I've stated using my ved the other day. I'm not taking any pentox yet. Right now I'm just doing L arginine and vitamin e. I still have some pain when I get a natural erection, not with using the ved. Is there anything I can do to get rid of the pain? Will pentox help on that problem? I thought I read somewhere on the forum that it would. danh
Hi Danh,
Pentox significantly reduced the amount of pain I experienced in about 3-4 months. My first urologist appointments (pre-pentox) were extremely painful when the doctor palpated (poked and prodded) the scar tissue. In my appointment with a new urologist (Dr. Lue) after several months on pentox, the palpation was not painful. I still have some minor pain during a natural erection but it is much less than before. Also, it tends to subside after a minute or two.
Pentox isn't a cure-all, but several studies have shown that it is helpful in preventing the progression of the disease.
-Skjald
As I have have had Peyronies for the last four years and have taken Pentox for the last 2 or more years is there any point in continuing the drug? I can say it, ved or anything else has not helped. Musicman, think I should drop the "man" part.
There's not really a consensus on the issue. I've heard a few doctor say they'll put people on pentox for six months etc. Personally, I think that's on the low side. It's a well tolerated drug and there are studies for certain types of plaque where it's been used for three years. It probably pays to strike a balance. My take on it would be that if a person is experiencing no pain, and has taken pentox for two years + with no changes, that there might be a good argument to stop taking it. That's just my take though, I'm sure others may hold a different view.
As for your situation, I read up on some of your previous posts. How is you current ED situation compared to 2-3 years ago? I note that the curve hasn't changed. If the ED is a bit better maybe surgery is a viable option? If ED is an ongoing issue, you could either play a waiting game, or maybe explore the implant route. I appreciate that neither option sounds wildly appealing.
Well ED is not really a problem as my bend does not allow for intercourse. The last thing I really need is a erection as it is a reminder of what has destroyed my life. Surgery for me is out because of financial reasons. This disease is almost hopeless, all you have to do is read the "Improvement Board" to see how much success most of us have had. My hope is for Xiaflex, other than that there is nothing.
Quote from: MUSICMAN on May 14, 2010, 07:05:08 PM
Well ED is not really a problem as my bend does not allow for intercourse. The last thing I really need is a erection as it is a reminder of what has destroyed my life. Surgery for me is out because of financial reasons. This disease is almost hopeless, all you have to do is read the "Improvement Board" to see how much success most of us have had. My hope is for Xiaflex, other than that there is nothing.
I totally understand why you would feel that way, but gaining regular erections may be helpful to your condition. Really, the reason that I enquired is because it could indicate which type of treatment would be most suitable at this stage. It seems that surgery might be suitable. From reading through your posts your curve is quite significant. Have you enquired as to whether surgery is a realistic option? I saw elsewhere that money is an issue. That's a shame. Would it be possible to save for such treatment, if not are there perhaps ways of getting surgery abroad? Gaining citizenship elsewhere perhaps? That is perhpas extreme/dubious advice. I'm just trying to think out of the box.
You tried traction?
I had another appointment with my uro today. He reviewed my sonogram and looked at the pictures i took in all states(flaccid, semi-erect, erect) and concluded there was nothing that could be done for me and ordered a 6 month checkup for me. I asked about getting on pentox, and he said it wouldn't probably do anything for me, since I'm a young guy(26), and that it does work, but for more curvature problems ( As i have more of an hourglass problem) in older men who have less of a healing capacity. I'm kind of unsure what to do as of right now. What type of benefits has pentox produced for any of you? Should I seek another uro who will prescribe it?
As of right now I am taking, and have been taking, natural vit. e, L-arginine, ACL, fish oil, and ubiquinol coq10. I religiously maintain good quality erections for 20 min. during the day as well as nightime erections. Is there anything else I should be doing at 3 months in? I hear good results from VED therapy but worried it may make things worse seeing as I'm still in the acute phase and the scar tissue may not be fully set in yet. I apprciate any advice anyone has.
Your doc is wrong, I'm young, and had less of a curvature problem, and more of an ED, hardening of the penis, and shrinkage problem and pentox worked incredible, since its safe, it cant hurt to try it... I'd find another doctor and try to get it for 6 months. We know 99% of the time doing nothing doesnt work...
Comebackid
Pentox is effective for Peyronie's PERIOD. It blocks TGF-beta1 which drives the Peyronie's tissue damage. The urologist you saw really doesn't know what he is talking about when it comes to Pentox. If I were you, I would get a second opinion from a Peyronie's expert. As I see it, it would be worth a try for you and it works well with the Ubiquinol. And as long as you don't inflict pain, the VED shouldn't cause you additional damage either. - George
What bothers me most is that what I hear your urologist saying is "I don't know what to do but come back and see me in 6 months".
I agree with combackid. You are getting the standard textbook response. You need to find someone who is more familiar with and aggressive at treating Peyronies Disease.
Thanks for your input guys. This is my second urologist and he does seem to take it somewhat seriously. He even talked with me for a good 20 minutes on my depression and state of mind as well, but would not prescribe pentox. I am just baffled at the urologic community, that they would be so hesitant to prescribe something with so few side effects if any, and relatively cheap. Does anyone know why this is? In the meantime I will seek out a peyronies specialist. I'm in the western new york/Buffalo region, so if anyone has a name of a good uro I'd appreciate it.
also combackid:
I think I have more of what you describe, just a generalized hardening of the penis in the flaccid state bacause the inelastic tunica, where it doesn't seem very flexible at all. Did you notice that the pentox softened the tissue for you somewhat?
Perhaps the most important contribution of Pentoxifylline is that it blocks any further progression of the disease. Urologist simply write off this benefit because in their mind, we don't know whether or not the disease will progress, so therefor we don't treat something that is "unknown". This attitude is so welded into their brains from medical school that it is nearly impossible to find a way around it. It is connected with the "do no harm" ethic in that it is intended to prevent docs from prescribing unneeded meds and risking dangerous side effects needlessly. But then they extend it to very safe meds like Pentox and LDN and it becomes ridiculous. AND, even more ridiculous, many of them DO prescribe rather dangerous drugs needlessly IF they are being pushed by the pharmaceutical companies, who can be trusted to indemnify them against any claims AND who reward them handsomely for prescribing those drugs liberally. Its all very frustrating from the patients perspective, but, believe it or not, we ARE making progress as more and more enlightened uros ARE prescribing Pentox to Peyronie's patients without nitpicking about its projected effectiveness. - George
Thanks george. I have watched an interview with dr. lue who says the exact same thing,
http://www.oncologytube.com/index.php?page=videos§ion=view&vid_id=100494
that it stops progression at the very least.
