I am a young 66 year old male.
I am married.
I have had a great life and always had a slight bend in my penis. My penis was 7.5 inches long and 5.5 inches girth.
I would use 50 mg of Viagra and at age 62, I thought this was fine.
In 2014 while having sex, my spouse moved and my penis bent and it hurt like hell.
The next day, when I was masturbating, I noticed on the left side, my penis was sore.
I have not had problems getting an erection, my problem is maintaining one.
Weeks later, my penis started to bend more and there was like a hinge on the left side that wanted to bend when I would try to penetrate.
In September 2015 after meeting with 5 different urologists in 3 different states, I finally found one that said he could help me.
I know it's only 4 years ago, but there was kind of a hush about discussing Peyronies Disease. Guys seldom talk about penis issues.
I had a modified Nesbit surgery in September 2015 and it was a success, except it shortened my penis by 1" and I lost about .5 inches girth.
In the last year, I have noticed more scar tissue forming in my shaft and I am developing an hour glass effect.
I have also been taking 100 mg Viagra and have had to start penal injections of bimix too.
I am up to .90 ML of Bimix. I started at .20 ML in November 2018,
I just recently started taking Cialis too, which seems to be helping.
I have been doing some penis stretching with a device and some pumping, but my penis now measures 6.25 length, below the head, I am 5.25, mid shaft 4.75 and at base 5.50.
I am still able to have good sex twice a week, but the increased dosage for the bimix shots, the further reduction in my penis length and girth due to the Peyronies, and more deforming of my penis has me convinced now is the time to get an implant before I lose any more of my penis.
I am scheduled for a titan implant on 4/25/19 at Duke University.
I will include some photos of my journey.
The second picture is my pre Nesbit surgery.
The first photo is one taken a few days ago.
I will also try to keep a log.
Thank you for posting this update! 4 years is a very long time dealing with such a thing, especially when your symptoms just keep getting worse and worse. Thank you as well for the pictures. Are you doing Ved and traction on the daily? religiously?
Stepone,
Since you are soon to undergo implant surgery I am sure I speak for others in addition to myself about wishing I had a little more info. Specifically things like how you came to choose your surgeon over Dr. Kramer who is in the same area or some other surgeon. How did your initial consultation(s) go? Since many have a keen interest in surgeons, did he measure you? Did he promise you a post-surgical size, etc?
This is a great time to start your implant journal to track your progress and help thousands of other men with issues they face.
Thanks and good luck
Hawk.
Hawk, I started a post with some pics. I guess I started it in the wrong place..
But to answer some of your questions, more than happy to share.
I had several reasons to choose Dr. Lentz, first closer to where I live, it's 2.5 hours away. Second which is really first, Dr. Kramer no longer takes United Healthcare Advantage Plan. Third is, I read some good reviews on Dr. Lentz and Duke University Hospital and they seemed to fit my criteria.
My initial consultation went very well. I first met with his associate and we discussed my history, previous surgery and they reviewed my records from my previous urologist.
Yes, Dr. Lentz measured and said he could feel how the scar tissue from the Peyronies Disease is holding my penis back from its original length. He said he thought I might get back some of my lost length, but should not lose any. He said the same about girth. I have scar tissue on both sides of my penis where the surgeries were. He said if I truly work at, he would think over time, I should gain.
He also told me that the modified Nesbit that I received, would have reduced my length, based on the degree of the bend. And then the hinge that they repaired was also an issue.
I told him, although I was concerned about losing more length, I wanted my girth back and he said based on what he could feel and see, he saw no problem with that.
If you can find my post from 4/15/19, it will list what I have done.
I agree about tracking my progress. I have gained the courage to move forward with this surgery from reading others posts, including yours. Your posts have been very encouraging.
I am open to any questions I can answer.
OK, I found your post under "Our Histories". I merged it here with these the other posts. Great start on a journal.
Stepone,
Best of luck on your bionic transformation today. Keep us posted.
Hawk
Good luck over there stepone!
Surgery went well. I asked Dr Lentz about early pumping. I said several Peyronie's site members said they stated pumping at 3 days. He said he was familiar with that and actually hD spoken to Dr. Eid.
He said it's a very patient specific length of time. He said it's usually about 2 to 4 weeks.
It's inflated now. Numb and swollen, but doctor Lentz said, they will deflate tomorrow morning around 6am along with Removing the catheter.
He said they should release me about 11ish.
Pain yes, but tolerable.
Duke Hospital staff are superb and nurses very knowledgeable about recovery and pain management. Easy access to Hospital, parking. My spouse is staying at hotel 8 minutes away. Southern Hospitality is perfect.
Good luck to you for a speedy recovery. If all goes well it just gets better and better.
Congratulations. I logged on just to see how you were doing. I'm glad to here a good first report.
It's going to get a lot harder from now on!! 8) congrats
This is day 2 since my surgery. I have been a little spacey due to the drugs, but I remember the doctor saying he deflated me. But yesterday when I looked at it, it was sticking out at 3 on a clock. I read my instructions and it said sometimes it may inflate during the healing process, but rare. Of course the opioids had me confused, but then thought back to my first Nesbit surgery, and it too was engorged, so the clear part of my brain said, wait it's just swollen still.
I have it pouting up in my underwear, but my Scrotum is still sore and now turning black and blue.
I last took a opioid at 3am, and as long as I don't move I am ok. I am going to take a shower after lunch and see how that goes.
Thanks for everyone's support.
It is not likely inflating. It appears inflated because it is erect from swelling and accumulation of blood and fluid around the cylinders not from saline inside of the cylinders. It is the nature of the surgery to look inflated for several days to weeks after surgery. Keep it pointed up as you currently are doing. You will not feel better every single day. Sometimes it is a couple of steps forward and then one back but every week should definitely be better than the previous week.
Good luck and keep us updated.
Thanks Hawk!
The meds do make my mind a little cloudy, so yes you are right. I need to be patient with this. Today I take a shower, although surprisingly my spouse says I don't stink.
The physician said no scrubbing in the genital areas, just run warm water. I will try to post a few pics, but yes the black and blue is increasing with each day.
Thanks for posting. When does the Dr say you will start the daily inflation cycling? Was it infrapubic surgery?
I see the doctor again next Tuesday. He asked me if I wanted to start sooner, as each patient is different, but I said No, I can wait.
I have no idea, that was a question I never asked. There is an incision at the top of my ball sack and a very small incision in my groin area on my left side.
Maybe this will help.
Sounds like penoscrotal incision. It's easier to start pumping if no incision in scrotum...but important still to do. He'll have more info for you on Tuesday.
Thanks, still experiencing lots of pain. I can feel the pump and it's easy to locate. Fortunately my sac is relaxed so it doesn't hurt where the pump is. My penis swelling is going down, but I
Have a little flaking of skin in two pea size areas on my penis glans. Still not sleeping and even with the Benadryl, I itch like crazy at night. I have a slight allergy to oxycodone that causes itching. I am going to call surgeons office today to see if they can prescribe something else.
Stepone, Is your scrotal incision horizontal (left to right), or verticle in line with the raphe?
The small incision in the groin area must be an additional incision to place the reservoir. Dr. Eid does this on rare occasions if someone has had prior abdominal surgery which can make placing the reservoir through the scrotal incision difficult. Have you had prior abdominal surgery?
Were you instructed to soak lying in hot baths or to avoid the tub?
Dr. Eid typically does a verticle scrotal incision only and pumping within 3 days is very doable.
incision, up and down, best can tell, there is like a sealer over it with stitches.
