Peyronies Society Forums

Hi guys,

I've made a few posts before about my situation but I will just sum it up here. I had a penile implant but because my injury is to the corpus spongiosum I still have erectile dysfunction (soft glans, spongiosum doesn't inflate) essentially.

I am wondering if this would improve if I was able to somehow soften the scar tissue using DMSO or something else. Please can anybody make a suggestion as I am really at the end of the line now.

My reasoning is that for maybe 6 months to a year after I had the initial injury, I was still able to have erections I just had pain. I feel like if I could get the scar tissue soft like it was before, maybe these issues would be less.

Thanks for any replies.

If you can not easily have intercourse, then you do NOT have a properly installed implant PERIOD!

Have you ever read one reliable account of anyone reversing significant ED with DMSO on this forum?

Have you ever read one account of anyone with an implant using DMSO on this forum? I haven't.

Implant surgery NEVER changes how your corpus spongiosum responds because It is not intended to have any effect on your corpus spongiosum.  This is just a common, well-known fact to anyone that has done any reading on the forum.  If you had significant ED before your surgery and think that DMSO is going to change that, you are grasping at a fantasy.  If DMSO could resolve significant ED then you would have done that first and never needed surgery.

I have had this issue for 6 years or more so believe me when I say I have done a fair bit of reading on this forum. I am not thinking that DMSO could cure erectile dysfunction, I was wondering if softening the scar tissue would allow my penis to expand better and somehow improve the soft glans and cs issue that I have.

My implant is fitted correctly, there is no issue with the implant for me, it's everything else. Sex cannot be enjoyable for me because if the glans and spongiosum do not engorge then you basically are having sex with two plastic tubes with skin around them. There is no sensation and I cannot ejaculate during sex.

Maybe it is wishful thinking, I don't know. I have to try something though. I have seen a few people saying that they softened scar tissue using DMSO. Is it worth trying?

Does it not make sense that if you were able to make the scar tissue softer then the penis might expand more and potentially solve the soft glans and poor cs filling or at least improve it?

Anyone ?

Have you tried still using viagra for glans engorgement, the trimix gel? Or some people I have heard use the VED and a cock ring to engorge the glans (I am not entirely sure how or the risks involved).

Viagra and Cialis literally do nothing at all for me anymore, they did used to work even after I had the injury. That was until the scar tissue hardened. Now, nothing I do works it's like the hard scar tissue prevents blood flow from reaching the glans and even the spongiosum stays flat.

I tried trimix gel and it doesn't really do much either.

Is it stupid to think that if I could somehow soften the scar that some function might come back? At least glans engorging better?

I have no idea, I think some ultrasounds and a urologist could probably answer that question a lot better.

Good luck.

The ultrasound didn't show anything, which I thought was weird because now I have a hard scar that goes around my dick. I feel like if I could somehow soften it then I could regain some function.

I basically had an implant and the part of my dick which was injured wasn't replaced by the implant cylinders, so the part which wasn't injured was replaced by the implant and I'm still dealing with the same problems because the spongiosum is the injured part.

Nothing I do works.

What did your urologist say about this?

My ED has improved over time with traction/VED as well as pentox, cialis daily, and ALCAR.

Not sure if they will work for you.. I think only a surgeon who understands the anatomy of the penis would be able to diagnose and help.

Quote
The ultrasound didn't show anything, which I thought was weird because now I have a hard scar that goes around my dick. I feel like if I could somehow soften it then I could regain some function.

I basically had an implant and the part of my dick which was injured wasn't replaced by the implant cylinders, so the part which wasn't injured was replaced by the implant and I'm still dealing with the same problems because the spongiosum is the injured part.

Nothing I do works.

@sonnyjim: as usual.... you show that you don't understand your condition, neither the device you had implanted. I feel for you, as you can't get past repeating the same things over and over and over. But yet, you somehow expect a different result. Maybe one day you will wake up from that mindset.

I don't understand my condition? That doesn't make sense. I understand it pretty well, I've been dealing with this for enough years.

What is it that I don't understand ?

Sonnyjim,

According to Dr. Trost, scar tissue cannot develop in the corpus spongiosum. Very likely what you are dealing with, perhaps in addition to peyronie's (I haven't read your history), is a version of hard flaccid/CPPS (chronic pelvic pain syndrome). Lack of glans/corpus spongiosum inflation is a commonly reported symptom in that community. Check out the hard flaccid forums on reddit (I believe the subreddit is called hard_flaccid). The community also has a discord group. You might be able to find some helpful resources on remedying this problem.

