It's time I share with other sufferers my success with a combination consisting of Pentox 3x day, Propolis 900mg 1x day, Magnesium Chloryde 400Mg (tablet) 1X day, Vit E 400 mg 1x day, L-Arginine 500Mg 1x day plus Cocoa butter penis massage before bedtime.
I first came down with this evil disease in February 2013. Heavily devastated by the drastic downward bend near the glans plus severe pain with erection (which put a sudden halt to my active sex life), decided to throw all the heavy artillery at this sucker.
I have to admit it wasn't until starting on the Propolis 3 months ago all the improvements in the curve started to appear.
I will not make this up as I understand the frustration and pain this causes, but honestly, within weeks of propolis use the downward curve disappeared and my penis became straight (except for slight left bend, which is congenital).
I first ran into this "miracle" pill on a Spanish forum my wife found online. I decided to email some of the guys in the forum and 2 of them replied to confirm their great success with it. At that point the dices was cast. I bought this very inexpensive formula and ever since feel like a brand new man.
I am not saying this might work for everyone, however, my curve was a nasty one which had appeared suddenly and no doctor provided relief.
Another thing I believed has helped tremendously has been my wife support and staying healthy working out and doing happy activities.
Good luck to each one of you....and trust me there is hope without surgery. ;D
This is interesting:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3437487/ (http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3437487/)
http://www.elsevier.pt/en/revistas/revista-internacional-andrologia-262/artigo/propoleos-inmunologia-enfermedad-peyronie-90155454 (http://www.elsevier.pt/en/revistas/revista-internacional-andrologia-262/artigo/propoleos-inmunologia-enfermedad-peyronie-90155454)
Dfurman,
Thank you for the report, it is truly interesting. This Spanish forum you found, was it for peyronies? Or something else? That's truly fascinating. And some studies to back it up it seems.
I'll give it a try.
dfurman- Congrats on your success. I quickly read the articles that Matt posted and did a brief google search on propolis. It looks like it is readily available in 500mg tabs or a topical gel. What about the topical version, for us? I know you said that you use one dose of 900mg and it is pricey, but why? Better quality? The stuff on the web and local health food stores looks pretty reasonable. Thanks Inkhorn
Inkhorn--To clarify your comment, I believe you misread my statement below, I said "very inexpensive" or cheap if you prefer. A 90 day supply only cost me about $15 in local health store. I haven't tried the liquid or topical form as tablet was the one recommended to me by guys who benefited from it.
The forum deals with all sort of medical conditions but has a huge area devoted to peyronies. here is a link:
Link removed by moderator. If someone want the link, please send a PM to dfurman
**Only one warning for those who are diabetic, need to consult with their doctor before taking Propolis. I am not a doctor and not sure why. Just passing the info.
As per the medical study, I guess I should also look into getting an Iontophoresis machine as well to inject the Verapamil. Anyone know of one that would work for our purposes?
Thanks fur- Must have got excited at your success and missed the "in"--lol Ink
dfurman, did you also have erection problems as well and if so, did this formula resolve it?
Quote from: MattFoley on October 27, 2013, 05:36:36 PM
dfurman, did you also have erection problems as well and if so, did this formula resolve it?
MattFoley I had major erectile problems. Not being able to maintain erection etc..not normal being 33 years old.
Between L-Arginnine and Propolis my erections are now rock hard. I don't want to take chances anytime soon; therefore, planning on staying on Propolis and L-Arginnine indefinitely.
Thanks dfurman, that's great news.
Can you please tell me which brand of Propolis do you use?
Also, why did you include Magnesium Chloryde 400Mg & cocoa butter?
Matt,
I Pm'd you the propolis brand. And yes, I am still using magnesium chloride and palmers cocoa butter with VIt E (mens formula) every day.
Good luck :)
dfurman, that's wonderful news, and Matt, that would be crazy but amazing if you got one of those machines. Let us know if you find out anything more about obtaining one.