Yes I did have had abdominal surgery before.
Hot tub yes after 4 days
I can feel the pump, and there is enough room where I can distinguish the pump parts, but I told him I would wait until i have a follow up visit before I start pumping, even though he said I could start sooner.
Mark me down as chicken crap, LOL.
Hey stepone. The sooner you start cycling the better in terms of size outcome and inflation of the device. Are you afraid of the pain you might get?
Dam straight I am afraid of more pain and more importantly also screwing things up. I am 66 years old with a few other health issues, I am battling at the same time. This is my second penis surgery. My doc said we are all different in how we heal. I have Peyronie's Disease too, so I am going with what I agreed to do with my doc. I am waiting until next Tuesday when we meet up and take it from there.
Thanks for your input.
Swelling is almost gone, but I am still dealing with an erect penis. I assume this is the way it will be for a while? It does have a crease at the base, when I keep it up against my belly with underwear. When I stand up, it points out at 3pm.
I have a lot of discoloration, which is what my surgeon told me. My spouse said, I thought I ordered it in white, LOL. Love the humor.
My ball sac is mostly sensitive around the incision. I can feel the pump, but am electing to wait to pump, as agreed, until I visit with my doctor.
Since I had small ineffective balls to begin with, hence my need for TRT, the pump is bigger than my balls. My spouse has never had interest in them, LOL.
It is still painful, but nothing like it was, I assume this is normal too?
I have no fever, have not had any change in my temperature since the surgery.
I am checking in to see if my presumptions seem accurate to those who have gone through this and can remember?
Thanks guys
PS. I am soaking in warm baths and also using ice packs on my ball sac, when it swells from walking.
All sounds normal and on course!
Thanks, appreciate the feedback on this journey.
Very good report. Things will improve rapidly from this point. Don't over do exercise or time on your feet. If you spend too much time on your feet following your wife through the stores, remember, ice is a friend. Your testimony once again proves my impression that Nesbit is not a good end all and it does shorten the penis. Cheers man. Keep doing well.
All sounds good. It will help a lot id you start your posts with something like "11 days Post-op" so readers know at a glance where you are in the process.
Thanks for the updates. I'm 7 weeks out and doing great. It seems that each doc has a different post-surgical protocol. Ive read on this forum of great results even with so many different approaches. Be patient. It's all worth it.
At 2:ooPM today, i will be at 2 weeks. Today is Thursday.
Visited doctor on Tuesday, was inflated to maximum, I saw stars, incision area was burning like hell.
Yesterday was better and I inflated about 3/4 of the way for 20 minutes, so glad the release button worked.
Today I inflated I think to maximum as I couldn't seem to get any more pumps out.
I have had it inflated now for 30 minutes, and pain is just starting in penis.
Should I try to go longer or just keep it to 20 - 30 minutes each day?
The penis does not hurt when I inflate, just the scrotum and pump.
The pump keeps sliding out of my fingers and thumb. It seems less painful when I pull the scrotum skin far above the pump, so its pretty tight. This seems to be the least painful. Suggestions?
I measured and it seems I am about 5" girth directly below head, 5.5 at middle and about 6" at base of penis. I no longer have the indentations about mid length. Yeah!
My old measurements were 5.25, 5.0, and 5.5 for girth.
My length before was 6.5, I am now at 6.0. So this is something I will work on.
The swelling is gone, I have a dog ear on right side near base, so I guess that will eventually go away?
I still have problems sitting, as I get a lot of lower groin pain.
Look forward to comments.
Seems that the update was very positive! I will let other implantees get back to you regarding the inflation time, so you feel more confident with their reply.
Anything that helps w the pain, such as stretching the skin, is s good thing! Thanks fir the update. Sounds like it's going well. Those who've had the peniscrotal incision can share how long their pain continued (mine was infrapubic).
You seem to be on target with very typical observations.
You can get by with 20 or 30 minutes once a day, but more is better at this stage, especially if your goal is to regain some size. Getting another 1/2 inch is well within reach, and I would say to be expected if you feel a tight stretching sensation in the penis after you are inflated for 20 minutes or so. I would try to get in an hour of stretching as a minimum. You can break that into 2 30 minute sessions. It is easy to do if you don't have company or kids running around the house. Pump up before you eat breakfast, shave, brush teeth, etc. Finish out in the shower where the warm water will help any pain from stretching. Pump up before bed-time and watch some TV or read. The discomfort in the penis means you are making progress and getting gains. Increase as you can tolerate it and find ways to distract yourself, music, other activities, etc.
The dogear will not go away when deflated. It will get softer without the point, and you won't be aware of it unless you feel around to find it.
If I understood, the pump gets away and shoots out of your hand. It is not uncommon until you learn to avoid it by adjusting your grip or just stabilizing the pump by resting your other hand lightly against it. Typically men find that pumping the pump between the first knuckle of the bent index finger and the pad of the thumb works best. It can help reduce pumping pain if you use a fry soft face cloth between your hand and the scrotum.
It only gets better from here, MUCH BETTER!
Implant on 4/25/19, so it's almost 3 weeks.
Just when I thought I pumped it all the way, I got in another pump. I felt a little pain this time in my penis. I managed to hold it for 30 minutes.
About my pump.
I woke up in pain this morning, it felt like it was pressing up against my cylinders.
I had to take a warm bath and pull gently on the pump to move it around. I took a pain pill too.
Perhaps I am imagining, but it seems like my pump is pulling up to my shaft.
Every day I pump the top of the pump release button it seems to be getting more and more closer to the bottom of my penis.
I think when it first started out, it had more give and it hung a little.
It feels like it is growing out of the underside of my penis like a tree grows from the ground.
I did a lot of stuff, so perhaps I am still swollen down under, as the stitch area is still tender.
There is also a little mass beneath the stitches, did they stitch around the tubing to secure things? I don't know.
Any thoughts?
Good news when fully pumped some pain as your maximally sized. Hard to say about the placement of the pump. Mine was also riding high so I kept tugging. Then one time it pulled loose and is now to low! Maybe ask the doc to take a look and advise?
Concerning the pumping, I would use two hands to pump the max I could at this stage because the stretch is expansion and your penis will likely adapt to the bigger size. When you no longer can feel any discomfort or stretch after 30 minutes you are likely the max that your implant will give you.
As far as the pump, if you can pump and deflate, I would not be concerned unless there is pain in the testicles (not scrotum) or unless it looks very conspicuous.
I once asked Dr. Eid if I should tug on the pump to keep it from adhering to the scar tissue. His response was the most blunt and absolute that I have ever heard from him. He said, "NO! the pump will not adhere to the tissue. that is TOTAL BullS**t. If a pump actually adheres that means there is an infection.
My pump did reposition on its own so I think that is normal. Also, if it is riding high, is your testicle below the pump or above it?
3 weeks and 3 days from implant.
Ok, thanks for your information.
The pain is diminishing and I finally found some jockey underwear that holds everything together comfortably.
As far as my pump it is riding high, that seems to be where my pain is centered, I massage around that area and gently move it around the best I can, but it feel rooted at the base of my penis.
If my balls are warm, they hang below the pump, but most the time, the pump pushes down on my ballsack below my balls just slightly. LOL, I do have small balls, I think guys with bigger balls probably have less issues. The pump is the biggest thing in my ballsack.
Every day the pump is easier to use and thanks to your suggestion about the two fingers together on one side of the pump and the thumb on the other seem to work much better.
