Hello everyone,

If someone could offer me some advice I would just be really, really grateful. I have pondered this for so long and feel completely stuck about which decision to make.

My situation:

I am 49 y.o., born with congenital lateral curvature (now at 70%), partial erectile dysfunction and what feels like a loose base at the penis- all which have worsened over the years.

I had a modified Nesbit four years ago that corrected the curvature, and also cured my painful ejaculations. I lost about a cm in length, but it really improved the sexual experience and also had a positive effect on erection quality. But from the start, I suspected that the looseness of the base would not be able to uphold the erection over time - and this is exactly what happened; already after half a year, the curvature began to return. As of now, the curvature has come back 100%, and even points more downwards than before, though with less torsion than before the surgery, and no return of painful ejaculations.

One year after the surgery (three yearsm ago), my doctor had a visit from Dr. Ralph (if you do not know him, he is an extremely well-renowned urologist from London), and since I had already myself investigated a type of surgery to correct loose ligaments at the base of the penis, it was agreed upon that I could get this done. But this had no effect whatsoever on either the instability or the erectile dysfunction. He had also previously stated that the sense of looseness could be because of the erection not being hard enough (I am not sure!?).

I have now had an offer for another modified Nesbit, but I am worried that this will just be the same story all over again, where the curvature returns soon after – and minus another cm in length! The doctor does not have an explanation for why the curvature returned last time and only says that this happens sometimes and needs to get redone.

I have also thought about getting an implant, as this would probably mean that I would not have to worry about ED anymore and at the same time make sure that the curvature does not return. My current doctor is reluctant about this and says that this should really be the last option. I am able to get erections from both PDE-5 inhibitors or injections, but the side effects of both are often quite horrible, giving me a nighttime itch that can last 3-5 days.

I have consulted with Dr. Ralph online, and he thinks that I should have the surgery redone, and that he would also at the same time check for instability at the base and see if this needs to be redone in the same session. In terms of the recurrence, he suggested that one possible cause could be that the absorbable sutures used last time were not wound tightly enough. He is similarly reluctant about the implant and agrees that this should be the very last option.

I have also consulted Dr. Osama Shaeer in Egypt (also at the top of his field), who also recommends modified Nesbit but when asked about recurrence of curvature, he suggests that he could do something in addition called a double 8 technique with sutures. He also talks about a new kind of sutures that last longer than the ones used before.

Regarding an implant, he was not as reluctant as the other two doctors but of course emphasized the risks of infection, shortening etc. If he would do the implant, he would do it with a so-called slitting technique the short side instead of shortening the long side.

He also seems to be really thorough in his examination and asked me to send results of e.g. penile duplex (can't be done professionally in my country), testosterone levels, and more.

So I have really consulted some of the best doctors in the field, but I still don't know what the hell I should do at this point.

To sum up, my options are:

1. simple modified Nesbit (covered by free health care)
2. Dr. Ralphs modified Nesbit with additional check of ligaments at the base
3. Shaeer's modified Nesbit with sutures
4. Shaeer's implant with the slitting technique

I have read about many who have had the implant and are very happy about it, but since all three doctors are hesitant about it to some degree, I am not as keen on this as I was before. Even though the thought of always being able to have an erection is tempting, I am worried by the risk of infection, shortening, lack of sensitivity and the whole prospect of a definite point of no return (plus a large expense).

I have been examined for Ehlers-Danlos since I generally have the feeling that my ligaments seem weak in the whole of my body, but the conclusion was that I don't have it.

ANY advice or experiences would be much, much appreciated!
 

Of course!

I can completely relate to what Lostand Looking24 has said in the above post.

When the curvature set in at the beginning my penis was very difficult to bend in the opposite direction to the curvature.

So this made sex slightly difficult.

With only a few months of traction and VED my penis is a lot more flexible even though erections are harder.