I just ordered propolis from iherb.com, as well as nearly every supplements I could think of to treat peyronies.
Also continuing blueberry extract (taking it now).
iherb somehow ships to Tokyo for only 4 dollars. I'm not sure how they do that.
The logic behind the magnesium chloride is to get rid of any calcifications which will in turn soften the plaques. This supplement also benefits me for bodybuilding purposes in general.
The cocoa butter I use as penis rub lubrication to achieve a much healthier look on the skin. Hopefully some of this vitamin E will be absorbed into penis tissues to heal any scars.
Thanks for that info, dfurman.
(1) The iontophoresis machines that are referenced in the article I posted can be found here:
http://www.androline.com/eng/ (http://www.androline.com/eng/)
The problem is that beyond the home page, it's in freaking Italian. I had to translate the page to figure what the hell I need to get and then I have to contact these people. Man, nothing is easy.
Anyway, I sent the company a message on their website asking for someone to call or email me info on the machine used in the study. I'll keep you guys updated on what response I get from them.
(2) The combination of materials include blueberries. I can't find blueberries with 36% anthocyanosides, however I can find bilberries with that standard. Bilberries are closely related enough and can act as a substitute for the blueberries. My only concern is that the study calls for 160 mg. Now, do they mean 160 mg of anthocyanosides or 160 mg of the berry itself? Can someone take a look at that and give me their opinion? I went to vitacost.com and they have a variety of bilberries that fit the bill. However, if I have to add up the anthocyanosides to make 160 mg, that's going to be expensive. At this point, I decided on the Yerba Prima Bilberry Extra Strength -- 160 mg - 50 Capsules.
(3) My urologist has no problem in prescribing the diclofenac 4% so that's solved.
(4) I'm sure I can get the verapamil prescribed as well but I need the damn machine first.
(5) The vitamin E has to be in the form of dl-α-tocopherol acetate. I'm getting that from vitacost.com in the form of 1,000 IU. (Nature's Bounty Vitamin E Pure dl-Alpha -- 1000 IU - 60 Softgels)
(6) The propolis is also available from vitacost.com. It's called, "YS Eco Bee Farms Propolis -- 1000 mg - 90 Capsules"
(7) And we can't forget our friend, L-Arginine. Vitacost L-Arginine HCl -- 1,000 mg - 100 Tablets.
Thanks guys.
Why is there not more attention on this forum to this research and success?
It seems from the success that propolis should certainly be added to the Pentax, cialis, argenine combo or is there something I am missing?
In light of this report today I naught propolis, magnesium chloride, blueberry & bilberry.
Mentos, I know there's a solution here somewhere. We are just going to have to be the best doctors ourselves in order to figure it out. I saw my urologist yesterday and although he's happy to help me, he wasn't very enthusiastic about the study I showed him. Then, I saw my regular doctor today and he wasn't thrilled because the study we're talking about did not involve a statistically large group of patients. I'm like, dude, whatever.
The freaking Italians (lazy bastards in Milan) haven't gotten back to me yet either.
It was great reading what dfurman wrote but with the study as back up to what he said, come on, we have to try it. Especially considering the stuff dfurman is taking are not expensive.
Matt,
I ordered the Y's Eco bee farm propolis,
As for the Blueberries, it sounds like they were measuring by blueberry extract.
It's hard to know how standardized this really is, but it seems to be somewhat standardized at least in the medical community and research articles.
I ordered Life Extension Wild Blueberry, which is 375 of wild blueberry extract per veggie cap.
Natural Factors has a 500mg Blueberry "concentrate" in softgel form.
They note that it yields 12.5 mg Anthocyanins
I should have gotten that one T_T
NeoV,
I think that's a safe bet. As I mentioned, in order to get to the 36% level of standardization, you would have to go to a compounding pharmacy. I think just getting some blueberry extract and then adding bilberry extract at the 36-37% level should work. Either way, dfurman isn't using those in his protocol so I'm not going to stress out about those items.