I also started pumping as soon as I get up, before the spouse does, I am able to have about an hour of maximum inflation in the mornings now. Being naked with a fully pumped penis is so much better.
I have also noticed that I can fully pump and a few minutes later, can still manage to get another squeeze or two. Not sure if this means the penis is stretching more? Sometimes i can do this several times.
FYI, I have also gotten to the point, where I no longer feel like, did I make a mistake with this implant. The pain and problems of hiding a painful penis were fairly intense at times, but thanks to the guys on here, my pain was a little more manageable, as I knew there was a light at the end of the tunnel.
After you first time having sex let us know if you have any doubts :)
Your progress is on course and the scrotum is always the main discomfort with a scrotal incision. It is not a quick 1-week or 2-week sprint as I tell men. I enjoy your posts and I will definitely enjoy your thoughts as things progress and you have a fully healed penis.
Your scrotum and everything else will toughen up to that "pinched in the zipper" ache and it will no-longer hurt. Contracture after surgery is a known thing to happen after any surgery but with an inflatable device, my opinion, it is something that happens only if you let it and it truly is one of those "man up" things for a little while till everything settles and adjusts. 4 months out you will think the whole thing was no big deal. Cheers man.
34 days since my implant
visited with my surgeon yesterday
he said it looked slightly pumped when I showed it to him
I said, sometimes when I release the pump, it doesn't always release all the way.
He said it is something to get used to over time, it will loosen up.
The doc maximized my penis and said it looked good. He said he believes the Titan Colorplast seems to have a better erection condition than other brands. That is what I have.
However in the unpumped state, they tend to be a little more rigid than other models.
He said after some time, they soften up more in the unpumped state, but really it's the pumped state that is the most important, so most of his clients prefer the Colorplast.
After the inflate, he pressed the release and squeezed the penis until it was a little sore, he said it takes a while to get most the fluid pumped out in the first months.
He told me to come back in 3 months for a follow up and that he thought I could use it, once I was ready psychologically and physiologically. I said great and got a prescription for the testosterone that I needed refilled and left.
My penis was a little sore from the squeeze and the ride home, so even though I thought it would be a good night to give the guy a test drive, I decided I just wasn't there last night, and the spouse understood.
I hate to say it, but I am a little nervous.
So I am thinking about tonight. I still have pain in my scrotum from the doctor pumping and releasing, but would still like to test the thing out tonight.
If I do, I will certainly post, but in the meantime, wish me well.
Hey Stepone! Your doctor is right, about the rigidity of the coloplast titan versus the others. There was a pdf article i saw from Dr. Eid a while back, where he tested the bend rigidity of the Titan VS the AMS and it was impressive how much the second brand flexed even when fully inflated. You also have a couple of members that had the same implant here before you and are almost at their 1 year mark and you can make a comparison with them.
From what i read, the cylinders do deflate better as time goes by, and also get softer. Dr. Eid also has some videos of his patients deflating the penis the same way your doctor deflated yours.
Grab yourself the courage and take it easy.... you deserve it! Best of luck on reentry! :D
It definitely gets better over time. Going on 3 months here. Cylinders are definitely softer but I still project out pretty good flaccid. Probably about a month ago it started to just deflate further. Happened kind of spontaneously. Now when I push deflate button and squeeze penis I can see the folds. I could not really before. I am just squeezing out most of the saline and leave it hanging around 4.30 or so.
My only issue is I am still tender in the tips. I am still pumping up daily and sometimes a couple times a day.
Positive is my peyronies curve is noticeably better. After implant i had a very slight curve left over from my 30 or so degree curve. Hardly even can tell now. My right tip was a little lower than my left one initially. It was still in the glans well though. Doc said as curve straightened they would even out. Slowly happening.
Long race here to get back to some semblance of normal. Happy where I am at 3 months so far. Hope things keep getting better and better.
So lucky to have a great spouse....and all the sharing of information on this website.
and Houston, we had no problem. LOL
We had some "no pressure afternoon" delight.
One word "awesome"!!!!!
I was a little worried, but I felt it all and in just a few minutes, wam, bam, thank you mam.
We both had a great finish!!!!!
I am so happy this worked, my penis head was a little tender and still is, but Gosh, sex was great.
The pressure is off!
Yeahaw!!!!
8) congratulations stepone! May you enjoy your new toy plenty of times. Best of luck with your implant!
Quote from: Stepone on May 31, 2019, 04:48:08 PM
I am so happy this worked, my penis head was a little tender and still is, but Gosh, sex was great.
The pressure is off!
Yeahaw!!!!
That says it all. That is the very essence of an implant. Your life no longer revolves around; if you can have sex, what planning you have to do to make it work, the constant almost subconscious concern with your limitations. G O N E !
Congratulations. It only gets better from here on!
So I guess it's about 45 days. I still have a sore ball sack sometimes and my penis is still a little sore sometimes. I still have about 3 stitches that refuse to disappear. I also have a tender area at the top of my ball sac. It's like a mass of scar tissue.
I have been massaging my balls, the scrotum and pump as my urologist said when I take a shower, I should be moving them around a little to keep scar tissue from locking up. I think that's what he said.
My penis continues to pump up nicely twice a day. Sometimes it seems I can get a few extra pumps and yes things get very hard. If I max it out, at about 30 minutes, I will start getting some fairly intense pain, so I know it's for a good cause, increasing my size, so I bare it.
I have had two intense sex F~@ks with the spouse and hopefully tomorrow night too. I would want more, but twice a week works for me now.
My spouse is loving the new me and my new penis.
I never thought I could have such a hard penis again and increased girth and pleasure.
I questioned my decision a few times, but each day brings less pain, so I just had to get through it.
I look forward to getting to the 6 month and then a year.
I also haven't found a pair of underwear i can wear all day. I am wearing a jockey blend brief, it seems to be the best at keeping my penis mostly upright, but my balls and pump can get a little too tight and I get some pain.
I cant wear boxer briefs as my penis refuses to behave and it attracts too much attention.
I am also being patient with the semi erect penis I seem to constantly have, but it is becoming more pliable and the two dog ears hurt less.
I am very happy with my new bionic tool and look forward to when it becomes more a part of the rest of my body.
Thanks again to everyone's support and help.
Stepone
3 of my internal dissolvable suture took over 6 months to disappear. Hang in there, like you said it will all be worth it!
I am now at 60 days with a titan implant.
In retrospect its been a tough road, but I finally am on the mends.
One note is that some of us experience pain differently. I tend to handle pain fairly well, but when it impacts my sleep I go into deep despair.
I still sometimes will use a beaker in my bathroom to urinate in, because I don't feel like bending my penis down to get the urine in the toilet. I sometimes wish I had a urinal in my home, they are so easy to use, LOL.
I can sit a lot longer than before on a hard chair, before it was painful for my scrotum. This has just recently improved.
I have noticed to that the pump which felt like it was been sucked up into my penis, has finally relaxed and is more moveable in my scrotum.
My pump is bigger than my balls, I always had small balls, but now I almost feel I need two pumps and at least I would have a matching set, LOL
The pump is so much easier to use.
Special thanks again to Hawk, he has given me so many helpful hints. My top three are....
1. when I get up in the morning and have my coffee, I pump up, read my emails. This is my new routine.
2. to learn the pump better, repeat the hand movements several time to cause the hand muscles, etc. to teach the brain, this has been another great tip.
