It's good to see this being discussed. I've found that small changes help a lot, especially with consistency. One thing that made a difference for me was adjusting my diet to include more nutrient-dense foods. Surprisingly, dry whole milk powder turned out to be really useful for me. It's easy to add to meals, and since it's a good source of protein and fats, it helped with overall energy levels.

Hi everyone,

I have been struggling with peyronies since 5 years, Have been visiting doctors since day 1 yet no hope.

I got peyronies during covid due to excessive masturbation and it's still horrifying me as its increased a lot.

I have got peyronies on the ligaments of my penis - on the left and the right and probably developing on the under side too, and it goes way down till the anus. Where the ligaments attaches to the below muscles.

I have down ESWT got no response, lately did vacuum therapy got fantastic results - revived by erection penis to 6.5 inches and then it activated more fibrosis and now back to 5.5 inches. Traction hasn't been also helping. Also taking multiple supplements didnt work.

The doctor says we won't d surgery as you are really young. 32  years, we'll try all the method for reducing inflammation

Can someone help me? Been psychologically affected a lot with it. I'm sure everyone is. I hope we find the cure that helps and supports everyone.

@BentKnob - I should probably be clearer. I'm from the UK but currently living in Australia. I'm a bit confused with the ultrasound situation now. If they radiologist reported Peyronies Banding, that would suggest its calcified, causing it to show up...but then the Urologist couldn't feel anything upon physical examination. As for the Restorex, I would absolutely buy elsewhere and have it shipped here. Much cheaper.Hope you have made good progress with yours!

@Mikel7 - Good idea with regards to getting it shipped over. I will keep in mind your note about inflammation. Is VED use safe with Tadalafil? I've seen a few conflicting reports, suggesting it might best to avoid mixing the two. Though I imagine you know far more than me!

Wow 1,400.00 for a Restorex there - that is ridiculous! Perhaps you can search the forum as there are Restorex devices available from members that no longer need them. Saving you a lot of money unless the shipping cost is a lot. Yes look into VED therapy as it can help. Using tadalafil is also a big help too. Inflammation is the number one fuel for peyronies and anything that you can do to lower it is a plus.

You are not rambling as we are all on this road together. Remember that this is a marathon and not a sprint. It takes time for peyronies treatments to correct the deformity.

Quote from: Ukguy1234 on March 25, 2025, 10:04:47 PMThe urologist I saw was a peyronies specialist and said the ultrasounds, particularly when flaccid are not reliable.

What was the name of the peyronies specialist you seen? I'm also based in the UK.

And yes, I had a flaccid ultrasound on the NHS and they couldn't find anything. This is because I have a soft plaque, only calcified plaques show on ultrasounds.

Quote from: Ukguy1234 on March 25, 2025, 10:04:47 PMHe did show me the Restorex device, which is $1,400 where I am located but again said that in my case, it wouldn't provide much benefit, given the lack of an excessive curve.

The RestoreX can be bought for £350 from iMEDicare for those in the UK.

Hello all,

I decided it would be best to give an update a few days after my surgery.

I had no pain, and still don't. When I removed my bandages all looked well, and I actually have gained girth already.  I guess better blood flow?  My surgeon is amazing!  100% amazed with the outcome and couldn't have asked for a better experience.  Now for the 6 week healing process and behaving myself 😂

I have now used the PMP för six weeks, ca 310 hours.

Finally, I think I can se a small improvement. The penis is 0,5-1cm longer. And I think the curve is a little improved.

Even if it´s barely noticeable, it feels very good. Now I keep on using the PMP, and we see what happens!

Thanks for the reply. Has taken me a while to get used to the website.

Oh I have been educating myself quite thoroughly. Having since become much more aware of Finasteride's downsides, I have stopped using completely. (I think hairloss companies and dermatologists really downplay the risks, which is misleading)

With the injury I mentioned, I had no pain and no snapping sensation. I've a had a few mis-thrusts / slipouts over the years, as i suspect many men have but I never recall pain, during or after.

The urologist I saw was a peyronies specialist and said the ultrasounds, particularly when flaccid are not reliable.

I showed him pictures of my penis erect, pointing out both the elevated bands and areas of indentations but because it is mostly straight, he more or less shut the conversation down.

It might be a bit cynical to suggest this but I am not currently a case that would warrant surgery or implants, which is an area he specialises in, he probably lost interest, knowing he wouldn't make any money from me.

His stance overall was that supplements were useless and that even if I did have peyronies beginning to form, given the way my penis looks/feels at the moment, the way he would approach treatment would be exactly the same.

He did show me the Restorex device, which is $1,400 where I am located but again said that in my case, it wouldn't provide much benefit, given the lack of an excessive curve.

So I'm taking 5mg of Tadalafil and being much more cautious during sex/masturbation for the time being. I have a follow up appointment with him in 3 months, where I intend to be a bit more persistent with my questioning.

One thing I am not clear on is the difference between fibrosis and peyronies. I've read in multiple sources that circumflex veins, like any vein, can experience microtears and become thickened or more fibrotic once healed. If this  is true, it would make sense that this could be what I have, given the location of the bands.

Will look into VED therapy, though I was under the impression that was more for ED.

Anyway, apologies for the slight ramble and thank you for reply. Much appreciated.

Cheers

Welcome UKguy1234 to the forum and thank you for filling out your signature line. You can also Survival Guidedownload our survival guide here -->.

My first comcer is you taking Finasteride as it can cause horrible hormone lowering problems in a lot of men. Yes there is even a forum totally devoted to the drug and men seek out recovery from it. Some men have to go on testosterone replacement. Hopefully your is not the case.

The injury that you describe, was there pain? Was there any sharp noise like a snap? Your Dr says that he can't feel any bands but that the ultrasound reveals peyronies.

Your photos do show some king of an elevated band outwards but not inwards. Usually banding with peyronies is a narrowing. You need to look into traction therapy possibly or VED therapy. You just don't want to make things worse. Usually peyronies starts and causes deformities, this is called the acute stage. You need to educate yourself about peyronies because sad to say most Dr's are not experienced with it nor do they treat it correctly. Are you happy with your DR?

As we have all been down this road you need to keep the mindset that this is a marathon and not a sprint. Educate yourself by reading the survival guide and the fourm. 

Mikel7

I wanted to know if anyone else had something similar to the below photos:

https://ibb.co/3Y5vkhrV
https://ibb.co/SX0CSVj7
https://ibb.co/jk4LxV5F
https://ibb.co/d4knxQ3T
https://ibb.co/zHQ7cbzK
https://ibb.co/bgm9tZXX

Ultrasound reported "Peyronies Banding" but Urologist said he couldn't feel any plaque and brushed off the photos as just veins.

However, these veins do not look or feel right and appeared after a mis-thrust during sex.

They feel firm under the skin, when both erect and flaccid.