I could at least get used to what damage is done now, but it does seem to be getting worse. I've been to 3 uro's in my area, all of whom refuse to prescribe it. So finally i made an appointment with a Peyronies Disease specialist located in cleveland, about 3 hours from me who is a close collegue of dr. levine and Lue, so I have good hopes he will provide it for me. However, my appointment isn't for another 5 weeks. I don't want to wait that long. Is there any reliable sources on the internet for ordering pentox without a script in the meantime? Please if anyone can help
Casey, Ubiquinol has been shown to be very effective for Peyronie's as well and you are taking it. You should be taking 100mg Ubiquinol 3X per day for best effect. If you are doing that, that should hold you well enough for the five weeks which will go by very quickly. There are guys here successfully using Internet Pentox, but I would avoid it if you can. Hopefully this doc will do the right thing and put you on it right away. I continue to find Pentox and Ubiquinol to be a powerful combination and highly recommend them both. I think at this point you are on the right track. Please let us know how this all works out for you. - George
chefcasey26,
I would just keep going to doctors until you get one that will prescribe it. I seen about 4 doctors before I finally hit one that agreed to do it. Just take those pentox studies in with you when you go. I took my laptop and showed them right on my laptop. I also mentioned this forum to the doctors and how it is one of the best weapons to combat peyronies, expecially in it's early stages.
Have you tried going to doctors with the pentox studies? Have you been very forceful with trying to force the pentox issue as a treatment?
Hey there,
I couldn't find a combination forum so I figured I would post this under the heading with the most activity.
Is there a consensus most effective treatment? It seems that on this forum the treatments with the most success stories are Pentox, VED, and the extenders. Is this accurate? I understand that different treatments will work for different people, but is there a clear front runner? What of hyperthermia?
Is there a thread somewhere here that summarizes all of the latest and greatest information on the disease and its potential treatments?
Please let me know.
thanks
I don't think there is really any way to compare these divergent treatments. It really depends on individual response to treatment and what an individual can tolerate. On the other hand, I, personally would not consider traction (extender) a "top" Peyronie's treatment. To me, VED and Pentox ARE the two "top" Peyronie's treatments currently. As far as "effective" treatments go, there are really quite a few at this point, and Vitamin E is not one of them. As far as hyperthermia goes, some guys have found it effective, but I would say that it is way down the list at this point. - George
This study (http://www.ncbi.nlm.nih.gov/pubmed/10098440) was posted elsewhere by skunkworks, but in a thread that is dominated by another subject, so it might not catch peoples attention. What do others makes of this study? Pentox alone didn't seem to help. That seems to go against what we tend to think. Should we be adding alpha-tocopherol back into the mix, or do we think theres some kind of issue or problem with this study? I know that this combo has been successful before, but I had effectively convinced myself, rightly or wrongly, that I should drop vitamin E.
Hey, sounds very interesting.
I think lots of people abandoned vit E after a study came out saying anything above 400ui/day can cause serious health damage.
If i calc down to my weight, I would need 1200 UI/day...
Isn't alpha-tocopherol the kind of vit. E in some oils? have not seen it in my pharmacy.... yet.
Luc
There was a great couple of posts somewhere on the forum about which kind of vit E is best, but I cannot for the life of me find it.
Trying to find alpha-tocepherol myself, can only find d-alpha tocepherol. Big difference?
What you ALWAYS want with Vitamin E is MIXED TOCOPHEROLS with a heavy gamma component and you only want the natural form, NOT the synthetic. Additionally, to prevent cardio side effects, you want to supplement with Vitamin K at the same time as you are taking E. - George
Even though the study used alpha-tocopherol?
Also what does the d mean? Even on the supposed natural Vit E it seems to say d-alpha, d-gamma etc
Quote from: skunkworks on May 31, 2011, 09:38:10 PM
Even though the study used alpha-tocopherol?
Also what does the d mean? Even on the supposed natural Vit E it seems to say d-alpha, d-gamma etc
Alpha Tocopherol is the active component in treating Peyronie's. But Alpha Tocopherol can be inflammatory to some tissues without accompanying Gamma Tocopherol. They complement each other. d-alpha, d-gamma, etc are the natural or semi-natural forms, while dl-alpha, dl-gamma, etc are the synthetic forms. - George
How does this one look to you?
http://www.iherb.com/Bluebonnet-Nutrition-Natural-Vitamin-E-400-IU-250-Softgels/10944?at=0
Here is a complete study where they talk about the animal study. This one is on humans, mainly women after cancer treatment.
It seems to be a followup study because they note a placebo effect (the placebo group having better results than the vit E and the pentox alone group). They say that with the pigs there was no placebo effect.
I havent read all the details.. but seems interesting.
http://jco.ascopubs.org/content/21/13/2545.full
Another article
http://www.medscape.com/viewarticle/458558
Luc
Thanks all for your input. The point I'm getting at is a concern that the pentox alone group did not seem to perform well. I had dropped vitamin E, considering it not a great help. I still think that alone it's not all that useful, but there are a few studies out there with Vitamin E and Pentox showing good results. I had put down the improvement solely to pentox though, which is why the results of this study worried me. I still believe that Pentox is the single most effective oral treatment for peyronie's disease, but should I be adding a good quality Vitamin E (thanks for the suggestions George!) back into the mix? Maybe the combination really does have better results.
does pentoxifylline decrease size of excess collagen due to a penile injury? i have excess collagen and its pretty hard, but in my last ultrasound it shows it isnt calcified. will pento work?
I've peyronie since 1 year.
All drugs were no usuful.
VI have worsened situation.
I'm taking pentox since 1 month but situation is worsening day by day with pentox.
Penis is less consistent, fibrosis is more generalized.
I don't understand why.
Pentox is not going to start working for at least 4-6 months if it does at all. You are going to have to give it some time.
Quote from: Worried Guy on December 31, 2011, 12:23:31 PM
Pentox is not going to start working for at least 4-6 months if it does at all. You are going to have to give it some time.
As you say, for the first months Pentox doesn't work.
But in my case Pentox has worsened situation. I think that if a drug worsenes situation in the first month, is very improbably that it will work well in the future.
There is no evidence or reason to suggest that pentox would make things worse. You would have likely got worse anyway. Happy new year guys. Let us hope we hear some good news from xiaflex this year.
Pentox
Is a blood pressure medicine as most used with this disease.Go figure i do not get it half the time.Really though it is not causing you more defect.It is allowing you to have more blood flow in the lower region and give you a more relaxed flaccid condition, nothing more.There are other beneficial effects that pentox provides.