Best of luck.

I'm not sure you can have hard flaccid with an implant, not sure.

Quote from: sonnyjim on October 18, 2022, 10:43:42 AM
I'm not sure you can have hard flaccid with an implant, not sure.

And then you say you don't understand, when I say you don't understand your condition nor the implant. Whether you do or you don't, it doesn't matter. The implant is inside the penis and your peyronies and Ed are gone.

Yeah, my erectile dysfunction would be "gone" if the corpus spongiosum functioned, which it doesn't.

That's what I am trying to figure out if I can fix.

I don't think I will ever have satisfying sex again in my lifetime which makes me sad as I'm still in my 30s and I was 27 when this all started.

Yes, I have an implant but because the cs is damaged and has hard scar tissue, the head and cs do not fill with blood and I literally feel nothing. I never really feel my dick throughout the day either, it might as well not be there at all.

I just assumed that if I could soften the scar tissue it would somehow let more blood through or something. Everyone automatically thinks having an implant means you don't have a problem anymore but that isn't the case, I am still in the same place as I was 5 years ago.

If anyone has any suggestions other than just patronising me please post them.

Do you regret getting the implant?

I'm not sure mate, I don't feel like I am any better off though.

A 60 year old guy who had his done on the same day as me called me a few weeks ago and he is over the moon with his. I guess his scar tissue was on the part of the penis that the cylinders replace and not the cs like me.

I basically have a penis that has no sensation and a small glans. Also because the cs does not engorge either, my girth is much less than it was. Basically just two plastic tubes with skin over the top.

I can however feel the scar tissue all day long, like a squeezing sensation, but other than that no pleasurable feeling with using it or masturbating etc.

I feel like if I could lessen the scarring or soften it somehow it would allow my penis to expand more and maybe that would give me some quality of life at least.

I have been trying to use DMSO with vitamin c and magnesium oil but so far nothing has changed in a month and a half.

Real question guys because I have been thinking this for a while (5 years)

Is it worth living a life without sex? I feel like my sex life ended at 27 and I've been trying to get it back ever since. I'm not talking about curvature or anything else, I'm talking about the fact that I cannot have any sort of sex live because whatever injury I had means that I cannot feel anything pleasurable and I can't think of a way to ever have a satisfying relationship like this.

I've held on to hope that something would improve in 5 years but nothing has improved at all. No sex for 5 years has been bad enough but for the rest of my life?

It's like a nightmare. I think I have finally ran out of things to try and I'm just trying to accept it and build up the courage to put myself out of my misery. It's hard to explain.

Unless anyone else has some bright idea or miracle cure that I can try.

Quote from: sonnyjim on October 25, 2022, 04:19:12 PM
It's like a nightmare. I think I have finally ran out of things to try and I'm just trying to accept it and build up the courage to put myself out of my misery. It's hard to explain.

I do not know what to say. I have replied to your previous posts and so have many others but it leads to nowhere because none of us can give you a real answer about your case.

We are not doctors, we are only other men with the disease and all we can do is offer advice. If you are actually having real suicidal thoughts over this you need seek out help elsewhere not on a Peyronies forum.

It has gotten too far if you are having very dark thoughts like that. This whole loss of sensation thing indicates nerve damage.

Sonic, how will you feel if you have an implant that is only tubes and skin? No feeling......what sonyjimm is going through is a nightmare and needs our support.

Of course it's a very tough situation. Many guys have offered support but same threads and questions keep getting asked by him. Questions none of us can answer and it seems not even his doctors can.

Not really much anyone on here can do for him, he needs to handle this tough situation on his own by trying to get hold of a doctor who can help him.

The problem is that Doctors can't help him, I know how it feels when there is not solution, men penises are not a priority for the Medical industry. 

I wonder why some people here have had success reducing the scarring and mine hasn't improved at all in 6 years. I've spent thousands of pounds on supplements, creams, pills and whatever else and I'm still in the same boat.

Are peyronies plaques different to scar tissue caused by injuries? Is scar tissue from an injury less likely to heal or improve compared to typical peyronies plaques? Or are they the same?

