Quote from: Alex83 on May 30, 2025, 09:00:36 PMOk thank you very much that's very reassuring

And what about having your penis erected in front of the doctor? Isn't it too embarrassing? Is it possible not to look?

Alex, I had this same concern before getting treated for Peyronie's disease. The thought of a man touching my "unit" seemed so embarrassing that I almost didn't want to go through with it. And then I looked at my bent unit, how my wife was devastated by what Peyronie's did to our sex life and said "Screw it, let's do it". A patient needs to put their embarrassment to the side and let the doctor do their job. Dr. Trost and I had a phone call prior to my visit and I had sent him a few pictures of my bent unit so he knew what had had to be done. It was a little nerve-wracking to see him for the first time and  go through the physical exam and ultrasound. But it was clear from our phone call and the minute he walked in the exam room that he knew his stuff cold and that he was the right doctor.

My insurance paid for nitrous oxide so I said "Let's have some fun!" and inhaled nitrous like there was no tomorrow. The Trimex injection was not a big deal and surprisingly, the anesthesia shots hurt far worse than the Xiaflex shots. After the Xiaflex shots were done he wrapped my unit and I took a video of how he did it. He did not administer an injection to reverse the Trimex so I left his office with an erection. It was actually kind of fun to walk from his office back to the hotel....I was still buzzed on the nitrous but was alert enough to cross the VERY busy intersections. And I had a boner that took a couple of hours to go down. That's the good part. The bad part started when the erection subsided and my unit withdrew into the wrapping that he had put on. I had to urinate several times and wound up wetting the gauze and tape....it was not fun. In prior posts I recommended that patients bring a pair of scissors with them so that they can cut the wrapping back far enough to avoid a urine-soaked wrap. On day 2 he administered anesthetic shots, additional Xiaflex and then pulled on my unit as if there was no tomorrow. There were three distinct "pops" which he said was plaque breaking. Six or seven hours after the second sent of injections I put on the RestoreX and cranked it to the max. Holy cr@p, my unit stretched out like a rubber band and I got to length and counterbending milestones that were unthinkable pre-injection. I used the RestoreX rigorously in the days following the injections which Dr. Trost said was a key factor in my "One and done" set of Xiaflex injections. There was a complication on day 5 post injection in that he said it was safe to stop wrapping. I stopped wrapping and during night 5 had a "pleasant" dream and my unit blew up like a balloon. It hurt like hell. It took a few days for the swelling and pain to recede before I could use the RestoreX again. It was excruciating but I did it any way. Hindsight being 20/20, and this is just me, I would recommend that folks continue to wrap for at least 10 days post-injection to avoid a blowout. Dr. Trost said that wrapping for an extended period is fine as long as there is no chapping or signs of fungal infection.

Long way around the barn....go see Dr. Trost, get the injections and use the RestoreX. It's not easy and it's not fun but it beats having a bent "unit".

I have all of the symptoms of peyronies except for pain, so my doctor is unsure what it is. Does anyone else here have experience of curvature, hour-glassing, but no pain?

I went through something similar and found that traction helped a lot alongside low-intensity shockwave sessions. Staying consistent was key for me, even on days it felt pointless. <unrelated link to commercial site removed by admin>

Papi: Have you tried putting gauze tape around the make up pads to stop slippage?

Have a look at my journal.

Quote from: Pfract on June 03, 2025, 07:50:36 PMHey papi! Sorry to hear that. Have you look into the comfort grip for the restorex?

https://www.peyroniesforum.net/index.php/topic,20981.0.html

I only tried straight traction when I did it.

I'm on the lookout for one in the U.S. Just heard about it today actually. If I can't find one here, I will look at getting one shipped from UK. Thanks!

Hey papi! Sorry to hear that. Have you look into the comfort grip for the restorex?

https://www.peyroniesforum.net/index.php/topic,20981.0.html

I only tried straight traction when I did it.

I am uncircumcised. I can use the Restorex pulling straight with the clamp flat, but putting it on its side to do the side bend is another story altogether. The only way I have been able to keep the Restorex on for any time at all is no pads and putting stretchy tape to hold skin back and closing the clamp with freaking channel locks as tight as possible, but it rips off every time along with the skin. It's brutal. Makeup pads on wont hold at all, and I'm getting pretty frustrated. I have looked through this forum and tried what I've read but no help yet. I'm not sure what to do really. Is this the normal experience? I keep trying to use it but honestly, I have been sore for the past couple weeks every day and all day from using this thing.

I realize this is the "introduction" zone, but I figured it was worth an update here since it's been years and I have yet to find another person on this planet who suffers from this same condition.

All of my symptoms have gradually worsened. I am 100% sure that this is due to a thrombosed superficial dorsal vein, which I can still feel.

I've seen many urologists--most sympathetic--but in my most recent round of 6+ visits in the last 6 months, doctors now can't even agree on what the diagnosis is, despite multiple rounds of imaging. The trend now is to label it "chronic pelvic pain syndrome" and tell me to go to pelvic floor therapy, which is absolutely ridiculous since I can feel the vein and all the pain radiates from the vein / the vein's tension.

I have some appointments queued up with interventional radiologists and a few new urologists, but I'm basically at square one. The doctors who have performed vein strippings don't seem to be familiar with thrombectomies or recanalization, and everyone is getting confused when I start talking about my symptoms that diverge from what the research says.

I had similar frustration early on, but sticking to the routine consistently for a few months made a big difference. I also kept notes to track small changes, which helped a lot.

I see it's been a while since you've posted, but I'm curious how things have gone since then. Have you noticed any changes or found something that helped even a little? I've been dealing with similar issues and trying to decide if mechanical traction is worth investing in long term. Would love to hear any updates or if you tried anything new since your last post.