Fubar
With pentox it's a marathon, not a sprint. Peyronie's can worsen over significant periods of time, and I do see a scenario where pentox actually makes a condition worse. I can see why people could perceive that to be the case, but it's definitely a treatment that can help when taken for many months. It's a mistake to attribute worsening of your condition to pentox.
There are NO silver bullets for Peyronie's. And that includes Pentox. Dealing with Peyronie's effectively takes persistence. I have probably taken thousands of different supplements and made hundreds of minor dietary changes over the years in order to coax my Peyronie's situation into calmer waters. All in all it has been a great success, but with diseases like Peyronie's, no two cases are alike. What works for one person may not work for another. Each person is an individual with unique factors promoting their Peyronie's inflammation. And unless those unique factors are successfully addressed, the disease will continue to proliferate. - George
What do you guys think of pushing pentox to 4 pills per day, evenly spaced and taken with food? Right now I'm at 2 trying to go to 3 per day, but notice the side effects really kick in going to 3 a day.
Comebackid
Quote from: ComeBacKid on January 01, 2012, 11:59:32 PM
What do you guys think of pushing pentox to 4 pills per day, evenly spaced and taken with food? Right now I'm at 2 trying to go to 3 per day, but notice the side effects really kick in going to 3 a day.
Comebackid
I couldn't do 3 a day. Made me sick and gave me a terrible headache. 2 is the most i could tolerate. One in the morning and one around 7 after my workout.
I'm at 2 a day now, my sinuses have been flared from the day I've been on this, when I went to 3 a day last time I woke up everyday with a headache then it went away in a few hours. Some of the side effects are annoying but its worth it because I'm seeeing the results visually, to wait over a decade for something that works I guess I"m willing to put up with them. Whats the alternative? Surgery? I'll pass on that! With 2 a day you'll get results, but from the last time I did this if you up the dose you get better results. I'm going to push it to 3 per day soon, and then possibly push it to 4 per day if I can verify from a doctor its safe to do that. I don't think its an option to take this stuff forever though, this is a stopgap treatment, eventually they need to come up with something like xiaflex. We are lucky we have anything though, the way this is has been ignored by the medical profession, it's a miracle!
Comebackid
Sincerly i don't understand why pentox worsenes situation to me....
I assure you it will not have worsened your situation. You would have got worse anyway. The disease progresses over an 18 month period. Don't expect pentox to work after a few weeks. You need to give it half a year. Peyronies is a very simple disease. All it is is scar tissue. Pentox will not create scar tissue.
I doubt pentox is worsening your situation, its just not effective on you, your situation probably would of worsened just the same if you were not on pentox. For all you know it might of worsened even more! I would finish your course of pentox and then evaluate where your at, and see if it continues to get worse over the following six months. Even that may not prove scientific as all the "worsening," could be done.
Comebackid
Quote from: Worried Guy on January 04, 2012, 04:56:57 PM
I assure you it will not have worsened your situation. You would have got worse anyway. The disease progresses over an 18 month period. Don't expect pentox to work after a few weeks. You need to give it half a year. Peyronies is a very simple disease. All it is is scar tissue. Pentox will not create scar tissue.
I assure you pentox has worsened my situation in 1 month.
Maybe in the acute phase it worsenes situation in some patients but i can't say why.
Maybe i'll try to take it after acute phase.
dioporcolorisolvo,
If your doctor is prescribing this for peyronies, please stay the course. I don't understand (who does?) why this disease acts the way it does, but the pentox is our best defender so far. It seems to work by taking very slow, micro-steps in remodeling the plaque and diffusing it, scattering it, softening it, reducing it, resolving it. Whatever the words are, it's hard to describe, but it does work. I wish there were a pill we could take and it changes the situation overnight. But that's not how our bodies heal anyway regardless of what the illness is. It takes time. More time than we have patience for. But what else are we to do? We must let the best treatments do their work over long periods of time.
Tell me why you think it has made you worse? How could it have possible caused more scar tissue other than what would have developed anyway. If you are in the acute phase I believe 15% get better 45 % stay the same and 40 get worse. I think that is what my uro said. You honestly believe it is making you worse then stop taking it. You will be going against the top peyronies experts advice however.
Quote from: Worried Guy on January 07, 2012, 11:54:24 AM
Tell me why you think it has made you worse? How could it have possible caused more scar tissue other than what would have developed anyway. If you are in the acute phase I believe 15% get better 45 % stay the same and 40 get worse. I think that is what my uro said. You honestly believe it is making you worse then stop taking it. You will be going against the top peyronies experts advice however.
When i've taken pentox pain increased and i've lost girth.
When i've stopped pentox and i've regained Propionyl carnitine, pain stopped and girth remained the same.
Quote from: dioporcolorisolvo on January 07, 2012, 02:11:18 PM
Quote from: Worried Guy on January 07, 2012, 11:54:24 AM
Tell me why you think it has made you worse? How could it have possible caused more scar tissue other than what would have developed anyway. If you are in the acute phase I believe 15% get better 45 % stay the same and 40 get worse. I think that is what my uro said. You honestly believe it is making you worse then stop taking it. You will be going against the top peyronies experts advice however.
When i've taken pentox pain increased and i've lost girth.
When i've stopped pentox and i've regained Propionyl carnitine, pain stopped and girth remained the same.
And all that that demonstrates is that PLC is working better for you than Pentox. In that case take PLC instead of Pentox and quit making a big deal of this. It is a known fact that Pentox does not work in every case, but there is NO legitimate research out there showing Pentox to be harmful and you do not have the resources to prove that to be the case, so don't keep making the allegation. There are a number of guys here who are NOT taking Pentox because, for whatever reason, it unfortunately did not work out for them. If PLC works for you, that is a VERY GOOD THING. That is what I would be shouting from the housetops if I were you, not wasting time bashing Pentox which actually works very well for most guys. - George
I was to my uro yesterday and asked him to prescribe me pentox. He told me that don't have any research regarding the usage of pentox to dissolve or soften scar tissues of peyronie's but he will be happy to subscribe me for one month, one tablet of 400mg daily. He says that the pentox have many side effects and he would like to see how I am tolerating it.
I want to mention that the uro is young and open minded, he showed very good knowledge regarding peyronie's even that I think I am his first peyronie's case (I am European living in the Far East).
Have any chance that one daily tablet of 400mg will do something in one month?
James
Quote from: james1947 on January 10, 2012, 06:22:04 PM
I was to my uro yesterday and asked him to prescribe me pentox. He told me that don't have any research regarding the usage of pentox to dissolve or soften scar tissues of peyronie's but he will be happy to subscribe me for one month, one tablet of 400mg daily. He says that the pentox have many side effects and he would like to see how I am tolerating it.
