I have very little curvature but pretty moderate to sever ED. I'm 28.
I had multiple injuries that lead to scar tissue and now i have ED.
I'm doing Pentox, cialis, and VED.
Can this be cured over a number of years? Or at least some improvement?
I don't get how it's not at all possible to reverse some of the symptoms.
Doesn't seem like you have been reading anything about your condition. There are plenty of resources on this board about this very subject. unless it's psychological, Ed main remain stable but tends to worsen over time. There is no cure for a complete return to normalcy. Only treatments.
What tests have you done, and what are your plans long term?
Doesn't seem right. Sometimes i get really great erections. Most times i don't. Sometimes even without cialis.
Maybe i should stop the pumping and heat?
It's not permanent. It's not possible. It's possible to reverse some symptoms I'm sure because I've experieced it. I'm just not sure how to do it.
Feel free to believe whatever you think. The medical guidelines say otherwise. Thank you for not answering my questions.
The doctors keep telling me it's psychological. I am100% sure it is not. I've seen so many docs and urologists i can't count anymore.
They brush me off
Have had Doppler w conclusion of scar tissue in base. I think the scarring has gotten worse since then.
Say no further. Not to mention there are more tests. Still not a believer?
Radically improve metabolic health, vitamin D supplementation, altered sexual habits, and exercise did a lot for me. Not sure how I feel about supplements like citrulline, ginseng, pine bark, etc. but they DO help a lot at least in the short term. My best erections and sexual experiences all came after Peyronie's and in my late twenties and now early thirties.
If the plaque is contributing I'd try additional approaches to treatment. Start w the survival guide: Peyronies Survival Guide - Information for New Members - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057)
Adding low dose nightly cialis or viagra and daily VED to pentox could help greatly over time. You may want to ask a doc for an Doppler ultrasound done when erect to test blood flow issues when erect to further determine the cause of your ED.
Great advice in this thread.
I also recommend prolonged fasting and a NoFap flatline.
Depending on what the cause of the ED is, there are cases where it has been improved. Try nofap, VED and cialis daily for 6 months.
Check NeoV's youtube channel and you'll find his traction routine etc. which may help a lot.
I know my ED has improved a bit with the combination of cialis daily, Pentox, traction, heat therapy and VED. Slow and subtle improvements but improvements nonetheless.
Quote from: pfract on June 26, 2019, 03:00:04 AM
Feel free to believe whatever you think. The medical guidelines say otherwise. Thank you for not answering my questions.
My plan long term is to continue with VED, cialis, pentox, heat. It's been 6 months on pentox, 1 year of VED, and I haven't been as regular as I should be with the 3.5 mg cialis.
I think the problem is the flexibility of the smooth muscle, the scar tissue is impeding blood flow and requiring more flow to "open it up".
My thinking is if I can get rid of some of this scar tissue that runs all the way along the left side now then that will drastically improve the function. I'm not looking to be 100% better, I'm just looking to get a somewhat normal erection response without cialis.
Have you looked into TRT and hGH?
There's a study showing 50mg nightly of Viagra cured ED in a large percentage of men who had prostate surgery. See the ED threads on this forum.
I would like to read that study because I am not believing it for a minute.
Men who have prostate surgery have nerve repair for up to 24 months so to attribute their improvement solely to Viagra is bogus.
No doubt Viagra, Trazodone, VED or such do help keep the penile tissue healthy during healing but that is far different than curing Erectile Dysfunction.
Update - regular erections are back
Doing Ved two to 3 times daily for 10 mins each time. Pump to full erection and release as many times as possible.
3.5 cialis at night. Heat 2 times a week for 20 to 1 hour.
If i miss a day of cialis or pumping it gets worse. Planning on doing this for as long as it takes.
I did see the viagra study. Looks promising.
Hi Hawk, Have you seen these? Thoughts?
