At a bit of a low point and need guidance

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unsureincognito

Hi all.
It's been around 1.5 (?) years or so since I suffered a fracture (or pseudo-fracture) to my penis from a sexual injury from a girl who in hindsight may have actually injured it on purpose. An ex, of course. As said in other posts there is a downwards bend and a long line of scar tissue along the left side of the shaft along with an hourglass deformity in the middle... As many others here know, especially the younger guys, the damage had at one point been devasting to ones sex life and self esteem.
yep.

Through some degree of caution and straighning with a fleshlight but not an extender or VED, I have 'managed' to straighten it somewhat so the hourglass deformity is less 'visible' but even now the scar tissue or plaque is still there and honestly it would be a miracle if it ever went away on it's own.

I saw a uro some time ago and they said the only option they had was surgery the nesbits procedure. I declided this I'd rather not go under the knife and the idea or process of surgery carries morbididies and risks and I don't really want a shorter member. Being in the aftermath of this followed by "this is the only option" isn't great news...
 Instead I wanted to try ventripamil or something else but my gp doesn't prescribe that and I don't think the uro I have been sent to does either, it's like they aren't willing to consider other options or they simply just don't have it or aren't trained.

I can, most of the time, still feel sexual pleasure in the areas that aren't 'covered' by plaque, i don't fully get how Peyronies Disease works but if I am correct some of that healthy tissue is either ossified or filled with collagen/plaque, with a small amount of healthy tissue 'in between'.

Where do I go from here? Pentox sounds promising as well but I don't know on the NHS where to obtain that, for uk goers here how did you get it?

The idea I think would just be to soften the scar tissue and straighten it with an extender, so this somehow from what I've been reading "re-models" it? I've seen a fair few treatment options on this board some seem fake others say it's cured them. Castor did nothing I don't know about mixed dmso. Is there in fact a way to 'get rid' of the collogen/scarring or would that theoretically mean there would actually be bits missing on the penis before healthy tissue even grew back is that even possible. guidance and recommened treatment advice would be apprecaited I think ventrapamil, pentox, and straighning seems the most promising for my case, but for others who got this from sexual injury alone and would like to somehow 'break down' the plaque or scarring what has helped for sure?

Seems like most of the treatments on this board have something to do with correcting the bend, not a lot on  scar tissue except anti-collagens idek if that would work in the stable phase which is where I am at now. so healthy connective could replace it? it doesn't make much sense but hopefully you know what i mean.



 
M25, single, mild Peyronies Disease (?) from one or more minor sexual injuries.
- castor oil (I actually thought I had a bit of success with this).
- Currently trying l-arginine and l-citrulline
- vit e (?)

Can get an erection.

unsureincognito

edit: I am going back to see a urologist at the same place but it's a different one this time a male, I'd hope he understands the trouble and damage and distress this can cause and gives me some other options instead. I'd be very pleased if I could try these other treatments but disappointed if it's just surgery. Again I think their main goal was to correct the bend whereas mine is to "break down" the scar tissue, and the bend thing, I think I can sort that out on my own accord with traction I hope.
M25, single, mild Peyronies Disease (?) from one or more minor sexual injuries.
- castor oil (I actually thought I had a bit of success with this).
- Currently trying l-arginine and l-citrulline
- vit e (?)

Can get an erection.

unsureincognito

M25, single, mild Peyronies Disease (?) from one or more minor sexual injuries.
- castor oil (I actually thought I had a bit of success with this).
- Currently trying l-arginine and l-citrulline
- vit e (?)

Can get an erection.

LWillisjr

Quote from: unsureincognito on March 27, 2023, 03:24:07 PMInstead I wanted to try ventripamil or something else but my gp doesn't prescribe that and I don't think the uro I have been sent to does either, it's like they aren't willing to consider other options or they simply just don't have it or aren't trained.


If you originally had a penile fracture, I am not sure what to recommend as we don't have much experience with that on this forum. A deformity from penile fracture is definitely different the a curve caused by Peyronies Disease.

If you have Peyronies Disease (this needs to be confirmed) then generally a urologist will do injections to soften the plaque. Verapamil is an older drug I don't think is used any longer. It essentially was replaced by Xiaflex. Search for "Xiaflex injections" on this site for more information. These injections do not have the thigh rate of success originally hoped for but is a first step prior to surgery. And these injections are not know to correct extreme curves. For example, if you have a 7 degree curve you might only see a 30 degree improvement from Xiaflex injections which still leaves you with a 40 degree curve.

This may be why your doctor is suggesting surgery right out of the gate. If you have an extreme curve, or truly a penile fracture then surgery might be you only option.
 
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

unsureincognito


I can still, or could still, have sex, get an erection, feel some pleasure I think but it would be a bit of an odd job like I already have a CC (natural bend), this made it a bit worse but more static than worse. I am in the UK and on the NHS they apparently only do the nesbit (shortneing) procedure, not grafting, implants, or injections, although I will ask about that on my visit to this place. If I wanted expansive procedures doing I'd probably have to travel to london or something. Xia(pex) in the uk sounds great but it was banned from europe or something a few years back. It's so damn depressing sometimes. Like the "hourglass" is still there although the human body apparently sorta remodels itself so it 'changes' a bit. To the unseen eye it probably looks a bit deformed but honestly, I don't think most ladies would really care that much unless they were concerned for me or something.

I'm guessing it's Peyronies Disease, I have confirmed 'mild' Peyronies Disease I don't know if they knew about the fracture but I told them anyway. There like scar tissue on the side and the hourglass 'crack' in the middle, everything still works but yeah... I'd imagine the treatments for this are the same as Peyronies Disease but I can't get a hold of them in the uk.

i dont know if dmso+castor oil (some formula I read online) would work. seen like several other users here with this issue and one some other forum, not many but they, mainly the uk ones are in a similar position. gp isnt of huge help here but she did say she didnt see how ven- could help here but i can ask the uro.
M25, single, mild Peyronies Disease (?) from one or more minor sexual injuries.
- castor oil (I actually thought I had a bit of success with this).
- Currently trying l-arginine and l-citrulline
- vit e (?)

Can get an erection.

LWillisjr

If you are trying to correct a congenital deformity, your options are pretty much limited to surgery.
 
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

unsureincognito


I get that, tried straighning it on my own over the years (no damage done the fracture was something else), a bit of luck but that's basically "just the way it is". I was more going for scar tissue softening/straighning and that.
M25, single, mild Peyronies Disease (?) from one or more minor sexual injuries.
- castor oil (I actually thought I had a bit of success with this).
- Currently trying l-arginine and l-citrulline
- vit e (?)

Can get an erection.

unsureincognito

Quote from: LWillisjr on April 01, 2023, 12:27:59 PMIf you are trying to correct a congenital deformity, your options are pretty much limited to surgery.

would l arginine or coq10 work for the chronic stage of Peyronies Disease? essentially to my knowledge in both cases it's a buildup of plaque some of which might be calcified.
 
M25, single, mild Peyronies Disease (?) from one or more minor sexual injuries.
- castor oil (I actually thought I had a bit of success with this).
- Currently trying l-arginine and l-citrulline
- vit e (?)

Can get an erection.