I want to mention that the uro is young and open minded, he showed very good knowledge regarding peyronie's even that I think I am his first peyronie's case (I am European living in the Far East).
Have any chance that one daily tablet of 400mg will do something in one month?
James
Side effects can be overcome taking pentox gradually.
I had side effects, so i diminished dosage until 400mg daily (2x200mg) and after 30days i arrived until 1,2 g daily (3x400).
But, nobody can why, pentox has worsened situation to me.
Studies for use of pentox in peyronie exist and are published, one of them is of Dr.Lue.
James no one tablet for one month wont do anything your just wasting your time. Take 3 tablets 3 times a day with meals for 5 months if your seeing side effects then go to 2 pentox tablets twice daily. It takes about 5 months of taking pentox steady before you notice any improvement. Also 400mg too. It will not worsen the situation. Ive been taking pentox 400mg for about a year or so and it helped me and didnt make me worse. It takes about 5 months before you see really positive results. At first I was taking 3 tablets of 400 mg a day and then switched to 2 tablets of 400mg a day because I was getting some side effects. But james switch over to at least 2 tablets for 5 months and keep going which I suggest in one month you wont see anything.
As noted by other posters the protocol for Pentoxifylline is 400mg 3X per day (usually 1 pill with each of three meals). A major study has found 400mg 2X per day to be effective. The documentation supporting the use of Pentoxifylline for the treatment of Peyronie's is not a lot but it is there:
https://www.peyroniesforum.net/index.php/topic,772.0.html
https://www.peyroniesforum.net/index.php/topic,1004.0.html
https://www.peyroniesforum.net/index.php/topic,2070.0.html
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3163605/
Thank you for your inputs.
I will begin with one daily because I have many allergies and I don't know how my body will react to Pentox.
If OK, I will begin 2 daily. The prescription I can use many times to get the Pentox. They cal the tablets "Trental 400mg" and not Pentox or Pentoxifylline. It is the same drug? The uro says yes.
George
I have downloaded/copy all the references will read and give to the uro also, thanks.
James
It's the same drug.
The most important thing is to take them separately in the middle of the three meals. I feel a little lucky maybe but in my case, 3 month on pentox ( always in 3x400mg dose ) and really no bad effects.
dioporcolorisolvo
Thank you for the input, I wanted to be shore is not something else.
LauRenT
* You have recorded some improvement in 3 months?
* What you men in the middle of the three meals? During the meals or in the time between one meal and the next one?
James
Quote from: james1947 on January 12, 2012, 08:37:23 AM
dioporcolorisolvo
Thank you for the input, I wanted to be shore is not something else.
LauRenT
* You have recorded some improvement in 3 months?
* What you men in the middle of the three meals? During the meals or in the time between one meal and the next one?
James
You can assume pentox 1 hour after the meal. I did in this way.
I ALWAYS take Pentox WITH the food. It could be IMMEDIATELY before or DURING or IMMEDIATELY after. But it needs to be at the same time you are eating in order to avoid gastro intestinal problems. And by all means try to avoid taking it anytime close to bed time. I take mine around 9:00AM, NOON, and 5:30PM. - George
I think that everyone has different ways.
If i had pentox during or immediately after i had gastrointestinal bad effects.
So i took it 1 hour after meal.
Everyone has to find his own solution.
James
I'm nearly in my third month with pentox, taking during the meal in my 3 meals.
I also take Vit D3, K2, Ubiquinol, since 2 weeks.
L-arginine, pycnogenol since 1 month.
ALC, PLC, Gamma tocopherol + tocotrienols since 3 months.
I m on the VED s protocole, in my 4th week.
Now i can see some improvement, even it's really not the end of the battle. All of this plan with a healthy food, something good happen. Hope it will continue.
Laurent
LauRenT - I'm glad you feel that you're on the right track. It's all about sticking with it for the longhaul, and not stopping treatments due to becoming dispirited.
Thanks newguy, i waited 9 month to start something ( just following the clever advices of Uro, wait and see and synthetic Vit E), saw the results....
So being active and constant, that s the only things we can do, no choice.
About treatment, in my case pentox, ALC/PLC are on the top of the list with VED for now. For D3/K2, Ubiquinol, too early to say.
I don't ask a F..... miracle, just a response of my action against that situation.
I can honestly say that pentox and cialis together I see the most positive results its just expensive expecially when you pay for both of them.
Yesterday I take my first 400mg Pentox during breakfast. No any side effects!!! Hope will continue like that, after one week I will increase to two daily.
I have one question:
I am tacking 100mg Aspirin daily as blood thinner and my Uro told me not to take it if I am on Pentox because Pentox can cause internal bleeding.
I am concerned not taking the 100mg Aspirin as my blood counts are all high, so the blood have more tendency for clothing.
Any advice?
James
Quote from: james1947 on January 15, 2012, 06:00:01 PM
Yesterday I take my first 400mg Pentox during breakfast. No any side effects!!! Hope will continue like that, after one week I will increase to two daily.
I have one question:
I am tacking 100mg Aspirin daily as blood thinner and my Uro told me not to take it if I am on Pentox because Pentox can cause internal bleeding.
I am concerned not taking the 100mg Aspirin as my blood counts are all high, so the blood have more tendency for clothing.
Any advice?
James
I would be VERY careful combining multiple blood thinners. Ordinarily I would not be particularly worried about combining Pentox with Aspirin, BUT ONLY your personal physicians know your individual situation. IF your blood chemistry is abnormal in ANY way, you MUST coordinate your drugs with a qualified medical professional. There are no other options. If you are unable to get the care you need in this regard, I would urge you to look for a Functional Medicine specialist who can help you to resolve your medical issues without endangering your life. - George
George
Thank you for the advise.
I have no a haematolog in my are. I have stopped the Aspirin, even that is a very small dose.
The only other blood thinner I am taking is bear. I don't stop it ;D
James
james1947 you wont notice any side effects if you take pentox once for one day and one pill. Also why exactly do you take aspirin?
Noway
I am taking 100mg aspirin from 1995 when I had a hearth attack (and balloon for one of my veins)as blood thinner. I have also a blood disorder that make my trombocyte (platelets) high and aspirin prevents clothing.
Regarding Pentox, I began one daily because I have allergic reaction to some mastication's and foods. If will continue with no side effects for one week, I will increase to 2 daily.
Somebody know if Pentox is considered a blood thinner also?
James
I'm almost positive it is considered at least a mild blood thinner. I take 2 a day and I also take a low dose aspirin, but I have never had any problems with bleeding.
