Quote from: IwillbeatPD on November 25, 2023, 11:32:32 PMHey Joezz-

I'm sorry you're going though this. Sometimes life throws a lot of things at us all at once and it can be tough, but there is light on the other side and you will get through this.
 

Very heartfelt and encouraging IwillbeatPD!

Please do fill out your signature line and study our survival guide as this will give you a better understanding of peyronies and it's different treatments.

I am sorry for the loss of your father and I know personally the feeling, time will heal. The emotional side of having peyronies is just as bad as the disease itself. You need to see a qualified Dr which can be difficult.  Then develop a strategy plan and adopt the mindset that this is a marathon and not a sprint.  Keep your mind on the thoughts of recovering from this and you have the support of caring individuals who KNOW just what you are going through!

I think that the Verapamil injections would be a waste of time as any shockwave therapy. Educate yourself on VED and traction and Cialis. Pentox has come under scrutiny for actually improving anything but you can try it to see if it helps in your case. I don't know if the sleeping pills are worse for insomnia or weed? I believe that vaping marijuana is a healthier option than combusting it in regards to your lungs. Also I have read articles on low dose edibles helping patients with insomnia. You could try some and see.  Remember that peyronies thrives in an environment of internal bodily inflammation. So any health changes to alleviate that would be a step in the right direction.   

Mikel7

what everyone is saying - you need to see a different DR.  It is frustrating to spend the time and money and then find out that this person doesn't have a clue how to treat you or diagnose you. We have all been there. It is a hit or miss.  I do suggest that you could ask the receptionist beforehand if the Dr is knowledgeable in treating peyronies or not. You should also have your list of questions written down for your new Dr so everything is answered. Are you close to Utah or Chicago? Dr Trost or Dr Levine.

You're going to make it through this and be a testimony in helping others who have this awful disease!

Hey, Joe! Welcome to the forum!

I'm sorry that you have to come here but I hope that you get all the information and support that you need.

I have had verapamil injections and they didn't help at all with the curvature but helped with the pain. But everyone is different.

I also advise you to fill out your signature on your profile.

I hope this helps.

Good luck!

Hey Joezz-

I'm sorry you're going though this. Sometimes life throws a lot of things at us all at once and it can be tough, but there is light on the other side and you will get through this.

I think for anyone to give an informed opinion on your situation we would need more facts. However, I can say verapamil injections seem to be frowned upon here. Many have had problems with that despite positive research articles. I was hopeful when I heard of verapamil but quickly changed my mind after reading through forums and experiences. Regarding the weed, tbh I don't think that's going to make a world of difference one way or another. Smoking in general is bad for your health as I'm sure you know. But so is a bad diet. I would just try to be as healthy mentally and physically as you can during this time- you'll need it.

If the curve is your only problem, I'd start with the most conservative and trusted approaches- a traction device like restorex and a VED. Tadalafil/pentox would be a good idea too. Check out the survival guide on this forum for some basic info. But that would be a good place to start.

Hi all,
I have a SomaErect VED device I know longer need as I had penile implant surgery about two months ago. The device is in good condition and includes original packaging and and all accessories. I've given it a good clean and always washed the cylinders after each use. The pump can be a tiny bit temporamental sometimes, but still works well. I've never used any of the cock ring accessories.

I'm based in NSW, but happy to post anywhere in Australia. I paid about $400 AUD for it originally, so happy to sell for $200 as it's in good condition. Please PM me for more details. Photo attached below.

I also have a RestoreX for sale as well that I can bundle together if interested.

Hi all,
I have a RestoreX device I know longer need as I had penile implant surgery about two months ago. The device is in excellent condition and includes original packaging and both length rods. I've given it a good clean and always had the head of my penis wrapped in a bandage when using. I also replaced the clamp earlier this year as the previous one broke, so that part is almost new.
I'm based in NSW, but happy to post anywhere in Australia. I paid over $1500 AUD for it originally, so happy to sell for $750 as it's in great condition. Please PM me for more details. Photo attached below.

I also have a Soma Erect VED for sale as well that I can bundle together if interested.

I had Xiaflex round3 about 2.5 weeks ago. After the second of the two injections, I developed a firm, pea-sized lump as a side effect at the site of one of the injections. The doc's PA had a look and said it should go down in time. Gonna look at it again at the six week followup. 

Unlike all the other inflamed areas, this pea is definitely not disappearing yet.  Seems like it hasn't gone down at all yet.  I know it's only 2 1/2 weeks, but I'm finding this kinda disconcerting.

Has anyone else experienced these?  Any tips on expectations for how long they stick around, and/or anything to help?  (PA suggested mild heat)

Thank you! I'll keep you all updated on my road to recovery.

Hi, I'm a 31 years old male, I live in canada and about 9 months ago I noticed a huge curve to the right on my penis, it took me ages to see a urologist, but finally I did and he gave me a physical exam and he told me that he can feel the plaque and that I already have Peyronies, and his first suggestion was Verapamil injections.
I was really scared about the injections and to be honest that blocked me totally.
Anyway, not even a few weeks later I had to go back to my home country and then I went to see an other uro and he gave me an ultrasound but yet without any injection and he told me you got no plaque and if its not bothering you with pain or erections then you'll do fine.
The ultrasound didn't convince me that especially that I did it without any injection and while I was flaccid.
All of this was almost a year ago, now the last couple of weeks I've experiencing pain for the first time and its mostly after urinating, also with a bit of stinging on the other side of my penis and a bit of pain in my testicles and my abdomen and the pelvic too.
This has made me really anxious and Im depressed than I ever was, life wasn't easy on me at all this year, new country, new job, the lost of my father and Peyronies..
Ive asked to see the family doctor one again so he can refer me to an other urologist and to check if this pain got to do with inflammation or prostatis maybe cause i don't know honestly if its peyronie's disease or maybe something else is happening along with it.
Im about to see the urologist that suggested the verapamil injections one more time and I wanted to know your opinions on the verapamil injections.
Also Im about to see abouta physist here in Alberta to check the shockwave treatment.
The last thing, I have sleep issues and I smoke a lot of weed to get rid of the insomnia because Im don't like sleeping pills but also I've read that smoking weed and especially Tobacco will make the peyronie even worst.
Should I quit weed and go back to sleeping pills instead? Besides I haven't eating well and my health is really in a mess as I didn't work out in a whole year or so.
So please any information, any advice, any text, anything that could help just tell me about it. Id really appreciate it, thanks in advance.