I can't tell you with full certainty however I can tell you in my experience Peyronies scarring is the weirdest bs I've ever experienced. I have had multiple injuries in my life in different body parts and none of them acted the same way as Peyronies did. It's the only injury I have had in my life that evolved and took on different phases as time went by.

Seems like all of this rubbish we tell each other to try just doesn't work. Really, nothing can get rid of scar tissue. Kind of hard to believe that if you ever injure your penis you don't get a second chance.

Certainly hard to stay positive at times. Take me for an example, in the summer it will be 3 years for me with the disease and the dent/hourglassing seems to just get worse even though I am doing everything I can to let it rest. I keep asking myself how the f... can it keep progressing 2.5 years after the injury it's like my penis just decided to eat itself up. I would not be surprised if myself down the road became an implant patient too.

Trimix caused me a Piraprism that killed part of my penis tissue due to a medical negligence, then try to 'fix' it with traction, made it worse, then I believed that PRP will help me then got worse again!!!!!, then Shockwave then worse again!!!!, I'm a miserable depressed man, my life had completely changed for the worse, I'm been extremely unlucky and all those people that caused my misery are still doing the same 'therapies', I'm probably cursed.

@Bud Luck

Reading your signature and your posts your issues sound almost indentical to mine.

Have urologist ever been able to feel a plaque when examining you? On me they never can feel anything, the tissue feels normal and soft all over. No hard bands, nodules or anything like this. I have read about patients like this. Where doctors cannot palpate any scar or plaque.

This makes me wonder if men like us do not have classic Peyronies where scarring form on the tunica but instead we have diffuse scarring all over our corporal bodies. I have never done an ultrasound but I suspect what I have is corporal fibrosis.

Sonic, how did you get your fibrosis?. I got corporal fibrosis due to a medical negligence with a Trimix injection, one day that destroyed my live forever. I could do an MRI here in Spain for cheap price and know what I exactly have but I canceled because what is the point to know what I have if nobody can't do anything about it.

I suspect it was an combination of overuse of 10mg cialis and rough sex. It was in that period where I took 10mg cialis everyday everything started for me. One 10mg pill lasts in system over 36 hours. I overused them and remember many times I was way too hard. It really felt like a super unatural erection hard as stone.

Then one day my entire penis was very sore. Lasted maybe 3 days and then felt okay again. Few weeks later I notice a maybe 15° curve to right which soon turned into a 20° curve and then seemed to stabilize.

Maybe a year into the disease I noticed hourglassing and a dent located near base on right side. These symptoms have gotten worse with time. The curve has remained the same the entire time but hourglassing and dent is getting worse. I have contemplated buying a penimaster device but am hesitant out of fear of making matters worse.

I was thinking long time about VED but a friend told me if I start traction in time it will make me straight and a side effect benefit is maybe 1 or 2 inches in lenght.

What prevented me from getting a VED are all the posts I read on how easy it seems to overpump.

Quote from: sonnyjim on October 08, 2022, 12:55:05 PM
Anyone ?

https://www.thenovuscenter.com/treatments-los-angeles/peyronies-disease/
In the penis, BPC-157 heals the scar tissue that accompanies Peyronie's disease and prevents the creation of new scar tissue buildup.

Happy to help answer peptide questions

Is this only for acute stage or new injuries? Can it help with old, harder scar tissue?

Quote from: sonnyjim on October 28, 2022, 06:57:36 AM
Is this only for acute stage or new injuries? Can it help with old, harder scar tissue?

I am making headway on my Peyronies Disease from a fracture that's over a decade old. BPC 157 seems to be good for wound healing on old, hard scar tissue like we have & BPC seems to be good for right after surgery.
https://anchor.fm/novus-tv/episodes/82--Stephanie-Wolff---Can-You-Treat-Peyronies-with-BPC-157-ei0e0e
https://www.lovejoyhospice.org/using-bpc-157-to-recover-after-surgery/

Are you noticing any improvements yourself?

I had this injury 6 years ago and nothing has improved since then. If there is even a remote chance that this could work, I would try it.

Quote from: sonnyjim on October 28, 2022, 08:01:32 AM
Are you noticing any improvements yourself?

I had this injury 6 years ago and nothing has improved since then. If there is even a remote chance that this could work, I would try it.

YES! Reduced the hardness of the scar. My curve is less. I'm responding to the other forms of treatment where I was at a wall. I've injected 500mcg into the skin near my injury but not into the corpora everyday for 2 weeks. You can inject subq into the fat above the groin if into penis skin is too freaky

I doubt I would inject it into my penis as I have a penile implant anyway.