GS
GS
Thanks for the information. I will begin today to take again the 100mg aspirin 12 hours after the Pentox. When will begin with 2 daily Pentox at 12 hour apart, I will take the aspirin at 6 hours from both Pentox.
James
They are blood thinners by two different routes. Aspirin attacks platelets and pentoxifylline causes red blood cells to be more flexible and thus able to flow more easily through small openings. - George
George999
Thank you for the information.
My red blood cells count are at 9.4 because of many phlebotomy's to reduce from 19.8
Platelets were on the 750,000 and gone up (during 2 year period) because the phlebotomy's I think to 1,200,000. Two months no phlebotomy's and is down to 980,000. Hope will continue to go down.
The white blood cells are in the 22,000. I read on the forum that Pentox reduces very much white blood cells count. Hope it will do it for me also.
James
Just a small Pentox update:
After one week of one daily Pentox I am 5 dais with two daily. I am taking them morning and evening during my meals and for my surprise have no any side effects. I am taking the 100mg aspirin at noon and also no any problems.
James
One month on Pentox, 2*400mg daily.
Peyronie's benefits:
- Flacid stated more full. Before Pentox in flaccid state was shrinking almost all in my body, not anymore.
- More easy to be aroused, some partially erections not just from physical stimulation. Just from watching my wife with sexy dress or touching her accidentally. I had no such thing from the start of my Peyronie's.
- For the first time in long period I was able to get a good erection that lasted enough long for my wife to have a full satisfactory orgasm without
the 50mg or 100mg Viagra
Other benefits:
- I had many cramps in the legs and feet specially when laying down or riding my motorbike. They completely stopped.
- I had many small blue veins on my face and my feet, most disappeared.
So for me even just one month Pentox improved my situation a lot. Maybe some phsycological effect also? I don't know.
(The speller says phsycological is wrong but don't give a good alternative, hope the people understand what I mean)
James
dioporcolorisolvo
We are almost three months after you have started this topic.
Are you continuing with Pentox?
If yes, how is your progress, positive or still negative?
James
Quote from: james1947 on March 22, 2012, 08:49:46 PM
dioporcolorisolvo
We are almost three months after you have started this topic.
Are you continuing with Pentox?
If yes, how is your progress, positive or still negative?
James
I'm not taking pentox.....also if i haven't understund reason, pentox worsened situation, as infiltrations, traction and ved.
I'm taking ALC and ubiquinol. I've erections very very strong, but until now i've noticed a small improvment on peyronie's symptoms (deformation, curvature) only when i eliminate all sugars and refined carbo from diet. This is not simple, but it's obligatory for me.
I think the only possibility to improve is to eat only fruit, A LOT OF vegetables, meat and fish. Stop.
Whitout sugars i feel more depressed, especially without chocolate, but the only road to do is that.
dioporcolorisolvo
Thank you for your prompt answer.
It seems that sugars are the main issue, not just for Peyronie's. I am reading (and trying to learn) regarding blood sugar, George have some deep professional posts in the subject.
If you didn't read them yet, I am proposing you to do that.
James
Quote from: james1947 on March 23, 2012, 09:26:53 AM
dioporcolorisolvo
Thank you for your prompt answer.
It seems that sugars are the main issue, not just for Peyronie's. I am reading (and trying to learn) regarding blood sugar, George have some deep professional posts in the subject.
If you didn't read them yet, I am proposing you to do that.
James
Also i've studied the argument of food...i follow paleodieta.
I found a video interview with Dr. Lue, and he mentions that Collagen injections might soften the scar tissue too much and leave the tunica thin and weak, which would make it more prone to fracture. Could this also apply to Pentox?
Skip to 3:30 in the video.
oncologytube.com/index.php?page=videos§ion=view&vid_id=100494
IHatePeyronies
Personally, I don't think so. Pentox is softening the scar tissues very slowly.
I think I have read almost everything on the forum regarding Pentox and don't read any post that the tunica albuginea became weak.
Many people that thy scar tissue was softened reported strong erections that I think is impossible if the tunica albuginea is weak.
James
Hmmmm....but the scar tissue is not being replaced by healthy tissue. Wouldn't that leave you in a weaker state?
In my opinion, softened scar tissues are also fuller and healthier than the not softened scar tissues and they don't need to be repaced.
You can read many testimonies on the forum, especially on the improvements and the oral treatments board.
James
I'm a 28yo single man who hasn't masturbated for a little over five months now. I haven't experienced many good erections, but this morning I experienced a very good one. I decided to take advantage of the event to thoroughly examine myself (I've experienced ED in the past and wanted to get some answers). The most physically stressful thing I did during the self examination was to lie on my back (supine) and to elevate my penis 90 degrees to be roughly perpendicular with my body. I also stroked my penis a few times by moving the foreskin back and forth over the tunica (probably a total of 10 or 15 times total) during the self exam (with no lubricant), but I was very gentle and quite slow in the stokes. I didn't rhythmically masturbate or stimulate myself to he point of ejaculation.
Anyway, after it was all said and done and my erection subsided, I felt some pain at the very base of my penis like I was being pinched (this was on the right side). A few minutes later, while flaccid, I felt a sharp shooting pain mid shaft on the right side (this is where most of my peyronie's scars are). This is the second time I've felt this shooting pain in the last few days. The first time I felt it I was totally flaccid and was doing a sort of yoga style stretch to stretch out my back. (I was lying prone, pelvis to the ground and elevating my back off the ground with my arms, and looking up to the sky with my face. I did this to stretch out my back after a work out.)
I'm wondering if I should try to get a script written out today for Pentox as a precautionary measure? I have benadryl on hand. Should I use that as an anti-inflammatory drug/ precaution in the mean time?
Plow
I am a big fun of Pentox because it helps many on this forum and I would say yes, start Pentox, it may reduce pain and many other benefits regarding Peyronie's.
In my opinion you have to see an uro and to begin treatment, not only Pentox.
Regarding benadryl, I know that is an antihistamine, I don't know how it should help with your pain.
James
I'm also 28. Have had peyronie's for a couple years or so now and have had pain in the left side where my scarring is. My bend wasn't ever that bad, only slightly to the left (i'd say 5 or so degrees) I have been on pentox (2 a day, can't tolerate 3) since January and *knock on wood* most of my pain is gone and i'm pretty much straight now, bend isn't noticeable at all. i'll probably continue my pentox thru my prescription (probably get me through the year) And hope that with a decent sex life, exercising regularly and a postive attitude that it will stay this way!
And yes the moral of the story and try pentox and see if it helps you!
Been on it for 9 months now. Have no idea if it has done any good...disease has progressed some in that time. Has Pentox negated worse results?...who knows?
How long have people been on it, and per your experience did it help, and if so, how long did it take to have a positive effect?
