i had erectic sever pain and down ward bend in my penise about a year ago. pain stopped after 6 months but bend remian which make difficult intercourse. then i decided to order X4 traction device and i receiving it in next week.
but 3 nights ago between sex i felt a noise like breaking in my penis and very bad pain. after that my erection is so painfull and i can feel a hard section like plug in top side of middle of penis.
i dont know is it Peyronies or what? what shall i do since i dont know any expert in Peyronies in Iran where i live, shall i stop sex? can i use traction device while i have pain? please guide me what are my options?
i am 42 yrs male.
Kambiz - I'm very sorry to hear about the recent incident during intercourse. Those with existing peyronie's probably stand a greater chance of experiencing similiar problems in future (just my view), in part due to whatever made them susceptible in the first place, and also due to shape of the penis causing problems. It sounds to me like you may have fractured your penis (the noise etc), but I think it's best to get this checked out ASAP. I definitely think that you should stop sex for a while, until the pain has diminished and you know where you stand. I almost thought about suggesting that you should go to the hospital, with the posibility of surgery for penile fractures, but first off I can't be 100% that has occured, secondly I'm not sure it surgery is a valid option after 3 days, and thirdly I don't know if such operations are performed where you live.
Doctor Levines view of traction appears to be that it can be used as long as it doesn't worsen pain. I think it'd be a good idea to let your body recover a little first, and then when the pain starts to reduce a little, maybe introduce it. You could maybe decide to use it if/when the curve worsens. That way it might minimise the chance of aggravting the condition, and be a good compromise. There are no firm right or wrong answers really. Get on some oral treatments too. Trental and so on.
Quote from: kambiz on July 23, 2009, 04:26:15 AM
i had erectic sever pain and down ward bend in my penise about a year ago. pain stopped after 6 months but bend remian which make difficult intercourse. then i decided to order X4 traction device and i receiving it in next week.
but 3 nights ago between sex i felt a noise like breaking in my penise and very bad pain. after that my erection is so painfull and i can feel a hard section like plug in top side of middle of penise.
i dont know is it Peyronies or what? what shall i do since i dont know any expert in Peyronies in Iran where i live, shall i stop sex? can i use traction device while i have pain? please guide me what are my options?
i am 42 yrs male.
Kam you need to go to a hospital quickly. You may have suffered a penile fracture, which is a medical emergency.
what is the symptoms of penile fracture? i dont have pain if not erected, also no darken skin etc..
kambiz
Quote from: kambiz on July 27, 2009, 05:10:36 AM
what is the symptoms of penile fracture? i dont have pain if not erected, also no darken skin etc..
kambiz
kambiz,
I don't know a lot about penile fracture, but my understanding is that there would be pain and loss of erection. I also found the following in a medical report.
"
Penile fracture is defined as a rupture of the tunica albuginea of the corpus cavernosa when the penis is in a fully erect state. The age of patients with penile fracture discussed in the literature ranges from 26 to 41 years. Fractures to the penis, although uncommon, do occur when an abnormal force is applied to the erect penis. The 'fracture' is actually a tear in the tunica albuginea, the thick fibrous coat surrounding the corpora cavernosum tissue that produces an erection."
No doubt that Levitra and some other herbal medicines can work wonders for some but there is something which over the time has proved to be beneficial for those who want the effect in couple of minutes is Viagra and I got to know about it from LINK DELETED USER BANNED . There is a lot of fake selling of such medicines on internet, so before you can order it online, just make sure it is a real pharmacy. Such medicines should only be used in accordance with the instruction of physician, as results and side effects may vary from person to person. For me Viagra has worked best, for you it can be something else.
I was first diagnosed with Peyronies Disease in Summer 2008. That was when I first noticed a lump in my penis and went to my urologist and he diagnosed it. But I wonder if maybe I've had Peyronies Disease for a lot longer than that. I've been sexually abstinent for 7 years, so maybe I didn't notice the curvature right away. If I did develop it before Summer 2008, I have a couple theories as to what might have caused it. Seven years ago I had a fiance, and she had a 7-year-old daughter who just hated me, and this little brat punched me in the privates on three different occasions. I wonder if she could have damaged my member then and caused the Peyronies? Also, around that same time, I had to go to my urologist and he had to snake a fiber optic cable through my urethra, and at one point I felt excruciating pain. I wonder if that could have damaged my penis and caused my Peyronies? Also, about 10 years ago, I started passing a lot of blood in my semen. I also discharged these little yellow stones in my semen (but not in my urine). To this day I still sometimes pass these little stones in my semen. I wonder if these little yellow stones I pass could have accumulated into this plaque I now have on my penis? I feel like it's my own fault that I got Peyronies, and that makes me feel sick. I could have prevented it. And also, around the same time I developed Peyronies I started having epileptic seizures. I had never had a seizure in my life, and then I started having them. Now it doesn't seem these two conditions (the Peyronies and epilepsy) could be related, but it's funny how I developed both of them at almost the exact same time. And of course with the epilepsy I can't take anti-depressants, which might have helped me with my severe depression caused by Peyronies. As they say, when it rains, it pours.
I don't know what causes the yellow clumps. It seems to be some sort of denatured protein and might be related to epididymitis or prostatitis.
My theory-du-jour is that E. coli might be involved with Peyronies Disease (https://www.peyroniesforum.net/index.php/topic,1038.0.html).
Any injury can potentially result in peyronie's, depending on the individual, so there could be some truth in your analysis on the situation.
About a week ago I engaged in rough sexual activity which resulted in a large bruise of my inner thigh. In addition, my penis was extremely sore the next morning, and since has been sore during times of erection. Also, it seems that there is a thin band leading from the base of my shaft almost to the head is "harder" than I remember it (corpora cavernosa?). Does this sound like Peyronies? (I am a 39 year old...)..
May be just an injury, but some Peyronies Disease is triggered by a traumatic event. Best advice, IMO, is to tell the forum where you are located so that we could possibly suggest a urologist who has experience dealing with Peyronies Disease-type symptoms.
Hello all. This is my first view of this web site and I am happy to see that it has very recent posts.
I am newly diagnosed. I saw my Urologist yesterday. He is in Oakville and a very prominent Urologist in Canada. I have been seeing him for many years for Prostate checks. I am not sure if I am authorized to post his name - so I won't.
