Hello. I've gone through two rounds of Xiaflex and am schedule for round 3 next week. I'm hesitant to go thru a third round without getting a second opinion at this point. I see no improvement, just more hourglass, more bend, and fewer erections.
How necessary is it to have the Xiaflex treatments scheduled every 6 weeks? My third round next week is actually after 8 weeks due to scheduling conflicts with my doc. I would like to postpone this third round another month so that I can see another doc in NYC and get another opinion.
If I do end up going with a 3rd round after 12 weeks - or more - will I have defeated the purpose and perhaps the effectiveness of having gone thru rounds 1 and 2 at the typical 6 weeks intervals?
Round 2 of Xiaflex was brutal for me. So painful I was screaming and crying in the office. If I won't benefit from a 3rd round or if another doc has another opinion or options for me, I'd like the chance to consider it. At the same time, I don't want to not finish what I started - or mess up the process by waiting.
Anyone in a similar boat of waiting beyond 6 weeks?
Do you think the xiaflex made the bend and hourglass worse than before? Did you use Restorex afterward for modeling?
I've read a ton about xiaflex both on this board and in general and personally I would be hesitant to use it. Seems like it does more harm than good and the good it does reduces the bend like 20% which isn't a big enough deal for me.
I see a Dr on long island who I think is great and says he does a ton of xiaflex you could try a 2nd opinion with him. Dr David Peters at NYU Langone in bethpage.
Thanks for your reply richie2222. I have been using Restorex. I'm not sure if Xiaflex has made my situation worse or if what I'm experiencing is the normal progression of this disease. I really just want to know if anyone has taken a break before resuming Xiaflex or if that's a bad idea that defeats the purpose of the treatment plan in general. I could use the time for a second opinion.
You could post the question also in the Dr Trost subforum on the board. He's very good with answering people. Also I think I've read that Dr Trost does video calls as well if maybe you call his office
Quote from: swimdad on April 06, 2023, 07:50:57 PMHello. I've gone through two rounds of Xiaflex and am schedule for round 3 next week. I'm hesitant to go thru a third round without getting a second opinion at this point. I see no improvement, just more hourglass, more bend, and fewer erections.
How necessary is it to have the Xiaflex treatments scheduled every 6 weeks?.
Anyone in a similar boat of waiting beyond 6 weeks?
It's not necessary to have xiaflex every 6 weeks. You can postpone treatment.
Xiaflex is only as good as the doctor administering it. Particularly if you have a dorsal curve. This is because hitting target: inside the scar tissue. Is difficult on the dorsal side. Where there are lots of veins, arteries and nerves to navigate through before hitting the inside the scar tissue. Some surgeons are better at this then others.
If your bend is to the bottom side. Succes with xiaflex is much higher. Major arteries, veins and nerves are not there.
As a general rule of thumb. If something is hurting and it's not working. Then personally I would not continue.
I will add I have not had xiaflex treatment. This comes from reading from several people who have had success and failure with xiaflex. Also reading from surgeons. From this site over a 4 year period.
Quote from: swimdad on April 06, 2023, 07:50:57 PMHello. I've gone through two rounds of Xiaflex and am schedule for round 3 next week. I'm hesitant to go thru a third round without getting a second opinion at this point. I see no improvement, just more hourglass, more bend, and fewer erections.
How necessary is it to have the Xiaflex treatments scheduled every 6 weeks? My third round next week is actually after 8 weeks due to scheduling conflicts with my doc. I would like to postpone this third round another month so that I can see another doc in NYC and get another opinion.
If I do end up going with a 3rd round after 12 weeks - or more - will I have defeated the purpose and perhaps the effectiveness of having gone thru rounds 1 and 2 at the typical 6 weeks intervals?
Round 2 of Xiaflex was brutal for me. So painful I was screaming and crying in the office. If I won't benefit from a 3rd round or if another doc has another opinion or options for me, I'd like the chance to consider it. At the same time, I don't want to not finish what I started - or mess up the process by waiting.
Anyone in a similar boat of waiting beyond 6 weeks?
I asked Dr Trost that very question when I was in his office Tuesday. He said there needs to be at least six week between series, but no limit on going longer. In fact , he said the longer between series the better. A long healing process between series seems to help outcomes.
I got this same answer from Dr. Trost. I went over three months between round one and two. And got great results.
Also, with the four week hiatus of no intercouse after the injections, I wasn't about to rush back for another round.
Quote from: danh on April 22, 2023, 08:17:14 AMI got this same answer from Dr. Trost. I went over three months between round one and two. "And got great results".
Also, with the four week hiatus of no intercouse after the injections, I wasn't about to rush back for another round.
What were the great results?
I've go an appointment coming up at the end of June, hoping to be able to try Xiaflex, in addition to RestoreX use. I've been using RestoreX for 20 months.
My results are posted here.
https://www.peyroniesforum.net/index.php?msg=160958