3. be patient
Oh and I finally saw the last payment go towards this surgery. My total bill was $73,463! What? Yes its true, I spent the night at the hospital and was discharged the next day about 3:30pm. I must say that Duke hospital took excellent care of me, quiet, responsive, and very kind. My share of the entire procedure came to about $1500 with some extra lab work, etc.
But getting back to this journey, I am so glad I finally took the leap to get this implant.
I no longer have to worry about injections, pills, that were no longer working.
I could get an erection, but it wouldn't last.
Now I pump it up and are ready to go, each time I pump it gets easier.
I still experience some tenderness if I have it pumped too long, and even some pain, but it gets less and less.
Earlier this week, I had the best sex I have had since 2014.
I still have numbness on the bottom side of my penis, which sometimes hinders my climax, but I hope this will improve.
I have never been a quick shooter and I sometimes wear out the spouse, but am thankful that patience is one of their strong skill sets. LOL.
I have chatted with some guys that are quick shooters and their spouse say, they want them to last longer.
Mine wishes I was quicker, LOL.
So back to the implant.
I still am trying to find the best way to keep my penis in my pants, but not bulging so much, I get everyones attention. Some days are better than others, but it's not such a "hard" disguise as it originally was.
I walk around naked sometimes inside the house and this is the most comfortable thing I can do, I think it has also allowed my penis to start hanging more.
I am back to the gym which has improved my self confidence and I am trying to keep in good shape for those marathon sex days, LOL.
I hope to post a pic soon of the new improved penis, but I need some alone time and I will send one out.
All is all, glad I started this journey and so thankful for all the helpful guys on this site.
....and as usual,special thanks for Hawk for being here for so many of us.
StepOne
As I've just said in a reply to you on my own journal, Stepone, thanks so much for all YOUR support too. Reading your journal has been inspirational for me. You are 37 days ahead of me in your recovery so keeping up with your experiences has been really helpful to me. You're doing great and must love the fact that you had the courage to go through it all. $73,463 tho?? Wow!! Thank God for the NHS over here in the UK!
Take care and keep posting your progress please.
Roddy
Surgeon was Dr Lentz in Raleigh NC. Duke Hospital
Yep. My total bill was also in the 70,000 range with an observation night in hospital. My cost in copays was around 900 or so.
Not sure what it would be if you paid it yourself, but I would have to know up front the cost before surgery.
Those that pay Dr. Eid out of pocket pay about $20,000 for the surgeon, hosp, anesthesia, everything. I think. I am sure Pfract has the exact figures.
Is 70,000 the stated charges or what the insurance company actually paid (usually much less).
The hospital hasn't been paid yet. I have only seen that the surgeon was paid which was about $5000.00. Dr. Eids charges are similar to Dr. Kramer in Baltimore. I think it's outrageous to
Pay $20k out of pocket, when mine was under $2k, including the anesthesia.
I am so thankful to have a good Medicare plan.
20K is the entire charge out of pocket with NO insurance. Usually, men coming in from out of the country.
With insurance and Medicare, I paid nothing for Dr. Eid.
It's nearly 90 days since my implant.
I will take some pics soon, when the color improves, after a recent bruising.
But my overall opinion is, I wished I had known about implants prior to my Nesbit surgery and I would not have lost 1.5 inches because of the Nesbit.
So my thought is stop getting Nesbit surgery and go immediately to an implant.
I never had prior surgery because my bend never got that severe in one direction but I would have to agree with your conclusion.
Yes, I agree, Stepone. Certainly in my case I wish I had jumped straight to implant and i'd have saved over an inch in length. I do feel a real sense of sympathy for those who feel that an implant is a final solution they'd sooner avoid until they have to - keeping their erections as natural as possible, or hope of erections, maybe. I just know that, when all is said and done, and having had great sex now with an implant, I wish I'd known about having an inflatable implant when my curvature and peyronies was as bad as it was over the last 3-4 years. There's a stigma about the implant process that is fully understandable but really unfair and actually quite ignorant. It would have saved me so much stress if I'd known about it and got it done 3-4 years ago. An erection on demand, rock hard, perfectly straight, stays hard after ejaculation, and is within your own skin and so hides the bionics that lie underneath. It's the same as the best silicone boobs that money can buy for a woman with a flat chest - no cheap short cut but the very best. Enhances psychological state of mind 100 fold. When my exsicion and grafting failed and the surgeon said "afraid we're going to have to now move to an implant solution" I could only think "well, yeah, bring it one. I just want a dick I can use with my wife so please can we do this, like, now?"
Plus one to that response. I wish I had done it when ed started. I would be packing my 7 inches still. Happy where I am. It could have been a lot worse. At least I can pump up to over 6 and girth is back.
We use it quite a bit all things considered with my wife's health issues. Either way we are both happy. Something happens to either of us we have have a good 4.5 months. Sex at 3 weeks after implant. First couple no sex but no big deal. Nothing worth having is easy. No idea what her upcoming surgeries will bring up. We were farther apart before implant. Now we are closer again.
I know some will say, I might be superficial with sex. Nope, we just enjoyed it, when it stopped we were more like close friends. She thought I did not find her attractive. Nope, still want to rip her clothes off. Before implant, I just could do not much about it. I would do oral on her and she could orgasm. She would try on me and I was always soft. Thought it was her.
She has no problem with me pumping up at all. I tell her I want to be buried in her. That is what she wants to hear. This implant is the bomb. We both love it. We do not use it as much as either likes. Health issues suck but when the stars line up and we use it. It is fin amazing.
Oh. In answer to earlier question. Ins got billed for over 70,000, after everything was paid cost were right at 30,000. So about 40,000 got written off by insurance.
Sorry to hijack your thread a bit stepone. I will update mine soon.
It's been about 100 days since my Implant surgery, I had my 3 month check up this week and I went over a few things with Dr. Lentz in Raleigh, NC about my "new" penis, such as pumping, etc. He assured me that my penis would only get better as time goes on. He said most men say, their new penis reaches maximum size and satisfaction at about a year.
My overall feeling about penile implants is that they need to be talked about more, particularly to prevent loss of length and girth in Peyronies Disease patients.
I had a penile fracture in 2014. I lived near a major metropolitan area, but it took me five urologists to find a urologist that was experienced with Peyronies Disease enough to really understand what I needed to improve my sex life, and even that urologist was not trained enough to recommend a penile implant vs. the Nesbit straightening which is what I received in 2015. The urologist that performed my Nesbit did a good job of straightening it and actually adding a slight upward bend, but at a cost of losing length and girth.
I truly believe had the urologists discussed an implant, I would have gone with the implant instead of the Nesbit which stole almost 1.5 inches from my length and .5 inches from my girth. Urologists need to be educated first in Peyronies Disease and then secondly on implants. Implants preserve and actually can add to the length and girth of a penis.
I had my Titan Implant "installed" in April 2019, the doctor was great and the overnight care was wonderful. No problems obtaining refills for pain pills, and always the opportunity to communicate with my physician or staff when I needed. I had my procedure at Duke Hospital in Raleigh NC by Dr. Lentz. Last year he performed over 145 implants, not sure what he will be doing this year.
When I first had my implant "installed", I thought what have I done. It's not an easy surgery to recover from, even though some guys will say, Oh I was fine after 30 days. I honestly feel it was very tough, lots of manageable pain, lots of embarrassing situations of trying to hide the "new" penis in my pants. Lots of discomfort and just a lot of work. Even the second month was tough, with lots of underwear malfunctions, pain at the pump site when I sat, and just an overall discomfort of the pump fighting my testicles in my scrotum.