I brought him a few good photos of my crooked penis . He more of less pin pointed the area of plaque and told me how he would wait 1 year before performing any surgeries , or for that matter , any invasive treatment at all.
I wanted to share his initial treatment for me with any one interested.
He has , over many years , prescribed many of the things that I see posted. FYI - he put me on a daily low dose ( 5 mg) CIALIS which he said will help to soften the plaque. He also told me to get a vacuum pump and use it nightly for 5 or 10 minutes . This is supposed to help slowly reduce the curvature. I am worried about the CIALIS as being a heart patient , I carry a vial of Nitro with me , but have never yet had to use it. Seeing my Cardiologist today to discuss and then get back to my Urologist.
I have every faith in him as he is the Peronies Guru in this entire S. Ontario region , if not more.
I have to stick to his plan as I have no choice at this , the beginning of my Peronies affliction. How I got it - I'll never know.
I am suffering mentally with all of you and will try anything he suggests as time goes by. Hopefully I'll be one of the 60% who get better after the first year.
Sorry for the long message , but I needed to get my points through this initial post.
Thanks for your time and interested in any and all comments.
Mike
I think most veteran members of this forum would consider his advise wise, the VED is a highly recommended treatment by many of our most knowledgeable members and has apparently provided many of us an effective weapon in controlling and reversing deformities.
While your here, I suggest you read up on the prescription drug Pentox and discuss it with your Doctor. From what you've described, he would be open to prescribing this for you.
CF
Mike67
As long as you don't use the Nitro and Cialis at the same time, you are safe. I had by-pass surgery in 2005 with 5 grafts. Carry Nitro all the time and never have had to use it. I also take Levitra or Cialis on a daily basis.
The guys that get into trouble with Nitro and the ED drugs, are those that take a max dose of Viagra or Cialis. Then take the Nitro pills. That will drop your blood pressure to really low levels like 50 over 30.
What is meant by 'traumatic event'? Something emotional as opposed to a physical injury?
Is this proven? Or just a theory?
I was 34 when my first symptoms of Peyronie's began....that was almost 18 months ago...as like many of you I do not recall a specific act, event or injury that may have begun the peyronie's process for me..
so my questions is...
Is it believed that the penis sustains wear and tear and or trauma for a number of years and has the ability to heal itself untill a certain point and then breaks down and develops Peyronie's?
Do we think it is a case of the penis cannot withstand anymore? or is it a biological change in our bodies that enables the Peyronie's disease to take hold..
Thoughts?
thx,
Briden
I believe some genetic and physiologic conditions pre-dispose some men to poor healing after an injury, and it is that inappropriate response to an injury that shows up as the plaque formation.
Quote from: Briden on August 18, 2010, 05:04:41 AM
Is it believed that the penis sustains wear and tear and or trauma for a number of years and has the ability to heal itself untill a certain point and then breaks down and develops Peyronie's?
Do we think it is a case of the penis cannot withstand anymore? or is it a biological change in our bodies that enables the Peyronie's disease to take hold..
Although many people report injury as the cause of the start of their peyronie's mine started on its own however it was exacerbated by taking Bisoprolol, a Beta Blocker.
There is much evidence that peyronie's is linked to dupuytren's and ledderhose. I have all of these and my dupuytren's and ledderhose both started after injuries.
However we only have one penis but two hands and two feet.
The interesting thing is that I only injured one hand but the dupuytren's occurred after a year or two in the other hand on exactly the same matching finger without any injury.
I injured my foot 4 years ago (stamping on firewood to break it) but the ledderhose started in my other foot 3 years later and on exactly the same matching toe without any associated injury.
From this I conclude that injury looks like it could be a trigger but not an absolute cause.
Some people scar easier than others.
I Understand that some men are "pre-disposed" to the scarring or Peyronie's condition....I get that...we all do...
My frustration and confusion with this condition is that I know I must have been injuring my penis since I began masterbating and having sex both of which were over 20 years ago for me...why at this age (34) did "my" penis say enough is enough and begin the scarring response to typical trauma?
I can say for me...My sex & masterbation technique has not changed so why did the healing response change...
Not sure if any of you can relate to this...
There is alot of talk here of poor circulation...inflamation...TGF beta issues...testosterone deficiency...poor vitamin balance...lack of certain amino acids etc...so does this mean that the general consensus is that none of us had any of these types of issues when we were teenagers, 20s etc...and now in our older years a typical trauma will no longer heal correctly?
I have had trouble with scar tissue forming - very slowly - in other parts of my body. I have had to have it removed from my nose twice (my nose was injured when I was a kid). I have scar tissue in a few other sites - and I fully expect I will eventually have a completely screwed up hand because I broke it 2 years ago and I expect I will continue to build up scar tissue.
So for me the propensity for scar tissue is nothing new. And Peyronies Disease followed trauma that was different from the usual masturbation/sexual intercourse routine for me.
A friend of mine with Dpuytrens was told it was largely a genetic predisposition. I don't have it, but my father sustained a frostbite injury to one hand and ended up with similar symptoms - I have no idea exactly how it worked. My Peyronies Disease was definitely triggered by injury.
Quote from: Brightdog on August 20, 2010, 02:59:04 AM
A friend of mine with Dpuytrens was told it was largely a genetic predisposition. I don't have it, but my father sustained a frostbite injury to one hand and ended up with similar symptoms - I have no idea exactly how it worked. My Peyronies Disease was definitely triggered by injury.
Yes it looks like injury is one of the triggers for peyronies and other related diseases but not necessarily, drugs can trigger it too it seems. The fact that an injury can occur to one hand and later the other hand gets the same disease leads me to think that the cause could be an underlying infection of the cardiovascular system by a very "clever" parasite. This could explain why the injury triggers the disease because the parasite could already be in the blood stream waiting for an opportunity to infect more body tissue.
Parasites are known to be "clever" and able to target parts of the body. One such common parasite, toxoplasma gondii, which is related to malaria can target the brain of a rat to make it sexually attracted to cats urine. The rat seeks out the urine and finds the cat. The cat eats the rat and the parasite is now inside the cat. The cat can then pass on the parasite to humans and change human behaviour. The parasite is known to increase "Risk Taking" hence the large proportion of dead motorcyclists who have been shown to have been infected.
If injury is the cause of peyronies then undergoing surgery and having scar tissue removed and a graft put in place sounds like injury. I would think the surgery would restart the disease.
