my penis so I can evaluate more when bandages come off.  He did say though that when he inflated me it filled out. That was surprising, but good to hear since that was my biggest concern. Also said my post op length was identical to the measurement right before surgery.

Pee'd at the hospital before leaving and it burned like hell, but it was successful so happy about that.

Good info about the monk fruit, thanks. 

I'm sorry you're dealing with a 90-degree bend. Just curious, how long have you been using Restorex? Doing the counter bend also? It's a slow process. I'm at the 9-10-month mark and it's worked pretty well. But it's anecdotal, of course, since I can't do a study with/and without Restorex. My length is back, and the curve seems less angled. I think it took about 4 months to see much difference. 

Hi guys,

I started with a 45 degree bend in June of this year and now its at 90. Saw a UCLA uro and suggested RestoreX. Havent seen any progress. Now he's pushing for Xiaflex. I cant afford it due to my deductible. So what are my options? Im considering the following and would like some input.

I ordered a Apex as Ive seen better clinical results online with traditional extenders worn hours per day.
one thing i should point out is Ive alternated between RestoreX and Manual traction three times a day for 30 min and I would get morning wood when doing manual traction the previous day. Does that mean manual is better for me? I am also gonna try heat therapy with hand warmers wrapped in gauze not to exceed 40c and i also ordered the infra red heating pad from total man.

The other thing I am considering is a DMSO mix.
I cant take cialis due to its side effects.
My doc doesnt do pentox injections.

What do you guys think?
I dont think i can have sex so im kinda screwed right now and just sucks.
Im pretty sure it was caused by high blood sugar. Monk Fruit was said to be safe but its not. It will spike your glucose levels.

Photo

Welcome Kees to the forum and thank you for filling out your signature line! Next you need to download our survival guide as this will give you a better understanding of peyronies and it's different treatments.

So when you were diagnosed did the Dr do an ultrasound and were there any plaques found? You are in no pain but how are your morning erections? Did you do any preliminary measuring of your penis? How much length/girth have been lost?

I would say to quit the traction by hand as you don't have a clue just how much force you are exerting and could do more damage. There are testimonies of members here who did just that. You need to educate yourself on the Restorex device as it was designed to help with curvatures of the penis and the traction it provides is good.  You may also benefit from VED therapy. The forum has a specific protocol to follow. The time invested and consistency is the key to any success with traction or VED. I started with traction with the PMP and then added the Restorex later to address my curvature issues.
I can personally say that it has helped me a lot. I have been using these therapies now for about 2 years and still see gradual improvement. I just use them occasionally now.

The mental problems associated with peyronies is real and can do a lot of damage. You need to get a game plan and stick with it. You very well may benefit from being proactive in starting some treatment even though time has passed. Getting a working plan may help you mentally because you are now educating yourself and doing something. It does take time thou. You must have patience and keep the mindset that this is a marathon and not a sprint. We have all had to deal with the anxiety and worry regarding this awful disease as it affects our manliness. If you do need counseling do not be ashamed of it either. Read the forum and you will get some encouragement and you will make it through this!   

Mikel7

Quote from: IwillbeatPD on November 25, 2023, 11:32:32 PMHey Joezz-

I'm sorry you're going though this. Sometimes life throws a lot of things at us all at once and it can be tough, but there is light on the other side and you will get through this.

I think for anyone to give an informed opinion on your situation we would need more facts. However, I can say verapamil injections seem to be frowned upon here. Many have had problems with that despite positive research articles. I was hopeful when I heard of verapamil but quickly changed my mind after reading through forums and experiences. Regarding the weed, tbh I don't think that's going to make a world of difference one way or another. Smoking in general is bad for your health as I'm sure you know. But so is a bad diet. I would just try to be as healthy mentally and physically as you can during this time- you'll need it.

If the curve is your only problem, I'd start with the most conservative and trusted approaches- a traction device like restorex and a VED. Tadalafil/pentox would be a good idea too. Check out the survival guide on this forum for some basic info. But that would be a good place to start.

Thank you for your words I really appreciate it cause honestly lately I've been going through a lot and feeling emotionally exhausted.. so thank you again.
Im trying to avoid Verapamil and I've arranged a zoom call with Dr Trost in a month and if he is as everyone is saying he is and I honestly read his articled and watched his videos and even his comments in this forum and i gotta say he made me feel like maybe there's a solution for improvement, so before verapamil or any other decision Im gonna seek his opinion first.

Quote from: IwillbeatPD on November 25, 2023, 11:32:32 PMHey Joezz-

I'm sorry you're going though this. Sometimes life throws a lot of things at us all at once and it can be tough, but there is light on the other side and you will get through this.

I think for anyone to give an informed opinion on your situation we would need more facts. However, I can say verapamil injections seem to be frowned upon here. Many have had problems with that despite positive research articles. I was hopeful when I heard of verapamil but quickly changed my mind after reading through forums and experiences. Regarding the weed, tbh I don't think that's going to make a world of difference one way or another. Smoking in general is bad for your health as I'm sure you know. But so is a bad diet. I would just try to be as healthy mentally and physically as you can during this time- you'll need it.

If the curve is your only problem, I'd start with the most conservative and trusted approaches- a traction device like restorex and a VED. Tadalafil/pentox would be a good idea too. Check out the survival guide on this forum for some basic info. But that would be a good place to start.

Quote from: Arthur on November 26, 2023, 02:28:42 AMHey, Joe! Welcome to the forum!