But magically as each day went by, there was less pain, and at +90 days, there is only minor discomfort upon occasion.
The most important thing is that sex is back to 100 percent satisfaction. I no longer wonder if I can get an erection. I no longer worry that once I get an erection, how long will it work? Will I lose my erection before I pop? Will I satisfy my spouse?
I can ejaculate and still stay hard. I can stay hard for how ever long it takes to bring both of us to a wonderful enjoyable ecstasy. The awkwardness of pumping grows smaller, while my penis grows larger.
After my Nesbit surgery, my penis shrunk In length and girth. Coincidentally my testosterone levels dropped too, but even after I started TRT, I still couldn't always maintain an erection. Even though the urologists tested for leakage, they thought it could be managed with Viagra and then injections into the penis. What a disaster, because after almost a year of sex being at about 50% successful, it was a lot of work which hammered at my sexual well being. Even though I had been on the Peyronies website and read a lot, I thought penile implants were for only last resorts and wow was I wrong. I only wished I had known about implants prior to my Nesbit and 3 years of suffering and a loss of length would have never happened. I am happy now, this new penis works like a charm, LOL.
But it is what it is, I can't change the past.
You can search back to some of my pics after before my Nesbit surgery and after.
I have included the most recent penis shots. One shows my penis soft and the other erect.
My measurements after Nesbit and before the Titan implant were.
Before Nesbit Erect Length 7.75, girth at base 5.25, Middle 5.0, glans 6.25
After Nesbit Erect Length 6.25, girth at base 4.5, Middle 4.25, glans 5.50
After Titan Implant Erect Length 6.50, girth at base 5.25, Middle 5.25, glans 6.0
As you can see, I have a little more length than after the Nesbit. My girth is now back to pre-Nesbit and strong, and my glans is slightly larger.
Needless to say I am happy and so is my spouse. The girth restoration really makes the difference, but I do miss that extra length, but the spouse is more than pleased.
Thanks for a great update there, Stepone. Very good of you to let everyone into your experiences over the last 100 days in such detail. This level of detail is very useful to all new implantees and can only serve as a terrific reference point to allay worries and stresses for newbies and relatively experienced alike. Great pictures you've shared there for everyone too. I must say that being circumcised clearly makes your glans appear quite large - lucky guy! Clearly the inflated photo shows what can only be described as a very healthy looking penis. Again, you're very lucky with that outcome. Not only does it look like a magnificent beast LOL but your wife is delighted with it too. Isn't it great having stress free sex again. A rock hard penis for as long as you like!
I like how you describe those first 4 weeks as simply hell. There can be no getting away from that for sure, and like you, I went through hell till week 4, but like you say, it's only right that others get to hear that all of it comes good. The pain gets lighter until one day you just stop worrying about it. In fact, it's not like that. You don't stop thinking about it as such, it's more that your body slowly heals and you find yourself starting to do little things every day that you thought you'd never imagine having the ability to do again. Before you know it, life is pretty much normal again by 6 weeks and by 8 weeks there's not really anything you cannot do. The underwear experience is a laugh isn't it? I've still got no idea what underwear I want to wear cos none of it seems to suit. So much so I now, and have done for weeks, just sleep without any. Much easier to manoeuvre by 'semi' around during the night.
Delighted to hear you're having such a good, fulfilling sex life again with your wife. "Fill your boots" as my surgeon told me and after 2 years without meaningful sex, my wife and I are back into our old, enjoyable ways together. And you know what? We were making love the other night and I was the most relaxed I've ever been. No worries about when I was gonna ejaculate and it would all be over much to my wife's disappointment. I just lay back and let her do her thing. I came, she never knew, and we just kept going. Amazing, bionic, sex.
Great to hear from you, Stepone.
Take care.
Roddy
I love these updates from you guys (or Y'all if you are from the south). Not only does it do my heart good to know another brother, and often a couple are back to stress-free intimacy, I love it that thousands of others that have no clue where to turn for help will find the answers they desperately seek when they read your journals. Intimacy is the mortar that holds relationships together. It helps us through the tough times and keeps people interested in life. While you can have intimacy without intercourse and have intercourse without much intimacy, the two together just cannot be beaten.
We all need to keep in mind that there are more than a few men (unlike us whimps) that go through this and never take anything but Tylenol. Unfortunately, I was determined I was going to be one of those but I was quickly humbled.
One concluding thought. While I never had a Nesbit or a graft, I am coming to think they are seldom the answer. I tread carefully because maybe there are situations where they are the best solution but I increasingly hate to see men go that route. I continue to bite my tongue and leave to you brothers who have been down that road to voice your views.
Roddy, you have shared a lot and posted your pics, so I couldn't help but try to meet your standards, lol.
But in regards to my glans, I have found that everyone always wants what others have. I personally wished I was uncut. I have always heard that uncut men have greater sensitivity in their glans. I also heard that uncut men can cum quicker. Sometimes I wear out the mrs. She can be a quick climaxer, but we always work it out, lol.
Sex is such an intimate thing, and in reality each couple seems to
Learn what works best.
Another thing, when I reached puberty, my penis would hurt when it was hard. I remember putting cream on it to stretch the skin. I think they cut too much off, when I was an infant. Lol
Hawk, thanks again for being the man for this site. You are helping a lot of men.
I know you can't really take a position on some things, but I think Nesbit and other similar surgeries should be last step, not the first.
I also think, patients should be informed of all available surgeries, not just what that doctor is using. Not one of the 5 urologists I met with ever mentioned an implant. It was this website that educated me. It was st gust point, that I started my quest for a good implant surgeon. I am again thankful for Dr. Lentz.
And always best regards for you too Mr. Hawk.
Stepone, I am probably one of the few here that were cut at birth by the butcher and have tried foreskin restoration. I also have friends who have tried it too with much more success. Having tried both ways, cut and covered, I have to say a covered glans IS much more sensitive. If I could keep it that way, I would and it does have to be covered a long time to regain that level of sensitivity. This is not something that happens in a week though a month will give a hint at it. If they are still around, there is an organization that goes by the acronym NORM that can provide more information for those that are curious. Cheers.
Stepone, for some reason unread posts put me back to March when you were trying to get the insurance to pay. Fast forward to here and it is like you have stepped into a wonderful new world. Your explanation why doctors should be better versed on options for treating is excellent. I am very pleased you've had this great outcome and hope your willie does not have to go through the slaw shredder ever again. Thankyou for naming your doctor AND explaining your concerns to him. SOMETIMES that makes a difference. I had one that I had a discussion with about H.I.V. 9 years ago. He was so touched by what some of us have gone through that he went back to school and got a specialty degree to better assist in treatment. Recently an employee of his was also sent back to school for a specialty degree too. For the record, this is a tiny segment of his practice, but he was so touched by the poor and inadequate treatment so many of us received that he thought he would improve it. Nothing more than a simple conversation over the counter while we were killing time one day made the difference. Cheers.
Well, I think it's been about 5 months a few days since I had my Titan Implant.
Regrets, I wish I had it 5 years ago, as it would have saved me length, and no sex, and depression.
BUT, I had it and it is great.
Sure, it's not perfect, but it is GREAT!
My new measurements are leveling out.
Good news is I managed to gain .25 inches in length.
I am now 6.75" long bone pressed.
My girth has leveled off at 5.25" from glans going towards base and 5.75" girth at the base.
My girth gains have been great, I love this new penis of mine.
My wife loves it, as do I, it's the weapon of choice, LOL.