Quote from: MUSICMAN on September 01, 2010, 05:49:13 PM
If injury is the cause of peyronies then undergoing surgery and having scar tissue removed and a graft put in place sounds like injury. I would think the surgery would restart the disease.
I've said something along similiar lines before. Maybe the way in which the injury heals is important. Incorrect healing of a small open wound, versus an injury that is stitched together?
Quote from: MUSICMAN on September 01, 2010, 05:49:13 PM
If injury is the cause of peyronies then undergoing surgery and having scar tissue removed and a graft put in place sounds like injury. I would think the surgery would restart the disease.
This is one of the things they tell you when you go in for the surgery - there is a risk it will make things worse. And it's why they recommend traction/VED - to keep the tissues stretched so new scar tissue won't form lumps in the same way.
The surgery is a huge risk, but if nothing else has worked - you take the gamble. At least you get the satisfaction of knowing you tried everything!
Penile disease and penile bleeding causes peyronie disease.
Quote from: angelinadiaz on September 21, 2010, 04:39:57 AM
Penile disease and penile bleeding causes peyronie disease.
Could you elaborate on what you mean by penile disease and penile bleeding and what studies support this being related to Peyronies Disease?
I'm with you brother could you please give us a list of penis diseases and your source of information. Yes bleeding and healing is a part of it but disease is new.Please enlighten us.For. this is ambiguous and obscure to us.I and the rest of us? Have never heard of penile disease I almost want to laugh.
Fubar
Good point. Surgery could restart the disease but to have surgery, the disease would have have had to be at an advanced stage and may well have already run its course in that part of the body. I also have dupuytren's and this ran its course several years ago and I have had no further trouble.
Many "autoimmune" diseases seem to have injury as one of the triggers and it is one of the things that is often noted as
almost a trademark of the autoimmune diseases.
Peyronies thus seems to have this as a trait. Hypoxia caused by poor blood flow will also cause cell damage which could trigger the injury.
I have strong suspicions that "Autoimmune diseases" are actually caused by internal infections.
I have a friend with Sarcoidosis, a disease which affects the lungs, who has been told it is related to Tuberculosis and is being treated with antibiotics.
So could infection be the cause for all autoimmune diseases? It seems also that each autoimmune disease affects specific parts of the body.
Treating Peyronie's as a disease of the penis I think is probably the wrong way to look at it.
Really Peyronie's appears to me to be a symptom of a systemic "Autoimmune disease".
I am treating myself with Neprinol (which is claimed to thin the blood and I cannot find fault with this claim)
and I have had no further advancement of the disease and a miriad of other unlpeasant symptoms around my body have receeded.
I don't see Neprinol as a cure but it is certainly holding the fort for the time being.
I am however looking at the Marshall Protocol with caution.
It does seem like a good theory. It could lead to some useful pointers.
There is some criticism of this theory but I only take note of the responses with an accurate scientific argument.
Interestingly Olmesartan Medoxomil (Benicar), the main Marshall Protocol drug, is mainly used to reduce blood pressure by
counteracting "angiotensin II". This treatment allows the blood vessels to expand thus helping blood flow.
One thing I noted when my peyronies started was a feeling of cramp around my body and cold exremities I also had a heart attack soon afterwards.
As far as I can see, every positive report of treatment for Peyronie's seems to involve something that improves blood flow
in one way or another so Olmesartan Medoxomil would seem to fit the bill to me.
Quote from: MUSICMAN on September 01, 2010, 05:49:13 PM
If injury is the cause of peyronies then undergoing surgery and having scar tissue removed and a graft put in place sounds like injury. I would think the surgery would restart the disease.
Can anyone tell how scar tissue is damaged?
The metabolic processes of the human body are complex. They involve a lot of hormones and other substances that either tend to drop off over the years or can be negatively affected by diet or drugs, presciption or otherwise. Ubiquinol is a key substance that is naturally produced within the human body. It is been shown in a research study to be effective against Peyronie's. BUT, Ubiquinol is greatly reduced in the body by multiple drugs. Its levels in the body also decline with age. What does that tell you? And Ubiquinol is just one example. Testosterone is VERY likely protective against Peyronie's, but if you are overweight or obese, you are going to have issues with Testosterone. Also if as you get older your Testosterone levels will drop. Then there are Vitamin D, DHEA, PQQ, etc, etc. I could go on and on citing other key substances in the body that either promote or protect against scarring, most if not all of which decline with age and/or are affected by the surrounding environment. On the other side of the coin we have toxins. Heavy metals contribute to inflammation and all sorts of metabolic problems. Over the years we all accumulate some degree of heavy metal load in our bodies, not to mention other non-metalic organic toxins. To me, this explains a whole lot and opens a huge door for effective holistic treatment of Peyronie's.
What are the names of all the tests used to diagnose Peyronie's and determine the extent of the injury?
I remember a cavernosogram is to test for venous leakage.
I've heard of a Doppler before, what is it for?
Are there any other tests?
"Doppler" is in reference to a Color Doppler Ultrasound. This does two things.
1. Ultrasound - Shows areas of calcification. I don't recall if scarring (plaque) that has not calcified is detectable with the ultrasound or not.
2. Color Doppler - Shows rate of blood flow into and out of the penis.
Yes, the doppler can detect the scar tissue in both states just scar tissue or calcifed scar tissue.
I'm a newly first time married guy, two years now this March. I was just recently diagnosed. My experience is this: I was practically a virgin before I got married. Very few relationships, and even fewer sexual experiences. Masterburation, probably as much as the average guy, and nothing strenuous there. So, at 49, and after having regular sex with my wife (3 to 5 times a week) for almost two years now. The thing is, we like the woman on top position a lot. Straight up with her looking down at my face, laying on my chest, then reverse cowgirl, we do it all. With missionary, she pulsates her pelvic area front and back vigorously, so my penis gets a workout with multiple bending in different angles from all this. This is how she can best reach climax for herself. I just love to watch her under me, pulling my penis back and forth with her pelvic thrusting, but my penis is bending in mid shaft somewhat.
Briden may have a point here on his post. I hadn't thought of it before, but maybe the penis is very resilient to all this activity while we're young (especially the bending at erection), but at mid-life (or close to it), it just takes a toll after awhile. We have since adjusted our lovemaking positions since this has occurred, when we do have sex which is rare right now. It just hurts too much still. But I do think it's getting better. Taking Pentox, ALC, and Ubiquinol, and vitamin C. If I had only known, I would have been more careful, and control things better in bed.