(The first two are referenced in a comprehensive review of ED: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5027992/#!po=0.247525 )
See below:
https://www.ncbi.nlm.nih.gov/m/pubmed/24603102/
https://www.ncbi.nlm.nih.gov/m/pubmed/18650827/
https://www.ncbi.nlm.nih.gov/m/pubmed/17187165/
https://www.webmd.com/erectile-dysfunction/news/20040513/nightly-viagra-may-restore-normal-erections
Summary of 2004 study:
Nightly Dose of a PDE-5 Shows Potential as Cure for Erectile Dysfunction in Some Men
By Charles Bankhead
San Francisco—A daily bedtime dose of a phosphodiesterase-5 (PDE-5) inhibitor may offer the potential to cure erectile dysfunction (Erectile Dysfunction) in a select patient population, results of a small German study presented at the American Urological Association meeting suggest.
Daily treatment with sildenafil (Viagra) for 12 months resulted in normal erectile function in >50% of a group of men with Erectile Dysfunction. All but 1 of the patients maintained erectile function during 6 months of follow up after the nightly sildenafil dose was discontinued.
"On the basis of these results, I think we can say that treatment with a PDE-5 inhibitor is able to cure erectile dysfunction in selected patients," said Frank Sommer, MD, PhD, professor of urology and Chief of Andrology, University of Cologne. "Patient selection is important, but I am quite convinced that well-selected patients can achieve a cure."
All of the patients had organic etiologies for erectile function or a mix of organic and psychogenic factors. The study did not include patients with pure psychogenic Erectile Dysfunction.
The concept of daily PDE-5 treatment at bedtime arose from the recognition that nocturnal erections occur at all ages and contribute to the maintenance of the integrity of smooth muscle cells in the corpora cavernosum, said Dr Sommer. In addition, short-term studies of nightly sildenafil have demonstrated significant improvement in nocturnal penile erections.
"Nightly treatment may help promote erectile function as a result of the drug's beneficial effect on endothelial cells," said Dr Sommer.
To evaluate the impact of long-term nightly sildenafil, investigators studied 84 men (mean age, 47.1 years) with Erectile Dysfunction of ³6 months' duration. The patients were randomly assigned to receive 50 mg of sildenafil every night before bedtime or 50 to 00 mg of sildenafil, taken in the conventional on-demand manner. A third group of men received no treatment and served as a reference.
Treatment continued for 12 months. Primary efficacy measures were the erectile function domain score on the International Index of Erectile Function (IIEF) at 1 and 6 months after discontinuation of therapy and peak systolic velocity (PSV) of the penile arteries, assessed 1 month after discontinuation of therapy. An IIEF score of ³26 indicated normal erectile function.
After 12 months of treatment, 22 of 34 (64.7%) evaluable patients randomized to nightly sildenafil and 21 of 32 (65.6%) treated on demand had normal erectile function by IIEF criteria. In contrast, only 1 of 18 patients in the reference group had an IIEF score in the normal range. One month after discontinuation of sildenafil, 20 of 34 (58.8%) men on nightly therapy had IIEF scores of at least 26, compared with 3 of 32 in the on-demand group.
Peak systolic velocity of cavernosal arteries showed more improvement in patients treated with nightly sildenafil than either of the other 2 groups. At 13 months, PSV had increased from 29.4 to 38.9 cm/sec in patients on nightly therapy. In the on-demand group, mean PSV increased from 30.1 to 33.1 cm/sec. Peak systolic velocity decreased in the reference group from a mean of 27.6 cm/sec at baseline at 25.5 cm/sec at 13 months.
Among the patients on nightly therapy, 19 of 20 (95%) who had normal IIEF scores for erectile function at 1 month also had normal IIEF scores at 6 months. The 19 patients constituted 55.9% of the entire group.
Follow up will continue in the patients treated with nightly sildenafil to determine whether the impact on erectile function is durable without the need for additional medication.