The injured tissue goes across the bottom side of my penis and affects sensation. Glans and corpus spongiosum do not fill.

What kind of results would taking this in pill form have?

Quote from: sonnyjim on October 28, 2022, 09:43:03 AM
What kind of results would taking this in pill form have?

Dr. Wolff's "The Novus Center" in California uses oral BPC 157 effectively along with (https://www.thenovuscenter.com/treatments-los-angeles/sexual-performance/novowave/) & their Acoustic Wave Therapy for treating Peyronies Disease

https://kiyalongevity.com/2022/07/the-benefits-of-oral-peptides/
https://www.phcoker.com/how-to-inject-bpc-157/ 

How much are those peptides?, and I just read an article that is not proven to work on humans, I will just wait for other guys to try and see if they work for them, seems to good to be true, at least they are not injections

It does seem too good to be true to be honest. Still, psychologically I feel like I am running out of time and I'm willing to try whatever. That's until I can't deal with this anymore and I finally give up and say f*** this life. I feel like I'm nearly there...

Sonny.... You have been feeling like you ''are almost there'' for a long time now. Please, seek help and stop this.

I have had "help". I've seen psychiatrists, counsellors, therapists. I've tried everything. If you think that talking about this issue makes it go away you're wrong. You must know that, seeing as you are dealing with similar crap to me.

I can't have sex. So in reality, I can't have a normal relationship. How is talking about it going to really help me? I'll still be lonely.

Probably the worst part about it is that because I'm quite good looking people are starting to wonder why I don't have anybody. What am I supposed to say?

After all this time I think I deserve to see improvements. I don't deserve this crap, none of us deserve this crap.

Honestly it's the weirdest situation I've read about since joining this forum..

Your implant is working as normal but you have aquired complete loss of sensation in the entire penis?

I really don't think a single person on here can give any advice, I've never heard anything like it. Have you talked to the doc who made the implant about all of this? I symphatise with your situation but this is a case for a medical expert to make a full exam and see where the loss of sensation stems from.

The glans doesn't inflate completely I see, however I have read that happens to a lot of implant users.

I suspect you have already given VED a chance?

Quote from: Sonic on October 29, 2022, 06:18:32 PM
Honestly it's the weirdest situation I've read about since joining this forum..

Your implant is working as normal but you have aquired complete loss of sensation in the entire penis?

I really don't think a single person on here can give any advice, I've never heard anything like it. Have you talked to the doc who made the implant about all of this? I symphatise with your situation but this is a case for a medical expert to make a full exam and see where the loss of sensation stems from.

No, I had no sensation even before I had the implant. I don't have typical peyronies, mine was caused through an injury I had to the underside of my penis, it is now a hard scar across the bottom of my dick. It's like it prevents blood from getting to the glans. If I inflate the implant it literally is like two tubes with skin over the top. The corpus spongiosum also does not fill unless I masturbate for a long time and obviously, this is a problem if I ever wanted to have sex. I can't feel anything during sex, nothing at all. It must be that the scar tissue is pressing on nerves but all of the "specialists" I've seen could not tell me what the cause is.

Sounds incredibly unlucky.. Most guys I've read about on here had a high satisfaction rate after an implant.

Hope you somehow get it fixed in the future... I can't really be of any help sorry.

As far as I know, lack of glans engorgment and loss of sensitivity are some rare complication of penile implant. It seems you had a bad luck since you got both the complications. You are wasting your time in finding the scar tissue.

Quote from: Bud luck on October 30, 2022, 06:29:12 AM
Most guys? I read plenty of bad stories of guys with implants, not on this forum but on others, the implant is not as easy and 'safe' as you think, that is the reason why Dr Trost only recommended for guys older than 65 or Dr Eid mentioned the implant only if you have total Erectile Dysfunction or extreme deformity that impedes penetration.

I said most guys I've read about on here. I am not active on other forums to see what men with implants all over the world had for results but one thing is for sure when it comes to implants: The surgeon will be the deciding factor of the outcome. Of course if some guy gets implanted by Dr. Eid who has countless years of experience vs a surgeon who does 10 implants a year I do not need to mention what patient will have the better outcome.

I would say if you do the surgery by a highly expetienced doctor it is relatively safe.