Wild Blueberry is - vaccinium angustifolium, or some others..
Blueberry is - Vaccinium corymbosum?
Wild Blueberries contain more Anthocyanins than cultivated blueberries.
NATURAL FORCE "BlueRich" clearly states they use Concentrate 36:1 (fruit), and uses cultivated blueberries.
I'd say this one is great Matt, but like you said, I'm sure it's nothing worth worrying about too much.
NeoV,
I agree but the study calls for "36% anthocyanosides". Anthocyanosides and Anthocyanins are two very different things. I'm not sure how they differ without researching them. I would have gotten the blueberries as well but my budget is rather limited at this point.
Matt,
Anthocyanosides are Anthocyanins. They seem to be alternate names.
However, Anthocyanidins are slightly different, being the sugar-free conterpart of Anthocyanins.
Cool, even better. Thanks for researching and helping me with it. :)
Let's pray we have similar results to dfurman.
God bless us and especially our penises.
Just for the record: Y's Eco bee farm propolis, is the exact same product I am using. I did not disclose it earlier as I didn't know if product brand was allowed in forum.
I must stress the fact that I am also on pentox, which might triple the efficacy, who knows...
But in all honesty, the curve and hourglassing disappeared within weeks of Propolis use.
there is still few centimeters lost in length and girth, which I hope to recover in the next few months.
dfurman, thank you for the follow up.
At the very least, some of us who have been following this topic are moving actively to see if this protocol will work as well for us. Some of the guys have already ordered the products and I'm ordering mine today. I wish you continued success with your treatment. The war continues.
Yes Dfurman thank you very much!
I am moving on all of the treatment regimes you have outlined. Please keep us up to date and offer any advice / inspiration as it comes. It all helps.
there is still few centimeters lost in length and girth, which I hope to recover in the next few months.
[/quote]
I am curious why you still would have loss of size if curvature etc is gone? Did you plaques disappear or remain?
Mentos, I'm guessing a bit here but I think some of the loss of length is due to the plaque pulling the penis back. If the scarring and/or plaque is horizontal across the penis then loss of length is likely. All of my scarring is parallel with my penis so I have no loss of length. That's my understanding.
In dfurman's case, his plaque is pretty much gone but whatever may be remaining is causing a small amount of loss in length. Assuming continued success with his protocol and using traction/VED, I'm confident he'll get it all back and more!!
Mentos, the plaque still there but much softer and reduced in size.
Like Mattfoley said this is an all out war. A war which won't be won in one desicive battle, rather in small scale guerrilla hits.
I feel blessed I came accross the weapons to defeat this evil and be able to help others out of the darkness.
Today I received my package 8)
Only took 3 days to get to Tokyo from the USA, for just 4 dollars shipping, which is unreal.
I want to truly express how grateful I am to receive this stuff over here. I was even able to use my JBC (Japanese credit card type) to pay for it. I've been very sad and worried here, not knowing how to get a VED, supplements.. But here I am today with all of my tools in hand, in a new apartment since last month in my first semester of grad school. I'm a happy guy today, and very thankful.
Per capsule/softgel
Propolis - 1000mg
Wild Blueberry extract - 375mg
Ubiquinol - 100mg <--- (low dosage I imagine)
Grape Seed Extract - 100mg
Vitamin D3 - 1000 iu (restocking)
And a men's multi vitamin
Wish me luck! Until now I haven't been taking much along side my daily VED usage. Hope this helps me out.
Excellent!! Go to it, bro, and keep us informed. I pray for your healing. :)
God bless us all.
Way to go NeoV!!!!
Keep up the positive attitude...that's also critical.
;)
This is a good study which shows many of our treatment protocols being successful. including propolis, blueberry etc.
Mentos, excellent info!! Wow. Thanks for finding that. It goes to support a number of treatments and methodologies that a few of us here are excited about to explore.
