Do you guys know who is leading research on this? I was even looking into tendon repair stuff that you would see a company like replicel doing.
What research are you referring to?
Im interested in who is doing research on peyronies, is there a foundation in place that takes money for searching/ researching a cure?
Arthur
Very good question. I'm also wondering like: is there any science team in the world, who are doing research on regeneration and growing penile tissues, except Wake Forest science team? Sorry for offtop, but today I've read that Neymar from FC Barcelona was buyed by PSG for 222 mln euros and the full contract including his salary for 5 years costs 500 mln. What an insane world we live in. Some of billionairs can spend 500 millions for 1 football player, but they won't donate even 1/10 of this money for scientific researches. They're so stupid or what? What if one of this billionaires suddenly injured his penis and get a Peyronies Disease? How do you think, what do they do in this situation? I think none of them would be happy with inflatable prosthesis and penile shortening. So why they prefer spend hundred of millions or even billions on football clubs, instead of donation to labs, which are working to find a cure from many diseases? What will they do when they ill? Watching for a football game can't do nothing, if you have a Peyronies Disease or cancer.
Alex, to quote a Stanley Kramer film, It's a Mad Mad Mad Mad World (recommended by the way) :o
[Full quote removed]
Take the example of the google CEO who developed a rare condition where his vocal chord became paralyzed. He has been donating to a cure for that now. Im sure there are famous people with peyronies...I think I even heard good ol' Bill Clinton might have it.
I actually have a good idea to bring awarness to peyronies disease and raise money for it...will it be successful? Who knows....maybe? Or it can fall flat on it's face. This is somewhat for my own benefit but also for the benefit of anyone who has this sh!^^y garbage happen to them. It is a small idea, but if I can figure out who is leading research and can actually take the funds raised and spend time in this area then I can enter a secondary phase. I am in media and am pretty good at what I do. The effort could be valient...think about the effort of Kony (before he lost his crap and was naked beating off in the street) he raised millions! The thing is a lot of people find this kind of crap funny...even some of my friends that I have told about this crack jokes...but they don't know the kind of pain that Peyronies causes. It's tough...but it's also tough when no one is really develping new techniques...were going to look back at this in 10 years and thing...really...you put your dick in a stretching machine to fix it for like 10 hours a day? LAME.
Peyronies sucks man. I don't fall into it too often...but I can't help to think that if I was told in sex ed class that my dick wasnt invicible and be careful cause you only have ONE and it probably wont fix itself if you hurt it...then I thnk I would have been much more careful.
Most people that get peyronies are f'^+'ing blindsided. They shouldn't be. Their shoud be awareness about this thing.
So
1. Come out of the Peyronies Closet and encourage others to do so publically this will--->
2. -----> Raise Awareness
3. Develop avenues to donate directly to researchers.
Spread the M F ing word bruvs.
Which was the reason I wrote this yesterday https://medium.com/@Tychy/peyronies-101-what-s-the-fuzz-all-about-1dd72212e91d
Share, if you like.
Thats a great article you put together!
Millions of people has know what Peyronie's is, so what? Nothing has change. There's still no cure and options are the same as they been decades ago. This world is totally mad. BTW, these stupid sheiks who owns PSG, spended on Neymar two times more than Pentagon has spend for AFIRM I and AFIRM II project (this project include tissue engineering for genital wounds and traumas). I wish all of this oil magnats suddenly had Peyronies Disease and ED and their dicks shrunks to 1", it would be funny to see how they're will coping in this situation, while watching for a football game.
I didn't know what it was and most dudes never heard of it until it happens to them.