Guys I never meant the implant was not fitted correctly, Dr Ralph did mine and I think he did a good job. The initial injury I had was to the corpus spongiosum so the feeling you get when you get an erection (feeling blood rush) is gone. In fact, I don't feel very much at all even when the implant is pumped up. The glans don't engorge much at all either.

All I wondered was if I could somehow improve this by shrinking the scar tissue or something, it's probably just wishful thinking but I don't know how I can enjoy a sex life without some sensation returning at all.

If I pump up the implant it's just literally two tubes next to each other. Without glans engorgement it's literally a flat penis with not much girth at all. I just want suggestions on how I might improve this, if I can at all. I can't feel much at all.

Dr Eid recommends Muse intra urethral drops to help with your soft glans. Have you tried it?

I've tried muse and Vitaros, muse does nothing at all and Vitaros does very little but I get a little bit more 'engorgement' of the glans but only if I constantly manually stimulate myself. The moment I stop, it deflated again. So neither of these are of much use to me.

The only way I could potentially improve this I think is if I could affect the scar tissue somehow. The scar tissue blocks blood flow to the glans. I can feel it squeezing my penis literally all day long, it's kind of disturbing.

Perfect. There's your solution.

Vitaros helps while these is stimulation, right? then.... if you inflate the implant and then have sex..... you will be stimulated, by the vagina.... right?

so.....?

No, I literally don't feel anything during sex since I had this injury 6 years ago.

I have to manually stimulate myself constantly (and fast) otherwise the glans will not engorge. I also cannot ejaculate during sex and it takes me a very long time even when I'm on my own.

There has to be another solution surely.

Fasting makes your glans fill up more?

I wouldn't know mate, I've never really tried it.

If fasting could have any affect on the scar tissue then it could work, in theory. It always just seemed to good to be true so I never tried it.

Was that supposed to be a question or more like a suggestion?

Thanks.

Haha. I misread your post

I have to manually stimulate myself constantly (and fast)

Some guys claim fasting helps things...so I was curious if you were experiencing that too but you meant fast, as in speed!

Things like shockwave therapy, would I even be able to have that now when I have an implant?

Why would you even be thinking about shockwave therapy if you now have an implant?
Is the implant not working correctly?

The implant works correctly, the rest of my dick doesn't.

I have scarring to the corpus spongiosum which prevents my penis from expanding, it was like I tore my penis and now there is a line of scar tissue that goes around the shaft.

I was hoping that if I could affect the scar tissue somehow that I would be able to regain some sort of function and maybe cure my soft glans.

Even though I have an implant I still can't have any kind of sex life because I have soft glans, the corpus spongiosum doesn't engorge and I don't have much sensation at all, certainly no sensation in the glans.

Anyone know whether shockwave therapy is safe to have if you have an implant?

I need to improve my situation and the only way for me to do that is to somehow reduce the scar tissue that blocks blood flow to the glans.

You get absolutely no blood flow up there?

I get some blood flow I guess, just not enough to make the glans engorge properly. I have white patches on the glans which obviously shows that not enough blood is getting there.

I have literally tried everything to fix this issue, I have a penile implant at the age of 34 and I still cannot have a normal sex life. This crap is not fair.

The original injury was to the corpus spongiosum and now there is a hard line of scar tissue there which stops my penis expanding so I never get fully hard, I have a totally numb penis and I cannot ejaculate or feel anything during sex.

The only way I can ejaculate is by using my hand and even then it takes a really long time. I have tried everything to soften the scar tissue, thinking that maybe things would at least improve from how they are now but so far no luck. The scar is still as hard as it's always been.

I can't imagine dealing with this forever to be honest.

Sonny, When was the last time you visited a doctor and did a proper exam to try figure out what is going on?

It is truly a shame if they can't help you. I hope you find a doctor who can figure out the problem.

I've been so many times but no one seems to be able to actually help me. I've had about 5 ultrasounds, mri's etc but nothing showed 'anything abnormal' even though I can physically feel there is a lump there...

Ive tried every supplement, everything suggested on this forum and elsewhere and nothing has improved in 6 years.

I'm currently trying shockwave therapy and injecting BPC 157 which was suggested to me by another member of these forums but so far, no luck.

I don't know whether it's the location of the scar or something but I just don't feel the rush of blood you get when you take Cialis or viagra anymore and I literally have no sensation at all.