I received my package today. It includes:
(1) Propolis 1,000 mg
(2) Bilberry 180 mg
(3) L-Arginine 1,000 mg
(4) Vitamin E 1,000 iu
(5) Magnesium Chloride 520 mg
I hoping for a miracle like our friend dfurman got.
God bless.
I'm also going to start taking Propolis.
I've been taking CoQ10 300 mg per day for around 3-4 months now. I started adding Saw Palmetto 320 mg per day a few days ago and will be adding Propolis 1000 mg per day later this week.
I'll let you guys know if I have any improvement.
I've also taken vitamin E 400 mg per day and L-arginine between 500 mg and 2000 mg per day in the past but didn't necessarily notice any help so I discontinued.
I have been taking Saw Palmetto for over 20 years. Just to let you know it will take 6 to 8 weeks to notice any improvement.
Jackp
http://jackp-penileimplant.blogspot.com
Thisismyusername, if you're going to take Propolis I highly recommend you take the other supplements as well as per the study I posted and dfurman's program. Please consider getting the stuff I got for myself that I posted below.
Jackp, are you taking the Saw Palmetto for Peyronie's or general mens health for prostate, etc.?
im curious about saw palmetto also?
It will help understand your posts if you will check them with the speller. It takes very short time.
MattFoley
Saw Palmetto is used for men with urinary and prostate problems.
It comes from the Saw Palmetto tree in South Carolina and Florida. When doctors were doing a study they found that the native Americans living in that area did not have prostate and urinary problems.
The biggest help for men with peyronies is urine flow. It eliminates the need for flo-max and other prostate drugs and there side effects. 20 years ago +- it reduced my prostate size from twice normal to a normal size.
Jackp
http://jackp-penileimplant.blogspot.com
Jackp, thanks for the info. I took saw palmetto years ago when I had a prostate issue. It worked great. I thought there may be some application for it with Peyronie's.
God bless.
Jack- Can you elaborate more on the urine flow subject you mentioned in relation to helping peyronies. I'm not sure if this line of questioning is considered highjacking, if so I apologize in advance. Regards Inkorn
any updates from people on this regime?
Ive been taking propolis for a week and a half and saw palmetto for 2 weeks. Have not noticed any differences. I'm not taking all the other stuff that dfurman talked about though.
I'm taking: coQ10 300 mg per day, saw palmetto 320 mg per day, propolis 1000 mg per day, vitamin D3 1000 IU per day.
Honestly, no supplement I have ever taken has made any noticeable difference.
I don't mean to discourage others from trying. Maybe others will get some help. And I have not been taking propolis, saw palmetto, and vitamin D for long so I will give those another 2 months or so to really see.
I am taking 3*450 gr. Saw Palmetto per day.
As Jack has told me, 450 gr. per day is good for maintenance but not enough as treatment.
James
It will take at least 2 months to start seeing results from taking Saw Palmetto. After 6 weeks I threw all the other meds out and have been fine for over 20 years.
Jackp
http://jackp-penileimplant.blogspot.com
Saw Palmetto is a very strong supplement, while recent studies deem it safe there are numerous reports of young men permanently ruining their hormone balance with it, and have to go through some serious therapy to try to reverse it.
I do not agree with the claims, but nevertheless they exist. I hate to hijack this thread but I'm definitely still too afraid to take it! Wait isn't it in my multivitamin? lol.
NeoV
Can you post the:
Quotenumerous reports of young men permanently ruining their hormone balance with it, and have to go through some serious therapy to try to reverse it.
I am interested to see them even I am not young :)
James
Ahem. I'm thinking that discussing Saw Palmetto in this topic is considered hi-jacking from the original topic. I'm actually OK with it but I'm thinking a moderator might get upset. ;)
Just a note of clarification to new members. Saw Palmetto has nothing whatsoever to do with the treatment of Peyronies Disease. For that reason I hesitate to comment on it especially under this topic. I also share James' concern for the the statement that it causes hormonal imbalance. I am very skeptical of that statement and unless some solid documentation comes forth, I would consider it an unsubstantiated claim that has little following and little or no support.
