I'm so sad

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ohnoohno

I cant live my normal day to day life entirely, I'll be having a good time and the rest of my life feels like its coming together then I'll remember, oh yeah I basically do not have a penis anymore.

I'm in my late twenties and in a current time of my life I want to meet new women and have fun, I think of previous times it was so easy going but now I haven't had sex in ages because my confidence has dropped and I can't even imagine having sex, like I'll be so delicate and fragile it's embarassing.

I would never kill myself cause of friends and family and I love life but F~@< me I keep saying I should just KMS. Obviously over reacting and wont do that but F~@< theres no way out.

I think of the night which I believe caused all this in such regret. FML
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

ohnoohno

I should add, I'm taking cialis VED and manual traction, I can't even tell if I've made it F^@$!ng worse by this, I'm just trying my best to heal myself and things have gotten worse, it was like 10 degrees to begin with now def 30-40. GREAT GREAT GREAT!!!!!! I dont know what to do anymore, if I should just leave it entirely and stop touching it and just take cialis.. feel like I might of f'~c<+d it more by the traction
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

Sonic

As a fellow bro with this disease I can only say I share your feelings completely but literally all we can do is to keep on going on with life, try different treatment options (incredibly hard as there barely are anyone)

The days you feel extra down it's always good to remember there's more men around the world who has this crap than you know.. Also never do manual traction for the purpose of correcting a penile curve and never trust any jackass who promotes this.

I am one of those who tried it maybe a year or so ago and it definitely worsened my curve and even lead to an indentation. Traction for the purpose of correcting a curve due to peyronies MUST be done by a device and even then an incredible amount of time has to be put in.

Traction studies for Peyronies have ALL been made on devices. Not a SINGLE one of them has been made on traction by hand. I wish more people on here could spread that message to newer patients instead of promoting such a daft idea as pulling your dick by hand and thinking it will correct a curvature. It can save a lot of guys from worsening themselves like me.

Stick to the VED and immediately quit the manual traction. What you are doing right now is the only thing you can do. You are taking action. Give the VED some time, and even though it's tough try to stay positive. If you want to give traction a real try down the road invest in a device.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

ohnoohno


Thanks man, definitely was in a bad headspace yesterday and just vented. It's a shame cause I feel like my life is in a good place right now apart from my penis and the weight of that is so heavy. If I could fix this then I'd be so happy with my life lol. The thought really can ruin everything else.

So many people have said manual traction + point me to Neoman on YouTube, so you think this is bad? Even my urologist said after using VED it's good to bend the penis in the opposite direction. I would love a PMP or RestoreX but I'm currently in Asia travelling and not sure how to even get one here.

My urologist back home also just said "keep using the VED", can this help a curve though? or is it just to keep Erectile Dysfunction away?

Thanks man, we will all get through this together somehow.. in time..
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

Sonic

I also started doing it because of his videos. For Peyronies patients it is a recipe to only further deform your dick. With a device you have a constant even force stretching it. When doing it by hand you literally have no idea how much force you are applying and because of this you will apply different amounts of force everytime you stretch it. It's a completely dumb concept. Studies done on traction with devices pantients use them for 4 hours a day for at least 6 months.. What is a little stretching by hand throughout the day do except f.-..ck all.. Manual stretching was introduced by penis enhancing forums as a way to gain size, to do it in hopes of correcting Peyronies will only set you back.

I suspect probably 50% of young men got the disease because of those daft exercises like manual stretches and jelqing, pumping with bathmates and other dumb crap like that.

As for the thing your urologists said about bending the penis in the other direction I actually have no idea. If he said bend your penis the other direction while erect he has some serious problems. That is one of the major things that causes this disease in the first place. I have only heard patients being told to do that kind of thing after Xiaflex injections.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

FrankPD

Keep your heads up bros.  We gotta keep our life's and minds busy somehow.

Best to all.
I have a girlfriend
Age 47, No injury
Diagnosis January 2022  
Six plaques
Hourglassing when flaccid and semi-erect
Only have my congenital curve
Massaging with vitamin E cream twice a day 
5mg Tadalafil, Healthy diet
Discomfort/aching sometimes

ohnoohno

Quote from: Sonic on October 31, 2022, 10:08:31 AM
I also started doing it because of his videos. For Peyronies patients it is a recipe to only further deform your dick. With a device you have a constant even force stretching it. When doing it by hand you literally have no idea how much force you are applying and because of this you will apply different amounts of force everytime you stretch it. It's a completely dumb concept. Studies done on traction with devices pantients use them for 4 hours a day for at least 6 months.. What is a little stretching by hand throughout the day do except f.-..ck all.. Manual stretching was introduced by penis enhancing forums as a way to gain size, to do it in hopes of correcting Peyronies will only set you back.

I suspect probably 50% of young men got the disease because of those daft exercises like manual stretches and jelqing, pumping with bathmates and other dumb crap like that.

As for the thing your urologists said about bending the penis in the other direction I actually have no idea. If he said bend your penis the other direction while erect he has some serious problems. That is one of the major things that causes this disease in the first place. I have only heard patients being told to do that kind of thing after Xiaflex injections.


Nightmare, so many people abide by it, it seems. F~@<. wish I never did it. It wasn't that bent to begin with but got worse and maybe due to that. Or because it was right at the beginning stage. I feel sick man
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

Sonic

Quote from: ohnoohno on November 01, 2022, 12:20:07 AM

Nightmare, so many people abide by it, it seems. F~@<. wish I never did it. It wasn't that bent to begin with but got worse and maybe due to that. Or because it was right at the beginning stage. I feel sick man

I think with time, patience and will power you can beat this and so can I. Continue the VED and definitely contemplate investing in a traction device if let's say 5 months down the line VED made no difference.

I will begin traction with a Penimaster later this week. That's the only thing we can do, try to invest in scientifically studied treatments like traction VED and so on... And if things down the road does not improve I guess we have to bite the bullet and do some kind of surgery although I hope that day never comes.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

ohnoohno

Quote from: Sonic on November 01, 2022, 04:03:54 AM
I think with time, patience and will power you can beat this and so can I. Continue the VED and definitely contemplate investing in a traction device if let's say 5 months down the line VED made no difference.

I will begin traction with a Penimaster later this week. That's the only thing we can do, try to invest in scientifically studied treatments like traction VED and so on... And if things down the road does not improve I guess we have to bite the bullet and do some kind of surgery although I hope that day never comes.


Thanks man, I agree. I tried to calm myself down today and think I can still have sex and it still works to urinate etc so it's not the end of the world. I'll continue using VED and see if I can get a real traction device whilst travelling abroad. Hope everything works well for you too. I'm sure you'll see me on here more
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all