Hi guys,

I have been arouns for more than 10 years now, I had another nick and maybe some of you even remember my story.
I had a congenital curvature that turned into a nightmare due to a botched surgery. I had a repair surgery in UK and I ended up dealing with a severe ED. I am 34 and basically I have never had sex (but I am more concerned with being alone). Anyway, I had a consultation with Eid and he suggested to have an implant done.

I struggle to see this as a game changer as I am extremely concerned with how I will feel my penis afterwards. I still have this big lump (but no Peyronies Disease diagnosis) which it may just be surgical stuff. Nobody ever made to make it clear, all I know it's painful and big. It was a suffer finding a mental balance with my penis. Sensation went away and came back. These all aspects I have to keep in mind because of what I got through.


Anyway, I really liked the time Eid dedicated to me but he seems not to have the same concerns about potential loss of sensation. He said it will remove the lump, ok, and then? I am not even sure it can be removed without using a graft. He did not mention it though.

What is really holding me back is the fear of having a penis that, ok, it can stay erect forever, but I am not familiar with. I don't know if I made myself clear but I guess many in here struggled not to hate their penis. It took me years to find a balance and "finding" it again.

Just one more thing, I found strange I was not discharged with a consultation report. Maybe they just forgot about it or it's not something doctors in US do. In both Italy and Germany (the places I lived) doctors always write a report describing the consultation itself, which examination (e.g. an ultrasound) was performed, results, diagnosis, and so on. 

Diagnosed in September.
In acute phase
Unwilling to simply wait 12 months to begin therapy.
Interested in non-surgical treatments

Quote from: Ethan on Yesterday at 03:23:51 PMUltrasound... on the NHS ??!!! ... Wow, I have never been offered this!

I didn't... and I don't take it. In fact, I don't take any supplements for this problem.

Yep. The GP was quite understanding and sent me through for an ultrasound when I voiced my concerns.

The actual ultrasound itself is a waste of time. Incompetent staff not knowing what to look for.

I use a website to buy Tadalafil privately.

I'm planning to make another appointment with the GP and make my condition sound more severe so that they prescribe Tadalafil.

Apologies for a delayed response.  Didn't receive any email notifications, so didn't realize anybody replied to my thread.

Mike7,

Yes, it is very similar to rolling out dough.  Actually, a device that rolls like a rolling pin would probably work better than what I used since it would created vertical pressure without stretching the skin along the shaft too much.

A rocking motion with a tool is probably best since it is applying pressure from the top without rubbing the tissue and creating irritation.  Pressure is good, rubbing or friction doesn't feel good.

I haven't looked into traction or VED.


Transformer,

I have tried this technique a couple times since I last wrote.  I see some  improvement.  I would say when I started in October, I had one main problem area, but my penis was back to about 90% normal compared to when I had Peyronies in my 20's.  The problem area is where I had my first nodules/thickening.  After the first time I tried this technique, I was probably back to about 95% normal.

I would say the last couple attempts are breaking up the scar tissue and getting things to about 96% normal, but the gains seem to be more minimal as the scar tissue nodules are smaller and smaller.  I still have a dent on the right side in the main problem area where the outer surface of the corpus cavernosum seems to have more permanent damage.  The diameter of the shaft is smaller in that area than anywhere else along the length of the penis. 

I might try a tool with a smaller diameter to see if those smaller nodules can break up even more.  The gains here are becoming increasingly smaller, so not sure if it is worthwhile.

Update, just tried a Papermate InkJoy gel 0.7 pen as a tool.  It had about the right diameter and was able to roll the small nodule on the tip of my left cavernosum.  That seemed to produce some improvement in both reducing the size of the nodule and reducing the pain when I squeeze the nodule.

Side note, having a countertop the right height is critical since it is much harder to work on this when bending your knees.

Don't really know this technique will ever be able to fix that outer surface of the cavernosum, but diameter is much less of a concern to me than the pain I was experiencing with the nodules.  They normally don't hurt, only when I put slight pressure on them.

Should also note that I've tried turning my penis sideways while applying pressure to see if I can focus more on the dent area, but that is really difficult since the two cavernosum's are stacked and slide off each other.  Angling probably helps to a small extent but doesn't seem to be as effective as just keeping the penis in a normal position and using pressure from the top.


Wald,

I apply a significant amount of pressure.  Not sure there is a good way to quantify it.  Not really enough to cause damage to the tissue in my penis, but enough force to break apart the scar tissue.  Would say that it is uncomfortable, and slightly painful, but not where I'm afraid that I'm going to tear the skin.  Kind of like if you push on your hand with your finger, you can tell when it is painful, but would have to use a lot of pressure to actually cut your skin.

Correct, I didn't need to involve the glans or corpus spongiosum in the process, however they will get squashed along with the cavernosum when applying pressure with a tool.  I did massage all the way to near the tip since I had nodules on the left cavernosum near the tip.

As I mentioned above to Transformer, it didn't fix the dent.  When I'm erect, I can feel a few dents along the outside of the cavernosum.  It isn't smooth like I remember when I was in my 20's, but is more like an old car that has been neglected over the years.  Wish there was a way to fix that, but am currently pretty happy with breaking down the scars/nodules that were inside the cavernosum, as well as removing some of the pain associated with those nodules.