All this and I stupidly thought an implant would allow me to have some kind of a sex life but no, I think I'm too badly damaged to ever have a sex life again.

A lump doesn't equal it having to be a scar. It could be something else. Usually if the lump is big enough to be felt it will show up on an ultrasound and the fact that you have had 5 which showed nothing indicates there's not much plaque left. Also why are you doing shockwaves when your corporal tissues have been replaced with cylinders my friend that's like putting hair styling gel on a completely bald head.

I would also be very careful with injecting stuff into the dick, that's a recipe for scar buildup but someone else needs to chime in here because I am very confused. Why would it even matter if you have scarring or plaque anymore when you have cylinders which do the job?

Isn't the blood rush loss due to the fact that it's cylinders expanding with fluid and not an natural erection?

I thought that happens to everyone with implants.

No, the injury was to the bottom side (ventral) so even though the cylinders inflate, the part of your penis which allows blood to flow to the glans has a scar so, I don't get glans engorgement and the bottom part doesn't engorge either which means I basically have two cylinders with skin around them... and no sensation in my entire penis.

Bearing in mind the corpus spongiosum is also part of your girth, my dick is so narrow without that part engorging that I'd probably struggle to bring pleasure to a hamster.

On rare occasions my entire penis does engorge but that is either after I abstain for a ridiculous amount of time or I masturbate and use a cock ring and everything else which simply doesn't equal a very good sex life.

The numbness is the worst thing though.

Firstly, merry Christmas all.

Secondly, if your penis can fully engorge on some occasions that would imply it still can in general. You speak in a lot of absolutes about your sex life being over and your penis being totally broken, and I can only imagine the stress and hell you've been through over the last few years (well actually I guess us people in this forum don't really have to imagine too hard aha) but it seems like if your penis is capable of working occasionally, the idea that the blood is unable to get through wouldnt make much sense, because if that was the case your penis would never fully engorge. There must be another reason why it doesn't work consistently, whether it be physiological or psychological.

I'm not a doctor, but the fact it can sometimes work means it still can general, that would give me some hope at least if I am ever in your position that some sort of more sustained recovery would be possible.

Keep fighting, keep going, I don't have the answers but you have my support, and I'd say you still have more than a fighting chance of getting this sorted.

I already have a penile implant and I still can't have any kind of a sex life because my penis has no sensation. It might as well not even be connected to my body that's how bad it is. During sex, I literally feel no pleasure at all.

I feel depressed because the very thing I most need in my life I cannot have. I have to live like a hermit, hiding away from women when a few years ago I used to love my life.

Sonny! We missed you man.... How you been lately, besides the implant?

Yeah aside from the fact I have had no woman in my life for 6 years, no love, no intimacy... and I'm being treated like an Alien by people at work because I went for a drink with a woman, yeah not too bad.

Nobody tells you that nothing changes this condition. No supplement, injection, cream, machine does anything to change this.

I think you have any venous leak, cs noy filling blood because vein enlarge

Sonny,  I have to conclude that you have serious psychological issues (body dysmorphia, OCD, etc).

You cannot have Erectile Dysfunction with even a half-assed implant surgery.

I think you need to actively find and consult with a GOOD psychologist and a psychiatrist.

Keep in mind that even if it is true that you have a physical cause for feeling no sensation in your penis, this does NOT stop you from the pleasure of meeting women, having intercourse, and getting pleasure out of the MANY ways you can give pleasure.  You can, of course, have an intimate relationship. To withdraw from that is poor decision-making on your part regardless of how your penis might feel to you. Living like a hermit is a poor choice, not a necessity or a requirement.

Also, in reference to the last post.  Venous leakage has ABSOLUTELY NO bearing on a penis with an implant.

It is purely a problem with the corpus spongiosum not filling, I don't have a problem with the implant. It does what it is supposed to do.

If only the rest of my penis would engorge properly I could be happy. My ED was caused by damage to the spongiosum, the glans does not fill either and so... very little sensation and very little pleasure.

I literally feel nothing during intercourse.

Is there anything that could potentially reduce the scar tissue and give me back something at least?

Sonny, so what is the real problem?  The fact that you are obsessing that the spongiosium (which IS the Glans)does not engorge (which you knew going into the implant because we covered that extensively).  That is the case with EVERY MAN WHO HAS TOTAL ED. That does not keep men with total ED from having normal pleasure and orgasm.

What will probably help is good mental health counseling.

