After further research I have found that a few urologists in the UK are offering injections with the active ingredient collagenase for an affordable price.

It appears that there are now generic forms on the market without having to pay Xiaflex/Xiapex the extortionate costs they were asking for.

I am considering this and would like to hear other people's experience in both Europe and the UK.

Quote from: randyzon on March 06, 2025, 10:42:06 AMFound a new technique to help prevent slippage. Put the glans in the clamp and apply a little pressue and clamp. Don't apply stretch for about 2 minutes to allow blood to escape then apply more pressure before starting the stretch. Has helped tremendously.

Yes. This works very well!

I've found by doing this the glands shrinks smaller in size so extra clicks can be added on the clamp.

This helps keep the glands in place without pain or slippage once you have waited a few minutes before stretching.

Pfract:

I believe my case resembles peyronies disease but may not be actual peyronies.

A urologist said mine sounds like an injury. I'm not surprised due to my lifestyle.

I was taking double the recommended dose in erectile dysfunction medications and combining them so I could hold an erection for hours and have vigorous sex with multiple women a night at sex parties.

Bentknob:

possible. I fracture my penis in 2014. Got curvature, slight length loss and ED as a result. First ultrasound i did also showed fibrous tissue. But i don't have Peyronies. Just the results of the fracture itself.

I wonder if there are people who test negative for the gene and have symptoms that resemble peyronies disease.

This is pretty interesting. As with many kits like this, just because you have the gene doesn't mean you will contract Peyronies. If I knew I had the gene, I would definitely be careful to avoid any type of penile injury.
It will be interesting to see any feedback on this. Since I've had Peyronies, would be interesting to see if I tested positive for the gene.

Don't expect a response. You are posting in a thread that is 6 years old.

Browse the section on VED therapy to find out more about VEDs. There have been several here in the past who have symptoms similar to yours. We don't have a lot of "long time" members as people come here, get the information they want and move on.

I have the condition that Dr. Trost on this forum calls "false" Peyronie's, aka hard flaccid/ CPPS. I had various symptoms between late 2021 and early 2024. Some of my symptoms:

• The classic HF symptom of constantly retracted flaccid penis
• Loss of erogenous sensation in my penis (but not my scrotum, oddly)
• Hourglass deformity in the semi-erect (but not fully erect) state
• A Peyronie's-like curve to the left that would be present until my penis was almost 90% erect, at which point it would suddenly straighten out (close examination revealed this to be related to the hourglassing; for some reason, my right side filled up much faster than my left side)
• Slight pain when fully erect, as if I'm stretching something I shouldn't be stretching
• Fully numb nocturnal erections
• Sharp nerve shocks in my coccyx that would sometimes wake me up at night
• Aches and pains in my left inguinal area
• Nerve pains / tingles in my left foot that would sometimes occur at the same time as a corresponding feeling in my penis

I originally believed I had Peyronie's because I was hyperfixated on the left curve, so I visited a urologist. Due to my coccyx/inguinal/foot symptoms, the urologist suspected a pelvic floor etiology and referred me to a PF therapist. Throughout the second half 2023 I did a series of PF stretches and exercises. My routine:

• Cat/cow
• Figure 4
• Elevated split squats
• Curtsy lunge
• Leg bridge
• Side planks
• Bear pose
• Doorway stretch
• Squat
• Child pose
• Happy baby
• Rectal dilation with a kit from Intimate Rose (yes, it actually helps!)

By late 2023 I was already noticing some degree of improvement from this routine.

Then in early 2024 I came to the realization that my relationship with porn probably qualifies as a sexual addiction. I read some of the online material about sex addiction and became deeply ashamed. This shame kept me from masturbating for almost 2 months. I didn't even think about my dick during this time because I was so deeply ashamed of my own sexuality (an unhealthy extreme, I know).

When I finally orgasmed again after 2 months, I felt a harsh pain in my stomach, like someone punched me in the gut. But something about it felt almost cathartic, like my body was releasing tension.

After this, for most of 2024 I was almost entirely symptom-free. There were some weeks where I entirely forgot I ever had HF. Hence why I was almost entirely absent from this forum during 2024.

But as I started to forget about my PF exercises and fell back into unhealthy masturbation habits (porn, edging, kegeling to achieve an erection, orgasming while hunched over a toilet, rubbing through my underwear and causing friction on the skin, etc.) some of the symptoms gradually came back.

Where I'm at right now:

• Erogenous sensation is lost again
• Flaccid retraction sometimes comes back
• Sometimes get hourglass deformity
• I once again have a curve, but for some reason it's now to the RIGHT instead of the left!
• Other symptoms haven't returned, thankfully, but if I keep up my unwise habits they very well might

However, I know from past experience that these symptoms aren't permanent. So the course of action seems obvious to me. I need to hop back on my PF exercises, and once again abstain from porn and masturbation for a while.

Key takeaways:

• Anxiety and online research was responsible for a lot of my behavior, be it hyperfixating on my curve and assuming I have Peyronie's, or learning about sex addiction and falling into a cycle of shame and guilt.
• If you have semi-erect deformities that go away when fully erect, you probably don't have Peyronie's, a condition which is most apparent when fully erect.
• If your symptoms are anything like mine, it's entirely possible and even likely that you can recover with enough diligence.
• That being said, if you slip back into bad habits like I did, the symptoms can come back.
• Recovery is about forming good habits, not one-and-done solutions.

Hope all this is helpful!

Man, I've looked into cold laser therapy for Peyronie's, and while it sounds promising, I wouldn't count on it as a miracle fix. The idea that it helps break down scar tissue and improve blood flow makes sense in theory, but the real question is whether it actually makes a noticeable difference. I haven't tried it myself, but I've seen mixed reports—some guys swear by it, others say it did nothing. If you've got the cash and patience, it might be worth a shot, but I'd keep expectations realistic.

I've been dealing with ED and Peyronie's myself, so I know the struggle. What's been working for me is a mix of things—daily stretching, heat therapy, and some supplements. But honestly, the biggest game-changer has been Cialis (Tadalafil). It keeps the blood flow going and helps prevent things from getting worse. If you're not on it yet, I'd seriously consider it. At the end of the day, no single treatment is gonna fix everything, so stacking methods is the way to go.