I'm fortunately in the position where I can undergo Xiaflex at London Andrology but I'm concerned of the risks involved and that it maybe a total waste of money as I will have to pay this personally.
Any advice as whether I should go ahead with it?
Jim - have you already had a penile ultrasound? If so, has a doctor at London Andrology reviewed the results and discussed them with you?
Not yet, but I've been to UCLH and they recommended VED as the NHS does not offer xiaflex.
If you say you have a mild curvature, why not try the ved first and see row it goes?
Why take such a risk when there's traction and VED available?
Is it really that big of a risk? I have been using a VED but feel like there is no or very little improvement. I've been to UCLH and spoke with Dr. Christopher Nim who recommended the SomaErect. As the NHS doesn't offer Xiaflex I feel like I'm wasting my time going to see him tbh
Jim, at 30 degrees you are right at the cut off for xiaflex. I believe the studies show improvement, but not 100%. if you can afford it just make sure the doc is well qualified and does the Injections regularly. I believe the risk is when you have an inexperienced doc doing the injections.
Quote from: TonySa on April 02, 2020, 02:17:45 PM
Jim, at 30 degrees you are right at the cut off for xiaflex. I believe the studies show improvement, but not 100%. if you can afford it just make sure the doc is well qualified and does the u he ruins regularly. I believe the risk is when you have an inexperienced doc doing the injections.
I got referred to a Kaiser urologist (my US health plan is called Kaiser Permanente- a bit like the NHS, but they cover Xiaflex. They should, this isn't cosmetic surgery! Peyroines is a disease for Christ's sake), in San Francisco. They only have 2 urologic surgeons licensed to do Xiaflex injections in this area) and he told me 30-45 degree angles are optimal for Xiaflex effectiveness, with traction. Have to wait till May or June to start unfortunately. I didn't get a protractor out to measure the angle but it's between 30 and 45 degrees, not more, not less.
Def impt to add traction when getting xiaflex to maximize benefits!
Quote from: TonySa on April 04, 2020, 12:04:08 AM
Def impt to add traction when getting xiaflex to maximize benefits!
Thanks Tony. Dr. Lue told me after injecting Xiaflex it was like pizza dough. (I assume he's referring to the plaque.) You have to stretch it out to make a pizza. Makes sense, it's just remodeling the plaque. Yeah, Dr. Lue is hilarious.
Thanks guys. I have a VED so will that suffice or does it have to be traction?
Might help, but traction has demonstrated better outcomes than xiaflex alone.
Quote from: jan.schaller1958 on April 03, 2020, 12:40:21 AM
I got referred to a Kaiser urologist (my US health plan is called Kaiser Permanente- a bit like the NHS, but they cover Xiaflex. They should, this isn't cosmetic surgery! Peyroines is a disease for Christ's sake), in San Francisco. They only have 2 urologic surgeons licensed to do Xiaflex injections in this area) and he told me 30-45 degree angles are optimal for Xiaflex effectiveness, with traction. Have to wait till May or June to start unfortunately. I didn't get a protractor out to measure the angle but it's between 30 and 45 degrees, not more, not less.
hey man do you know any good Peyronies Disease doctors in Germany? most urologists seem to not know very much about it
Thanks Tony. I will probably arrange a consultation with Dr Raheem at UCLH and see what he has to say.
Quote from: peter123 on April 12, 2020, 05:09:13 PM
hey man do you know any good Peyronies Disease doctors in Germany? most urologists seem to not know very much about it
These docs are good and specifically deal with Peyroines (IPP):
Urologie am Ring
Kaiser-Wilhelm -Ring
50672 Köln
+49 221 125009
Quote from: jan.schaller1958 on April 23, 2020, 03:11:19 PM
These docs are good and specifically deal with Peyroines (IPP):
Urologie am Ring
Kaiser-Wilhelm -Ring
50672 Köln
+49 221 125009
oh are these the ones from the YouTube channel?