I was on it continuously for close to four years, starting in June of 2008. I still have it on hand in case I need it. Pentoxifylline and Ubiquinol have been the two best oral treatments for Peyronies that I have found. Pentox stopped most of my pain within days. Later on a combination of Pentox and Ubiquinol stopped ALL of my pain. Over time (years) on Pentox, I saw my level of deformity improve to the point of not being an issue. Fortunately, due much to the fact that I was attacking Peyronie's to the best of my ability from the beginning (2004), my deformity never became severe. I am now getting by on 100mg Ubiquinol 3X per day AND controlling my blood sugar levels rigorously. - George
I have posted at:
Peyronies Society Forums > Peyronies Disease TREATMENT Discussion Boards > Oral Treatments for Peyronie's Disease (Moderator: james1947) > PENTOX effect on Peyronie's
At March 27, 2012, 10:07:20 PM a Word file attachment on a small search regarding your question.
You can download and read it.
You can also check out in "Oral Treatments for Peyronie's Disease" the topics:
PENTOX - periodical updates and observations « 1 2 »
PENTOX - Questions « 1 2 3 4 »
PENTOX (where to get it and does it work?) - My Experience « 1 2 3 4 5 »
By reading the above you will get full answer to your questions.
James
pentox takes about 5 months to start noticeing huge results and it does work. It works better with cialis. I would consider pentox and cialis at any cost.
ive been 5 years on pentox and I have seen absolutely no improvement - yes erections are stronger but the curve is there and i would say may have gotten worse over the yrs to say 35-40 degrees - i reckon that the ved has made it slightly worse
When the F**K is xiaflex happening - ??
Iceman
Sorry to hear about your results with Pentox and VED.
My experience with both is very good. Pentox and VED are helping me getting a better erection (not using VED for intercourse, just as treatment).
Regarding Xiaflex, remember that people that have calcified plaque were excluded from the trial!!! Easy to guess why.
Hope your plaque/plaques are not calcified and with Xiaflex treatment you will be in the 18% that improved more than the placebo guys. :)
18% more chance for improvement with Xiaflex compared with no Xiaflex.
James
Iceman- How much are you taking per day?
I think in some cases Peyronie's can become really aggressive and no amount of treatment can stop it. Iceman, you are not alone, there are other guys here who are feeling similar frustration. You can only do what you can do. You may, indeed, have suffered regression in spite of everything, but things likely would have been much worse with no treatment at all. I would encourage you to openly discuss Xiaflex with your physicians if you have not already done so. It is NOT going to come to you. You have to be your own advocate and pry open the doors. That often takes phone calls and emails to specialists in far away places. Have patience and one day you will conquer this. I wish you all the best. - George
thx guys...
1) i would say my plaques are calcified, so that being the case is there any point me taking pentox?
2) how would i go about getting xiaflex in Australia?? - does anyone know of a uro that treat Peyronies Disease with xiaflex? - i have only been to a uro once in the 5 yrs that i have had this and have got all my information from this site. I went to dr malouf in st george hosp originally in Sydney and he was the guy who told me about pentox - I actuall then flew to SF to meet with Lue and all i got was pentox from him as well....so after 5 years is there anything else that i can do/take - oh...i also take coq10 and Larginine, but thats about it....
3) I am taking 1 x 400 mg per day of pentox - thats all...
any help would be much appreciated
hi,
regarding pentox and calcifications..
Pentoxifylline treatment and penile calcifica... [Asian J Androl. 2011] - PubMed - NCBI (http://www.ncbi.nlm.nih.gov/pubmed/21102473). i have been taking pentox for 2 years now and am also wondering when to stop with it.
As far as getting xiaflex in AU your best bet would be to research who the local peyronie's 'expert' is closest to you and to have a phone chat with them. It's not available in the UK yet, however.
gl, rich
In my opinion 3*400mg Pentox per day is a minimum for expecting some results.
Some leading Peyronies expert are giving double of that.
I run out of the supplements and I try to find a source that will ship with Parcel Post as UPS/FedEx/DHL are charging here locally $50 in addition to what I pay for the shipment.
Now on Pentox and low dose Cialis only and no regression, some slight improvement.
VED has given me back 1/2" from 2&1/2" I have lost to Peyronies so now at little bit more than 5", 1/2" is 10%. Get back some girth also and the deformities are a bit better. The change is constant as I am not doing VED in the last three months because of no privacy at the moment with 14 years old son and 3&1/2 year old daughter in a small house and have no regression.
I am not a big fun of Xiaflex, as I have written calcified plaques where excluded from the trial and mine are calcified :(
James
if you are doing 3 x 400 per day and you see no improvement- do you think that i should increase my dosage? - i mean, what's the point?
I would not advice 6*400mg Pentox a day if not under doctor supervision.
I think taking 3*400mg per day fro a long period it may help some (and some not, like everything with Peyronies :()
One of Pentox side effects can be internal bleeding that is a very serious issue!!!
James
One thing you might try for calcifications is Vitamin K-2. Vitamin K-2 is crucial in moving calcium from soft tissue into the bones where it belongs. It is relatively inexpensive. If I were in your shoes, I would give it a shot. - George
george - how do i know if im calcified or not? also if i am not calcified would it be worth trying the K2? - i have not heard this mentioed before....I mean does this help with Peyronies Disease - one thing to note I have stopped ALC - could this be a factor in things not improving??
many thanks
Iceman-
You'll need a uro to do an ultrasound in order to determine whether your plaques are calcified. It's a good idea to get one anyway.
Iceman, There are NO guarantees when it comes to treating or attempting to treat Peyronie's. First of all, as Roy points out, you need to be certain as whether you have or do not have calcifications before you attempt to deal with them. If you KNOW you have calcifications for sure, Vitamin K2 *might* be helpful. The ONLY thing that has EVIDENCE of benefit is Pentox. - George
Iceman, I think you need to find an urologist ASAP. I'm sure there are some good Doctors in Australia. I mean, I live in a third world country and I was able to find one that's been really helpful.
I think you need one Urologist to stay in touch and get some professional guidance. It's weird that you visited one Urologist just once in five years! You need to know if your plaques are calcified in order to know what treatment is the best for you.
All the best!!! I really hope you get better!!!!! sorry for my english!
Betsey...
Your English is better than 90% of Americans. That's actually somewhat depressing when you think about it. :-\
Quote from: rellisacct on April 18, 2013, 09:56:36 AM
Betsey...
Your English is better than 90% of Americans. That's actually somewhat depressing when you think about it. :-\
haha! thanks! (but please call me bestseyagopian, betsey makes me sound like a woman! haha)
Hey Iceman, why don't you contact other users from Australia? Iguess they could help you finding a coo Dr... right?