I'm sorry that you have to come here but I hope that you get all the information and support that you need.

I have had verapamil injections and they didn't help at all with the curvature but helped with the pain. But everyone is different.

I also advise you to fill out your signature on your profile.

I hope this helps.

Good luck!

Quote from: Arthur on November 26, 2023, 02:28:42 AMHey, Joe! Welcome to the forum!

I'm sorry that you have to come here but I hope that you get all the information and support that you need.

I have had verapamil injections and they didn't help at all with the curvature but helped with the pain. But everyone is different.

I also advise you to fill out your signature on your profile.

I hope this helps.

Good luck!

Quote from: Arthur on November 26, 2023, 02:28:42 AMHey, Joe! Welcome to the forum!

I'm sorry that you have to come here but I hope that you get all the information and support that you need.

I have had verapamil injections and they didn't help at all with the curvature but helped with the pain. But everyone is different.

I also advise you to fill out your signature on your profile.

I hope this helps.

Good luck!

Quote from: IwillbeatPD on November 25, 2023, 11:32:32 PMHey Joezz-

I'm sorry you're going though this. Sometimes life throws a lot of things at us all at once and it can be tough, but there is light on the other side and you will get through this.

I think for anyone to give an informed opinion on your situation we would need more facts. However, I can say verapamil injections seem to be frowned upon here. Many have had problems with that despite positive research articles. I was hopeful when I heard of verapamil but quickly changed my mind after reading through forums and experiences. Regarding the weed, tbh I don't think that's going to make a world of difference one way or another. Smoking in general is bad for your health as I'm sure you know. But so is a bad diet. I would just try to be as healthy mentally and physically as you can during this time- you'll need it.

If the curve is your only problem, I'd start with the most conservative and trusted approaches- a traction device like restorex and a VED. Tadalafil/pentox would be a good idea too. Check out the survival guide on this forum for some basic info. But that would be a good place to start.

Thank you Arthur, believe it or not but this few comments that I got are what keeping me moving on for now, as Iam really in a bad shape and never felt at this bottom, but Im trying to make a few changes in my lifestyle..
However, whats bothering me lately more than the curve itself is the pain that is everywhere, my lower abdomen, my testicles, sometimes a feeling of stinging, burning after urinating and it I've started to think it could be prostate or something else besides the Peyronie's.

My situation started with a small bump, with a small dent on one side, which later turned into a full hourglass...which later turned into an severe hourglass due to trying to have sex in my current condition. I'm getting my implant tomorrow.

Not saying you'll be going down this path, hopefully you don't, but if you've been trying all the natural therapies listed in the survival guide, and your condition continues to worsen...at some point you may want to consider an implant too. If you have 100% stability and can have sex, and it's only a matter of cosmetic issues, I would pursue other options before an implant. But if your situation is gradually worsening over time, that's what happened to me. My surgeon said I would only continue to get worse with time, and he was right. I made the decision to get an implant because I didn't want to lose length and girth while not being able to have sex anyway.

Quote from: Mikel7 on November 26, 2023, 05:49:17 AMVery heartfelt and encouraging IwillbeatPD!

Please do fill out your signature line and study our survival guide as this will give you a better understanding of peyronies and it's different treatments.

I am sorry for the loss of your father and I know personally the feeling, time will heal. The emotional side of having peyronies is just as bad as the disease itself. You need to see a qualified Dr which can be difficult.  Then develop a strategy plan and adopt the mindset that this is a marathon and not a sprint.  Keep your mind on the thoughts of recovering from this and you have the support of caring individuals who KNOW just what you are going through!

I think that the Verapamil injections would be a waste of time as any shockwave therapy. Educate yourself on VED and traction and Cialis. Pentox has come under scrutiny for actually improving anything but you can try it to see if it helps in your case. I don't know if the sleeping pills are worse for insomnia or weed? I believe that vaping marijuana is a healthier option than combusting it in regards to your lungs. Also I have read articles on low dose edibles helping patients with insomnia. You could try some and see.  Remember that peyronies thrives in an environment of internal bodily inflammation. So any health changes to alleviate that would be a step in the right direction.   

Mikel7

Thanks you for your reply, I'm thinking about hitting the gym so I can be a bit healthy even though Im still smoking, cause anxiety and depression are killing me slowly lately and this is disease has made it worst.
Im about to ask for a referral to see an other urologist and I've already made an appointment to have a video call on zoom with Dr Trost cause I want his opinion as I read online that probably he's the doctor with the most knowledge when it comes to this.

Quote from: Pfract on October 24, 2023, 09:13:37 PMThanks for the update. For sure others looking for the answer on this very topic will appreciate it.

I went on a two hour bike ride the day of my 1st round of shots. I was on a road bike and I did HIT; 4 minutes on and one minute rest. My Dr. said that I would have no problems.

Quote from: zrx1200mn on November 13, 2023, 09:05:56 PMI believe that I asked if he gave nova-cane before the Xiaflex shots, and he gave me nova-cane shots before the Xiaflex shot.

I started my 2nd round of Xiaflex shots today. The Dr was going to give me the Xiaflex shot and I asked if he was going to give me Lidocaine first. I said that I would much rather have the Lidocaine, before the Xialflex.
He gave me the Lidocaine and then the Xiaflex. From what i can remember, the 1st shot of the 1st round of shots did not hurt as much as this first shot of the 2nd round of shots.
He did do some "modeling" to get the Xiaflex into the scar tissue.