What would be considered the gold-standard test to determine the extent of structural problems in the penis and erectile function? Aren't ultrasounds limited in this area?
I doubt anyone has heard this before ..... it's bizarre and I have never - and will never - tell anyone else.
When I was young (I'm thinking this was around fifth, sixth, and maybe seventh grade) I had friends who were a little older. They would always make jokes about masterbating and talk about it, as can be expected from boys who are going through puberty and just discovered a new toy in their pants.
I felt left out and curious because I did not masterbate, even though I was starting to get more frequent spontaneous erections. So i decided to try it out. The traditional motion of moving my hand up and down the shaft did not seem to work - it didn't give me adequate pleasure/stimulation to achieve ejaculation. After some experimenting i found a method that did. Basically, I would bend my own penis shaft backwards until a I felt a little click as it went back then i would hold it there. the blood pressure made the top of my penis even harder ... then I would rub the most sensitive area at the top until I came. It was not really painful and I rarely noticed a very slight aching when I finished.
My penis became very pliable at the area where I would always bend it. I started to wonder if maybe this would have a long term impact, so eventually I stopped. Obviously my memory of these young years is not perfect, so I have mo idea how long i did this. It may have been a year or even two years. That could mean hundreds of traumas!
So for as long as I can remember since then, I have had a slight bend mid-shaft where I used to bend it back. I started noticing ED about 4 years ago. For the last one or two years it has been impossible for me to achieve an erection adequate for penetration without drugs. However, using pde5 inhibitors I am able to have a very satisfying, fantastic sex life. My girlfriend of six months has no idea I am using them.
This is something i worry about constantly. It's actually ruining my life. I am young - only 26 years old. I have no problem with taking drugs for the rest of my life, but I am absolutely terrified that this problem will continue to degenerate, and at this rate, I will soon be rendered completely impotent with or without drugs. How can I live with no sex life? How can I explain to my friends and others why I never date women? How can I live knowing I will never be able to marry? Or if I am married how could I explain to my wife that we will never be able to have sex? This could easily become a truly life-altering problem.
Some more info: I recently went to a mens clinic, where they injected me with a drug to give me an erection. I had a "very vigorous" response to the drugs - a hard erection that lasted over an hour and had to be put down using a second injection. This is a slight ray of hope as it indicates my viens and such are still healthy and intact. That is when the doctor noticed the bending and told me I had peyronies.
The worries that consumes me are - will I ever be rendered completely impotent? How long will it take? Will it get worse?
So there you go - there's my bizarre story of how I got peyronies disease.
Any advice or comments are welcome.
I know that in peyronies the ED is caused by scarring. Can anybody tell me - since my peyronies was due to trauma, will my scars stay more or less the same over time? Or will they get worse as I age?
Keep in mind that I have not seen any noticeable increase in bending or plaque on my penis for many years.
I think I know they answer to this question and it scares the crap out of me. But I'm just asking because you guys seem to be the experts.
This actually does not sound like Peyronie's to me. For Peyronie's to occur requires an underlying metabolic problem in addition to trauma. I think that is doubtful in adolescence. Some doctors assume that any bending of the penis results from Peyronie's. That is just not the case. Some penises are bent "naturally". Thats called congenital curve. It occurs more frequently than you might believe. I also believe that it IS possible for penises to be bent purely by stretching. That does not mean Peyronie's. Peyronie's is an inflammatory disease involving plaque buildup. So to diagnose your situation with certainty would probably require an ultrasound UNLESS the examining doctor can actually feel plaque in the penis. Peyronie's CANNOT be accurately diagnosed by the doctor just looking at your penis. If that is what the doctor did in your case, he or she is just guessing. A Peyronie's diagnosis takes much more than just that. What you DO have is ED, and that can be caused by a whole range of things. If you REALLY want answers to this problem, you REALLY need to get a referral to a male sexual funtion specialist. That is the kind of doctor who can sort all of this out for you and help you get your health issues resolved. Many of us here have much more serious deformity issues than what you are experiencing and yet have no ED issues. So I really suspect your problem is mostly, if not completely, about ED, not Peyronie's. But get are referral to the right specialist and they will sort it all out for you. - George
To my knowledge, ultrasound IS the gold standard.
Quote from: George999 on January 08, 2011, 10:52:27 AM
This actually does not sound like Peyronie's to me. For Peyronie's to occur requires an underlying metabolic problem in addition to trauma. I think that is doubtful in adolescence. Some doctors assume that any bending of the penis results from Peyronie's. That is just not the case. Some penises are bent "naturally". Thats called congenital curve. It occurs more frequently than you might believe. I also believe that it IS possible for penises to be bent purely by stretching. That does not mean Peyronie's. Peyronie's is an inflammatory disease involving plaque buildup. So to diagnose your situation with certainty would probably require an ultrasound UNLESS the examining doctor can actually feel plaque in the penis. Peyronie's CANNOT be accurately diagnosed by the doctor just looking at your penis. If that is what the doctor did in your case, he or she is just guessing. A Peyronie's diagnosis takes much more than just that. What you DO have is ED, and that can be caused by a whole range of things. If you REALLY want answers to this problem, you REALLY need to get a referral to a male sexual funtion specialist. That is the kind of doctor who can sort all of this out for you and help you get your health issues resolved. Many of us here have much more serious deformity issues than what you are experiencing and yet have no ED issues. So I really suspect your problem is mostly, if not completely, about ED, not Peyronie's. But get are referral to the right specialist and they will sort it all out for you. - George
Well, that's good to know, I guess. However, the doctor I went to see - who works at a mens clinic specializing in ED - told me it was peyronies. He also felt hard area mid-shaft in my non-erect penis and said that just from feeling it, it feels like scar tissue. So .... it does look like peyronies.
Also, are you sure that an underlying metabolic condition is neccessary. I'm no expert, but I've heard that trauma can cause scarring and therefore peyronies. Since I potentially had hundreds of traumas ... this would seem a likely cause.