So yes, I still have a little tenderness sometimes, but rock hard is amazing.
After I reach my climax, I can still keep going for however long it takes to bring the mrs to her climax.
I am on TRT too, as I have had low testosterone for years, so that helps for sure with my libido.
But when we start things up, I am like a little kid in a candy store.
So yes, it was rough for me at first, everyone is a little different, but things continue to get better and I cannot emphasize enough how this implant has changed my life for the better.
Oh yeah, most important, I never worry anymore if I can maintain an erection. I just pump it up and ready to go, my worries are gone. Goodbye to pills and injections and disappointment.
Wishing everyone well and I will stay in touch.
StepOne
Thank you for sharing this with us stepone. Glad to see you are doing well. I hope members that are on the brink of it read it and feel motivated to go forth.
Great update, Stepone. So many things to be thankful for. You sound as though you're having a great time again, with all that amazing sex and erections on demand. Unless you've experienced it first hand it's difficult to explain. No regrets and no negative thoughts to share. Well done and keep enjoying your new lease of life.
Things are going well, but a few observations that I would like comments on please.
I have noticed a noise coming from my pump. It like creaks when I pump it. Anyone experience this?
I have also noticed that I pump maybe 20+ times, most times. It seems like I am pumping more.
When I pump I pump big squeezes, I used to pump half squeezes as the pump is becoming more pliable.
Also after I squeeze the deflate button, which is still pretty hard, I have a backflow every time and I have to give the pump a short squeeze to stop the gradual semi inflation.
I can't measure now, but I will, but it seems my penis has grown a little more in length and girth. I will follow up with my measurements over the next few days.
StepOne
Hi Stepone
Happy New Year to you. I haven't experienced any noises from my pump when I squeeze so can't offer any advice for you on that front, sorry. Like you, I currently maybe only need to squeeze around 10 times and each squeeze results in a significant increase in my erection. I don't know why you now need to squeeze 20 odd times. Hopefully your pump is not defective in any kind of way? Should you seek guidance from Coloplast themselves and see what they say?
Good luck my friend.
Roddy,
Thanks for your reply.
So I counted the number of pumps this morning and it is now 33 pumps.
The pumps makes a low pitch grinding noise every time I pump.
I looked online and saw several other people have reported it, but there were no mentions of other problems.
I called my surgeon and am awaiting a call from him.
I will let you know what he says.
In the meantime, it still gets very hard and works well.
My measurements are starting from the the head and working back are 5.25, 5, 5.50 in girth. My length is 6.75.
StepOne
Hey step. Unfortunately, I have not read anything about this. Hopefully your doctor gets back to you and it is nothing wrong with your implant. Good luck!
StepOne- for whatever it is worth I had a coloplast Titan implanted last March. Every now and again I do hear a noise when inflating... it is basically the sound of the pump compressing but isn't too loud to the point my partner would notice. Also, it takes me quite a few pumps to get fully erect. I attribute this to my calcified plaque. I can fully pump approx 10 times and then my pumps are partial half pumps. It is as if I pump in fluid and it stretches the cylinders against the calcified plaque and a small amount of backflow into the pump takes place to where I will give another half pump. I remain with a 20 degree bend upwards but have regained past length to approx 14 - 14.5 cm. It is difficult to measure exactly because of the upward curve. My hourglassing has disappeared which is great.
I did reach out to Dr Eid on the remaining curve and he said that given the calcified plaque I may never be 100% straight but going from 90 degrees to 20 degrees was a great improvement. My wife doesn't seem to mind the curve and while I wish it was 100% straight she says she prefers the slight curve upward so if I can get it closer to 10-15 degrees over time that would be great.
There have been times that my Titan pump has made a somewhat audible noise. As stated, it is nothing another person would notice but since I am pumping and since I feel a corresponding vibration for lack of a better word, I am aware of the noise. It is somewhat of a low pitched squeak or gurgle and it is not consistently there.
In the beginning, I used to hear men mention "wall to wall" pumps. I used to wonder if that was an expression or exaggeration since I could not imagine depressing the pump enough to totally collapse it due to pump stiffness and sensitivity in the scrotum. Now I often do literal wall to wall pumps with no problem. If you are doing 30 wall to wall pumps 30 seems very high.
my surgeon got back to me.
He said number of pumps can increase over time and noises from the pump are not uncommon. I searched out a few websites and saw the same comments.
So I am good.
My penis pumps hard and brings great pleasure to me and the spouse.
Check out the Titan site, for interesting tips.
Make sure you read the last page. There are tips for increasing size!
https://www.coloplastmd.com/wp-content/uploads/2018/03/Tips-Tricks-to-Ensure-Success-Titan-IPP-Pump-Guide.pdf
Great resource!
I am a little over 2 months from the one-year anniversary of my implant of a Titan 22cm
Sometimes when I am in bed at night, I guess I am like most men and position my penis for sleep. Sometimes I still get a little freaked when I feel the tubing thinking what is that?
But I could not be happier with the performance of the Titan.
I suffered for years with wanting sex so bad, but thinking am I going to be able to perform? It was a psychological nightmare! I would be all interested in sex, making out and then when it was time to penetrate, I would get nervous, is it going to be hard enough, will it last, its too soft, I am just struggling, trying to get my brain in control of the entire sex thing, but my mind was all mixed up with worries. I just hated those years when it came to sex. Something that had been so fun, was now so stressful.
NOT SO NOW.
We start making out, rubbing, kissing hugging, tasting, smelling, and my mind is 100 percent on enjoyment. No more fears. I squeeze my pump from time to time and as I penetrate there are no worries, just 100 percent satisfaction. Sometimes I just want to play all afternoon, pull out for a while, and tasting some more, it's just an amazing event now. I can make it go as long as the spouse can take it. And if I finish first, it's no big deal, because I am still rock hard for however long the spouse needs me to be.
Side effects have been increased girth and increased length. LOL
I can get a little sore if I go to long, but it's always worth it and looking forward to even more fun times as I have heard it just keeps getting better.
I still have some phantom pain every now and then and sometimes if I sit wrong or bend wrong if I have tight pants on, I can hit the pump which will cause me a moment of pain, but I could not be happier at this point in my life.
Thanks again for all the contributors that stayed with me in my dark times and early recovery, it is a little scary at times. BUT ALL WORTH IT.
Great post, Stepone. Thanks for updating. What do you mean by your opening line tho when you say "2 months from implant"? You're almost a year now are you not?
Ok, so as of today, I am 2 months from my 1 year anniversary of my implant.
I am still learning how to get the most from my implant....and as many of you know I am still learning on the best way to deflate, LOL.
So this is where I am with it.
This is the most successful surgery I have ever had.
I wished I had the surgery sooner 5 years ago.
I still have numbness on portions of the ventral side of my shaft, but it does not prevent me from pleasure.
I inflate my penis 1 to 2 hours a day, every day. If I am having sex, I count sex as one of those sessions.
After I have fully pumped my penis, I can usually get in another squeeze or two a little later, sometimes several times.
And I have regained nearly all of my girth. The thinnest part of my penis is 5" and the thickest is 5.75".This is appreciated by my spouse and me.
I have also increased my length, not to where I was before my Nesbit surgery which was 7.75", but I am now up to 7". This is incredible! After my Nesbit surgery, my penis shrank and my erections were semi-hard. This Titan is too wonderful in restoring my penis to what it was. I don't know if I can ever gain more length at this time. But perhaps a little over 7" would cool.