Iceman
You may find a good doctor in Australia at:
https://www.peyroniesforum.net/index.php/board,37.0.html
James
I admire your perseverance iceman. I spent between two and three years on pentox myself, so five is significant. Often it can be hard to tell if improvements are coming about or if taking it is reducing the impact of future bouts and so on. It's not an exact science, and people react to different treatments in different ways. As you say though xiaflex is on the horizon. It's easy to say "don't be downhearted" and I understand that the day to day reality often overwhelms positive sentiments, but really, strength builds on strength, and even on down days/weeks/months it's important to use the resilience this condition tends to create (out of necessity) to pull through.
I'm on 2,400 mg/day of Pentox. I have been since 12/12. Yes, there has been some improvement. I'm adding VED and traction to my protocol as well as some other experimental strategies.
My doctor prescribed me Pentox 400mg three times per day - is that a normal dosage?
That is what I was prescribed along with daily Cialis, L-Arginine 2 x 1000 mg daily and traction 2-3 hrs. per day. I also take Acetyl L Carnitine 3 x 1000 mg daily and use the Vac3 Extension device on my Andropenis traction device as it is much more comfortable.
Typical dosage is indeed 400mg, 3 times daily for Pentox. I recommend always taking it with food and spacing out the dosages evenly (perhaps every 6 hours). Pentox can have some gastrointestinal side effects like heartburn, excess gas and general stomach upset. Taking with food and spacing out the dosages seems to help with this. If the side effects bother you, drop down to 400mg, 2 times per day (I did this per the recommendation of Dr. Lue, the drug is still effective).
Stick with it. Pentox is effective. I took it for 8 months total several years ago and it got rid of the pain in a matter of weeks. I noticed physical improvements after several months. Since stopping several years ago, I continue to see minor improvements over time.
Good luck,
Skjaldborg
I am taking 3*400mg daily, last not late than 06:00PM
Even now after almost two years of using it makes me gas excess and slipping problems.
If taking it after 06:00PM or/and not with enough meal, it makes me all the side effects Skjaldborg mentioned plus anxiety.
Three days ago I take the last at 08:00PM with little bit food and I was sick for 24 hours :(
James
Alright, since my pentox is coming in today or tomorrow I thought I should ask this question. I am currently taking ALC, Arg, coq10 and fish oil. I remember reading that somebody had heard from dr. Lue to discontinue the ALC to not interfere with pentox, but I see no research to back this up. Has anyone else had Dr. Lue tell them this? If it is relevant, I am 26, about 15 months since first pain and 7 months since first noticeable plaque.
Dr. Lue prescribed me 2400mg of Pentox daily (2 pills 3x a day). He told me to stop taking other supplements because he wanted to see how the Pentox worked without any other interference. When I went back for my 3 month follow-up I asked again if he was in favor of me not taking any other supplements and he said he was. My Pentox dosage is very high and he didn't want me putting anything else in my body. He did allow me to stay on Cialis 5mg (which i cut in half) daily and I continued with Coq10 Ubiqiunol 300 mg daily. He also said that a multi vitamin, fish oil and echinacea would be okay. But here's everything else I was taking-
L-ARGININE 1000MG – 2X DAILY
ACETYL-L-CARNINE 750MG – 2X DAILY
GOTU KOLA 475MG – 2X DAILY
MILK THISTLE 205 MG – 2X DAILY
L-LYSINE 1000MG – 2X DAILY
SERRAZIMES 33MG – 1X DAILY
VITAMIN B-12 1000-MCG – 1X DAILY
VITAMIN C 500 MG – 1X DAILY
NATURAL E 400IU – 1X DAILY
BIOTIN 1000 MCG – 1X DAILY
By the way, there was a NY times article last week on supplements. You may find it interesting-
http://www.nytimes.com/2013/06/09/opinion/sunday/dont-take-your-vitamins.html?pagewanted=all
Lastly- it took nearly 5 1/2 months for the Pentox to really show some positive effect. But my girth has increased to the point where my bottleneck deformity has nearly evened out with the rest of my penis. And my erections are much harder. In addition, I have added 32 hours of traction in the last 3 weeks as well as daily VED. I had to take nearly 6 weeks off from VED in April and May because if a blister. I have since reduced hold times to 30 seconds which is why I added traction.
Does anyone know any doctors in NY or NJ willing to write prescriptions for this?
My GP referred me to a urologist who just didn't take his seriously. Guy told me to start taking some vitamin E and that I was too concerned with my problem.
Ahsu;
I'm guessing by the fact that he suggested taking Vit E that he has diagnosed Peyronies? If that is the case, this Uro is a dinosaur. As for telling you that you were too concerned with it, words fail me! He is clearly not only a useless Urologist, but an a$$hole too!
I think in your situation I would have told him that if it were his dick that was bent & painful, he might then be concerned. I think I would also have been tempted to pump a large amount of "F's" in his direction!...
I'm in Spain, so I can't help. There is a list of respected Uro's here, on the site. Hopefully, you can find one in your area. I'm sure a more local member will see this and make some recommendation.
@Ahsu, did you ask your PCP to write the script pentox? It wouldn't take much research on his behalf to find out it's helped many men with peyronies. Also, it can be purchased online at "river pharmacy" along with cialis which can help also.
There is a separate section on this site to help fund a qualified urologist that understands peyronies. I'm sure there's one near you that can help.
I have been taking Pentox religiously for the past 5 weeks. Last night I took new photos and I think the curve increased by 5 degree. I know 5 week is not a long time.
My question is to members that have seen improvement with Pentox. Did anyone get worse before getting better or this means that Pentox is not working for me?
I was just starting to cope with this disease. This feels like a new slap in the face. I am slipping back into depression. Any info is greatly appreciated.
Litani, sorry to hear that.
The drug is said to take a long time, I think 9 months was the quote by Lue? Other suggest 2 years for any real effect.
I've only taken it for a few months. Many posters here make it out to seem like a miracle cure, stopping pain and fixing the curve as a matter of fact. The evidence suggests that it does help the curve, so just give it time.
Peyronies changes so quickly, some days it's worse, others its better. Don't give up just yet. Try to stay on top of everything else you can and your health in general.
Dr. Lue told me it can take between 3 and 9 months for Pentox to take effect if it takes effect at all. You have to stick with it. At around 5 months I saw increased girth, though little or no improvement in curvature. 8 months in I still see little improvement in curvature, but I also have calcified plaques. So next month comes the real test when I visit Dr. Lue and check to see if the calcification has been reduced.