I read this entire thread and wanted to hear more about the bpc157 anyone having any luck with this concerning the penile fibrosis and scarring?

Have you read the Peyronies Survival Guide (https://www.peyroniesforum.net/index.php/topic,3180.0.html)?

If it is not mentioned at all in there, then it is because there is NO evidence it works, and shockwave is known to cause more damage.

All you have to do is glance at the link at the beginning of this post to know it is a very unprofessional site geared at getting your money.  I will probably deactivate the site.

Nothing in that guide works either.

Nothing works, full stop. Apart from traction if you have a curve, nothing works.

Jim its 2023. Been reading some of your posts and related and made an account. Have you had ANY improvement of ANY problem since you joined?

I seem to read posts ALOT regarding issues with loss of feeling, no sensitivity, peyronies, Erectile Dysfunction etc.

The posta go on but are NEVER concluded. I've maybe read like 3 across the entire span of internet forums of any actual results from any methods of improvement but 99% of the time we never hear back from the OP. It just goes unchecked.

I wonder now if its even possible to fix. Odds are looking slim for us my friend. My problem is my dick bent during sex and one half of my dick lost pleasure. I can barely feel anything and only one side of my dicm actually works like it used too. Even the dick skin has gone a different texture.

I'm praying for you my friend for whatever F^@$!ng good thats worth
 Get back to me ASAP.

Hey JayJAy... Can you please write an introductory post in the proper section of the board?


There are solutions here! Please stick with us and let us know how it started.

No improvement at all.

I have scar tissue which prevents the corpus spongiosum from working, basically. And of course the glans doesn't really get bigger because of that.

It's been 6 years now and with the things I've tried in all of that time, I doubt it could ever get better.

I appreciate you taking the time to reply man. One question I have. Is there anything you HAVEN'T tried? I mean at this point if there's no feeling and no erections then maybe an extraordinary circumstance calls for extraordinary measures. You might aswell try the wackiest Chinese medicine out there right?

If science is failing you then go to the supernatural or oriental methods. What else have you got to lose? There's always a slim hope My friend. Might aswell go out trying than giving up, no matter how hopeless it feels.

Anyways, that aside. How are you within yourself? Do you work? What's your day involve? How do you cope? Do you have relationships still? Friends?

What's the future goal for sonnyjim? I read a post about your gf and I'm sorry about that brother. Just tell me how your doing in life atm.

This crap can really get to you if you let it so don't let it.

Yeah sorry dude I will make introductory ASAP. I tried but can't figure out how to so I'll do it on desktop

Just go to the following link and post a new topic there introducing yourself. You will get a better response there than tagging on someone's existing post.

Introductory Board (https://www.peyroniesforum.net/index.php/board,46.0.html)

crap bro...I know exactly what u going through. My CS is completely dead. Totally flat gone. Cant get any sensation. 

Its mind opener. People dont realize its light and day with regards to senstigity when you CS is not working. Like Sonny said its just to 2 stick nothing more.

I am in similar issue....

Do you have an implant as well?

Unfortunately, with everything I've tried I don't think anything would work now. In 6 years I've probably tried everything I've read on this forum and nothing works. I just have to somehow accept this and live with it.

It makes me feel so depressed knowing I will probably never have a sex life. 

Hi, out of curiosity have you been in a long term relationship since your injury. I have similar issues to you, with gland not engorged and lack of sensitivity and inability to orgasm during sex. Though I find once I'm in a trusted relationship I gain more confidence and I gain sensitivity as I become more relaxed. I think after such an injury you have to figure out and retune yourself, which is difficult to do in casual relationship. I was in a similar dark place thinking I was defective and worthless, but after finding the right person I was able to rediscover snd build on the vistages of my sexuality. I think I was fortunate that I didn't have sex before the injury so frankly I don't know what I am missing, so it is what it is for me.

^should probably just elaborate to say that my ability to orgasm during sex returned over time. The first time with my new partner I could barely get an errection, had no sensitivity, and no orgasm. I basically told her I think you should find someone else as I'm hopeless, but it has got better to the point we can have a mutually satisfying sex life. I know I have organic problems; I haven't had a full spontaneous errection in over ten years, but the psychological aspects can't be understated either.

As there is a chance I might end up with an implant myself in the future I have been reading into this more and it is indeed quite frightening that this happens to some men and even more frightening that nothing seems to be able to fix it. I'm sorry this happened to you guys.