Thanks to everyone and all their sharing on this website. Sharing of information is so important.
StepOne
Another great report. I love to read these.
problem posting pics, I keep receiving error messages.
hey Stepone. Which errors do you get? how do you try to post the pictures?
photos celebrating my new/old penis and its ability to stay rock hard for however long I need it.
it's now been 1 year since I had a Titan implant
7" long
5 3/4 girth
works great
wished I had it installed 5 years ago!
stepone
Over the past two months, I have been having increased trouble on deflating. It's like the button does not want to click open. I am able to deflate by squeezing the button and my penis. But if I fail to give an extra squeeze to the bulb after I have deflated, my penis gradually inflates to be a chubby.
Sometimes I am unable to lock the device even with the extra squeeze. It does not want to work properly.
It's almost like I have to continue holding the deflate button and squeeze the button at same time to deflate.
Suggestions?
Also, when i have squeezed to maximum and am having sex, after i have gotten the last few pumps in there, it seems like I get a slight leak and after about 10 minutes, I have to pump a few more pumps.
It takes me about 25 pumps to get all the way to maximum, sometimes more.
StepOne
Hi Stepone. Good to hear from you. I cannot really comment on the mechanics of the pump/release etc. What I do know is that I've never really mastered the one touch release button for deflation. I'm quite comfortable when sex is over to simply press my deflate button with my left hand forefinger and gently squeeze my shaft with my right hand. This always leads to a good deflation. I find that if I place my left thumb around the back of the pump ball (my third ball) this gives good grip to allow me to press the deflate button with my left forefinger (I'm right handed by the way). However, I'd keep your eye on that accidental flow back out in case it worsens.
Thanks, yeah, it doesn't seem right with the pump release not working right.
As I said this has been getting worse in the last two or so months.
Not sure if this means the pump is about to fail.....or do I need to go see the surgeon about a lube job, etc. LOL.
I have no problem pressing on the pump, the release just doesn't want to work right.
Sometimes, when i try to pump, I have to play around a little with it, it's like it's not really pumping. So I press the release button again and I can usually free it up that way.
Sex is still great, it's just the pump, ugh
Thanks,
StepOne
I too have no real idea. I never got mine to lock open for 6 month. I always had to squeeze the button and squeeze my dick with the other hand. Finally it started working but still takes a very deliberate maximum squeeze to lock it open then I usually give a squeeze on the pump bulb to double lock it and be ready to pump.
I have seen a few trouble-shooting tips by Coloplast and they are posted here somewhere. I'oo glace around.
Hawk, thanks for your help.
I found the trouble shooting area by Colorplast.
I have tried them a few times. But perhaps I need to do them again.
So I guess it's just sort of like a reboot. LOL.
I just had sex, afternoon delight for sure.
I am left handed most the time, so I held the button in with my left hand, while I squeezed my penis with the right hand. It seems to be miss or hit with the deflate, but I managed to get it squeezed out all the way, and then tried to give it a squeeze the bulb to double lock. Again, it seems to be a hit or miss and then I get that perfect squeeze, that actually gives the pump, the others are like pushes, but no actual squeeze of the pump, and I feel it lock, but it always wants to still fill a little too much into my penis for a small woody.
Hell, it's not a big deal, fully pumped it works great.
Thanks, I will reread the helpful hints.
Roddy I just read in a technical part of the manual where if that happens you are supposed to have your wife (or partner) slam the front door on your penis while you hold down on the pump. That will reboot it. They recommend the front door since some interior doors are hollow. :o ;D :o
Ouch😖😂
I am about 17 months in from implant surgery.
Life is great, sex is great.
I am still having problems with pump, but not enough to prevent sex, so I am
Living with it.
How long do I need to continue pumping my penis everyday?
I am not gaining any more length or width.
I experience no pain at all, when it's pumped to it's maximum.
Can I pump every other day or twice a week or ?
I don't want to lose any of my gains and I want to keep my penis healthy.
Thanks
StepOne
By 8 months I cycled only for sex. In fact I started slacking up a little before that when I concluded my gains were over, based on:
1. No pain or discomfort being inflated for an hour
2. Gains over the previous 3 months were very minimal
3. If I use two hands I can pump hard enough that I totally run out of solution and my pump bulb remains partially flat.
There are no losses when you stop cycling probably in part because the implant never allow full contraction when deflated.
If you experience any 2 of those 3 criteria listed above I think cycling is just unproductive wear and tear on your implant and a waste of your time.
Thanks, for the info.
StepOne
I found this great YOUTUBE video on post op implants
https://www.youtube.com/watch?v=tcQgJB3kbO0
StepOne
Know what's crazy Step? I've watched any and all videos on YouTube in relation to an implant. It's a pretty small group of videos, minus all the India ones, but I've watched em all. That is why I felt I needed to do one with UCI. Need more of us implantees on the web to share our stories. I know it wipes away any anonymity, but unless you are specifically searching for it I don't see how you would even see it. I sure as heck never knew of any of these three years ago
Well if they want anyone else to talk about it. Mention my willingness to help. I am an open book.
StepOne
Reach out to your surgeon. They will be more than happy to promote themselves😂. Also, check out MTP (Perito), erection connection (Christine), and wiener Wednesday (Kramer). Of course there are all of Eid's and the Mayo Clinic ones as well as many discussions with Wilson
Bad news is that I hurt my back 6 weeks ago and have been on opioids and Lyrica.
The good news is that on Monday i got a new doctor and he diagnosed the problem as a ruptured disk and I now have surgery scheduled in 3 weeks.
I haven't been able to have sex for about a month.
I have inflated twice a week. Should I be inflating more frequently?
Yesterday when I felt a few moments of low pain, I attempted to have sex. We both were into it, I did all my usual moves, but when we actually doing the deed, I could not feel my cock. I was pumping fast and slow, shallow and deep, but my cock had no feeling. We tried various positions, but the feeling was gone.
I have very little feeling of my penis.
I am thinking it was the opioids and the Lyrica which is supposed to reduce nerve feelings.
Anyone else experience this?
StepOne
I would caution you about rushing into surgery. I know you will make the right decision for you but a brief of my herniated disc story.
I had a history of severe back attacks that would disable me a few days a year. In between times, I was fine.
I had a history of a couple of significant injuries/accidents
Years after the accidents I was teaching at a college, standing and bending over at desks helping students. Over a period of a week, I developed severe back and leg pain down to my knee. I also had numbness on my inner thigh. Lost 60% strength in the left leg.
So severe I was on crutches, opioids, extreme hot soaks to block break-through pain. The pain was enough to mess with my sanity.
After 6 weeks, I was beginning to wonder if I would be permanently disabled.
MRI showed significant herniation, but by that time (8 weeks), I felt 10 - 15% improvement
The surgeon sent me to physical therapy, traction, massage
I improved about 15% per month, and he held off surgery - within 6 or 7 months, it was 100% normal.
For the last 10 years, it is like it never happened. - I am so glad I gave it time
__________________________________________________________________________________________________
I don't think you have to inflate any more than that or even that much. If you gained all your size back, I do not think you can lose. Even deflated, your penis cannot retract, so it always has very mild tension 24/7.
I think your lack of feeling is back-related. My inner thigh was so numb it felt to me like I was laying my hand on someone else's thigh. It was not like my leg. A friend had to be catheterized for over a month because of a disc. He could not urinate, and his bladder would almost burst. I have been on HIGN DOSE opioids for a month with kidney stone pain. It did nothing to penile sensitivity.
Thanks Hawk for your reply.