If the doc felt scar tissue, its Peyronie's for sure. Trauma is not a cause of Peyronie's, its a trigger. Normally when tissue is damaged it is able to repair itself. That is why a lot of people have surgeries and after a few years they don't leave a trace. Other people get nasty scar tissue. The difference? Underlying metabolic issues. But you don't know that you have issues with healing processes until there is an injury that necessitates a healing process. When that process goes amock for whatever reason, you have a reminder of the event that can last forever. - George
Quote from: George999 on January 08, 2011, 09:51:34 PM
If the doc felt scar tissue, its Peyronie's for sure. Trauma is not a cause of Peyronie's, its a trigger. Normally when tissue is damaged it is able to repair itself. That is why a lot of people have surgeries and after a few years they don't leave a trace. Other people get nasty scar tissue. The difference? Underlying metabolic issues. But you don't know that you have issues with healing processes until there is an injury that necessitates a healing process. When that process goes amock for whatever reason, you have a reminder of the event that can last forever. - George
Interesting. After spending hours perusing this board, I have decided to be as agressive as possible in these early stages. I NEED to know what is wrong with me - is it ED, is it Peyronies, or what? And, what can I expect in the long term?
Maybe this is foolish, but I have some hope that the scarring I do have will remain constant. After all, it hasn't changed shape very much since the trauma occured and that was over 10 years ago. Instead, I am hoping that I simply have ED due to some other issue, and the scar tissue will remain stabilized and is NOT the source of my ED. As was mentioned earlier, it seems that other people have much, much more sever bends than me and no ED. My bend is not very noticeable .... i doubt my girfriend even thought it was anything out of the ordinary.
But I NEED to know these answers .... it consumes my thoughts day and night. I live in toronto, but I'm calling Dr. Levine tomorrow to try to set up an appointment. I'm not wealthy at all, but if I have to hustle up a thousand dollars cash just for the consultation, I will do it.
So far the only action I have taken is 3 X 100 ubiquinol daily.
Quote from: mike67 on January 18, 2011, 07:44:49 AM
Shades of blue
George999 has just informed me of this post. I am in Mississauga . I will get back to you via a PM later this morning with info on my Peyronies Disease Urologist at Mt. Sinai. He is reputed one of the top 5 in Canada.
Mike 67
Awesome :)
Just trying to help out a new forum member. Sorry to disrupt the thread. - George
Given that new members can create their own topic threads (and this one has a unique title), I do not see helping someone find a doctor as thread drift.
Tim
Thanks Tim468
I definitley experienced an injury during intercourse about two years ago, and my condition has appeared suddenly in the past few months or so. Is that odd, I don't know; I haven't seen a doctor as it's symptoms are unmistakable and my deformity is of a low order. I have Sarcoidodsis in my lungs and as it's currently viewed as an immune miss response to injury, I can't help but ponder a link that imaybe both conditions are the result of a total immune miss response. My Sarcoid specialist here in Australia has researched it in the UK and as he cannot find and has ruled out a genetic or rather a hereditary link, he believes it is a genetic adaption to airborn abrasives in the air during the Industrial revolution, an attractive idea given the Darwinian connotations. I would really appreciate anyone's thoughts as I have family members with sarcoid too that could be forewarned
Quote from: tevans on January 26, 2011, 06:23:38 AM
I definitley experienced an injury during intercourse about two years ago, and my condition has appeared suddenly in the past few months or so. Is that odd, I don't know; I haven't seen a doctor as it's symptoms are unmistakable and my deformity is of a low order. I have Sarcoidodsis in my lungs and as it's currently viewed as an immune miss response to injury, I can't help but ponder a link that imaybe both conditions are the result of a total immune miss response. My Sarcoid specialist here in Australia has researched it in the UK and as he cannot find and has ruled out a genetic or rather a hereditary link, he believes it is a genetic adaption to airborn abrasives in the air during the Industrial revolution, an attractive idea given the Darwinian connotations. I would really appreciate anyone's thoughts as I have family members with sarcoid too that could be forewarned
A friend of mine has been told by a top UK specialist that Sarcoidosis seems to be linked to TB.
He is now being treated with antibiotics.
Dr Marshall of the Marshall Protocol (Australia) Also thinks that Sarcoidosis is an infection. Several people seem to have reported that they responded well to his protocol.
I think his protocol is worth a look. Part of the treatment involves wearing silly looking dark glasses but Tetracyline antiibiotics are known to cause photosinsitivity so the use of sunglasses is not so wierd after all!
Hi all,
I'm new here. I was diagnosed with Peyronie's in 2008, had a slight curve to the left, went to Dr. Mulhall in New York, was treated via traction, VI injections (I believe 6), colchicine, and pentox over the course of a year and a half. I was left not quite normal but functional, with approximately a 30 degree curve to the left. After reading these forums, I put myself on a permanent L-Arginine regimen with hopes that it would keep the condition from flaring up again.
After a year and a half in the chronic phase, things were starting to look up again, until two weeks ago, when I injured myself again. The first injury was slight and to the right side (I believe it was a combination of a partial erection with the mechanical stress of the left-ward curve combined with a tweak of the PC muscle). Anyway, I remained sexually active over the next few days but had some soreness, due to which I was taking aspirin / ibuprofin every few hours and increased my L-Arginine.
While engaging in sexual activity nearly a week later (I thought I had healed or that the pain was in my head or due to my chronic pelvic pain disorder), I believe I aggravated the injury or created another injury, which hurt much more than the first. After that, I realized that I indeed had some sort of injury, and began taking anti-inflammatories around the clock, increased my dosage of L-Arginine, started taking ginger supplements (I heard it's a natural anti-inflammatory), started taking CoQ10, and got a script for Pentox 400mg 3x daily. I completely overhauled my diet, drinking lots of water, eating a salad every day, eating sweet cherries (another natural anti-inflammatory, or so I hear), and trying to in general eat lots of anti-inflammatory foods. I also applied ice every hour for the first few days and am still applying now every so often when I feel sore. This was a week ago, and I still have quite a bit of soreness.
My question is this: Have any of you who have suffered from Peyronie's on this forum sustained a second injury after being in the chronic phase yet healed properly from the second injury without another bout of Peyronie's? Am I doomed to get this condition every time I suffer an injury down there?
Thanks for your help.