"To our knowledge, this is the only study to date that has investigated the long-term effects of taking PDE-5 inhibitors on a daily basis," said Dr Sommer. "We need longer follow up to make definite conclusions, but the results indicate that nightly sildenafil at bedtime can cause regression of erectile dysfunction and possible offer a cure for the condition."
Tony, I will pour over the studies in detail, however they do not tell much unless they have a control group.
Saying a man does "A" and a year later is improved tells us nothing about how improved he would have been without "A". Studies dealing with prostatectomy have to take into consideration that normal healing naturally improves erection quality for at least 18 months after surgery even without a PDE5 inhibitor. Clearly no penis should be left without erections for months or years so to the extent they get blood flowing they probably help. There are important things to keep in mind, however. A VED gets the blood flowing and Trazodone gets the blood flowing through NTE's at a cost of only a few cents per night. I also do not know that we can equate recovering from Erectile Dysfunction that is induced by the nerve trauma of prostatectomy with Erectile Dysfunction caused by vascular issues since the system failure in the one has little to do with the other.
The control group was only taking viagra before sex (which is standard treatment, so I believe an adequate control group). trazadone doesnt have the side effect of NTE for all. Also, generic viagra is now pennies a day—see goodrx.com. Look forward to your research.
OK, Tony, I read the full studies. I admit to going a little whacky by the time I was finished. I concede that especially taken in their entirety as a group of studies they are promising and convincing. The only thing that would have been the icing on the cake is if they had been double-blind studies to rule out any placebo effect (the need for that was acknowledged in one of the studies). This is especially important in studies of erection which have an inseparably strong psychological component. However, the contrast between the test and the control groups make it very unlikely in my mind that it could have been offset by a double-blind study.
I knew the outcomes of nerve-sparing surgery were not good but one of the most shocking findings is that the prostatectomy patients with bi-lateral nerve-sparing surgery with good erections before surgery and treatment of Viagra only had about 25% of men recover erectile ability after discontinuing Viagra. Only 4% of those that did not take nightly Viagra after surgery. That is an abysmal commentary on the effectiveness of bilateral nerve-sparing surgery for preserving erectile dysfunction. I had nerve-sparing surgery, took Viagra nightly and injected BiMix at least 2 times per week. The Bimix was a bad mistake for me but the reason this forum exists.
Good job Tony. Thanks for posting these studies.
PS: I also agree that Trazodone does NOT produce NTE's in everyone. It is, however, a very common side-effect with very few other negative side-effects.
PS: I have to think the daily addition of Arginine would have at least slightly helped elevate those numbers.
Thanks, Hawk, I appreciate your willingness to consider and incorporate new findings. Double-blind is the gold standard of course but if we'd wait for that it might be quite a while if ever, especially when generics are involved (viagra now generic) there is little financial incentives to undertake the research.
Hi guys. Just wanted to update.
I've been having major erection problems for over a year. I'm 29 now. The last year or so I've been taking cialis and Pentax in February - 3x daily. I took cialis nightly before bed. Also, VED since August 2017. 1-2 times a day 5 to 10 hg pulse type pumping (so gain erection, release, and so on) for about 5 to 15 mins each session.
I am having a semi regular erection response. Although it takes some working up to, Ive been able to have sex and masturbate without cialis now for about 2 weeks.
I can't believe I'm saying this, but i think things are getting better.
That's amazing news! I don't see any reason why it can't get better and mine certainly has (my erection quality has radically improved even at 32 compared to 20s).
The issues I'm having now are my pelvic floor is very very tight. I need to flex it in order to get proper erectjons. So there's some pain and spazums they i will need to address. But overall getting better.
RedWilly - great to hear about your improvement, it's given me some hope - i'm also considering going back on pentox again.
Try some pelvic floor exercises and barbell squats they may help.