I should have been more careful and expansive in my back issue.
I have been dealing with back pain for over 38 years, but never had my left leg shrink.
I mistyped my disk, I have a ruptured disk and the disk is actually oozing and damaging the nerve.
My left leg is 1" less at calf snd 1.2" less at thigh.
I have no reflex on left leg at all.
I can't walk but about 2 minutes nor sit.
I have been lying on the floor for 6 weeks.
I've been to the ER 3 times because the pain was so bad.
I have been seeing a chiropractor 2 - 3 times a week, but even the chiropractor said, it's time.
But my big thing is about my no feeling penis.
I think it must be the Lyrica.
But I will ask the surgeon if the nerve could be also creating issues for penis.
Oh, even my left ankle is thinner. My left leg skin is loose and floppy.
StepOne
So I am loving my new tool. Sex continues to get better every time we do it. But I have had increased problems with deflating. Since I have been implanted, I have only felt the valve button click a few times. It is difficult to deflate, as sometimes I have to press the button several times before it will deflate. Then it becomes difficult to squeeze to reset the bulb. I can live with it, but am wondering if I should consider talking to doctor or someone else?
I have tried the cycling and still no change. It just makes my ball sac sore from all the squeezing.
Thanks
StepOne
Quote from: Stepone on December 07, 2021, 05:14:50 PM
Since I have been implanted, I have only felt the valve button click a few times. It is difficult to deflate, as sometimes I have to press the button several times before it will deflate. Then it becomes difficult to squeeze to reset the bulb.
Where did you read or hear that the Titan "one Touch" is supposed to click? That is news to me.
This is how my Titan "One-Touch" works. First of all, we all know that the name is one of the most absurd misnomers on the planet. If we touched a person as forcefully as we have to "touch " our deflate button, we would be charged with forcible assault.
As I recall, it was three months of cycling before I ever got my deflate button to stay open without holding it while I deflated with the other hand.
Now I press the deflate button very hard for at least 2-3 full seconds.
Then I can choose to let it deflate as it will over the course of 5 -30 minutes. I can immediately know if I got the valve to stay open by giving the pump a moderate squeeze. It has much more resistance for that first pump, so if I feel the resistance, I know it is open, and I refrain from squeezing it enough to close the valve.
IF I want to rapidly deflate I would use one or two hands to squeeze my penis. While that is important in the early months, I seldom do that at this point.
Titan recommends that when deflated, you make that first hard initial squeeze to reset the valve. This gives extra prevention against auto-inflation and has you ready for the next inflation. However, I seldom do that since I have little auto inflation, and if I do have any, one squeeze of the penis deflates it again because the valve is still locked open.
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Stepone, I take it you are saying that a very hard 3-second squeeze does NOT lock your deflate valve open. Even if that is true, it is not a huge deal. I know men who have never locked their Titan valve open. It only requires the two-handed deflations where you squeeze the deflate button with one hand and the penis with the other hand. It might be a minor inconvenience but has no functional impact.
The other thing you seem to say almost sounds contradictory - that you do lock the valve open, and the initial squeeze to reset the valve is difficult. After locking the valve open, that initial squeeze is supposed to be at least twice as hard as the squeezes to inflate.
Unless you are experiencing a level of difficulty significantly beyond what I described, I would not be concerned.
Well I guess i never heard a click, or was more like felt a click, or maybe I just imagined it, LOL.
Thanks for the information, perhaps I have not been holding it long enough. I tried the 3 second hold and it seems to work better. I think I might have only been doing a one second squeeze.
After locking the valve open, that initial squeeze is supposed to be at least twice as hard as the squeezes to inflate. It is, that's how I can tell if I have it open. If i squeeze and it easily pumps, I know it's not open yet, so I will repeat the squeeze. It never feels like the same process every time, but maybe that's just me.
All is good.
Quote from: Stepone on December 09, 2021, 01:20:24 PM
It never feels like the same process every time, but maybe that's just me.
Stepone, try to be consistent in hand placement, length of the squeeze, everything until there are no variables. I learned years ago that if some aspect of a shooting course on the firing range or a section of music on guitar was awkward or difficult that you repeat that action until it mentally clicks.
I would do 5 half inflation, deflate in succession and immediately repeat. Don't wait a day or until you have sex. Get a week of practice in a matter 15 minutes. If it still feels less than second-nature, do it again later that day. Repeat this daily until that aspect of the procedure can be done without a thought.
I think it will resolve that feeling of never being quite certain what is going on and whether it went exactly as it should go.
Best wishes!
Hey StepOne,
I was recently implanted with a 22cm Titan OTR. I also received plication like you to fix my torsion. I have some questions for you that would be really helpful for me if you don't mind answering them:
1) Did your implant surgeon remove your plication sutures or did he leave them in?
2) When you began cycling did you rip out your plication sutures at all or are they still present?
3) I noticed you have some issues with auto inflation and deflating, how long were you inflated for after surgery?
4) When did you start cycling after surgery?
Sure glad to help
1. I had my plication surgery two years before the implant surgery. But he left the sutures in, stating that they would dissolve.
3. The auto inflation problem was human error on my part. I don't seem to have the problem after following Hawk's recommendation.
4. I started cycling 1 week after surgery, it was very painful, but I did it.
Hope this helps
Congratulations, time really does heal. You being young should have more rapid healing.
StepOne
Quote from: Stepone on April 10, 2022, 06:32:07 PM
Sure glad to help
1. I had my privation surgery two years before the implant surgery. But he left the sutures in, stating that they would dissolve.
3. The auto inflation problem was human error on my part. I don't seem to have the problem after following Hawk's recommendation.
4. I started cycling 1 week after surgery, it was very painful, but I did it.
Hope this helps
Congratulations, time really does heal. You being young should have more rapid healing.
StepOne
Thanks for your response StepOne, it was very helpful.
All the best
So I had taken a shower this morning, and as I looked at my implanted penis, I thought about something I didn't recall being discussed.
So when my cylinders are completely flat, the cylinders are next to each other but standing vertically.
I remember when I first started out with squeezing the cylinders, sometimes they would be more horizontal, like a pile of pancakes. In this position, my penis looked very fat, and the head was nearly the same thickness. Now, when looking down at my penis, it looks thin with a big head.
If I look at it from the side, it looks thick.
Also, because the two cylinders are flat but side by side, it acts like two flattened stars but vertically, and therefore my penis doesn't bend down a lot.
I am not sure if this makes sense, but I am wondering if some guys have a penis that has cylinders flattened with one on top of another....... I would think this would allow the penis to hang more naturally.
It really doesn't bother me, but as I said, it caused me to question this.
StepOne
When 100% deflated, if my penis were extended straight out, my left cylinder is flat with the edge on the top and bottom parallel to the wall. My right cylinder is flat on an angle. It used to be parallel to the floor but is not quite so now.
I think you are right, however. If the cylinders are flat parallel to the wall, they resist bending down and will more readily bend side to side. I am sure those without an implant are totally lost on what we are trying to say :)
PS: I edited your post. You used the terms "tubing" and "tubes". I was certain you meant cylinders, and I did not want others to be confused. If I was wrong let me know, and I will change it back
Hawk,
Thanks for your edits.
It seems my mini-strokes are making my word selection sometimes ineffective.
I have a question about when they do the implants.
I understand when they implant the cylinders, how do they stitch the implanted cylinder into the gland, how do they select the location of the tips?
Or maybe they don't ?
Or maybe it makes no difference?
StepOne