I certainly went through this and it turned out to be nastier and more aggressive than the original saga. You are doing all the right things. In my case the end result was actually better after the second injury because I knew what to do. Since that point I have found that CoQ10, or, in my case, Ubiquinol prevents re-injury. The only thing addition I could suggest that you might try would be switching from OTC pain killers to Celebrex. There have been reports here that it has done wonders for some in terms of peyronie's inflammation relief. - George
Yes, I ve had 3 diffrent instances with Peyronies. My first bout caused a left curve with consistent pain. Two months later not being use to the left curve popped out hit her pelvis caused a slight lump on the right side. I never got a deviation from that scar its just a bump I can see and feel close to the skin. The following January I just was manuvering my bent equipment to try and insert and right under my second scar on the right side it caused a injury witch in turn hurt very bad and left a scar with a slight bend down to my already congenital curve. The last bout I had to say was on the verge from months earlier and just needed that one extra little thing to make it turn over into an injury because I really didnt do anything to warrant it happening.
Also to say I ve had several small times that I got sore hurt and thought I was going to have another bout and got away with it never having any further damage. After all the learning curves I never had any other injuries. I learned to be VERY careful when engaging in any activity. If engaged in any activity I am driving. I ve learned that I have a wound healing disorder of my penis so if I get an injury its pretty good odds that it will not heal properly.
Hang in there keep up the treatment regiment. If you have a lot of inflammation the Celebrex does help alot. I ve taken it off and on for about 2 yrs now.
My peyronie was
- first triggerd by a sport trauma. Like the end of my penis was no more connected to the rest. Lack of sensation and curve and loss of rigidity at the end.
- one month later during sex, my partner (unless i was on top) unfortunatly bended it down forcefully. Resulting in a upward and lateral curve and rupture of suspensory ligament.
- recently (5 years after) after a weird manipulation, more scar tissue and loss of lenght and girth (really bad news).
Every time I had a trauma I urinated blood just after. But it was totally painless. I'm very concern not about the scar but about the lack of healthy cavernosal tissue which seems to disseapear like snow beneath the sun.
has anybody had a penile fracture which was untreated and caused scar tissue turning into peyronies disease?
more specifically a penile fracture would be a rip in the tunica albuginea
http://en.wikipedia.org/wiki/Penile_fracture
If you even THINK you have a penile fracture, you need to go to a doctor immediately, not poll guys on a forum to see how it may turn out. Trust me - seek out a professional on this, my friend.
Nemo
Once you have scar tissue or penile fracture, dammage is done. No professional can reverse it.Better to find your own way of healing. This is what we all are trying.The forums knowledge and remedys do do wonders.Give it a try.
Fubar
I am NOT sure that is true with penile fracture. Anything this serious *should* be treated by a medical professional. Peyronie's is a whole different issue. - George
i already had the fracture 5 years ago, but the tear was missed during the doppler ultrasound, so it was misdiagnosed. now i have scar tissue in my penis because of the injury.
well penile fractures turn into peyronies, both have to deal with scar tissue in the tunica albuginea and the corpora cavernosum
I doubt you had a true "penile fracture" ... which typically involves a loud popping or cracking sound, extreme pain, bloody bruising/hematoma and a trip to the emergency room. You wouldn't have just gutted it out and recovered. You may have had some trauma, but likely something short of true "fracture." I agree, trauma of any sort can lead to Peyronie's, but "penile fracture" is extremely serious and requires immediate medical attention, usually repair surgery.
You can sprain your wrist, twist your arm, get tennis elbow, etc., but a compound fracture with the bone sticking through the skin ... you don't just recover from that without medical attention.
Nemo
I have had poppinng during sex I also had a naill go through my dick at six years old no Peyronie's .Trust me if you break your dick you will have Peyronie's. Unless you have super human immune system.
Fubar
I have had every trauma I can think of through sports and women and out In nature injuries. I know for certain my dammage came from Ed and using inferior ved devices without instruction and constrictive rings.
I believe constrictive things to be the worst.
Fubar
QuoteI doubt you had a true "penile fracture" ... which typically involves a loud popping or cracking sound, extreme pain, bloody bruising/hematoma and a trip to the emergency room. You wouldn't have just gutted it out and recovered. You may have had some trauma, but likely something short of true "fracture." I agree, trauma of any sort can lead to Peyronie's, but "penile fracture" is extremely serious and requires immediate medical attention, usually repair surgery.
You can sprain your wrist, twist your arm, get tennis elbow, etc., but a compound fracture with the bone sticking through the skin ... you don't just recover from that without medical attention.
Nemo
im pretty sure i had a fracture. pushed down on my penis, heard a loud cracking noise, swelling, sharp pain, discoloration and in the morning i had bruising all over my lower abs like blood was leaking out of somewhere. pretty much a penile fracture is just a tear in the tunica albuginea. the tear can be anywhere from half a cm to a tear thats 4 cm, but a tear is a tear regardless leaving the corpora cavernosum unprotected. I had a doppler ultrasound but i looked on the internet and apparently ultrasounds can miss fractures really easily. what i needed to take was a caveronsraphy or a mri but we took the mri 5 years later after he injury showing no indications of a penile fracture, but then again i have scar tissue in my penis because i can feel it, and my prenis is almost completely numb. so no real test iv taken has any weight to it. doppler ultrasounds miss fractures to easily and we did the mri way too late.
honestly ultrasounds are useless test, i guess only for evaluating blood flow. my dumbass doctor gave me a test to check on blood flow like i had a pre exisiting e.d problem but i really needed to see was the internal structure of the penis like a mri or a cavernosgraphy.
the swelling looked just like this http://www.google.com/imgres?imgurl=http://www.maricopaemergencymedicine.com/gallery/CaseImage/37/37_xlarge.jpg&imgrefurl=http://www.maricopaemergencymedicine.com/current-residents/case-image-detail/37&usg=__MaEpjpTsoKzoHVYZecze_RgL92Y=&h=540&w=720&sz=274&hl=en&start=101&zoom=1&tbnid=ckrKcBCEGmGz3M:&tbnh=105&tbnw=140&ei=JrMoTu-hJ5P1gAeZ_c2ICw&prev=/search%3Fq%3Dpenile%2Bfracture%26hl%3Den%26client%3Dfirefox-a%26hs%3DF5N%26sa%3DX%26rls%3Dorg.mozilla:en-US:official%26biw%3D1600%26bih%3D1014%26tbm%3Disch%26prmd%3Divns&itbs=1 (http://www.google.com/imgres?imgurl=http://www.maricopaemergencymedicine.com/gallery/CaseImage/37/37_xlarge.jpg&imgrefurl=http://www.maricopaemergencymedicine.com/current-residents/case-image-detail/37&usg=__MaEpjpTsoKzoHVYZecze_RgL92Y=&h=540&w=720&sz=274&hl=en&start=101&zoom=1&tbnid=ckrKcBCEGmGz3M:&tbnh=105&tbnw=140&ei=JrMoTu-hJ5P1gAeZ_c2ICw&prev=/search%3Fq%3Dpenile%2Bfracture%26hl%3Den%26client%3Dfirefox-a%26hs%3DF5N%26sa%3DX%26rls%3Dorg.mozilla:en-US:official%26biw%3D1600%26bih%3D1014%26tbm%3Disch%26prmd%3Divns&itbs=1)
QuoteI have had poppinng during sex I also had a naill go through my dick at six years old no Peyronie's .Trust me if you break your dick you will have Peyronie's. Unless you have super human immune system.
