Hi, I'm 47 years old and recently diagnosed with Peyronies after increasing difficulty and discomfort having intercourse with my wife over the last year. As a newcomer to the board, I'm particularly interested in exploring non-invasive self-help treatments and will be reading through them for recommendations on VED and traction devices.
Thanks for adding me. I'm sure I'll find the forum helpful and informative.

I've been on Tadalafil for over a year now.  Recently my morning erections have been crazy solid!  Sometimes they last for a few minutes. I'm not controlling them, just wake up that way.

Also for some reason around 4am every night I wake up and there it is. 

Interesting study. Never taken Gotu Kola (centellicum) However I have in the past supplemented with 80mg Pycnogenol a day for a long period and did not notice any difference in ED or curvature. However I do not really understand the study. What is keloidial penile fibrosis?

Pycnogenol I felt was a very powerful anti oxidant overall but it was too expensive.

Hello Mike7
Thanks for the reply.
Peyronies Disease is mostly shortening and loss of girth.  No pain.
I did try a traction device after the first year or so, recommended by a urologist.  I kept at it initially without any perceived result, but as I look back may have quit too soon.  I did keep the device; thinking about trying again.  Peyronies Disease was stable for many years, but in the last year seems to have gotten worse.
VED I have not tried; I will look into comments on this forum from folks who have and may give that a shot.
I use 20mg of cialis currently, which works (sort of) sometimes.  I tried 40mg once, which gave me a feeling like heartburn but worked ok.
Thanks for the advice. 

Experiencing multiple erections in a short span of time, especially due to stimulation like viewing sexy photos, is generally not dangerous. Erections occur as a result of increased blood flow to the penis, and they typically subside once the stimulation ceases.

However, if someone is concerned about potential damage or discomfort from frequent erections, it's a good idea to consult with a healthcare professional. They can provide personalized advice and address any specific concerns regarding penile health.

Quote from: sesaig77 on November 09, 2023, 02:27:28 PMHey guys, quick update. Mostly great news.

Saw my urologist in London today. He was pleased with the Ultrasound Doppler results. The radiologist who saw me was also very capable. I mentioned him my experiences this weekend with Viagra and told me not to worry about priapism, extremely unlikely anything happened to especially if I had sex the day after. Mentioned that if I further wished to pursue the Issue a MRI with contrast can be done and a ultrasound while erect, although in his opinion unnecesary. I understand both sides of the arguement. The fact I had such strong erections this weekend under normal doses, doctors analysis and reassurance makes me therefore conclude that mechanically performing well and nothing is damaged considerably, although pain persists and slightly reduced EQ persist.

Therefore, the focus of my investigation has shifted. Doctor and radiologist both confirmed they could not feel any plaque in the area of tenderness (Never had the base curvature examined, really slight and not painful now) and not see any damage with ultrasound doppler testing. He suggested to take my mind of things, and said he could potentially prescribe me something for pain, but due to my age and otherwise healthy state, he did not think it would be best to do so. Did not ask what medication he was talking about, might message his secretary to elaborate. On my side, I have quit pornography and masturbation, as the area of pain is suspiciously close to where I would grip to masturbate, in hopes of the flaccid pain dissapearing (Driving me insane!) Hopefully, staying off porn and masturbation alleviates both my pain and increases my EQ in a relatievly short time frame, otherwise I will be inclined to do the MRI with contrast and ultrasound doppler under erection.

Wanted to vouch for Mr Hussain Alnajjar, a very capable and compasionate urologist whose been attending me in London. Hopefully everything starts getting progressively better and I can report better news next week again.

Thank you everyone.

S.

Hey there,

Glad to hear mostly positive news from your urologist visit in London! It's reassuring that both your urologist and the radiologist found the ultrasound Doppler results satisfactory. It's also good to know that they provided reassurance regarding the use of Viagra and the unlikely occurrence of priapism, especially given your experiences over the weekend.

It seems like your investigation is narrowing down, with the focus shifting away from mechanical concerns towards other potential factors contributing to your discomfort and slightly reduced EQ. It's wise of you to consider lifestyle changes like quitting pornography and masturbation to see if they alleviate your symptoms. Hopefully, this adjustment brings about the relief you're seeking.

Mr. Hussain Alnajjar sounds like a competent and compassionate professional, which is always invaluable when navigating health concerns. Keep us updated on your progress, and here's to hoping for even better news in your next update. Take care!

It sounds like you're experiencing some challenging symptoms related to Peyronie's disease and erectile dysfunction. While curvature is a common symptom associated with Peyronie's, it's not the only factor contributing to erectile dysfunction in this condition.

It's positive that you've sought medical help, but it's unfortunate that you feel dismissed by your urologist. PENTOX (pentoxifylline) is indeed a common medication prescribed for Peyronie's disease to help with pain and potentially reduce plaque formation, but consistency with medication can be difficult, especially if you're experiencing side effects or not seeing immediate results.