I agree with mattfoley that talking about saw palemeto or whatever it's called should be removed from this post which is about discussions dfurmans protocol and use sharing research, resources etc related to new supplements he introduced us to such as propolis, bilberry ect (atlesst to me he did).
Thanks hawk for clarify.
I have also been trying Bee Propolis for the last 2-3 months. So far, no change whatsoever! Good luck to anybody that it has worked for.
Back to the topic.
Regarding Propolis:
Propolis/Propoleo - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,2836.msg45952.html#msg45952)
VED or TRACTION - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,2933.msg43063.html#msg43063)
When Xiaflex will be available - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,1676.msg46389.html#msg46389)
& 23 other topics regarding Propolis
James
Dfurman
What was your squeak behavior over the course of your improvements? I'm at a place where I am seriously considering no masterbation or sex for a while.. Erections yes but no physic stimulation.
I certainly cut down on jacking off to at least 3 times a week.
I did continued having intercourse at least 4x week but really cautious with woman on top and using lots of lube to avoid further trauma.
I agree with general consensus that erections are super important in the healing process, especially morning erections. Mentos, if you have the will power to abstain from sex and only encourage erections, then i guess it would be OK.
To me sex was my way of coping with the psychological issues of this. Without, sex i think I would've lost this battle.
If I had the time, I would engorge my penis all day long so I could maximize blood flow. Unfortunately, society expects me to work to pay my bills. ;)
I went out and purchased Propolis, magnesium cloride, and changed my coq10 to ubiquinol with kaneka QH and it's been helping with my erections and blood flow a lot! My erections have been firmer and more frequent pretty much started a few days after administering.
Addboy that's great too hear!! Keep us posted & wishing you continued healing!!
Hey guys, I have to add that I'm also seeing improvement in my erection quality. Two days ago I was getting ready to masturbate so I put on my cock ring and some porn and before I could put on the VED, I got a solid erection. The erection was so good that I couldn't put the VED over my curved penis.
I'm not sure to what degree this protocol was the reason for it but this is the only thing I've done differently since starting this particular treatment.
God bless our penises.
Hey guys I'd also agree that I've seen some improvement as my inflammation that was below my gland appears to be gone. As well my 90 maybe 95% full erections seem to be about as straight as they always were and it is only when fully hard does a curve show.. I'm not exactly sure what this all means but I'm certainly sticking to the regime.
I have also started with the size genetics but have not gotten into the habit of using it much.
Mentos, that's great news, I'm happy to hear about your success. Keep it going!!! :)
Also, I just got my prescription of Diclofenac so I'll be adding that to my protocol as per the clinical study that supported using it as part of the treatment protocol for Peyronie's.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3437487/ (http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3437487/)
Great news guys!!! let's keep this up
I ran out of propolis yesterday and restacked today another 90 day supply this morning. This will mark month 4, I plan on pushing it a full year, where all the dramatic results should happen.
Still a little pain here and there, I am thinking if I should throw in Ubiquinol for that. Any thoughts?
dfurman
Ubiquinol will be my choice in your case if you can afford it.
James
I definitely agree with James. Ubiquinol is a must if you can afford it in your budget.
I have been seeing improvements from this combination for the last few months, however, as of today I am stopping taking all of these supplements.
I am very sad about it, since my penis continues to change and improve since first using VED and starting these supplements.
I'm stopping because my edema continues with no signs of improvement. My glans is soft from the edema and I've lost some sensation on the glans as well.
I've heard elsewhere that supplements have caused soft glans in others, the source is highly unreliable, but I'm really at a point where I need to try everything to get rid of this, it's becoming worse than the peyronies itself and I would never consider having sex with it, since there is so much fluid under the skin and the glans is far from rigid.
I'm very sad and confused and I do not know if this is the best choice.. I want to believe these supplements are helping and it really seems like they are.