To outline what I did,
I avoided porn 100%, ate more saturated fat and zero or near zero carbs, lifted weights, and masturbation once a week maximum. Fasting and avoiding carbs was revolutionary for my Erectile Dysfunction as well as doing biofeedback in order to stop clenching my pelvic area during stimulation. Five years ago my glans stopped filling out but fasting alone along with carnivore or therapeutic keto completely restored it. Saturated fat is critical for your body to be able to use testosterone properly, yet insulin and carbs with saturated fat is dangerous so do not combine them.
Every day I eat nearly 50 to 100 grams of butter and 500 grams of beef. Once in a while I will go back to some veggies such as broccoli, and have days that I eat olive oil and fish, but usually butter and beef only.
You do not have to trust me on this, and I encourage you to do your own research. If you want to eat veggies and take supplements, you can do that, but I say instead of adding things to aid your vascular health, REMOVE things that cause vascular inflammation first.
NeoV, For clarification, are you saying you put absolutely nothing in your body most days except beef and butter????
I did watch a Joe Rogan podcast where Jordan Peterson and his daughter consume NOTHING but beef salt and water. It sounds totally nuts to me but they swear by it.
Yes Hawk, I go for weeks or months eating nothing but beef and butter, sometimes only one meal a day. I typically eat about 6 eggs a day as well.
I highly recommend subscribing to Dr. Shawn Baker's YouTube channel for in depth information on carnivore. I thought it was crazy at first too, but interestingly, meat basically does everything for you, and since protein is only converted to glucose based on demand, you get all these benefits in your endogenous antioxidant system, meaning your CoQ10 levels are higher, SOD, carnitine levels, and even selenium and other things. You're also getting the meat-only nutrients, carnitine, taurine, creatine (acts like metformin), and others.
Hey Red Willy, do you have any updates on your condition?
NeoV,
So it is more than Meat and butter.
We are now up to Meat, Eggs, Butter, and Water.
Does anything else pass your lips?
You say you go for months at a time. Is that because you decide to come off of this diet after months by decision or is it a matter of just giving into desire and slipping off the diet?
Gene therapy may provide a definitive cure for Erectile Dysfunction in the future. Check out the work of Doctor Arnold Melman, it's fascinating.
With the exception of implants, I guess there are still no cures - only treatments, some more effective than others.
Quote from: mith76 on February 15, 2020, 10:04:57 AM
Hey Red Willy, do you have any updates on your condition?
Yes. Curve is gone, albeit mine was minor. My erections greatly improved with regular cialis, exersise targeting the pelvic floor and glutes, stretching my body.
I think the thing that actually really helped was the daily use of cialis for many months. Every day I would take it.
I am able to achieve an erection without it, but I need to make sure to continue to be active.
The thing that's bugging me now is the loss of girth. I've lost about .25 to .4 in girth.
I'm going to start with 3 hours of traction along with a VED and I will continue to take cialis.
Nice to see improvement, I'm in the same boat my doctor gave viagra but to no effect does your doctor normally give you cialis every visit?
No. I have to fight with my doctor. Sometimes i make multiple appointments to different urologists. These fuxers are so hard to deal with. Even after having an ultrasound they are still reluctant to give me cialis because I'm 29 and "too young".
Quote from: RedWilly on May 13, 2020, 05:09:09 PM
No. I have to fight with my doctor. Sometimes i make multiple appointments to different urologists. These fuxers are so hard to deal with. Even after having an ultrasound they are still reluctant to give me cialis because I'm 29 and "too young".
I've had ED since my mid-twenties (now 40). A recurring theme with medical professionals is prejudice due to my age. Very frustrating, and the constant battle is exhausting.
Does it help if you guys show your doctors the study where daily cialis use for six months reduced penile fibrosis?
I don't understand why they're reluctant to prescribe for peyronies. Combination of Cialis daily + PEntox really made improvement for my condition.
JJ
Any update jj21?
Sorry I missed this, Hawk, yes just butter meat and eggs for carnivore. I never desire anything else, but I end up stopping sometimes and going back to veggies when I want to make it more therapeutic (lower insulin for even less inflammation).