Hi guys
I've been advised and read some promising posts about pentox and I was just curious to know if taking pentox alone will help cure some of my peyronies. I don't have any pain, don't have any issues getting an erection, just dealing with a slight curve which i would still like to try fix if possible, without having surgery.
My GP will quite likely prescribe me the the drug, and I do take L-Arganine and a Citruline malate supplement, but I don't really want to start using VED's unless they are vital in the treatment.
what do you guys think?
Cheers
D
Hey guys,
I just wanted to chime in here that I'm cautiously optimistic about Pentox. I just started taking it yesterday for the first time and am starting on 2X400mg daily regimen. After just the first dose, something felt different in the flaccid hanging state. Usually the scar tissue feels like shrink wrap around my penis constricting the girth, but the Pentox made it feel different. It was almost like it was trying to start remodelling the plaque. I'm not going to state that it will definitely help, but something happened for the better after just the first time taking it. I can't believe that I didn't start taking this a very long time ago (I am adamant against pills and medicine, but these are desperate times).
I think that it has taken 10 years for me to psychologically accept that I have this problem and begin seriously attacking it on all fronts. I'm beginning to treat this like a war and can see some improvement lately.
Cialis (Infantry) - Increase blood flow
L-Arginine (Infantry Reserves) - Increase Nitric Oxide
Pentox (Special Forces/Black Ops) - Soften/reshape the scar tissue from the inside
VED (Artillery) - increase size and quality of erections
PRP Injections (Air Force) - carpet bomb the penis to increase healthy tissue and fill in gaps
It may sound ridiculous, but covering all the bases, there has to be some improvement I would think (which I'm seeing)
Thanks guys. I will stay on it. I take two a day now. I am thinking about upping to 3 and see how my body takes it.
I take 6 a day as prescribed by my doctor. But I wouldn't do that unless instructed to.
Thanks RoyHobbs
I have an appointment on sept 17th. I intend to talk to my uro about increasing it. For now, I will see how I react to 3 a day.
DWA911
Pentox is not a miracle med. It helps and helped many with pain but also stopping or reversing Peyronies symptoms.
It take long time to see results, 9 moths, one year or even more. Adding to it low dose Cialis, (2.5 mg daily is not for erection so you don't need more) will help also.
Regarding VED, if you have nocturnal and morning erections I don't think you need it because your necessary blood flow to keep healthy penis is there.
James
rellisacct
I am a very big fan of Pentox (maybe the no.1) but what you are experiencing may be coincidence. ???
Maybe also fast effect on you personally. ;D Wish you will see further fast improvement. :)
Again, like everything with Peyronies, each case is different.
James
placebos can do wonder
Hello. I have three very important questions and I need help. I was diagnosed with Peyronies disease in July of 2012. I am now 14 months into the illness and it seems to be slowing down and not progressing. My real concern is over the obvious loss of size (length). My physician (Dr. Mulhall) wanted me to wait and see if anything significant happened in the course of a year. So far I have only a very slight bend (10 degrees). The only major deformity is the loss of length. My question is this, is it too late to discuss treatment with Pentox since 14 months has passed without any treatment what-so-ever? Does Pentox need to be taken right away at the onset of the illness? Also, has anybody noticed regain in length while on Pentox? Thanks!
James, just one thing I wanted to share.
I get morning and nocturnal erections all the time yet because of the scarring in my penis, the blood doesn't hold. So I would definitely recommend VED treatment in addition to traction.
Yes Matt, I agree that VED usage have many benefits.
I got back 1/2" by using VED from the 2&1/2" I lost.
James
James.....2 1/2 " ? Now I don't feel alone.......I have the same problem. Not Good.
Is VED only really necessary if you have issues getting an erection? I can get them just fine, i may have lost a cm or so but will a VED break up the scaring?
DWA911:
VED therapy can and will help with scarring if the plaque has not calcified (become hardened) in the area of the scar or hourglass effect. VED therapy works best for scarring and hour glassing effects before the areas harden with calcium deposits. So, it behooves any member considering VED therapy to start it as soon as possible after learning for sure that they have Peyronies Disease, even in the acute stage - first year to 18 months, etc.
Some uros state that VED therapy should not be undertaken until AFTER THE ACUTE STAGE! I have had many Peyronies Disease symptoms for just over 60 years now and I have learned that VED therapy must be started as soon as one realizes for sure that they have Peyronies Disease. I have completely gotten rid of my Peyronies Disease symptoms with using a one cylinder VED, the old Osbon Erecaid Esteem unit when it was first prescribed for me in 1995 after a radical prostatectomy. It took just about one year using the VED on a daily basis to get me to where I am today - no visible signs of any Peyronies Disease! :) :)
BTW, I used the VED for many years to obtain good solid erection using the cock rings that came with the package. A present, I can achieve a natural erection and hold it up long for sex using the same cock rings as with the VED erection.
Hope the above helps in some way with your Peyronies Disease.
Old Man
Old Man, that is awesome information.
Just to back you up, Dr. Lue agrees with your protocol with regard to VED.
Thanks for that info.
I was diagnosed with Peyronies end of June. I saw a uro two weeks later that prescribed Pentox (2 per day). After 2 weeks of taking pentox, I felt like my penis appeared much larger than normal when flaccid. I assumed this was a side affect of Pentox. A week ago I had another appointment. Since I was doing fine with Pentox side affects, the Uro increased Pentox to 3 a day. Today, I noticed that it looks smaller. I am puzzled now. Has anyone experienced this? Does it mean anything?
Probably doesn't mean a thing. We all respond differently.
I agree with Norm. Pentox does improve blood flow and many claim to hang fuller as a result. But flaccid penis size is impacted by so many different factors including temperature, stress, nervousness, etc. I don't think I ever look the same way twice flaccid.
Thanks a lot boys. I really appreciate it. I am glad I found this forum. So much dedication from the members.
One thing for sure, you pay a lot more attention to your penis after this disease. I have learned more about my penis in the last 3 months than the 49 years before that.
Litani
You are not the only one that:
Quotelearned more about my penis in the last 3 months than the 49 years before that
:) :) :)
It includes also me and I suppose almost all the forum members.
James
Thanks for your reply old man, my scaring feels really soft like the tissue has become weaker doesn't feel hard in any areas, but i do get that hour glass effect when cold. Is there any VED you or any others would recommend, I don't have loads of money to spend on one. I was thinking about asking my GP to prescribe me Pentox, but I don't have any issues with pain so i'm not sure if will benefit me.
Thanks
D
Totally agree. I didn't realize how much I didn't know. I've studied penile anatomy so much in the last 5 years since contracting this that I think I ready to take the urologist board exams.