In addition to PENTOX, your urologist might consider other treatment options such as oral medications like Tadalafil or injections like Verapamil or Xiaflex. However, it's crucial to discuss these options thoroughly with your healthcare provider and ensure they're suitable for your specific condition and medical history.

I'm really sorry to hear about what you're going through. It sounds incredibly challenging, both physically and emotionally. It's understandable that you're feeling hopeless and worried about disappointing your partner.

Seeking out a knowledgeable specialist like the high-volume surgeon/Peyronies doctor you mentioned seems like a proactive step. Getting proper diagnostic tests done by someone who understands your condition can provide clarity on the root causes of your symptoms and guide your treatment options.

Regarding the possibility of getting an implant, it's a decision that should be carefully considered with the guidance of medical professionals. It's encouraging that you're noticing some potential for improvement in your erections, especially if the pain can be managed effectively. Exploring non-invasive or less invasive treatments first, if suitable, might be worth considering before opting for more invasive procedures like implants.

It's not uncommon for symptoms to evolve over time, and the progression of Peyronie's disease can vary from person to person. Your experiences are valid, and it's important to advocate for yourself and seek the support and treatment that you need. Keep pushing for answers and exploring all available options with your healthcare provider. You're not alone in this journey, and I hope you find relief and improvement soon.

Quote from: trytostayhopeful on December 14, 2023, 08:38:00 AMI'm 34, have had Peyronies Disease for 2 years. My curve is straight up about 65 degrees. I am concerned that my nighttime erections are getting weaker and my erections going away more quickly. About 1 year ago I did a series six of P shots and that really helped my erection quality stay at a 5/5. I also take a vitamin formula called Cardio Miracle that is full of L Arginine and nitric acid for good blood flow. I just started to take gingko/ginseng, horny goat weed, and yohimbe to try and improve the erections. My wife and I went almost a year without having sex at the beginning of this journey and have recently started to enjoy intercourse again. And now that the erections seem to be weakening it has me very anxious. Even more so because she is still in her mid twenties. I have not taken any prescription pills for this because I do not want them to be a necessity for the rest of my life. I am not sure what to do.

Your approach with supplements like gingko/ginseng, horny goat weed, and yohimbe is worth exploring, as they are often touted for their potential benefits in improving erectile function and blood flow. However, it's essential to proceed with caution and consult with a healthcare professional before introducing new supplements, especially considering your specific medical condition and any potential interactions with other medications or treatments you may be using.

Regarding your concerns about prescription pills, it's important to remember that they can be a viable option for many individuals with erectile dysfunction or related issues. While you're hesitant about them becoming a long-term necessity, they can sometimes offer significant benefits, especially when used as part of a comprehensive treatment plan tailored to your needs. Discussing your concerns and preferences with a healthcare provider can help you explore all available options and make informed decisions about your care.

Ultimately, finding the right approach to managing Peyronie's Disease and maintaining satisfactory sexual function is a highly individualized process. Open communication with your healthcare provider and your partner, along with patience and perseverance, can be key in navigating this journey.

Quote from: DaneS89 on December 29, 2023, 05:04:48 AMAn open question to anyone reading this and comfortable enough to answer - do any of you here agonise and obsess about the (possible) sexual side effects of antidepressant medications, especially within the context of peyronies disease? That is if you take them of course, and if so, I'd be curious to know, were you on them already or did they enter the scene post-peyronies to help manage the emotional toll of the condition? Do you deem them as a 'necessary evil' of sorts? Or if you don't take them but could benefit from them, is the refusal based on an unwillingness to take any risks when it comes to sexual function?

For me personally, I am plagued by these questions and doubts. Stop them, switch them, leave them unchanged?  I have become fascinated with 'researching' the pharmacological profiles and actions of all the different antidepessant meds and how they might affect sexual functioning. There doesn't seem to be a perfectly 'pro-sexual' antidepressant drug out there except for maybe Trazadone which isn't available here. The two that I have settled on are known to be fairly 'safe' options with regards to preserving male sexual function, and one of them is even reported to enhance it. I'm probably alone in having this particular interest, but if on the rare chance I'm not it'd be cool to discuss this more in depth.

Researching the pharmacological profiles of antidepressants is a proactive approach, and it's commendable that you're taking an active role in your healthcare decisions. While there may not be a perfect "pro-sexual" antidepressant, finding one that is known to have fewer sexual side effects or even potentially enhance sexual function, like the options you've mentioned, can be a step in the right direction.

Ultimately, the decision to start, stop, or switch antidepressant medications should be made in consultation with a healthcare professional who can weigh the potential benefits and risks based on your individual circumstances and needs. You're definitely not alone in grappling with these questions, and seeking support and information is a positive step towards finding the best solution for you.