p11050: I only saw your post now, but I was very impressed. Sorry you went through this.

How is your condition now? Any improvement?

I have never heard of such symptoms, related to this disease. Could you have another health condition that you are not aware of? Have you mentioned this to a doctor? Maybe you could do a physical exam to rule out what I could be.

I am getting an Ultrasound in two days, i will keep you guys updated.

i would like to hear more people comment on this

Not a single response? What the hell? I stayed up all night to write this and no one responds.

Welcome Spid63 to the forum and thank you for filling out your signature line. Also please download our survival guide -->Survival Guide.

Sorry to hear about your situation. So 9 years ago you developed peyronies and then in 2021 you underwent 2 Xiaflex treatments. So during your Xiaflex treatments did you actually use the traction device as this is standard procedure for helping the medication remodel your penis? How much of an improvement did you see? You may have gotten even better results if you continued with the traction. So how much of a deformity do you have now?

VED could help you somewhat, you just need to give it a try. You say your erections are fine and you are in no pain which is good. In looking for a VED device you need to get one that does have a pressure gauge on it. Also make sure that you do not get one with an automatic pump as this could be dangerous in over pumping. The VED protocol here has you using graduated sizes for pumping with very short holding times after reaching your erection. I have been using the LeLuv cylinders through Kodidistributing. Quality is what you should look for as a lot of them are cheaply made. You also need a pressure gauge on it to never overpum as you can damage yourself.

Search the forum and you will gain some insight into VED therapy from other members. Time and dedication are required though with any peyronies treatment. We adopt the mindset that this is a marathon and not a sprint. 

Mikel7

Hello everyone,

I stumbled upon this forum by accident while researching about Peyronie's Disease.

I have been dealing with Peyronie's since 2015. Interestingly, during that same period, I also went through a divorce. No, Peyronie's wasn't the reason for it; there were other factors involved. In fact, my ex-wife isn't even aware of my condition, as our marital issues began long before 2015, which was just the final chapter of our relationship. Surprisingly, this separation helped me avoid sinking into depression over Peyronie's. Starting a new relationship or getting romantically involved with someone else was the last thing on my mind. To be frank, for years, thoughts of sex didn't even cross my mind, and strangely, it helped my mental well-being.

Between late June and early July 2021, I underwent treatment with two Xiaflex 0.9 mg injections, which helped eliminate the plaque and improve the curvature. Post-Xiaflex treatment, I experimented with traction devices like the Restorex to regain my original length. However, due to my procrastination and lack of time and privacy, I eventually abandoned using them.

Now, I find myself at a stage where I want to rekindle my sexuality, and I seek your advice regarding choosing a vacuum pump, which I'll discuss further in a dedicated thread.

Thank you for taking the time to read this. Best regards.

Hi P11050,

I am suffering from herniations in the tunica albuginea that resulted from a botched Nesbit surgery (not form Xiaflex treatment as was your case, but the result is the same). Have you tried any treatment/surgery for your hernia? What type of treatment did you do, with what doctor and was the procedure successful?

Which doctors do you recommend me to talk to about potencial solutions to my penile hernias?

All your help will be very welcome! Thank you very much.

You are probably not going to like this opinion, but if 3 years have gone and you are still getting worse narrowing, more scarring and new dents you should consider an implant and probably do it as soon as you can to prevent more size loss. I am also doing VED, sadly the cold hard truth is that for severe/moderate narrowing/hourglassing/denting whatever you wanna call it, traction and VED will do very little. One can definitely regain some dimensions, but most of the tissue is gone and will never come back. That's why they do the grafting procedure in cases with guys like us because that tissue will never come back and they hope the graft will help fill in the dented area and make the penis seem fuller again after it has absorbed.

Hi all!

I've been having issues since a couple of months back and I'm still awaiting a urologist appointment, which is in exactly one weeks time. I still have inflammation and pain that comes and goes. My injury site is near the glans on the left side. I suspect it still hasn't healed fully.

I'm having a couple of weird symtoms, one is that after an erection or a certain movement that puts a strain on my penis I tend to feel some tingling or pulsation in the left foot (same side as injury in my Penis). I can only assume it's circulation related. The other is that I can also feel some soreness on the abdomen, (again same side), usually after an an erection. I'm currently avoiding getting erections unless they're random or during wake up.

Anybody recognise these symptoms? what does it mean and how should it progress?

thanks in advance!

 

Hi there guys,

Just a quick update.

Plaque and hourglassing: since February, my curvature hasn't changed, and it seems it has stabilised. The main problem is rather the unstable plaque that I have - at this point I have scarring pretty much everywhere (in some places it's rather limited. The tissue is still soft but you can feel that something is going on there on the surface - mild scarring or something else?). The massive lumps that I have on the left side are still there but less palpable (however the dents haven't changed a bit) and the lumps on the front side have become much more solid. I suspect that they have calcified.

In fact, I had an appointment with my urologist a month ago, and we did an ultrasound scan. He told me that indeed we can see quite a bit of scarring everywhere (the left/front side - more scarring, the back and right side less. He wasn't too happy about it, of course, but was more or less optimistic. Well, I guess he has no choice but to tell me that everything is fine (especially because my penile function is okay for the moment).

It's been three years, and my Peyronies is still getting worse. At this point, I can see that I'm slowly developing dents on the right side. In no time, the left, front and right side dents will connect into a 'belt' and there will be a more visible hourglassing. I'm sure about it. I've restarted doing VED therapy (after 2-3 months brake) to slow it down.

Supplements: I stopped taking Berberin and NAC after something like 3 months because I didn't see any change. Now I'm just taking occasional Omega-3, vitamin D, magnesium (basic stuff for overall well-being).

DMSO: As all the previous approaches didn't really work, and I was becoming a bit desperate, I decided to try DMSO. As the topic was extensively covered on this forum, and it kind of worked for some people, I got very excited. Long story short, I prepared a DMSO solution (70% DMSO, 30% - water with Vitamin C) and applied it for something like a month. To be honest, there was no change in plaque density whatsoever. I think the only benefit was that I was getting more spontaneous erections, as a result.

Today I decided to try something new and prepared a new DMSO solution - 70% DMSO, 20% - castor oil with emulsifier and water + magnesium and water. Honestly, I'm really bad at these things and still not sure whether that's a good solution and whether it's safe. But still curious to see whether it will have any effect

Penile therapy: as mentioned previously, I've restarted doing VED therapy. I also continue doing penile traction (Restorex) every day.