What I mean by this is the plaque seems to have softened. This allows me to physically straighten my penis when entering a woman without it wanting to resist.

Does that make sense?

I'm going to have to book in with a GP again when I get time.

I want them to acknowledge I have peyronies disease.

It's bad that you actually have to argue your case and tell the doctor what is wrong with you.

Basically doing their job for them.

I'm happy to show pictures, videos or whatever to be diagnosed by the NHS.

Did the NHS diagnose you with peyronies?

And if so, do they provide any treatments? Such as Tadalafil or a vacuum pump?

You can check my post history. For me it got worse before it got better. After 14 months it functions and is exactly the same as before but with a 15-20degree curve which I'm completely used to. It's as if I was born with a congenital curve, as in the only symptom is the appearance of a curve and nothing else. I don't even bother trying to treat it or anything anymore because there is no need and the time investment of even just 30 minutes a day isn't worth.

After 14 months, at least in my case, the worst part of all of this was the monetary investment on the traction devices, ved, doctor appointments, not the 'disease' itself. I actually like the look of the curve now being completely honest, whether that's a subconscious cope or what I don't know, but I like it. But I was terrified it would end up being a 60 degree curve or something throughout the first maybe 8 months, but it didn't thankfully. The fear and worry made it worse than what it was in reality.

So there you go, an anecdote of a mild case.

Quote from: BentKnob on October 01, 2024, 02:26:12 PMDid you have an ultrasound at a later date? And if so did it show up the second time?

I didn't, but if the ultrasound was done flaccid that could be why it didn't show up. Also Isn't a palpable plaque enough to determine it is peyronies typically? I'd be curious to know what their verdict was. If it wasn't peyronies that caused the bend then what was it?

Hello,

I am a 26 year old male from the Netherlands. I discovered a pea sized lump in my penis a month or two ago which has only grew a little bit so far, urologist said it was a plaque and should revisit to see status on it again in 3 months.

Now, i dont have pain with erections, and my penis does not really bend towards another side.

My urologist said this could stay like this. But to be honest i cant find any stories online of people that are this lucky. It always seems to get worse only.

So my question is:


Is it possible that my plaque just stays pea sized and im lucky?

If not, how fast can these grow over time?

Is there a chance of having this plaque and not having any bending or other symptoms?

I read on some surgery website (which might be just to promote their surgery) that plaques etc will always and only get worse with time, while my urologist says it can just get stable from now or in a year time and just stay like that forever without any problems.

I just hope that i might be lucky, and it just stays like this.

After hours of research i also came to the conclusion there really are not any proven solutions when it comes to medication or other therapy so i might just leave it alone for now and not worry about that.

I hope someone can answer my questions, i did search alot on forums and internet already but there is so much info my head is spinning, hence my topic. Thanks alot already!

Quote from: Bud luck on October 10, 2024, 02:49:18 PMYou are blessed

Have not seen you around for maybe a year on this forum.

How are things going for you?

Still the same?

Also check this thread on the make-up pad modification to the clamp:
https://www.peyroniesforum.net/index.php/topic,16996.0.html

That helps immensely with traction and comfort for the glans. I use it with the Coban tape and never have any slippage.

As others have stated, this is a marathon, not a sprint. The 12-week traction program yields mild results, but they are results. Consistency is the key. Stay positive. Keep going. The longer you continue traction therapy and incorporate good lifestyle habits with diet and exercise, the better outcomes you will likely have.

Good luck.

Hi,
I recently bougth a Penimaster pro, but unable to put on because the valve doesn't seem to close right and also my glans' width is ~5cm but the plastic ring hole's diameter is ~3 cm so probably it is too small for me, probably I have to send back.

I read that the restorex clipping machanism also causes issues on the glans, so if it causes pain for average people then I would get even more, I think.

Does anyone know about how the Andropeyronie or Phallosan forte would fit? On the webpage I see that the second one has glans chamber sizes S, M, L.

Thanks in advance