Just tried again, and was able to get some improvement on the dented cavernosum by becoming semi erect, then squeezing the top of both cavernosum(sa), while focusing the fluid into the dented area.  A little hard to describe this, but I've done it in the past to limited success.  Kind of if you had a water balloon and want to make one part of it swell up, you put your hands around the other areas and squeeze so the exposed part pushes outward.

Hopefully this helps explain things somewhat.  Please ask away if any of you have more questions.

Quote from: BentKnob on December 11, 2024, 01:42:25 PMI had a GP on the NHS feel a lump in my penis and said it's nothing to worry about.

Sometimes the NHS are f***ing useless. When I told my GP about my first peyronies he just said "I would just rest it" and "there isn't evidence to support vacuum pumps and traction devices making a difference", or words to that effect.

Quote from: BentKnob on December 11, 2024, 01:42:25 PMThey couldn't find anything and said the ultrasound...

Ultrasound... on the NHS ??!!! ... Wow, I have never been offered this!

Quote from: BentKnob on December 11, 2024, 01:42:25 PMHow did you get them to prescribe Tadalafil?

I didn't... and I don't take it. In fact, I don't take any supplements for this problem.

However, despite no longer being in the 'active phase', I am now considering taking L-Arginine and Vitamin E.

And, even though my plaque bends it down and not up, I am now considering buying the Penimaster Pro to use with weights, for the sole purpose of regaining length.

... Reason: Inspiration > I was looking through old boxes of stuff and found an old diary with notes on Jelqing from years ago. Looks like it increased my fully erect length by 0.6 inches.

I'm sorry I didn't see this sooner.

I have had my Titan for about seven years and have run into this on several occasions.  The first couple of times, I was distressed that it was done for.  I have found that the easiest fix is to depress the deflate button and give several pumps at the same time (pretty impossible if one arm is in a sling).  Even though the pump resistance is pretty strong, that always unsticks or resets the valve for me.  To prevent that, I always pump a couple of pumps to immediately reset the valve after deflating rather than leaving the valve in the default position.

Quote from: Addo1971 on December 21, 2021, 07:04:37 AMI had 6 shockwave sessions in a small clinic in Richmond (London) and I don't think they helped at all. Cost me £2,950 and in my opinion it was a complete rip off.

I am currently trying to recoup some of the cost but I won't hold my breath. It seems they take anyone's money regardless as they know how desperate people are.

I went to the same clinic called MansMatters in Richmond, London for 6 sessions of shockwave therapy.

They are crooks taking advantage of men in a vulnerable position.

Absolute scumbags.

They took £4,370 from me.

The breakdown of what I paid for was £2,995 for 6 sessions of shockwave therapy for treating Peyronies Disease.

They said it's an extra £1,000 to treat Erectile Dysfunction with it. So where I was trusting I went for that costing £3,995.

I was advised to buy a SOMAcorrect from them to help with the treatment costing £375.

At the end of the first shockwave session I paid £4,370 in total on my debit card.

They also provided me with supplements and 2 weeks supply of Tadalafil.

When coming back for my later shockwave sessions they then tried signing me up to a direct debit charged at £50 a month for 30 tablets of 5mg Tadalafil sent to my home address each month.

I set one up to be polite and canceled shortly afterwards.

I ended up going online to purchase Tadalafil at a much cheaper price and ended up buying 4 months supply for £45.

These guys are a disgrace. They just tell lies to get hold of your money.

You've been warned.

I am Portuguese. Currently living in Canada. Been to a few back home to address my condition, before I came here. Been a long time. 10 years. More in the north side of the country.

I think everyone who has been here for a while are very familiar with him. He truly spent an incredible amount of time on here making post after post trying to help people. Such a polite person too, you could truly tell by his posts he was a good hearted fella. The info he spread regarding pumping has been so valuable and appreciated. I still read his old posts from time to time to refresh my memory because I pump.. This place was better with him around. He is sorely missed. Thank you for the tribute post Hawk.

May he rest in peace..

I find myself in the rare position of somewhat disagreeing with what Lwillis said on the issue of pressure after injection.  I also do not make it a habit of disagreeing with doctors, but blood spilling out of blood vessels into tissue CAN cause scarring.  That is a cause of adhesions after surgery.  Pressure after penile injection is a STANDARD recommendation, and I believe it should always be followed, especially if a man is prone to penile scarring.  Having said that, certainly, all bruising or internal spills of whole blood into tissue do not cause scarring, just like all cuts do not result in keloids.  Genetic and other factors come into play.

I echo LWillisJr that there is one good reason to get an implant.  That reason is that ED does not readily respond to oral meds on a man who is unwilling to use a VED or injections (which I recommend against in most cases).  A 2nd less common reason is to straighten a severe bend in certain men.  Loss of size is not a reason unless it is accompanied by a bend or ED that prevents satisfactory intercourse.

If you see a doctor for the first time and he tells you you have not lost size I would ask him how he could possibly know that.  There is only one answer I know of that he could base that on and even that is a weak answer.  If a doctor injects you and does not apply pressure, there is not a lot you can do except say, "I would feel better applying pressure".  Unless a doctor gave me some cutting-edge new research that shows pressure can be detrimental, I would ALWAYS apply pressure IF I ever injected.  There is no need to work the medication around.  That could only be to hurry the process.  I have probably taken close to 50 injections (likely caused my Peyronies Disease), and they give even erections 100% of the time. I would also avoid injections to kill an erection.  Sudafed tablets do the trick fast, and if in doubt, hang out in the Dr. Office waiting room just in case.