Fubar
i defitely agree with you fubar. iv aquired this damn disease because of a untreated penile fracture. i can definitely feel the hard lump. even my uro told me it was an excess of collagen due to the injury. whats really f'^+'ed up is that he misdiagnosed my injury. even though i went to the hospital
Recently, a doctor was cited here suggesting that "micro injuries" to the penis (for instance during "active sex") could cause Peyronies Disease. It was claimed that sometimes they are even not noticed.
Can someone elaborate on this issue? (facts, not speculations pls.)
Normal traction or VED usage might cause "micro injuries"?
Thanks
Ben BEn
Most everything is speculative In Peyronie's disease.Micro damage to the tunic and then a healing process that is compromised by faulty immune system. So when it comes time for your immune system to react sufficiently ams heal it does not.For what ever reason the immune system fails at healing the damage properly.Leaving one with a altered miss shapened penis.
So basically it is believed that when the damage occurs the immune system is broken down.
Fubar
Ben your last statement rings true with me.lack of expansion loss of wings definately loosing a way to get off the ground crash and burning the pits.
Fubar
Hi
My Peyronie's seemed to have stabilized following my original posts here. After my initial focus on treating my condition, I tried to move past thinking about it regularly, as it was depressing me a bit, so I have not been on this forum in quite some time. However, I'm hoping that I might once again get some guidance from the more experienced members of this forum, because -
- I think I may have (re)injured myself earlier today. At the climax of somewhat vigorous intercourse with my partner in missionary position, she pushed down with her hips firmly as I was moving upward, forcing my penis to bend uncomfortably for a moment, and there was an audible popping sound. This took place during ejaculation, so I don't know if my erection was lost as a result of the event.
My penis feels slightly sore at the base, but there has been no significant pain, nor any swelling, bruising or discoloration. I googled my symptoms and found a description of my exact situation (I tried to post the link but am not allowed) on a urology board. The urologist there responded that it sounded like a minor tear of the corpora and did not require medical attention, saying that major tears can cause problematic scarring if left to heal naturally, but minor ones typically don't. He advised abstaining from sexual activity for a few weeks.
The advice from the uro sounds reasonable, but I am wondering if my response should be different or more aggressive given that I already have Peyronie's and know that I am apparently predisposed to scarring? If so, what should that response be?
One of my regrets regarding the original incident that kicked off my experience with Peyronies Disease a couple of years ago was that I did not attend to it sooner. I am planning to call my Urologist tomorrow, but it typically takes me 6-8 weeks to get an appointment. I already take Pentox and Arginine daily, and I am also planning to avoid any sexual activity for the next several weeks. Is there anything else I should be doing or not doing to try and minimize the impact of this injury if that's what it is?
Any guidance appreciated very much. Thank you in advance.
pdnoob,
Definitely call your Uro and if you tell him about your injury and remind him or your history with Peyronie's he may be able to get you in sooner. I would imagine pentox and arginine would be fine but you might want to add an anti inflammatory like tylenol or ibuprofen if you have pain. If erections are not painful I imagine VED or gentle sexual activity would actually be a good thing-as long as there is NO PAIN. All things considered you might come out of this just fine.
Best,
Skjaldborg
Your injury sounds very similar to myself. It happened during intercourse, not in the missionary position like yourself, but in the girl on top cowgirl style. She liked to grind her pelvis into my pelvis to get the clitoris stimulation but unfortunately for myself, as she was grinding down with her pelvis, mine came up and I also got a loud audible pop. It dosen't leave a good feeling in any guys stomach to hear that sound coming from the penis.
After my penis trauma, I instantely lost my erection and was sore for at least a couple weeks and didn't resume sex again for a solid 3 weeks. Not that I couldn't but he just didn't feel 100% so I waited it out until I felt normal. Little did i know at the time (roughly 2 years before Peyronies Disease symptoms arised) that this trauma may very well have set the ball in motion for my current penis woes with pain and flaccid twisitng.
It's amazing how the long term effects of my sexual trauma didn't arise until 2 years after the initial impact. I guess that's how it can go sometimes when someone's injury is on the border of getting worse or getting better. I really hope I'm on the way up rather then slipping farther down. I'm just super careful when having sex and my partner is 100% supportive.
pdnoob, I'd guess you will come out of this injury unscathed because of your non-existant proceeding pain level after the trauma. If you were experiencing pain and unable to get an erection then that would be a very bad sign. And you are on pentox and all the good stuff. Like skaldborg mentioned, I would not be abstaining from LIGHT sexual activity, if there is ONLY no pain, because the healthy blood flow you will get from it will only help heal you faster with the little bit of linguring trauma.
Anytime I hear of somone posting where they know of a tear or hear a "pop".... I wouldn't take the chance. I would get to a specialist immediately and get it checked out. You even posted yourself that even minor tears "typically" will heal themselves. Why take the chance and find out after it is too late that you aren't the"typical" one? Get to a male sexual specialist, not a general practice urologist.
It's a worry. I'm trying to think of a best case scenario for the sound, and thought maybe it could be the suspensory ligament? Any chance of an update? Hopefully you got the frsh injury checked out...
So yesterday by accident, dropped a phone on my flaccid penis. I can not believe I did this, because I was finally somewhat over what I thought was Peyronies Disease. There was mild pain at the time, but none now.
I was wondering: When can know for sure whether it is, or is not Peyronies Disease? How long do I have to wait to see a lump, or feel some pain, and if none comes, how long til I can clear my mind and say for sure it wont turn into anything?
Seriously:
You will have to wait more time than just one day to realize the outcome of dropping a phone on your dick! By now, you should see some symptoms as a result of the incident.