The other supplement I had added in was Grape Seed Extract. I do not know how any of these supplements could cause edema, but the whole issue started with a mild priaprism of the glans, not VED entirely.
Wish me luck, and I wish all of you luck on this cocktail : / I have a feeling that simply laying off any sexual activity for a long long time will fix this, but it's been very hard for me to do.
I really need everyone's support I feel so terrible about this.
-V
NeoV
You are not alone in this problem. I had to stop Pentox after 18 months and I had huge benefits from it.
My problem is getting more and more frequent bad flue while on Pentox, ones in two months.
By the way, what are the other supplements/medication you are stopping?
James
NeoV
Very sorry to hear about your soft glans problems. Have you consulted a different urologist maybe, for a second opinion?
On a separate note: adding Ubiquinol as recommended by MattFoley and James has worked wonders getting rid of most of the pain. This pain was nothing more than slight discomfort caused by rock hard erections induced by Propolis and Larginnine (harder and firmer erections than pre-peyronies).
Thanks to you guys advice is now nearly gone. Planning on taking Ubiquinol on regular basis.
dfurman
The credits regarding Ubiquinol/CoQ10 should go to George.
We are just repeating his advise. :)
James
I think dfurman means in this thread not who was the originator of suggesting Ubiquinol in these forums. :)
I have a deal with my doctor. He is in charge of supplying me Propolis through out my treatment. My doctor recommended me to start using propolis (http://www.comvita.co.nz/healthcare/propolis.html) on daily basis.
It appears that my improvement has leveled off and now I'm seeing minimal positive effects from the propolis. I find this with any new supplement/drug I take. I'm taking 400mg twice a day. Is this the recommended dosage?
stefanybezar
Could you give us some more information regarding your Peyronies?
Could you tell us who is the doctor that put you an Propolis and the daily dosage?
What are the benefits you are expecting?
James
addboy, the normal dose for Pentox is 400 mg, 3 times a day. My doctor has me taking 800 mg, 3 times a day. You shouldn't really change your doses unless your doctor is aware of it.
I am new to forum and haven't quite figured out how to use this properly. I am a 60 year old male who was just diagnosed with Peyronies. Mind numbing information.
My doctor has put me on Pentoxifilli and L-Argine with vitamin E. I have just started but I fear I am late to the party. I just noticed this about a month ago and waited a month to see the doctor. Since starting this cocktail my penis has curved more then the last time about two weeks ago. I am totally bummed out.
As you all know we will try anything. But when I hear that other doctors are using injections etc. How do you know what is the best to use? How do you know if you are on the right track? Who is keeping up with this stuff?
JbVertigo
Well unfortunately there isn't one thing that works for everyone. If there was a precise cure we wouldn't likely all be here. So we try to stay up on all the new treatments and share as best we can what seems to work.
The best thing we have found as a collective group of fellow sufferers is to actually try multiple treatments. Usually a combination of prescription drugs along with VED or traction treatment. If you haven't read the following yet this might help get you to a common baseline of what is recommended so far.
MUST READ BEFORE YOU POST - Information for new members - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,3180.0.html)
Les
jbvertigo
What you are describing is progression of the disease.
You are not late to the party at all. It is just two months from the start so you are in the early stage of the disease.
Using the correct treatment you may (not for sure) halt the progression and even reverse the symptoms.
I am proposing you to start VED according to the forum protocol, carefully not to over-pump, 3*400 mg Pentox (you are on it already), low dose Cialis, Ubiquinol. L-Arginine may help also, regarding vitamin E, will not make damage.
Send a PM to Old Man if something not clear about VED (how/what/why), he is our Guru in the subject.
My opinion above of course.
James
This thread hasn't had a post in 10 months and could use an update. This Propolis supplement sounds very interesting. Has anyone from this thread who tried out the supplement had any results they care to share? Thanks
Yup, I tried Propolis, did absolutely nothing, just like every other supplement I've ever tried.