Does anyone have any experience with Hourglass type, severity, coping , alternate therapy or surgery?
Many of us
Quotehave any experience with Hourglass type, severity, coping , alternate therapy or surgery
For all you have mentioned have boards that will give you answers:
Open Questions or General Comments (that won't fit under any other topics) board
Surgery for Peyronie's Disease
James
James,
So, shouldn't we post replies here?
My experience is that I developed hourglassing as a result of the Verapamil Injections (VI). Before hand, the Dr assured me that there was a study that the injections don't cause any additional damage, but after 12 injections, I had the hourglass deformation only at the injection sites...draw your own conclusions.
Steve
Definitely all the forum members should replay to any topic that they find interesting and they have what to say.
As you are much much longer on this forum than me, you know that the members are encouraged to post answers to help each others and no any moderator can change this approach.
My answer to Reynell was to direct him to the boards that he can find answers for his questions, in addition to answers he will get directly to his post.
Sorry if my post can be understand as discouraging people to post, it was not my intention, if you will read my posts, you will see that I am indeed encouraging people to post from they experience.
Misunderstanding my post may be from my very basic English.
James
No harm-No foul ;)
Quote from: Steve on May 10, 2012, 09:09:21 AM
My experience is that I developed hourglassing as a result of the Verapamil Injections (VI). Before hand, the Dr assured me that there was a study that the injections don't cause any additional damage, but after 12 injections, I had the hourglass deformation only at the injection sites...draw your own conclusions.
[/quote
Steve,
If the VI's were into your scars/plaque... then wouldn't it be logical to think that the scarring/plaque may have also caused the hourglassing?
Well, as far as I could tell, my plaque was up near the Glans...that's where my bend was/is, and I've always been able to feel a cord-like structure when flaccid or 1/2 way to an erection. The Uro injected me nearer the base of the penis, and that's where the indentations/hourglassing had developed--it wasn't there prior to the injections.
Steve
I understand your statement and where you are going. Over the years with other problems i believe that medicine to me is not a science as much and it is an ART. Not all treatments work the same way on one person as it does on another. And a treatment can work correctly on a person one day and next month you could die from complication from the same treatment. My mother thinks that if a Dr said it is true, not so Dr's are human and have oppions and make mistakes like everyone else. There are good Dr's great Dr's and idiots. The scary part is that they don't come with signs around their necks! Dont take my coment as me being a Dr of knowing more than an Dr because i dont.
Rey
Reynell,
I hear what you're saying...I started with topical Verapamil, then the injections, and then I tried the VED therapy as championed by Old Man...I read here on the forum of men who've had success with the injections, and lots and LOTS of men who've had success/improvement using the Vacuum therapy. So far, nothing I've tried has made 1 degree of difference to my bend, and the only thing I've seen is the indentations (that I'm convinced came from the injections). I tried the VED for close to 18 months with no change, so I guess I'm one of those problem cases :(. I keep planning on re-starting it again (at least I didn't get any further damage from it) to see if anything's changed since this bend started 7 years ago :-\
steve
Hve they even said anything about surg yet? Or do you even want to consider it?
The uro mentioned the Nesbitt procedure at one time, but I don't think I'm up for that right now...
Quote from: Steve on May 14, 2012, 04:04:02 PM
The uro mentioned the Nesbitt procedure at one time, but I don't think I'm up for that right now...
First point......
I would never trust a Nesbitt Procedure to correct a 70 degree bend.
Second point......
I assume that a 70 degree bend makes penetrative sex next to impossible. And it sounds like you have tried several options already. Everyone must evaluate the choice of surgery over quality of (sex) life.