Hi guys just an update,

I'm still in the same position. Does anyone else have an ideas of something I can try? I feel quite helpless now to be honest, nothing works.

Hey Sonny! We missed you.

Sonny,  If your signature line is incomplete, the surgeon's name for the implant, no date of the implant.  You never posted an implant journal.  We know NOTHING about your surgery, recovery or whether you had an implant yesterday.  FULLY fill out your signature line.

Have you tried Cialis or Viagra? Maybe try higher doses and see if it helps a little with glans engorgement?

Maybe incorporate a VED to your routine? Sadly not much can be done about this except for trying Cialis/Viagra/VED

Yeah I've been taking Cialis (up to 20mg) it just has no effect. Viagra is the same.

It's as if the scar tissue blocks the nerves or something, so these medications just don't do anything for me.

It's difficult because I can't see how I'm going to get past this. I went ahead with the implant because I really thought I would be able to live the rest of my life normally. And I just can't see a future.

I honestly don't know what to do next.

This might not cheer you up enough just yet but there's always a solution. Always. What you're experiencing is most likely a nerve damage, that is why there's an issue with both erogenous sensation on your penis (sensory nerves) and soft glans (motor nerves). There's a solution coming sensation-wise and that's WinSanTor's WST-057 topical gel, working to regenerate sensory nerves. There's couple of more stuff that's right now in crinical trials and should be up the market by 2025. The hard part is whether FDA approves it, but even if not, there's still a way in getting ur hands on it.

Basically what we waiting for is a medicine for nerve regeneration and, as mentioned earlier, there's a couple of them being even so far as Phase 3. Please don't lose your hope. Your 6-years old struggling story inspires others, including me (who's new into basically the same condition as you) not to give up.

Sonny I feel for you... I don't have as bad of sensation loss. But I used to have very good sensation prepeyronies. Now it's like a cold numb sensation that in some places I can barely feel or can only slightly feel. Prior to peyronies my glans was the most sensative place after it it's like the tip top of my glans and bellow the head a bit but there's a gap of numbness. Idk what caused this I think I have plaque near my glans I can feel a hard inflamation feeling on my left side near the tip.   I've learned to like it cuz it's the best I got, I've been to specialists both accredited and not. I've been to therapists both accredited and not. Unfortunately, nothing really addressed this for me so I've been trying my best to learn to live with it it's challenging and exhausting and I applaud you for hanging in there. Don't give up

I have a feeling in our lifetime we will see some regenerative medicine better than we have seen thus far. I could seeregenerative medicine in general as we have all these tools that can analyze more data than people have ever been able to in the past. My fingers are crossed for you. I'm no doctor but I'm praying for you my dude I struggle with my problems and pain is the reason I still haven't gotten an implant. Im just so worried it will cause me more pain or more sensation loss. I am still leaning g towards it cuz all I can think of during sex is am I hurting myself. You see it's very hard to tell when you have less feeling and well... yeah I'm sure you understand. Wishin you the best

The problem is that I just don't know how to go about things anymore.

I can't do this life on my own. But that is starting to look like a reality. And if that is what it is then what is the point in all this ??

Welcome back Sonny!

Quote from: QualityLife on December 28, 2023, 01:00:02 PMThis might not cheer you up enough just yet but there's always a solution. Always. What you're experiencing is most likely a nerve damage, that is why there's an issue with both erogenous sensation on your penis (sensory nerves) and soft glans (motor nerves). There's a solution coming sensation-wise and that's WinSanTor's WST-057 topical gel, working to regenerate sensory nerves. There's couple of more stuff that's right now in crinical trials and should be up the market by 2025. The hard part is whether FDA approves it, but even if not, there's still a way in getting ur hands on it.

Basically what we waiting for is a medicine for nerve regeneration and, as mentioned earlier, there's a couple of them being even so far as Phase 3. Please don't lose your hope. Your 6-years old struggling story inspires others, including me (who's new into basically the same condition as you) not to give up.

cant believe this is the only post that mentions the winsantor topical. the patent is actually out and one can replicate at home if they wanted. im certainly looking into it as i feel i have peripheral neuropathy following an injury

Hi everyone just a quick update, no real improvement. I take 10mg tadalafil daily just to keep the blood flowing down there but still no improvement. I doubt this could improve now.

Has anyone had success taking tadalafil alongside other things or would that be dangerous?