News:

New app for Peyronies self assessment - Details here



Recent posts

#11
I'm having a little trouble understanding what you are saying. You have a internal nodule at your base of your penis? Is it top bottom or left side or right side? Is it underneath the base ring? Please elaborate more...:)
#12
Introduce Yourself / Re: Just Introduction
Last post by Mikel7 - Yesterday at 08:21:54 AM
Welcome Nicksto to the forum. Please fill out your signature line first thing -->Signature Line . This will give other members a quick glance regarding your condition. Then please feel free to download our survival guide -->Survival Guide . This will give you a better education regarding peyronies.

So have you been diagnosed yet? Are you familiar with traction and VED therapy? These therapies can help you prevent further shortening and slow down damage and possibly restore lost length.

It is great that you have a supportive partner as this will help you out emotionally.

Educate yourself and read the forum and ask questions. You are not alone in this!

:)   Mikel7


#13
Penile Implants / Re: Don't Lose Hope!
Last post by RexRG - Yesterday at 06:08:38 AM
Implants are a fix - or compensation - but not a preventative. In fact, it's too unlikely to get, or to anticipate getting Peyronies Disease in the first place, to even look for a preventative.

But implants are expensive. SCAN insurance did pay almost the entire $80K for mine, leaving only ~$400 out-of-pocket. But mine was the most expensive surgery I've heard of and I'm sure it's more affordable elsewhere - outside of SoCal. And if a low libido (ED) is a part of your problem, TRT will probably address that as well.

The implant is a godsend, seriously better than the original equipment :)
#14
Penile Implants / Re: Don't Lose Hope!
Last post by PleaseFindACure - November 07, 2025, 10:04:22 AM
We need to pitch it to researchers as a good disease to test making treatments with AI :).
#15
Introduce Yourself / Hello!!
Last post by jwdetails - November 07, 2025, 03:06:12 AM
Wanted to introduce myself and provide advice from my own experiences with Peyronies Disease and ED. Have been pretty active on FT and found this forum that many may be looking toward. Looking to pay it forwarD!
#16
Surgery for Peyronie's Disease / Re: Why No Sex or Masturbation...
Last post by Kiniavelly - November 06, 2025, 07:51:41 AM
Went through something similar after a minor surgery and had the same frustration. Ended up just watching clips on sex việt to distract myself and laugh instead of risking anything. The doc said it's mostly about avoiding pressure or tension on the stitches, so even gentle stuff can mess with healing.
#17
Introduce Yourself / Re: This sucks, but I have hop...
Last post by Ukguy1234 - November 06, 2025, 06:35:13 AM


Welcome brother. Good on you for being proactive and going to the doctor.

Any idea what may have caused this for you? Any injuries you can recall or medication you are taking?

Out of interest, did Levine think the Penimaster pro could make a reasonable difference? Did he mention surgery?

All the best
#18
Introduce Yourself / This sucks, but I have hope, h...
Last post by Ands - November 05, 2025, 09:35:32 PM
Hi! I'm Ands. I've been posting on the traction board but feel like I may as well do an intro post as I'll probably be here for a few years. It's nice to have somewhere to talk/vent about this. I've told some close friends and family, but can still be tough to have them grasp how tough it is.

I'm 31, got about a 35-45 degree bend to the left, when 10/10 erect, I feel like it's closer to what looks like 70 or so. I'm single, which makes it easier to do all the traction and such. I don't have to deal with sex troubles, and it sucks because I'd like to enter a relationship in the future but it definitely holds me back in a way from wanting to.

First noticed after I got back from a vacation to Japan about 6 months ago. Was in denial about it being 'that bad' and figure it was just my congenital left curve. But masturbation was really seeming like a pain in the ass, excuse my crude language but stroking was difficult, and I remember having erections that were so tight and definitely painful now looking back (feel like I justified the pain as just being 'really hard').

Eventually I took a picture with my phone from the front with a full erection and was honestly a bit horrified. It really set in that my penis was deformed. I started googling about peyronies but was still in denial so I figured I just needed to do exercises/stretching for pelvic floor  ;D  .. I tried some on my own then figured I'll be half serious about this and go to a pelvic floor therapist, they told it's standard to do an internal examination, I ended up just opting to do exercises, did one appointment and never went back haha.

so after a month of goofin around - I went to the doctor, I really wanted to figure it out and not wait until I turn 40 to do anything about it.

Doctor ruled out anything cancerous and agreed peyronies was likely. Referred to urologist at Rush in Chicago (thankfully I live here) same day, and he checked it and agreed as well, I mentioned the pelvic floor stuff i was exploring and he was like "yeah don't waste your time with that, that isn't your problem", felt kind of relieved to be honest, to be past self diagnosis as that's a never ending worm hole of confusion/frustration. - anyhow - he refused to treat me and instead told me to just book with Laurence levine. Again really grateful given I live in the same city as his clinic.

So I had the appointment with Levine and the assistant, they were professional and all went well, they confirmed peyronies and injected with trimix to check, I only got like a 6/10 or 7/10 erection but it was enough to show the curvature.

Levine told me I have a 30 degree curve, got me going on
- Penimaster pro
- l arg / l citr / l carnitine supplement
- h100 gel

Been on that for 2 months and so far I would say the pain is mostly gone, I don't see much of a difference in curvature, maybe a slight reduction in torsion I've noticed when very hard.

Anyway, I'm babbling, just wanted to do an official introduction and honestly just journal my thoughts down somewhere.

We're all going to get better, I still have hope and taking my health in my own hands made me a lot more serious about this and dedicated to struggle thru it.
#19
Hello,

I wanted to share my experience with the RestoreX device. I used it consistently for about a month and did notice improvement. Unfortunately, my Pyronine's condition progressed and required further treatment with XIAFLEX. Due to complications during that process, I ultimately needed a penile implant.

As a result, I no longer need the RestoreX. I originally purchased it from the Mayo Clinic for $500. It's slightly used, fully sanitized, and comes in the original box with all instructions included. I'm offering it for $250 and can ship anywhere within the U.S.

If you're interested or have any questions, feel free to send me a private message.

Thanks!

#20
hi SALAH I hope you are well can you send the name and the brand for the leech oil you used.
thank you