Peyronies Society Forums

Peyronies Disease TREATMENT Discussion Boards => Xiaflex Injections => Topic started by: Jfriction on October 01, 2018, 05:36:06 PM

Title: 3rd round of xiaflex...
Post by: Jfriction on October 01, 2018, 05:36:06 PM
I just had my 3rd round of Xiaflex shots. The first two rounds did nothing. Hopefully third time's a charm. I'm starting to get really bummed out.
Title: Re: 3rd round of xiaflex...
Post by: TDix on October 02, 2018, 12:28:30 AM
Any complications with first two rounds?  If you've seen my thread you'll know why I ask.
Title: Re: 3rd round of xiaflex...
Post by: TonySa on October 02, 2018, 02:53:09 PM
Good luck!  Are you adding traction?
Title: Re: 3rd round of xiaflex...
Post by: Jfriction on October 02, 2018, 09:29:31 PM
Knock on wood, no overly negative reactions to xiaflex. Only swelling and pain. I wear traction for 6-8 hrs a day. I use esl-40 traction. I can wear it eadilu, even at work. Hopefully some results follow. How has xiaflex worked or not worked for you?
Title: Re: 3rd round of xiaflex...
Post by: Jfriction on October 02, 2018, 09:30:43 PM
I haven't found your posts on the site,not sure how to find them . I am interested in reading about your experience.
Title: Re: 3rd round of xiaflex...
Post by: TDix on October 04, 2018, 12:30:51 PM
JFriction, my experience is in the thread above yours.  Glad you haven't experienced any of what I'm going through.  Wouldn't wish it on anyone
Title: Re: 3rd round of xiaflex...
Post by: Jfriction on October 05, 2018, 09:25:17 AM
I read what happened to you... Damn man I'm so sorry that's freaking terrible. It sounds like the whole Dr Community is trying to fix your issue. I really hope for the best for your situation man.
Title: Re: 3rd round of xiaflex...
Post by: TDix on October 05, 2018, 12:16:06 PM
Thanks man, I wish nothing but success for you as well.
Title: Re: 3rd round of xiaflex...
Post by: Bubba dawg on November 24, 2018, 11:56:37 AM
I went through 5 rounds before I could live with the results. 6 maybe the charm. Just not sure I want to risk it. No major problems in the way of side effects
Title: Re: 3rd round of xiaflex...
Post by: Jfriction on November 24, 2018, 11:03:57 PM
Five rounds, wow.. I just had my 4th round. Third round did nothing! My doc says that he has had patients with up to 10 rounds. What traction device did you use ? I'm ready to try something else. The ESL 40 hasn't helped at all...
Title: Re: 3rd round of xiaflex...
Post by: Bubba dawg on November 25, 2018, 03:57:15 AM
Doc didnt say for me to do traction. Just the molding exercises. I never wrapped it either. 10 is a freaking lot lol. When I started treatment I could not have sex at all. Not even maturbation. Now I can do both.  Although mastubation feel like it is pulling my insides out. Orgasms are powerful. My woman still has to direct it in. Straight almost to the end then it kinks . I really would like to get rid of that kink. So it did work without traction. I have read good and bad about traction. Dont know what to believe
Title: Re: 3rd round of xiaflex...
Post by: Jfriction on November 25, 2018, 09:41:44 AM
Yes this problem we have isn't very well known. I mean before this happened I didn't know it existed. There seems to be a lot of theory and not hard facts on how to combat the problem.
Title: Re: 3rd round of xiaflex...
Post by: tonyode on November 25, 2018, 06:59:21 PM
Quote from: Bubba dawg on November 25, 2018, 03:57:15 AM
Doc didnt say for me to do traction. Just the molding exercises. I never wrapped it either. 10 is a freaking lot lol. When I started treatment I could not have sex at all. Not even maturbation. Now I can do both.  Although mastubation feel like it is pulling my insides out. Orgasms are powerful. My woman still has to direct it in. Straight almost to the end then it kinks . I really would like to get rid of that kink. So it did work without traction. I have read good and bad about traction. Dont know what to believe

I asked my doc about traction devices and he said some studies done in comparison to manual modeling and using traction devices showed that the traction devices were no better than manual modeling. I saw two urologist. First one blew me off, come back in 6 months. That wasn't good enough for me. So I researched and found what I think is a very good urologist at a major university.
Title: Re: 3rd round of xiaflex...
Post by: Jfriction on November 28, 2018, 07:06:12 PM
How often do you do the modeling yourself?
Title: Re: 3rd round of xiaflex...
Post by: Bubba dawg on November 28, 2018, 09:52:54 PM
I did it everyday. 3 times per day