Did any of you got back to a normal psychological state after being diagnosed with this disease?
Loloc,
I did, but it took awhile. I also went through a divorce and other difficult life circumstances, which certainly took their toll psychologically. Oddly enough, dealing with Peyronie's helped me get through the other stuff I just mentioned; if I can live through the devastation of a penile injury and scar tissue, I can handle just about anything.
Dealing with the psychological aspects of Peyronie's is an active process. You must eat well, exercise, manage your relationships (marriage, friends, etc.) and work towards good mental health by getting therapy and using medication (if needed). You have to work at it every day.
Best,
-Skjaldborg
loloc
I will quote Skjald:
QuoteI did, but it took awhile.
I will just add that I am completely over.
James
Loloc;
I don't think any man would not be psychologically damaged by this pernicious disease. It strikes at the very heart of our manhood.
I can only speak personally. For me, I think I kind of learnt to come to terms with it. I guess you have to, or you'd go downhill very quickly. Don't misunderstand me, I'll never, ever just accept it, and I'll fight it until I win, or I depart this mortal coil.
No man likes to think that he can't perform, or is impaired sexually. It maybe shouldn't be so important to us, but it's the way we're made - most of us anyway.
I didn't contract this until past the age of 60. As an ex pro musician, I had done more than my share of "spreading the seed" and so it was maybe a little easier to come to terms with what had happened. It's the young ones I really feel sorry for. Had this happened to me at say 21, I think my view may have been entirely different.
No..
Common guys, give me some hope... anyone, really? Not even close to normality?
I had my first encounter in 2001 and was in a relationship at the time. Didn't affect the relationship and after the Peyronies Disease stabilized, I fairly quickly got used to it and just accepted it as part of life. So yes, I'd say I returned to psychological normality. In fact, the best sex I ever had in my life was in a relationship a few years later. So it's not always a worst case scenario.
Nemo
In my post I said I did, but it took a while. It's an active process you have to work towards. You have the power to change your circumstances; that's the very definition of hope.
-skald
Right, thanks skald, missed your answer. Thanks to Nemo too. I just needed to read more encouraging posts since most of them are the opposite. Good to know your experiences too James and Jonbinspain.
I have been fairly low over the past few years but since finding this forum and reading the situations of others, it has helped me get stuff in perspective, trying to deal with the condition is definitely helpful, waiting was never really going to work.
On a scale of 1-10 for normality, I was at 3 before fighting back and now I'm at 8, not much has changed physically.
Thanks for your help guys x
Loloc,
For the younger guys that get this disease I think it would be more helpful if the urologist would refer them to a therapist instead of vitamin E.
I have tried to keep it in perspective. Everyone is going to have challenges in life. I am thankful that Peyronies Disease is not going to kill me. There are far worse things that can happen to a person and do all the time such as strokes or being paralyzed just to name two. When I add up the minutes of lost intercourse in a month I can't justify letting it ruin my entire life.
Had it for over a decade, still in my 20s... and I'm barely getting back to normal. Thank God! So much I've learned and been through but it has made me into a better person that's for sure. Do I feel robbed of my teens and 20s? Of course, but maybe the life I always wanted was never meant for me in the first place
Thanks a lot for your replies guys. I must say I'm still sinking fast, some days try to "swim up" but there's really serious downs.
I still can't face the fact that I don't know wether this has an end of progression or not.
@this_day
Did you get into a relationship or got back to almost normality alone?
For the most part, on a day to day basis I'm feeling mostly normal again. In some ways I've just changed, not necessarily for the worse, and that always happen as life goes on. But there are still some times when I really have a hard time. Right now there's not much I can do other than not think too much about the bad things, because ultimately you never know what will happen in the future. There are many good things in my life, and it's best to focus on those things and be grateful for them. Overall, humans have an amazing capability to adapt, even if it takes time. Maybe the adaption isn't 100% but things really do get better.
Good to hear that thisismyusername. I must say that little by little I'm going stable (psychological). I'm not feeling as happy as last summer but also not like killing myself like two months ago, although the desease does get worse. It helps to know that there's always possibilities to getting to have sex even with this condition if you really want to, and you can have it and still feel bad, so that's a proof that you can't only "blame" peyronie's for being the cause of the unhappiness.
Loloc, I haven't been in a relationship in years because this totally f'~c<+d me up mentally. I've had plenty of chances to have sex with various women (friends), even girls who wanted to date me, etc. but I would back out due to this condition.
So to answer your question, alone -but with the help of prayer. It really did changed my life. Never have I been so ready for a serious relationship and life in general.
Even though I've been making love with my wife/soul mate of almost 41 years, the onset of Peyronie's at age 65 (and still very active sexually), the condition really threw me for a loop. How could it not?
For me, the thing that has helped me cope as been my wife who has been very understanding and encouraging. She maintained confidence in me even when I lost confidence in myself. Still, a guy can't expect/hope that some one else will carry you through.
But to answer your question, it has taken several months, but I am feeling more and more "whole" and less "broken" , even though the condition has slightly worsened. The encouragement from my urologist and the hope I get from participating in this forum have really encouraged me to get back in the saddle again -- as often and as best as is physically possible at this point -- and get my hopes up for improvement with therapy (VED, etc), drugs and supplements. I wish you well. --artguy