You need to relax, wait a few days more to see if you develop any bruising, nodules or other symptoms. If you do develop any adverse conditions to your penis as a result of the incident, you should seek medical help ASAP. Only a qualified doctor/uro can properly diagnose your case.
Old Man
thanks old man,
Any other opinions on how long I need to wait until I see the nodule, lump, experence pain etc...
and do you think something like that would cause Peyronies Disease?
I had never pain and begone to develop a bent 3 months after the TUNA prostate treatment. No any other symptoms.
James
Well james do you think this would have caused damage?
I don't think so, since Peyronie's usually has to do with blunt trauma to an erect or semi-erect penis. I think the flaccid penis is pretty resilient, and it would take more than this. Just my thoughts, but I would not worry.
The sad thing is, after we have had this disease, and begin to see improvement, we are scared to death we are going to have a relapse even from less harmful events.
Thanks relapse, how long do i have to wait until I can tell that having no symptoms means no damage was done?
Heres one for ya........ a few years back I was taking VI injections. I had to monitor my progess to see how the treatments were coming along. I was home by myself so I left the bedroom door open so I was looking over and measuring the equipment. So my pants are around my ankles and my roommate comes home and his girlfriend and they are calling my name they were out of town and returned a day earlier then planned. So the first reaction is to run and shut the door! Well I tripped on my pants and went flying face down to the floor with a erection. I broke the fall with my hands but I still landed on it hard enough to make it hurt for about 3 days or so. I went to the doctor for my next VI treatment told him the story and we both thought to post pone the treatment for 2 weeks. In the end I worried about it but nothing happened to it in the end and there was no additional damage.
I can't believe I posted this embarrassing story but hope it will help since I ve been in your boat too.
Hello everyone,
I wasn't sure where to post this but this looked like the right place. I recently suffered an injury to my penis during intercourse (no fracture thankfully). I went to my physician and he said I seemed fine but to rest for a week. After a week I ejaculated (not from intercourse) and noticed while I was erect that I had a slight bend on the left side of my penis. I went to a urologist because I was also experiencing some pain on the left side of my penis. The urologist says I'm fine as well after examining me (just feeling around) and says I may just be imagining the bend/curve but I know for a fact that my penis is different now. I am also experiencing some pain when I urinate. Is this normal? He told me to take a week off from sexual activity and that I should be fine and that as long as my bend and pain doesnt get worse or prevent intercourse I will be ok.
If anyone has a similar experience I would appreciate the input. This is a very stressful time for me and I am trying to figure out whether I need a third opinion or maybe I'm just being a little paranoid right now.
Thank you,
Buklau
It does look like my bend has gotten a little better but there is still some sensitivity on the left side of my penis, although that isnt as bad as it was a week ago. Any input or help is appreciated. Im thinking of going to another urologist to get a second opinion and maybe an ultrasound of my penis
Quote from: Buklau on April 26, 2012, 11:35:15 AM
It does look like my bend has gotten a little better but there is still some sensitivity on the left side of my penis, although that isnt as bad as it was a week ago. Any input or help is appreciated. Im thinking of going to another urologist to get a second opinion and maybe an ultrasound of my penis
Getting a second opinion is great!
The problem is, not all urologists can identify the scar tissue on ultrasound if it is still very soft and new.
If you can see the bend.. I would also take an errect photograph... (dont worry urologists prefer a photograph to having to get you errect in their practice)
Advantage he will know where to look on the ultrasound.
(But if your bend is only 2 or 3 degres then there is no point in bringing it)
If you are not satisfied with the diagnosis.. get a third opinion.
Those are my suggestions
Luc
buklau
For another opinion you need a Male Sexual Function Specialist, not a general practice urologist. These doctors are hard to find and you may have to travel to fine one. If your problem persist it would be well worth the effort.
Jackp
http://jackp-penileimplant.blogspot.com/
Has anyone heard of an IUD contributing to this condition? Also, I have a discrepency in hip extention which causes me to be lower on my left side and keeps my off balance when on my knees. I was diagnosed with Calf Perthese Disease when I was three which is basically a disease that sets in the bone and in my case my hip socket preventing normal hip growth out of the socket. I've walked around for 48 years with about a 1/4 of an inch difference and wear lifts in my shoes. As my heart is beating faster, I can't help but wonder if maybe I'm the cause of this happening to my boyfriend?
OMG, this just suddenly hit me. This condition didn't happen to him until we'd been together about a year. He's known to very aggressive intercourse. He might have been injuring himself all the times we were having sex.
Just a theory, but now I'm really starting to get freaked out because there is NOTHING I can do about my hip extension. I was born with this condition.
Any thoughts????
Kidsandadog
Personally, I don't think that your health condition have any connection to his Peyronies and
you should not blame yourself.
QuoteHe's known to very aggressive intercourse
may contribute to start Peyronies, but again is not your fault. It what he likes and if you like also, nothing wrong with it.
If he have Peyronies already, should take that in consideration not to harm himself again and take a different approach to sex.
Just my 2 cents.
James
I don't think your hip condition had anything to do with it. There are many of us who have had Peyronies and our spouses hips are fine. Peyronies is usually caused by some trauma. Like during aggressive sex you move one way, he slips and goes another and..... ouch. For others Peyronies just happens. We don't know why and maybe never will. You can't blame yourself for having regular enjoyable intercourse.
The main thing is to get his condition diagnosed. Don't assume it is Peyronies. Get it diagnosed by a competent doctor and then treat it with methods outlined on this forum. It does not good to wonder or worry about why it happend.
Les
When I went to see Dr. Lue a few years ago, his assistant Dr. Shindel said that fast intercourse is fine if you have Peyronie's, just use a good amount of lubrication. Also, try to avoid rough intercourse with girl on top due to the propensity for injury.
Skjaldborg
Okay, you guys are scaring me with this penile fracture talk. When I have sex and when I thrust, I feel a popping on the left side of my penis. Not the side that has the pyronies but the other side. I have no discoloration or sorenss. Is this just one side compensating for the other. I sure hope so because this is scaring me.
Panther
I had one time popping and it was the start of my Peyronies. Light pain that faded away in three days.
Maybe I missunderstand you, but you have popping each time you have sex?
James
Almost everytime and it is on the left side at the base. My pyronies is on the right side at the base.
Panther
You must check out the point with a good uro.
It sounds strange to me to have a "pop" almost every time you have sex.
James