Johncb63- Thanks for sharing your experience!

Now that is interesting. It seems that it may be dependent on area. They call it the postcode lottery as such.

@Bentknob.  I got a prescription for the somaCorrect 2 weeks ago via NHs urologist. I have an 45 degree upper curve so not sure if that makes any difference.
Ironically they wouldn't give me a prescription for tadalafil. However I can get that for £34.00 for 2 mths supply privately

I just received green light from my Uro to try PMP traction therapy. My issues is lost length, light curvature and hourglass. I will post images and measurements here if I see success.

In parallel I am using daily Cialis and we found out that my Testosterone is quite low for my age. (Thanks for the insight on this Mikel.) I am now trying to find a hormone specialist and I started doing strength training to see if I can improve it naturally.

Wish me luck 🤞

Dear brothers,

As a technologist and someone who has followed science my entire life I want to encourage all of you not to lose hope.  Since this condition affects an estimated 1-10 (estimates on prevalence vary) men on this planet, we can be assured that SOMEONE SOMEWHERE will finally come up with a drug or treatment that will work.  The pharmaceutical companies use algorithms to determine the cost-effectiveness of R&D related to any condition.  This degree of prevalence means that it is on the radar of many researchers.  Science moves rapidly (if not here in the United States, but elsewhere) some determined research scientist will find a cure for Peyronies Disease and for Fibrosis. 

I've lived through the HIV epidemic when the world was certain there would never be a cure for HIV or AIDS, now with gene editing (CRISPR), they have reported curing this disease.  I'm extremely hopeful for all of us, but especially for the younger men on this forum who have lost hope or for those young men who feel that there is no hope.  Rest assured, there WILL BE A CURE or an extremely effective treatment.

Please don't give up and do not lose hope.  Science will come through for us!  Technological advances seem to be exponential in nature, this means that a cure or treatment that REALLY works could come soon.  In the meantime, use the resources on these boards to educate yourself and to be as informed as possible.  There are success stories on this board!

There is always hope.

Hello all. I am 46 years old. In 2023 I noticed an indentation at the penis base, and it started pulling to the left during erections. The plaques continued to grow and resulted in a 45 degree curve to the left, and slightly down.

Two years later I am now being treated at UCSF, and had my first 2 Xiaflex shots this week. I am healing but am still experiencing bruising and moderate to severe pain with touching.

The changes in my body caused by this disease are difficult to accept, but I try to remain optimistic and view this as part of the journey of life.

hard flaccid is far more treatable than peyronies.

Thank you very much for your thoughtful reply. I do appreciate it.

I absolutely do agree that there is a major psychological aspect to ED and I know that it is affecting me as well.

It's just that there has been some non-psychological experiences that I have had as well.

For example, a sudden loss of morning wood. I used to wake up with a rock hard morning erection everyday. Then all of a sudden, this became extremely infrequent and the last time I woke up with morning wood must have been quite a few years ago. The loss of regular morning wood was then accompanied by ED, which makes me believe that there is a connection there.

I have had times where I may awake in the middle of the night with a nocturnal erection and I can tell that it is not fully erect.

I've also noticed that when I have wet dreams, my erections are also around 70-80% then as well.

I've noticed that I can get an hourglass type shape when I am flaccid or semi erect.

These factors lead me to believe that there is a physiological aspect to this but the psychological aspect then compounds the issue.

I'm just trying to understand if my issue is purely psychological or if there could be a physiological factor as well.


Is it because of poor blood flow? I am still young and otherwise healthy and I am quite lean so I doubt there are any blockages in blood vessels.

Is it because there is damage to erectile tissue? I recently watched a video on YouTube by a urologist called Dr Stefan Buntrock where he mentions corporal fibrosis being an overlooked reason for ED.

Even on good days where I am not stressed and my libido is strong, I still can't seem to achieve ideal performance.

Perhaps it is purely psychological. Although, before I developed symptoms, I had no issues whatsoever, both physically and mentally. These symptoms kind of appeared out of nowhere which is the strange thing. And then it went on to have a knock on psychological impact on me.

I think the next step for me would be to have a Doppler ultrasound. Perhaps that would clear things up for me.

Update?

Hello,

I've noticed that the psychological aspect is really underestimated among men suffering from ED.
Personally, the psychological side accounts for more than 50% of my Peyronie's problems (plus a bit of ED). I've been seeing a psychologist since December 2024, and I've also had several sessions with a sex therapist together with my girlfriend. All of that has helped me tremendously.

I consider myself to have good perspective on my own situation — I've traveled a lot, studied, and lead a healthy lifestyle — but through therapy sessions I've learned so much more about myself than I ever thought possible.

Even with tadalafil, there are stressful days when I can't maintain an erection properly. But in the summer, on vacation, there are no problems at all.

This summer, a friend confided in me: for a whole year, he couldn't maintain an erection. After a year of medical wandering, he realized it was psychological and decided to see a therapist. Now he's ok.

You might be caught in a vicious circle — an accumulation of adrenaline in your blood (which lowers erection quality) at the very thought of having an erection. There could be a social, family, or work/study-related blockage. We live in a very complex society where our daily lives are no longer limited to hunting mammoths, gathering berries, and interacting with the same 15 clan members. I encourage you to clear away the mental clutter of everyday life with the help of a psychological therapist.

Wishing you lots of strength and courage.